Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Is Gluten Free Really Possible


swilliams

Recommended Posts

swilliams Newbie

I have been diagnosed for two years and have been on a "gluten free" diet. But my issue is really cross contamination.

I have a family and my job requires me to purchase catering I don't live in a cave and even though I eat gluten free I am having issues with bloating, diarrhea, joint pains, and weight gain.

I have been to specialists, doctors and dieticians. It is my understanding even if you get a little gluten then you can still have the side effects.

So I am just in a quandary of what to do. I just want to give up!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



leadmeastray88 Contributor
I have been diagnosed for two years and have been on a "gluten free" diet. But my issue is really cross contamination.

I have a family and my job requires me to purchase catering I don't live in a cave and even though I eat gluten free I am having issues with bloating, diarrhea, joint pains, and weight gain.

I have been to specialists, doctors and dieticians. It is my understanding even if you get a little gluten then you can still have the side effects.

So I am just in a quandary of what to do. I just want to give up!

Don't give up!

I, like you, am still living with my family and have recently started a gluten free diet. I am the only one in my house who is eating gluten free and although I have an extremely supportive mother who has been nothing short of extraordinary through this whole thing, the fact is, food that contains gluten is still being prepared in the same pots/pans/colanders with spoons/spatulas etc. I realize how important it is to avoid cc but when you're a university student like me and the spending cash is low, the last thing you want to do is ask your mother to replace everything she has in the kitchen. I know she's trying and she's been doing an awesome job but its a learning process for all of us, not just me. Just know you're not alone!

Also make sure you're not getting hidden gluten from any products other than food - toothpaste, shampoo, cosmetics (wasn't sure if you're female or not) They have an amazing line of cosmetics at afterglow.com that are all gluten free!

I know this was probably not much help, but maybe try and talk to your family about the importance of cc and the effects it has on you. I hope you feel better soon. Take care, and good luck!

-Kim

jayhawkmom Enthusiast

It is possible. It's not easy... but it is possible.

My daughter and I are gluten free. My husband and two sons are not.

Here's a few things I've learned.

When making dinners... always prepare the gluten free foods first. I'm thinking specifically of pasta since I made both regular and gluten-free for my kids the other night. If I don't happen to have two pans available, I always make ours first, that minimizes the chances of cc.

When making sandwiches or anything like that... I always put wax paper down under our bread. That way, if anyone else made a sandwich or had crackers on the counter... or anything like that, (assuming the counter appears to be clean, LOL!) I won't have to worry about CC.

I have separate containers to store leftovers. All the containers for our food are marked with sharpies... with a simple "gluten-free" on the bottom of the container, and the lid.

Gosh, my mind is going blank now. I know there are a million other "hints" out there. Hopefully others will jump in with theirs. =)

cmom Contributor

I don't believe it is possible to be 100% gluten-free. 96%, maybe. It is impossible to prevent coming into contact with gluten all of the time. We do the best we can to avoid obvious gluten situations, but we can never know who has touched things before us and what was on their hands. Nor, what may have happened at the manufacturer of a product, even if it is supposed to be gluten free. Don't give up...stay vigilant. We continue to fight the good fight! :huh:

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to Ginger38's topic in Related Issues & Disorders
      1

      Shingles - Could It Be Related to Gluten/ Celiac

    2. - Ginger38 posted a topic in Related Issues & Disorders
      1

      Shingles - Could It Be Related to Gluten/ Celiac

    3. - Russ H commented on Scott Adams's article in Latest Research
      5

      Study Estimates the Costs of Delayed Celiac Disease Diagnosis (+Video)

    4. - Russ H posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      0

      Coeliac UK Research Conference 2025

    5. - Rejoicephd replied to Rejoicephd's topic in Related Issues & Disorders
      5

      Basic metabolic panel results - more flags


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,376
    • Most Online (within 30 mins)
      7,748

    Citydweller
    Newest Member
    Citydweller
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Who's Online (See full list)

    • There are no registered users currently online
  • Upcoming Events

  • Posts

    • trents
      I don't know of a connection. Lots of people who don't have celiac disease/gluten issues get shingles.
    • Ginger38
      I’m 43, just newly diagnosed with a horrible case of shingles last week . They are all over my face , around my eye, ear , all in my scalp. Lymph nodes are a mess. Ear is a mess. My eye is hurting and sensitive. Pain has been a 10/10+ daily. Taking Motrin and Tylenol around the clock. I AM MISERABLE. The pain is unrelenting. I just want to cry.   But Developing shingles has me a bit concerned about my immune system which also has me wondering about celiac and if there’s a connection to celiac / gluten and shingles; particularly since I haven't been 💯 gluten free because of all the confusing test results and doctors advice etc., is there a connection here? I’ve never had shingles and the gluten/ celiac  roller coaster has been ongoing for a while but I’ve had gluten off and on the last year bc of all the confusion  
    • Russ H
      There were some interesting talks, particularly Prof Ludvig Stollid's talk on therapeutics for coeliac disease.    https://www.youtube.com/playlist?list=PLRcl2mPE0WdigRtJPvylUJbkCx263KF_t
    • Rejoicephd
      Thank you @trents for letting me know you experience something similar thanks @knitty kitty for your response and resources.  I will be following up with my doctor about these results and I’ll read the articles you sent. Thanks - I really appreciate you all.
    • knitty kitty
      You're right, doctors usually only test Vitamin D and B12.  Both are really important, but they're not good indicators of deficiencies in the other B vitamins.  Our bodies are able to store Vitamin B12 and Vitamin D in the liver for up to a year or longer.  The other B vitamins can only be stored for much shorter periods of time.  Pyridoxine B 6 can be stored for several months, but the others only a month or two at the longest.  Thiamine stores can be depleted in as little as three days.  There's no correlation between B12 levels and the other B vitamins' levels.  Blood tests can't measure the amount of vitamins stored inside cells where they are used.  There's disagreement as to what optimal vitamin levels are.  The Recommended Daily Allowance is based on the minimum daily amount needed to prevent disease set back in the forties when people ate a totally different diet and gruesome experiments were done on people.  Folate  requirements had to be updated in the nineties after spina bifida increased and synthetic folic acid was mandated to be added to grain products.  Vitamin D requirements have been updated only in the past few years.   Doctors aren't required to take as many hours of nutritional education as in the past.  They're educated in learning institutions funded by pharmaceutical corporations.  Natural substances like vitamins can't be patented, so there's more money to be made prescribing pharmaceuticals than vitamins.   Also, look into the Autoimmune Protocol Diet, developed by Dr. Sarah Ballantyne, a Celiac herself.  Her book The Paleo Approach has been most helpful to me.  You're very welcome.  I'm glad I can help you around some stumbling blocks while on this journey.    Keep me posted on your progress!  Best wishes! P.S.  interesting reading: Thiamine, gastrointestinal beriberi and acetylcholine signaling https://pmc.ncbi.nlm.nih.gov/articles/PMC12014454/
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.