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Celiac With Negative Test Results?

Marleigh

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Marleigh Rookie
Marleigh
Posted

I suspect that I have a problem with gluten, and I have a doctor's appointment Wednesday. I'm continuing to eat gluten products (normal for me) until then, because I intend to ask her to order tests for me. But if the results are inconclusive or the doctor won't order the tests, I'm thinking of trying the diet anyway. How many here have discovered you're gluten intolerant after negative test results?

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Lisa Mentor
Lisa
Posted

These are the test that your doctor should order: (all of them)

Anti-gliadin antibodies (AGA) both IgA and IgG

Anti-endomysial antibodies (EMA) - IgA

Anti-tissue transglutaminase antibodies (tTG) - IgA

Total IgA level.

....good luck!

Katsby Apprentice
Katsby
Posted

My GI told me that the bloodtests are wrong 30% of the time. I've had negative test results, but I'm still gluten intolerant. I know because the diet works for me. After all your tests are done and even if you show to be negative, if a gluten free diet works for you, I say keep with it.

ginnym Newbie
ginnym
Posted

I've also had negative tests but have responded superbly well to a gluten free diet so my doctors are suggesting it might be a gluten intolerance but not coeliac.

Does anyone know if a non-coeliac gluten intolerance is permanent like coeliac or is it something you can recover from over time and then re-introduce gluten into the diet?

Amyleigh0007 Enthusiast
Amyleigh0007
Posted

My Celiac blood tests were negative but I know I have some sort of gluten problem. If it's not Celiac then it's an allergy or intolerance. I did go gluten free when my son was diagnosed in March (and felt great!) and I think that's why my tests were negative (I didn't know to stay on gluten). My doctor didn't want to hear that. He basically said that I am negative and that is that, end of story, see ya later. I am going to an allergist in August (the earliest they can take me!) and I hope I get some answers!

StrongerToday Enthusiast
StrongerToday
Posted

My test results were all "normal". My dr. told me that if eating gluten free made me feel better, I should do it! He made the analogy of if it hurts when you shut your hand in the car door, do you need a test to tell you that you should stop doing that? Made sense to me!

brizzo Contributor
brizzo
Posted

I had a negative blood test. I suspect it was because I was gluten free for 3 months prior to the test. Therefore, no antibodies to gluten. Keep eating that gluten at least until you test, in order to get accurate results. My dr wanted me to go back on Gluten for 30 days to test again. NO WAY!!!! I am not going through a month of torture!!!! Just to conclude what I already know, and that is..... I eat gluten=I break out, I stop eating gluten=rash goes away. Good enough for me!

Good Luck

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    • trents
      how much gluten do I need to eat before blood tests?

      By trents · Posted

      I might suggest you consider buckwheat groats. https://www.amazon.com/Anthonys-Organic-Hulled-Buckwheat-Groats/dp/B0D15QDVW7/ref=sr_1_4_pp?crid=GOFG11A8ZUMU&dib=eyJ2IjoiMSJ9.bk-hCrXgLpHqKS8QJnfKJLKbKzm2BS9tIFv3P9HjJ5swL1-02C3V819UZ845_kAwnxTUM8Qa69hKl0DfHAucO827k_rh7ZclIOPtAA9KjvEEYtaeUV06FJQyCoi5dwcfXRt8dx3cJ6ctEn2VIPaaFd0nOye2TkASgSRtdtKgvXEEXknFVYURBjXen1Nc7EtAlJyJbU8EhB89ElCGFPRavEQkTFHv9V2Zh1EMAPRno7UajBpLCQ-1JfC5jKUyzfgsf7jN5L6yfZSgjhnwEbg6KKwWrKeghga8W_CAhEEw9N0.eDBrhYWsjgEFud6ZE03iun0-AEaGfNS1q4ILLjZz7Fs&dib_tag=se&keywords=buckwheat%2Bgroats&qid=1769980587&s=grocery&sprefix=buchwheat%2Bgroats%2Cgrocery%2C249&sr=1-4&th=1 Takes about 10 minutes to cook. Incidentally, I don't like quinoa either. Reminds me and smells to me like wet grass seed. When its not washed before cooking it makes me ill because of saponins in the seed coat. Yes, it can be difficult to get much dietary calcium without dairy. But in many cases, it's not the amount of calcium in the diet that is the problem but the poor uptake of it. And too much calcium supplementation can interfere with the absorption of vitamins and minerals in general because it raises gut pH.
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    • catnapt
      how much gluten do I need to eat before blood tests?

      By catnapt · Posted

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    • trents
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