Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Milk?! Thoughts, Veterans, Anyone?


oceangirl

Recommended Posts

oceangirl Collaborator

Hi everyone,

I've been gone for awhile working on a Master's degree... sigh. I've also been very well in the intestine dept., but I just spent three horrible glutened nights! The ONLY different thing is some Cumberland Farms milk. Does one have to be careful of milk? Or has anyone reacted to the Rice Chex? I hate these mysterious culprits and I KNOW when I've had gluten; it's like nothing else!

Thank you!

lisa


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ShayFL Enthusiast

Did you make sure you ate the new rice chex that is certified gluten free? Old boxes might not be. Some people with celiac react to milk/casein the same as gluten.

NorthernElf Enthusiast

I find my sensitivity to dairy to be pretty sporadic. Some days I can get away with dairy, other days forget it ! I can handle a little gluten free pizza with cheese but milk and cookies is too much (ugh, I love gluten-free chocolate chip cookies with a glass of milk). Sometimes I can handle a Dairy Queen sundae, others day I get mild stomach cramps a little while after. Dairy does seem to bloat me a little.

I dunno if it's the lactose of the casein. It might even be linked to a mild glutening - more susceptibility after (my family is not gluten free, just me - so I'm always possibly dealing with cross contamination).

Dairy sensitivity does seem fairly common amoung the celiac crowd.

Katsby Apprentice
I find my sensitivity to dairy to be pretty sporadic. Some days I can get away with dairy, other days forget it ! I can handle a little gluten free pizza with cheese but milk and cookies is too much (ugh, I love gluten-free chocolate chip cookies with a glass of milk). Sometimes I can handle a Dairy Queen sundae, others day I get mild stomach cramps a little while after. Dairy does seem to bloat me a little.

I dunno if it's the lactose of the casein. It might even be linked to a mild glutening - more susceptibility after (my family is not gluten free, just me - so I'm always possibly dealing with cross contamination).

Dairy sensitivity does seem fairly common amoung the celiac crowd.

That is how mine goes too. I can't drink milk or eat icecream, but I am ok with butter or sour cream.

I found this on a site about lactose intolerance:

LACTOSE CONTENT OF COMMON DAIRY FOODS

(The amounts shown for lactose vary because ingredients in products can vary, affecting the lactose content.)

PRODUCT LACTOSE IN GRAMS

Whey, dry (1 oz.)....................................................19-21

Milk, acidophilus skim (1 cup)..................................11

Yogurt, whole milk (1 cup)........................................10-12

Milk, whole (1 cup)...................................................9-14

Buttermilk (1 cup)....................................................9-12

Ice Milk (3/4 cup).....................................................8

Yogurt, lowfat (1 cup)...............................................5-19

Velveeta cheese (11/2 oz.).......................................4

Ice Cream (3/4 cup).................................................3-8

Orange sherbet (3/4 cup).........................................1-2

Half-and-Half, cream, or sour cream (2 Tbs.)..............1

Most hard cheeses (11.5 oz.)...................................1

American cheese, pasteurized processed (1'/2 oz.)....0-6

Ricotta cheese (1/2 cup)..........................................0-6

Cottage cheese, creamed (1/2 cup)..........................0-4

Cream cheese (1.5 oz.)............................................0-1

So that could explain why some things bother us more than others.

Generally speaking I mostly drink soy milk or hemp milk (though hemp is kind of expensive I think). I like Living Harvest. Their vanilla is very creamy and it has a slighty nutty taste. It tastes different than reg milk though and not sure everyone would like it.

oceangirl Collaborator

Thank you both. No, I don't have a problem with dairy. I was dairy-free for 2 years when I first went off gluten and it's been back in for a year now with no issues. I think this company might have some cc issues because I've never bought this type of milk before. And, yes, the Rice Chex say "gluten-free", though I don't trust much processed food- make most things myself and rarely eat any grains actually!

The mystery continues but thank you for your replies!

lisa

Takala Enthusiast

I was wondering what the cows were eating, since on other sections of this blog it is said that mothers that breastfeed can pass gluten in their milk... anyone want to speculate on this possibility ?

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - xxnonamexx replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      30

      My journey is it gluten or fiber?

    2. - trents replied to jenniber's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      Disaccharide deficient, confusing biopsy results, no blood test

    3. - jenniber replied to jenniber's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      Disaccharide deficient, confusing biopsy results, no blood test

    4. - Samanthaeileen1 replied to Samanthaeileen1's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      7

      Thoughts? Non-endoscopic Celiac diagnosis in two year old

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,819
    • Most Online (within 30 mins)
      7,748

    Charlette Jillie-Martinez
    Newest Member
    Charlette Jillie-Martinez
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • xxnonamexx
      Is there a digestive enzyme that helps build a healthier gut? I see people taking them but not sure what really works
    • trents
      So the tTG-IGA at 28 is positive for celiac disease. There are some other medical conditions that can cause elevated tTG-IGA but this is unlikely. There are some people for whom the dairy protein casein can cause this but by far the most likely cause is celiac disease. Especially when your small bowel lining is "scalloped". Your Serum IGA 01 (aka, "total IGA") at 245 mg/dl is within normal range, indicating you are not IGA deficient. But I also think it would be wise to take your doctor's advice about the sucraid diet and avoiding dairy . . . at least until you experience healing and your gut has had a chance to heal, which can take around two years. After that, you can experiment with adding dairy back in and monitor symptoms. By the way, if you want the protein afforded by dairy but need to avoid casein, you can do so with whey protein powder. Whey is the other major protein in dairy.
    • jenniber
      hi, i want to say thank you to you and @trents   . after 2 phone calls to my GI, her office called me back to tell me that a blood test was “unnecessary” and that we should “follow the gold standard” and since my biopsy did not indicate celiac, to follow the no dairy and sucraid diet. i luckily have expendable income and made an appt for the labcorp blood test that day. i just got my results back and it indicates celiac disease i think 😭   im honestly happy bc now i KNOW and i can go gluten free. and i am SO MAD at this doctor for dismissing me for a simple blood test that wouldn’t have cost her anything !!!!!!!!!!! im sorry, im so emotional right now, i have been sick my whole life and never knew why, i feel so much better already   my results from labcorp:   Celiac Ab tTG TIgA w/Rflx Test Current Result and Flag Previous Result and Date Units Reference Interval t-Transglutaminase (tTG) IgA 01 28 High U/mL 0-3 Negative 0 - 3 Weak Positive 4 - 10 Positive >10 Tissue Transglutaminase (tTG) has been identified as the endomysial antigen. Studies have demonstrated that endomysial IgA antibodies have over 99% specificity for gluten sensitive enteropathy. Immunoglobulin A, Qn, Serum 01 245 mg/dL 87-352
    • JoJo0611
      Thank you this really helped. 
    • Samanthaeileen1
      Okay that is really good to know. So with that being positive and the other being high it makes sense she diagnosed her even without the endoscopy. So glad we caught it early. She had so many symptoms though that to me it was clear something was wrong.   yeah I think we had better test us and the other kids as well. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.