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What A Wonderful Community

ohsotired

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ohsotired Enthusiast
ohsotired
Posted

I'm fairly new here, and I found this website while looking for answers to my own issues.

There are enough posts here that sound eerily familiar to my own situation that I felt the need to sign up and participate here.

I'm undiagnosed, but fresh into a gluten-free diet (this is day 3) to see if helps - and so far, so good.

It's great to see a community full of such caring people, and I hope to make a few friends along the way that understand what I'm going through. I won't post my big long history here, but it's available in my blog if you care to read it. ;)

I just wanted to say Thanks for such a great resource. I've learned so much in a very short time.

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Lisa Mentor
Lisa
Posted

Welcome!

I remember when I first arrived here. So many people were here to hold my hand and help me through the world of Celiac.

I hope you feel at home here and if we can help in any way, please ask.

ohsotired Enthusiast
ohsotired
Posted
  • Author

Thanks for the welcome, Momma Goose. :)

I guess that's kind why I'm here, for the hand holding. LOL I've felt like I've been enduring all of this by myself, since I don't *look* sick, I just feel sick most of the time.

I do already feel pretty at home here, because I see myself in so many of the posts written here.

Hopefully I can keep learning about celiac disease and gluten intolerance and help someone else down the road.

Thanks again! I look forward to be an active part of this community.

jerseyangel Proficient
jerseyangel
Posted

I want to add my welcome :D

You've definately come to the right place for support! When I stumbled on this site, I was floored to see people discussing all of the things I had been dealing with for so long. I had never been part of an on-line group, worse yet, I wasn't computer literate and had to ask my son how to post! :lol: I just knew I had to be a part of this!

Let us know how we can help :)

lizard00 Enthusiast
lizard00
Posted

Wanted to add my welcome too!!!

This website helped A LOT, especially in the beginning. I am glad you feel welcome here and please feel free to ask away. The forum is full of incredibly knowledgable and caring people who are always ready to help!! :D

ohsotired Enthusiast
ohsotired
Posted
  • Author

Thanks jerseyangel and lizard00!

I'm still reading and reading and reading and trying to absorb all of this new information, but I will most certainly be asking question soon!

Thanks again all!

curlyfries Contributor
curlyfries
Posted

Welcome aboard!!! :D

Like you, when I found this forum, I read tons of old threads. There was so much information to absorb that I now keep a binder for all my notes. I have numerous sections: Safe Foods, Unsafe Foods, Supplements, Books and Publications, Websites, Restaurants and Menus, Recipes, and also a section for related issues. My daughter has finally decided she needs to be gluten-free so I will probably let her borrow it. ;)

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ohsotired Enthusiast
ohsotired
Posted
  • Author

curlyfries, thanks for the welcome!

I've been reading tons of old threads too, and I suppose I should be saving the information as well!

Maybe you should make copies of your binder for sale. ;) J/K!

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      - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
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      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

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    • knitty kitty
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By knitty kitty · Posted

      @Jane02, I hear you about the kale and collard greens.  I don't do dairy and must eat green leafies, too, to get sufficient calcium.  I must be very careful because some calcium supplements are made from ground up crustacean shells.  When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly.  This is safe and nontoxic.  Vitamin D level should be above 70 nmol/L.  Lifeguards and indigenous Pacific Islanders typically have levels between 80-100 nmol/L.   Levels lower than this are based on amount needed to prevent disease like rickets and osteomalacia. We need more thiamine when we're physically ill, emotionally and mentally stressed, and if we exercise like an athlete or laborer.  We need more thiamine if we eat a diet high in simple carbohydrates.  For every 500 kcal of carbohydrates, we need 500-1000 mg more of thiamine to process the carbs into energy.  If there's insufficient thiamine the carbs get stored as fat.  Again, recommended levels set for thiamine are based on minimum amounts needed to prevent disease.  This is often not adequate for optimum health, nor sufficient for people with absorption problems such as Celiac disease.  Gluten free processed foods are not enriched with vitamins like their gluten containing counterparts.  Adding a B Complex and additional thiamine improves health for Celiacs.  Thiamine is safe and nontoxic even in high doses.  Thiamine helps the mitochondria in cells to function.  Thiamine interacts with each of the other B vitamins.  They are all water soluble and easily excreted if not needed. Interesting Reading: Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/ Safety and effectiveness of vitamin D mega-dose: A systematic review https://pubmed.ncbi.nlm.nih.gov/34857184/ High dose dietary vitamin D allocates surplus calories to muscle and growth instead of fat via modulation of myostatin and leptin signaling https://pubmed.ncbi.nlm.nih.gov/38766160/ Safety of High-Dose Vitamin D Supplementation: Secondary Analysis of a Randomized Controlled Trial https://pubmed.ncbi.nlm.nih.gov/31746327/ Vitamins and Celiac Disease: Beyond Vitamin D https://pmc.ncbi.nlm.nih.gov/articles/PMC11857425/ Investigating the therapeutic potential of tryptophan and vitamin A in modulating immune responses in celiac disease: an experimental study https://pubmed.ncbi.nlm.nih.gov/40178602/ Investigating the Impact of Vitamin A and Amino Acids on Immune Responses in Celiac Disease Patients https://pmc.ncbi.nlm.nih.gov/articles/PMC10814138/
    • Jane02
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Jane02 · Posted

      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency.  I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently meet from my diet is vitamin D. Calcium is a hit and miss as I rely on vegetables, dark leafy greens as a major source, for my calcium intake. I'm able to meet it when I either eat or juice a bundle of kale or collard greens daily haha. My thiamine intake is roughly 120% of my needs, although I do recognize that I may not be absorbing all of these nutrients consistently with intermittent unintentional exposures to gluten.  My vitamin A intake is roughly 900% (~6400 mcg/d) of my needs as I eat a lot of sweet potato, although since it's plant-derived vitamin A (beta-carotene) apparently it's not likely to cause toxicity.  Thanks again! 
    • knitty kitty
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By knitty kitty · Posted

      Hello, @Jane02,  I take Naturewise D 3.  It contains olive oil.   Some Vitamin D supplements, like D Drops, are made with fractionated coconut oil which can cause digestive upsets.  Fractionated coconut oil is not the same as coconut oil used for cooking.  Fractionated coconut oil has been treated for longer shelf life, so it won't go bad in the jar, and thus may be irritating to the digestive system. I avoid supplements made with soy because many people with Celiac Disease also react to soy.  Mixed tocopherols, an ingredient in Thornes Vitamin D, may be sourced from soy oil.  Kirkland's has soy on its ingredient list. I avoid things that might contain or be exposed to crustaceans, like Metagenics says on its label.  I have a crustacean/shellfish/fish allergy.  I like Life Extension Bioactive Complete B Complex.  I take additional Thiamine B 1 in the form Benfotiamine which helps the intestines heal, Life Extension MegaBenfotiamine. Thiamine is needed to activate Vitamin D.   Low thiamine can make one feel like they are getting glutened after a meal containing lots of simple carbohydrates like white rice, or processed gluten free foods like cookies and pasta.   It's rare to have a single vitamin deficiency.  The water soluble B Complex vitamins should be supplemented together with additional Thiamine in the form Benfotiamine and Thiamine TTFD (tetrahydrofurfuryl disulfide) to correct subclinical deficiencies that don't show up on blood tests.  These are subclinical deficiencies within organs and tissues.  Blood is a transportation system.  The body will deplete tissues and organs in order to keep a supply of thiamine in the bloodstream going to the brain and heart.   If you're low in Vitamin D, you may well be low in other fat soluble vitamins like Vitamin A and Vitamin K. Have you seen a dietician?
    • Scott Adams
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Scott Adams · Posted

      I do not know this, but since they are labelled gluten-free, and are not really a product that could easily be contaminated when making them (there would be not flour in the air of such a facility, for example), I don't really see contamination as something to be concerned about for this type of product. 
    • trents
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By trents · Posted

      Contact them.
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