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Here's A Site With Photos Of Mild Dh!

anerissara

By anerissara
in Dermatitis Herpetiformis

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anerissara Enthusiast
anerissara
Posted

I just found a site that has pictures of mild dh and dh in areas other than arms and legs! I had been wondering if what I had on my hands was really dh and the photos on this site look exactly like what I've got. Ah ha! It's a relief to see that not all cases look like the "worst case senerio" photos I've seen until now.

Here's the site: Open Original Shared Link

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gf4life Enthusiast
gf4life
Posted

I have the DH mainly on my scalp. This is the first place it occured and was there off and on for years. I would occasionally get a few spots on my arms. When I was doing the gluten challenge for the intestinal biopsy (after being gluten free) I got it really bad on my palms. It was horrible. This was the best photo I have seen of it on the palm, and it looks exactly like mine was. I know when I have gotten gluten because along with the tumm7y troubles I break out along the hair line on my neck! I probably would have a diagnosis now if I had been able to get to a dermatologist. I was so sick though and couldn't wait to get gluten free again! I couldn't wait for the referral and then wait months to be seen and biopsied. I knew what was wrong with me and so I went on the diet. I am so glad that I did. So far things have been fine without the "official" diagnosis. I've also heard that for insurance reasons it is sometimes good NOT to have a diagnosis. I just would have been happy to rub my GI doctors faces in the diagnosis. They all swear that I am not Celiac! Yet you have to be Celiac to have DH. Go figure.

Thanks for posting the site link. :)

God bless,

Mariann

Professor Rookie
Professor
Posted

I've had DH on the back of my neck often (at the hairline), backs of my knees, and once even on my stomach! This was after inpatient surgery, back when I used to be really clueless and believe that hospital dieticians DID know how to keep my meals gluten-free. So, even though my tummy was killing me, I still went to a dermatologist, who did a biopsy of the skin (2 more stitches for my tummy! :P ), and it came back DH. Then I knew I'd been "glutened."

It can be ANYWHERE! And miserable -- all that burning and itching! Argh! :(

Patty

  • 6 months later...
BabySnooks Rookie
BabySnooks
Posted

Hi,

I was diagnosed in July. I am having colon surgery to remove a large polyp on Tuesday. Today I noticed the inside of my belly button is very red and hurts when I touch it. Does anyone know if it could be related to Celiac?

I will be calling the doctor in the morning.

Thanks :(

ravenwoodglass Mentor
ravenwoodglass
Posted
Hi,

I was diagnosed in July.  I am having colon surgery to remove a large polyp on Tuesday.  Today I noticed the inside of my belly button is very red and hurts when I touch it.  Does anyone know if it could be related to Celiac?

I will be calling the doctor in the morning.

Thanks :(

<{POST_SNAPBACK}>

I get this sometimes if I am using tolietries or detergents with gluten.

Rachel--24 Collaborator
Rachel--24
Posted
I get this sometimes if I am using tolietries or detergents with gluten.

<{POST_SNAPBACK}>

Toiletries have gluten? What kind of toiletries? Do we have to worry about stuff like toilet paper too! Sheeesh....does it ever end?

cgilsing Enthusiast
cgilsing
Posted

I had never seen a picture of df. I had suspected that the itchy, painful bumps I got on my hand and on my elbows was df, considering that they seem to correspond with my digestive woes, but I wasn't sure. But oh yeah...that's it! I get it really bad on just one little triangular spot above my left ring finger. When I got married (before I was diagnosed) I was afraid to show people my wedding ring because my hand looked so bad! :rolleyes: Thanks for the pictures! Hey does anybody know why it affects certain areas of skin and not others? It seems strange to me that my left hand gets it and my right one doesn't...

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JLK Rookie
JLK
Posted

I found these pictures particularly helpful.

Open Original Shared Link

I have been lucky with this manifestation of celiac. Only 2-3 small blisters on my legs (maybe just my right leg -- wasn't paying close attention earlier on) that have come and gone over the summer. I thought they were insect bites until recently, even though I had never been bitten by anything in the past that left a blister, and I couldn't remember being bitten as I usually do. It's the watery then crusty blister which convinced me. And they lasted longer than an insect bite would, a couple weeks, even without scratching. I used witchhazel solution on them which helped enormously for the itch...but now I wonder about the witchhazel because it has 15% alcohol in it. Alcohol from what source? I am getting paranoid!

Judi

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    • Mari
      My only proof

      By Mari · Posted

      Years  ago a friend and I drove north into Canada hoping to find a ski resort open in late spring,We were in my VW and found a small ski area near a small town and started up this gravelled road up a mountain. We  got about halfway up and got stuck in the mud. We tried everything we could think of but an hour later we were still stuck. Finally a pickup came down the road, laughed at our situation, then pulled the VW free of the mud. We followed him back to the ski area where where he started up the rope ski lift and we had an enjoyable hour of skiing and gave us a shot of aquavit  before we left.It was a great rescue.  In some ways this reminds me of your situation. You are waiting for a rescue and you have chosen medical practitioners to do it now or as soon as possible. As you have found out the med. experts have not learned how to help you. You face years of continuing to feel horrible, frustrated searching for your rescuer to save you. You can break away from from this pattern of thinking and you have begun breaking  away by using some herbs and supplements from doTerra. Now you can start trying some of the suggestions thatother Celiacs have written to your original posts.  You live with other people who eat gluten foods. Cross contamination is very possible. Are you sure that their food is completely separate from their food. It  is not only the gluten grains you need to avoid (wheat, barley, rye) but possibly oats, cows milk also. Whenever you fall back into that angry and frustrated way of thinking get up and walk around for a whild. You will learn ways to break that way of thinking about your problems.  Best wishes for your future. May you enjpy a better life.  
    • marion wheaton
      Are Lindt chocolate balls gluten free?

      By marion wheaton · Posted

      Thanks for responding. I researched further and Lindt Lindor chocolate balls do contain barely malt powder which contains gluten. I was surprised at all of the conflicting information I found when I checked online.
    • trents
      Are Lindt chocolate balls gluten free?

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      @BlessedinBoston, it is possible that in Canada the product in question is formulated differently than in the USA or at least processed in in a facility that precludes cross contamination. I assume from your user name that you are in the USA. And it is also possible that the product meets the FDA requirement of not more than 20ppm of gluten but you are a super sensitive celiac for whom that standard is insufficient. 
    • BlessedinBoston
      Are Lindt chocolate balls gluten free?

      By BlessedinBoston · Posted

      No,Lindt is not gluten free no matter what they say on their website. I found out the hard way when I was newly diagnosed in 2000. At that time the Lindt truffles were just becoming popular and were only sold in small specialty shops at the mall. You couldn't buy them in any stores like today and I was obsessed with them 😁. Took me a while to get around to checking them and was heartbroken when I saw they were absolutely not gluten free 😔. Felt the same when I realized Twizzlers weren't either. Took me a while to get my diet on order after being diagnosed. I was diagnosed with small bowel non Hodgkins lymphoma at the same time. So it was a very stressful time to say the least. Hope this helps 😁.
    • knitty kitty
      My only proof

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