Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Headaches


texas

Recommended Posts

texas Apprentice

Do anyones experience headaches even with being gluten free? I also gave up dairy and know I haven't been glutened.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Mariela Newbie
Do anyones experience headaches even with being gluten free? I also gave up dairy and know I haven't been glutened.

Hi Texas!

Three years ago I was eating gluten without knowing it and I had vertigo attacks, migraines and general weakness. The neurologist said that I had some "Partial Convulsive Syndrome", nothing conclusive, and did not care about the fact that I am Celiac.

On my own I checked everything I ate and found gluten in Dannon Yogurt, which I had almost every day. Now, three years later, I do not have all of those balance problems but I still get bad headaches about twice a month. Only migraine pain relievers help, but sometimes they can only lessen the pain. They are pretty bad. I eat dairy, soy, anything else, I do not think those affect me, but I could not find a link between a certain food and my headaches. And I know I am gluten-free, but I the headaches always come back.

Have you noticed anything that you may eat before having an episode? They say that cheese and chocolate may trigger them, although I do not think that I have eaten them before my episodes. May be you have some kind of migraine. Why did you give up dairy?

Good luck!

veggienft Rookie
.......On my own I checked everything I ate and found gluten in Dannon Yogurt, which I had almost every day.......

According to Dannon:

Open Original Shared Link

------------------------------------------------------------------

.....DANNON yogurt products are not

formulated to contain gluten, but they cannot be labeled as

gluten safe because DANNON

LuvMoosic4life Collaborator

I have been getting more headaces since being gluten free...maybe its withdrawl/body re-adjustment??

But I have also had a few other problems as a result of going gluten-free so the headaces could be related to that too, its so hard to pinpoint exactly where problems come from....

Shelly D. Newbie

Your profile and your name don't really specify a gender so I'll pass on my migraine problems and what I do to help. Some of my migraines are because I was in a carwreck about 25 years ago (that started them) and the only relief I've found is regular Chiropractic adjustments. Another reason I get migraines is related to hormomal shifts during my monthly cycle. Estrogen can be a bear sometimes! Hormone levels peak and drop 2x per month (ovulation and menses). I also get headaches when the weather changes quickly. I use Maxalt-mlt for these headaches with some success. The best thing you can do is to keep a log of signs and symptoms for a few months to see what kind of a pattern develops.

darlindeb25 Collaborator

Just a note about Dannon yogurt--Dannon can't be trusted. They have been notorious over the years for being unsafe and the only yogurts they will list as safe are plain yogurts...most of us do not want plain. Besides the fact, they do not dedicate their lines.

Now, for the headaches. There are many reasons for headaches, outside of celiac disease. My neurologist just diagnosed me with sleep apnea, which I had never thought about, and yes, headache is a major symptom. I also am getting physical therapy on my neck and shoulder, the muscles are all very tight, another cause for headaches. Work stress is a very big cause of headaches, stress of any kind, for that matter. Other allergies too.

ShayFL Enthusiast

I have suffered from migraines for about 7 years. I never had them until I was in a car accident. But I only got them right around ovulation and menses. So I dont know if the car accident was an initial trigger with hormones taking over.

I went gluten-free the beginning of April this year and have not had a single migraine so far. And I was at 2 a month. So this is great news for me!!

I also have vertigo/balance problems. And neuropathy in my hands and feet. The neuropathy is improving. And the vertigo was also becoming less pronounced.

However, I glutened myself on Friday night and have spent the entire weekend praying to God, Alah, Buddha and all the saints to make the room stop spinning. I am back to normal today.

Now back to the headaches. I did remove gluten, but at the same time started taking 400 mg of vitamin B2 and 200 mg of CoQ10 (both of which have been proven in trials to reduce migraine attacks and intensity). So mine was a three pronged approach and I cannot say for certain which one did the most to help.

But after being glutened and seeing how it affects me neurologically, I know it def. played a part in getting rid of the headaches.

I am in the process of lowering the B2 and CoQ to see what happens.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



marie06 Rookie

Hello, I think you are suffering with migraines. If so have you ruled out them being caused by MSG (Mono sodium glutamate)? I get migraines from MSG, NitrAtes (not nitrites) and sudafed. Keeping them out of my diet keeps me migraine free. I have just recently been gluten and casein free and I am HOPING that it will eventually rid me of the tension headache that I have had since early 1999 (24/7). Good luck!

PS MSG in all its forms (that *I* know of):

* Food Additives that ALWAYS contain MSG *

Monosodium Glutamate

Hydrolyzed Vegetable Protein

Hydrolyzed Protein

Hydrolyzed Plant Protein

Plant Protein Extract

Sodium Caseinate

Calcium Caseinate

Yeast Extract

Textured Protein (Including TVP)

Autolyzed Yeast

Hydrolyzed Oat Flour

Corn Oil

From Autism book:E621, sodium hydrogen l-glutamate, flavour enhancer, aji-no-moto

* Food Additives That FREQUENTLY Contain MSG *

Malt Extract

Malt Flavoring

Bouillon

Broth

Stock

Flavoring

Natural Flavors/Flavoring

Natural Beef Or Chicken Flavoring

Seasoning

Spices

* Food Additives That MAY Contain MSG Or Excitotoxins *

Carrageenan

Enzymes

Soy Protein Concentrate

Soy Protein Isolate

Whey Protein Concentrate

Also: Protease Enzymes of various sources can release excitotoxin amino

acids from food proteins.

veggienft Rookie
Dannon can't be trusted.

You did not source or document this statement. Please do so.

Has Dannon lied about their yogurt?

..

darlindeb25 Collaborator
You did not source or document this statement. Please do so.

Has Dannon lied about their yogurt?

Years of experience, that's my source. We used to call Dannon, ask gluten free status, they would never answer. Then they told us (my sister and I) they do not use dedicated lines--they told us, THEY are the source. Dannon states they will not say gluten free, and this is from your own post:

.....DANNON yogurt products are not

formulated to contain gluten, but they cannot be labeled as

gluten safe because DANNON

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,542
    • Most Online (within 30 mins)
      7,748

    Carol Zimmer
    Newest Member
    Carol Zimmer
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Jsingh
      Hi,  I care for my seven year old daughter with Celiac. After watching her for months, I have figured out that she has problem with two kinds of fats- animal fat and cooking oils. It basically makes her intestine sore enough that she feels spasms when she is upset. It only happens on days when she has eaten more fat than her usual every day diet. (Her usual diet has chia seeds, flaxseeds, and avocado/ pumpkin seeds for fat and an occasional chicken breast.) I stopped using cooking oils last year, and when I reintroduced eggs and dairy, both of which I had held off for a few months thinking it was an issue of the protein like some Celiac patients habe mentioned to be the case, she has reacted in the same fashion as she does with excess fats. So now I wonder if her reaction to dairy and eggs is not really because of protein but fat.   I don't really have a question, just wondering if anyone finds this familiar and if it gets better with time.  Thank you. 
    • Chanda Richard
      Hello, My name is Chanda and you are not the only one that gose through the same things. I have found that what's easiest for me is finding a few meals each week that last. I have such severe reactions to gluten that it shuts my entire body down. I struggle everyday with i can't eat enough it feels like, when I eat more I lose more weight. Make sure that you look at medication, vitamins and shampoo and conditioner also. They have different things that are less expensive at Walmart. 
    • petitojou
      Thank you so much! I saw some tips around the forum to make a food diary and now that I know that the community also struggles with corn, egg and soy, the puzzle pieces came together! Just yesterday I tried eating eggs and yes, he’s guilty and charged. Those there are my 3 combo nausea troublemakers. I’m going to adjust my diet ☺️ Also thank you for the information about MCAS! I’m from South America and little it’s talked about it in here. It’s honestly such a game changer now for treatment and recovery. I know I’m free from SIBO and Candida since I’ve been tested for it, but I’m still going to make a endoscopy to test for H. Pylori and Eosinophilic esophagitis (EoE). Thank you again!! Have a blessed weekend 🤍
    • knitty kitty
      Yes, I, too, have osteoporosis from years of malabsorption, too.  Thiamine and magnesium are what keep the calcium in place in the bones.  If one is low in magnesium, boron, selenium, zinc, copper, and other trace minerals, ones bone heath can suffer.  We need more than just calcium and Vitamin D for strong bones.  Riboflavin B 2, Folate B 9 and Pyridoxine B 6 also contribute to bone formation and strength.   Have you had your thyroid checked?  The thyroid is important to bone health as well.  The thyroid uses lots of thiamine, so a poorly functioning thyroid will affect bone heath.  
    • Celiac50
      That sounds so very likely in my case! I will absolutely ask my doctor on my next bone check coming up in March... Thanks a lot! 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.