Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Is Gluten Free Really Possible


swilliams

Recommended Posts

swilliams Newbie

I have been diagnosed for two years and have been on a "gluten free" diet. But my issue is really cross contamination.

I have a family and my job requires me to purchase catering I don't live in a cave and even though I eat gluten free I am having issues with bloating, diarrhea, joint pains, and weight gain.

I have been to specialists, doctors and dieticians. It is my understanding even if you get a little gluten then you can still have the side effects.

So I am just in a quandary of what to do. I just want to give up!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



leadmeastray88 Contributor
I have been diagnosed for two years and have been on a "gluten free" diet. But my issue is really cross contamination.

I have a family and my job requires me to purchase catering I don't live in a cave and even though I eat gluten free I am having issues with bloating, diarrhea, joint pains, and weight gain.

I have been to specialists, doctors and dieticians. It is my understanding even if you get a little gluten then you can still have the side effects.

So I am just in a quandary of what to do. I just want to give up!

Don't give up!

I, like you, am still living with my family and have recently started a gluten free diet. I am the only one in my house who is eating gluten free and although I have an extremely supportive mother who has been nothing short of extraordinary through this whole thing, the fact is, food that contains gluten is still being prepared in the same pots/pans/colanders with spoons/spatulas etc. I realize how important it is to avoid cc but when you're a university student like me and the spending cash is low, the last thing you want to do is ask your mother to replace everything she has in the kitchen. I know she's trying and she's been doing an awesome job but its a learning process for all of us, not just me. Just know you're not alone!

Also make sure you're not getting hidden gluten from any products other than food - toothpaste, shampoo, cosmetics (wasn't sure if you're female or not) They have an amazing line of cosmetics at afterglow.com that are all gluten free!

I know this was probably not much help, but maybe try and talk to your family about the importance of cc and the effects it has on you. I hope you feel better soon. Take care, and good luck!

-Kim

jayhawkmom Enthusiast

It is possible. It's not easy... but it is possible.

My daughter and I are gluten free. My husband and two sons are not.

Here's a few things I've learned.

When making dinners... always prepare the gluten free foods first. I'm thinking specifically of pasta since I made both regular and gluten-free for my kids the other night. If I don't happen to have two pans available, I always make ours first, that minimizes the chances of cc.

When making sandwiches or anything like that... I always put wax paper down under our bread. That way, if anyone else made a sandwich or had crackers on the counter... or anything like that, (assuming the counter appears to be clean, LOL!) I won't have to worry about CC.

I have separate containers to store leftovers. All the containers for our food are marked with sharpies... with a simple "gluten-free" on the bottom of the container, and the lid.

Gosh, my mind is going blank now. I know there are a million other "hints" out there. Hopefully others will jump in with theirs. =)

cmom Contributor

I don't believe it is possible to be 100% gluten-free. 96%, maybe. It is impossible to prevent coming into contact with gluten all of the time. We do the best we can to avoid obvious gluten situations, but we can never know who has touched things before us and what was on their hands. Nor, what may have happened at the manufacturer of a product, even if it is supposed to be gluten free. Don't give up...stay vigilant. We continue to fight the good fight! :huh:

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - xxnonamexx replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      50

      My journey is it gluten or fiber?

    2. - catnapt replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      8

      results from 13 day gluten challenge - does this mean I can't have celiac?

    3. - knitty kitty replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      8

      results from 13 day gluten challenge - does this mean I can't have celiac?

    4. - knitty kitty replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      50

      My journey is it gluten or fiber?

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,368
    • Most Online (within 30 mins)
      7,748

    Klairep
    Newest Member
    Klairep
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • xxnonamexx
      I don't know if I am getting sufficient Omega Threes. I read about  phosphotidyl choline may cause heart issues. I will have o do further research on heathy Omega 3 supplements or from foods. Is there a blood test that can tell you everything level in your system such as Thiamine, Benfotiamine levels etc? Thanks
    • catnapt
      If lectins were my problem, I would react to wheat germ (the highest source of wheat lectins) and beans. I don't. I only react to bread and pasta, which are the highest sources of gluten. Therefore, my issue is wheat-specific (Gluten/ATIs), not a general lectin issue.   I have eaten a supposedly high lectin diet (I say supposedly because lectin content in these foods is greatly reduced by proper cooking and I eat very few of those foods raw, and even then, rarely!!) for years. My health has improved greatly on my whole foods plant forward diet. I have asked all my drs and a registered dietician about my diet, asked if eating such a high amnt of fiber might interfere with the digestion of any other nutrients and the answer has always been NO.     while doing the gluten challenge I did not eat ANY wheat germ (since it doesn't have hardly any gluten, and I was too sick from the bread and pasta to want to eat much anyway) I will NOT put that poison in my body again. That was a horrific experience and if this is what most celiac patients have to deal with, I am very sorry for them I don't care if I have celiac or NCGS I won't intentionally cause myself that much pain and suffering it's not worth it.  
    • knitty kitty
      @catnapt,  Wheat germ contains high amounts of lectins which are really hard to digest and can be irritating to the digestive tract.  They can stimulate IgG antibody production as your blood test shows.   Even beans have lectins.  You've simply eaten too many lectins and irritated your digestive tract.   You may want to allow your digestive tract to rest for a week, then start on gluten in "normal" food, not in concentrated vital wheat gluten. This explains it well: Lectins, agglutinins, and their roles in autoimmune reactivities https://pubmed.ncbi.nlm.nih.gov/25599185/
    • knitty kitty
      I take Now B-1 (100 mg) Thiamine Hydrochloride, and Amazing Formulas L-Tryptophan (1000 mg).   Both are gluten free and free of other allergens.  I've taken them for a long time and haven't had a problem with them. I take Vitamin A from BioTech called "A-25".  It's gluten and allergen free and made in the USA.  It's a powder form of Vitamin A.  I was having trouble digesting fats at one point, but found I tolerated the powder form much better and have stuck with it since.   Tryptophan and Vitamin A help heal the intestines as well as improves skin health.  I get Dermatitis Herpetiformis and eczema flairs when my stomach is upset.  So I'm healing the outside as well as the inside.   I take one 1000 mg Tryptophan before bedtime.   With the Thiamine HCl, take 100 mg to start.  If you don't notice anything, three hours later take another. You can keep increasing your dose in this manner until you do notice improvement.  Remember not to take it in the evening so it won't keep you too energized to sleep. When I first started Thiamine HCl, taking 500 mg to 1000 mg to start was recommended.  If you've been thiamine insufficient for a while, you do notice a big difference.  It's like the start of a NASCAR race: Zoom, Zoom, turn it up!   This scared or made some people uncomfortable, but it's just your body beginning to function properly, like putting new spark plugs in your engine.  I took 1000 mg all at once without food.  It kicked in beautifully, but I got a tummy ache, so take with food.  I added in Thiamine TTFD and Benfotiamine weeks later and felt like I was Formula One racing.  So cool.  You may feel worse for a couple days as your body adjusts to having sufficient thiamine.  Feels sort of like you haven't cranked your engine for a while and it backfires and sputters, but it will settle down and start purring soon enough.  Adjust your dose to what feels right for you, increasing your dose as long as you feel improvement.  You can reach a plateau, so stay there for several days, then try bumping it up again.  If no more improvements happen, you can stay at the plateau amount and experiment with increasing your Thiamine TTFD.  It's like being your own lab rat.  LoL Yes, take one Benfotiamine at breakfast and one at lunch.  Take the B Complex at breakfast. Take the TTFD at breakfast and lunch as well.  I like to take the vitamins at the beginning of meals and the NeuroMag at the end of meals.   You may want to add in some zinc.  I take Thorne Zinc 30 mg at breakfast at the beginning of the meal.   Are you getting sufficient Omega Threes?  Our brains are made up mostly of fat.  Flaxseed oil supplements, sunflower seed oil supplements (or eat the seeds themselves) can improve that.  Cooking with extra virgin olive oil, avocado oil, or coconut oil is also helpful.   @Wheatwacked likes phosphotidyl choline supplements for his Omega Threes.  He's also had dramatic health improvement by supplementing thiamine.  You're doing great!  Thank you for sharing your journey with us.  This path will smooth out.  Keep going!  
    • catnapt
      good luck! vital wheat gluten made me violently ill. I will touch the stuff ever again.  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.