Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

A Few Questions, Need Advice


peetred

Recommended Posts

peetred Rookie

NO this is not for me, it is for my son who is on a gluten free diet at the moment. He is 2 and blood tests are negative, but shows symptoms when eating gluten.

Where is the best place for me to find out ahead of time what places we can eat at and what he can eat, especially concerning fast food. Some places have lists, some do not.. and I don't always trust the people at the drive through window that they actually checked to see what was in their food! Namely I am thinking of Burger King, Mcdonalds, Wendy's (they seem pretty celiac friendly), etc. I know there is practically nothing he can have at most places like Dairy Queen, etc... but some I don't know. Like Wendy's has gluten free hamburger meat but what about Burger king?

Secondly, we have seen improvement in our son but still has symptoms. It doesn't help that he may still be getting traces of Gluten that we are working on, and everyone offers him food wherever we go it seems. But, we want to be sure he doesn't have any other food intolerances or allergies... is it possible to find these things out this young and how? His main symptom is foul smelling diarrhea (he was 2 and had never had a formed bowel movement until we started Gluten free), but his symptoms havn't been night and day since we started Gluten free, so we are hoping to make sure he doesn't have any other problems as well.

I guess I just need people to talk to!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Rosewynde Rookie

If you want to track it down keep track of what he eats and how he feels after. The best way to track this is avoiding eating out so you know the ingredients of everything. Testing by doctors doesn't always help though it's worth trying that too. You might just get told it's IBS.

As for restaurants, I can tell you what I do but it all has potential for problems. For general stuff look it up online do searches on a restaurant's name and the keywords gluten and/or allergy. Usually I get a good idea if it's safe just from that. You can also call ahead and ask a manager they can frequently tell you where to get the information on specific ingredients or look themselves.

I do have a personal list of fairly safe fast food places because we do long family car trips frequently. McDonalds, Carls, Dairy Queen, and In-N-Out all have safe burgers if you get them in a lettuce wrap (otherwise known as protein style or low carb). Always inform them you have what amounts to a wheat allergy and any crumbs on your burger could make you very sick ( most people have no idea what Celiac Disease or gluten is ; D). I haven't yet tried Burger King or Wendys. Hamburgers or unseasoned or unmarinated meat are typically safe at most places just ask a lot of questions.

Sauces that I use that I know are safe: Mcdonalds ketchup, In-N-Out's special sauce, Carl's Guacamole mix, Dairy Queens ultimate sauce. Keep in mind if sauces are squeezed or dropped onto items and you've checked the ingredients they are safe. If they are spread on with the same tool as is used for the bread they are not, I always ask. I've never had problems with tomato's or onions at any of these places.

French fries are not safe EXCEPT at In-N-Out. All other places share frying vats with battered items or have additives that have gluten or dairy. I haven't tried it but i heard somewhere that Wendy's plain baked potatoes are safe (no toppings). Best bet, is if you want a variety to go along with your meal carry safe rice cakes or chips in your car. Safe dried fruits, cereal, and nuts also work really well for on the go snacks. I also use Laura Bars and the rice ones from Environkids but they're expensive so I use them sparingly.

mamaw Community Regular

Hi & welcome

You are doing the right thing for your son & I want to say Thank YOU. Some just flip this off ... It will take time & trial & error will happen. The point is you are trying & willing to learn to help your son have a happy healthy life... Kudos to you.

I know that Red Robin has a gluten-free menu , Smokey Bones, Wendy's, chik -fil-lay.

Taco Bell now has wheat in the meat so that's no more. Chuckie Cheese allows us to bring in our own pizza & they will bake it on foil for us.

Dairy Queen has a gluten-free menu but i don't trust them making a blizzard , the cc with the spoons is a bit scary for me. We get vanilla or choc soft serve or milkshakes.

Alot of places when we know ahead of time , we take a bun with us....

Panera bread has a gluten-free menu, our kids love the gluten-free d soup there.

Good luck

mamaw

ShayFL Enthusiast

Pei Wei and Chipotle have gluten-free.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,140
    • Most Online (within 30 mins)
      7,748

    KP009
    Newest Member
    KP009
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      My migraines generally have their onset during the early morning hours as well. Presently, I am under siege with them, having headaches all but two days so far this month. I have looked at all the things reported to be common triggers (foods, sleep patterns, weather patterns, stress, etc.). Every time I think I start to see a pattern it proves not to pan out in the long run. I'm not sure it's any one thing but may, instead, be a combination of things that coalesce at certain times. It's very frustrating. The medication (sumatriptan or "Imatrix") is effective and is the only thing that will quell the pain. NSAIDs, Tylenol, even hydrocodone doesn't touch it. But they only give you 9 does of sumatriptan a month. And it doesn't help that medical science doesn't really know what causes migraines. They know some things about it but the root cause is still a mystery.
    • Scott Adams
      These are labeled gluten-free: https://www.amazon.com/Corn-Husks-Tamales-Authentic-Flavorful/dp/B01MDSHUTM/
    • Wheatwacked
      Just a gluten free diet is not enough.  Now you have to identify and replenish your malnutrition.  Celiac disease is co-morbid with malabsorption syndrome.  Low vitamin D, Low Thiamine caused Gastointeston Beriberi, low choline, low iodine are common the general population, and in newly diagnosed Celiacs in the western culture its is more likely.  It takes time to heal and you need to focus on vitamins and minerals.  Gluten free foods are not fortified like regular processed foods.  
    • Sarah Grace
      Dear Kitty Since March I have been following your recommendations regarding vitamins to assist with various issues that I have been experiencing.  To recap, I am aged 68 and was late diagnosed with Celiac about 12 years ago.  I had been experiencing terrible early morning headaches which I had self diagnosed as hypoglycaemia.  I also mentioned that I had issues with insomnia, vertigo and brain fog.   It's now one year since I started on the Benfotiamine 600 mg/day.  I am still experiencing the hypoglycaemia and it's not really possible to say for sure whether the Benfotiamine is helpful.  In March this year, I added B-Complex Thiamine Hydrochloride and Magnesium L-Threonate on a daily basis, and I am now confident to report that the insomnia and vertigo and brain fog have all improved!!  So, very many thanks for your very helpful advice. I am now less confident that the early morning headaches are caused by hypoglycaemia, as even foods with a zero a GI rating (cheese, nuts, etc) can cause really server headaches, which sometimes require migraine medication in order to get rid off.  If you are able to suggest any other treatment I would definitely give it a try, as these headaches are a terrible burden.  Doctors in the UK have very limited knowledge concerning dietary issues, and I do not know how to get reliable advice from them. Best regards,
    • knitty kitty
      @rei.b,  I understand how frustrating starting a new way of eating can be.  I tried all sorts of gluten-free processed foods and just kept feeling worse.  My health didn't improve until I started the low histamine AIP diet.  It makes a big difference.   Gluten fits into opioid receptors in our bodies.  So, removing gluten can cause withdrawal symptoms and reveals the underlying discomfort.  SIBO can cause digestive symptoms.  SIBO can prevent vitamins from being absorbed by the intestines.  Thiamine insufficiency causes Gastrointestinal Beriberi (bloating, abdominal pain, nausea, diarrhea or constipation).  Thiamine is the B vitamin that runs out first because it can only be stored for two weeks.  We need more thiamine when we're sick or under emotional stress.  Gastric Beriberi is under recognised by doctors.  An Erythrocyte Transketolace Activity test is more accurate than a blood test for thiamine deficiency, but the best way to see if you're low in thiamine is to take it and look for health improvement.  Don't take Thiamine Mononitrate because the body can't utilize it well.  Try Benfotiamine.  Thiamine is water soluble, nontoxic and safe even at high doses.  I thought it was crazy, too, but simple vitamins and minerals are important.  The eight B vitamins work together, so a B Complex, Benfotiamine,  magnesium and Vitamin D really helped get my body to start healing, along with the AIP diet.  Once you heal, you add foods back in, so the AIP diet is worth doing for a few months. I do hope you'll consider the AIP diet and Benfotiamine.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.