Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

For Those Who Are Soy Free


MyMississippi

Recommended Posts

MyMississippi Enthusiast

I have decided to go soy free in an attempt to resolve my neuro symptoms.( I know in 1995 I had a class 2 positive blood test (Ige) to soy---)

However, the allergist did not think I needed to avoid the class 2's.

Anyway, I want to know how many of you got rid of your neuro symptoms going soy free---

ANd soy lecithen (sp?) is in all the chewing gum, and chocolates--- which gum do you chew? What chocolate can you eat??

Thanks for your help----


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



rmmadden Contributor

I don't really suffer from neuro symptoms but, I did eliminate soy from my diet as I tested-out severly sensitive to soy. I don't eat chocolate but I do chew wrigley's spearmint and/or peppermint gum when I'm not feeling the greatest and It ususally helps me. In general I try to avoid all soy but I have been known to eat things that have soy lecthin in it. I feel as if I can eliminate soy for the most part and limit the soy emulsifier items to few and far between then I generally (knock-on-wood) feel okay. I certainly feel a lot better than before I cut soy out of my diet that's for sure!

Best of Luck,

Cleveland Bob B)

jnclelland Contributor

Chocolate is very tricky, but I know I've seen a few (VERY few) brands that use some other kind of lecithin (sunflower maybe?) as an emulsifier. There's also Enjoy Life chocolate chips, which are quite good and don't contain any lecithin at all. Since I have problems with sugar, I tend to get my chocolate fix from chocolate-raspberry Clif nectar bars; they're not exactly the same as a chocolate bar, but they're yummy!

Jeanne

AndrewNYC Explorer

There are very very few chocolate soy free items around. If you live near a major city go to a health food store there and you might find something that works. Otherwise look on the web. Just forget about gum. It has so many strange additives you should not be chomping on it anyways if you have neuro trouble.

I have decided to go soy free in an attempt to resolve my neuro symptoms.( I know in 1995 I had a class 2 positive blood test (Ige) to soy---)

However, the allergist did not think I needed to avoid the class 2's.

Anyway, I want to know how many of you got rid of your neuro symptoms going soy free---

ANd soy lecithen (sp?) is in all the chewing gum, and chocolates--- which gum do you chew? What chocolate can you eat??

Thanks for your help----

  • 1 month later...
fierce-mink-2000 Newbie

Hi! I'm new here. My son is the one who is gluten free. He's also soy-free. I'm wondering what neuro-symptoms are. Is it the kind of thing you can tell is going on in someone else? He's 4.5 and taking him off of soy and milk recently seems to have improved his behavior (as well as his more obvious symptoms, like eczema). He was quite the difficult child before, and while we've had ups and downs, I'm pretty sure we've never had an up this good since he was born. Could this be like what you're talking about?

I just recently discovered Bazooka gum is soy free. It's not sugar-free, though, which is annoying, but it's the only one I've found.

ravenwoodglass Mentor
Hi! I'm new here. My son is the one who is gluten free. He's also soy-free. I'm wondering what neuro-symptoms are. Is it the kind of thing you can tell is going on in someone else? He's 4.5 and taking him off of soy and milk recently seems to have improved his behavior (as well as his more obvious symptoms, like eczema). He was quite the difficult child before, and while we've had ups and downs, I'm pretty sure we've never had an up this good since he was born. Could this be like what you're talking about?

I just recently discovered Bazooka gum is soy free. It's not sugar-free, though, which is annoying, but it's the only one I've found.

Yes the improvements you are seeing would be included with neurological symptoms. Some of us will have issues with mood such as temper, anxiety depression, some with learning (we call it brain fog :) ) some will have issues with balance, ataxia, some can have paraesthesias develop which is tingling and pain in the extremities, loss of reflexes. Any of these and more could be considered neuro effects.

hawaiimama Apprentice

I don't eat soy, and haven't for ages but I don't avoid lecithin. I seem to be able to deal with it in small doses.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



powerbraid Rookie

Alter Eco brand chocolate is THE BEST EVER! It also has no soy lecithin in it and says gluten-free right on the package!!!! :)

glutenfreewithease Rookie
I have decided to go soy free in an attempt to resolve my neuro symptoms.( I know in 1995 I had a class 2 positive blood test (Ige) to soy---)

However, the allergist did not think I needed to avoid the class 2's.

Anyway, I want to know how many of you got rid of your neuro symptoms going soy free---

ANd soy lecithen (sp?) is in all the chewing gum, and chocolates--- which gum do you chew? What chocolate can you eat??

Thanks for your help----

I am soy free and I have neuro symptoms. I went soy and gluten free at the same time in '06 and my health improved dramatically. I still have misc symptoms like muscle movement and spasms in the face, tingling in the hands, feet and legs and vision problems. However, the improvement is so much better than where I was at. These symptoms are minor now - of course it is all relative as we all know.

I don't chew gum or eat chocalate. :( I do know and have not tried the Enjoy Life Foods chocolate pieces are okay. My two girls have just been diagnosed and are going gluten free so I am finding foods that I didn't use before!

I wish you the best and hope your neuro symptoms improve. What are your neuro symptoms?

AndrewNYC Explorer

Enjoy Life Boom Choco Boom chocolate bars. I have not seen much else in the way of soy free chocolate, other than a brand of organic hot cocoa, and I have been searching for years.

RiceGuy Collaborator

Many who can't eat whole soy have found soy lecithin to be well tolerated. It is generally fairly pure, but obviously you'll need to determine how you do with it for yourself.

A number of nutrient deficiencies have been linked to neurological problems, so you many want to try some of the more likely ones. For instance, a methylcobalamin (vitamin B12) supplement, along with magnesium can be incredibly helpful, so I always recommend those. Zinc can also help quite a lot.

Here's just one of a myriad links I got from a Google search: Open Original Shared Link

sickchick Community Regular

I don't chew gum. I am totally soy-free even soy lecithin I have a couple bags of Enjoy Life Choco Chips in freezer in case of chocolate emergency :):lol:

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to JudyLou's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      11

      Seeking advice on potential gluten challenge

    2. - JudyLou replied to JudyLou's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      11

      Seeking advice on potential gluten challenge

    3. - knitty kitty replied to JudyLou's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      11

      Seeking advice on potential gluten challenge

    4. - trents replied to Mark Conway's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      5

      Have I got coeliac disease

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,154
    • Most Online (within 30 mins)
      7,748

    Kathy N
    Newest Member
    Kathy N
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

    • There are no registered users currently online
  • Upcoming Events

  • Posts

    • JudyLou
    • knitty kitty
      I have osteopenia and have cracked three vertebrae.  Niacin is connected to osteoporosis! Do talk to your nutritionist and doctor about supplementing with B vitamins.  Blood tests don't reveal the amount of vitamins stored inside cells.  The blood is a transportation system and can reflect vitamins absorbed from food eaten in the previous twenty-four to forty-eight hours.  Those "normal limits" are based on minimum amounts required to prevent disease, not levels for optimal health.   Keep us posted on your progress.   B Vitamins: Functions and Uses in Medicine https://pmc.ncbi.nlm.nih.gov/articles/PMC9662251/ Association of dietary niacin intake with osteoporosis in the postmenopausal women in the US: NHANES 2007–2018 https://pmc.ncbi.nlm.nih.gov/articles/PMC11835798/ Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/   Nutritional Imbalances in Adult Celiac Patients Following a Gluten-Free Diet https://pmc.ncbi.nlm.nih.gov/articles/PMC8398893/ Nutritional Consequences of Celiac Disease and Gluten-Free Diet https://www.mdpi.com/2036-7422/15/4/61 Simplifying the B Complex: How Vitamins B6 and B9 Modulate One Carbon Metabolism in Cancer and Beyond https://pmc.ncbi.nlm.nih.gov/articles/PMC9609401/
    • JudyLou
      Thank you so much for the clarification! Yes to these questions: Have you consulted dietician?  Have you been checked for nutritional deficiencies?  Osteoporosis? Thyroid? Anemia?  Do you take any supplements, or vitamins? I’m within healthy range for nutritional tests, thyroid and am not anemic. I do have osteopenia. I don’t take any medications, and the dietician was actually a nutritionist (not sure if that is the same thing) recommended by my physician at the time to better understand gluten free eating.    I almost wish the gluten exposure had triggered something, so at least I’d know what’s going on. So confusing!    Many thanks! 
    • knitty kitty
      @JudyLou,  I have dermatitis herpetiformis, too!  And...big drum roll... Niacin improves dermatitis herpetiformis!   Niacin is very important to skin health and intestinal health.   You're correct.  dermatitis herpetiformis usually occurs on extensor muscles, but dermatitis herpetiformis is also pressure sensitive, so blisters can form where clothing puts pressure on the skin. Elastic waist bands, bulky seams on clothing, watch bands, hats.  Rolled up sleeves or my purse hanging on my arm would make me break out on the insides of my elbows.  I have had a blister on my finger where my pen rested as I write.  Foods high in Iodine can cause an outbreak and exacerbate dermatitis herpetiformis. You've been on the gluten free diet for a long time.  Our gluten free diet can be low in vitamins and minerals, especially if processed gluten free foods are consumed.  Those aren't fortified with vitamins like gluten containing products are.  Have you consulted dietician?  Have you been checked for nutritional deficiencies?  Osteoporosis? Thyroid? Anemia?  Do you take any supplements, medicine, or vitamins? Niacin deficiency is connected to anemia.  Anemia can cause false negatives on tTg IgA tests.  A person can be on that borderline where symptoms wax and wane for years, surviving, but not thriving.  We have a higher metabolic need for more nutrients when we're sick or emotionally stressed which can deplete the small amount of vitamins we can store in our bodies and symptoms reappear.   Exposure to gluten (and casein in those sensitive to it) can cause an increased immune response and inflammation for months afterwards. The immune cells that make tTg IgA antibodies which are triggered today are going to live for about two years. During that time, inflammation is heightened.  Those immune cells only replicate when triggered.  If those immune cells don't get triggered again for about two years, they die without leaving any descendents programmed to trigger on gluten and casein.  The immune system forgets gluten and casein need to be attacked.  The Celiac genes turn off.  This is remission.    Some people in remission report being able to consume gluten again without consequence.   However, another triggering event can turn the Celiac genes on again.   Celiac genes are turned on by a triggering event (physical or emotional stress).  There's some evidence that thiamine insufficiency contributes to the turning on of autoimmune genes.  There is an increased biological need for thiamine when we are physically or emotionally stressed.  Thiamine cannot be stored for more than twenty-one days and may be depleted in as little as three during physical and emotional stresses. Mitochondria without sufficient thiamine become damaged and don't function properly.  This gets relayed to the genes and autoimmune disease genes turn on.  Thiamine and other B vitamins, minerals, and other nutrients are needed to replace the dysfunctional mitochondria and repair the damage to the body.   I recommend getting checked for vitamin and mineral deficiencies.  More than just Vitamin D and B12.  A gluten challenge would definitely be a stressor capable of precipitating further vitamin deficiencies and health consequences.   Best wishes!    
    • trents
      And I agree with Wheatwacked. When a physician tells you that you can't have celiac disease because you're not losing weight, you can be certain that doctor is operating on a dated understanding of celiac disease. I assume you are in the UK by the way you spelled "coeliac". So, I'm not sure what your options are when it comes to healthcare, but I might suggest you look for another physician who is more up to date in this area and is willing to work with you to get an accurate diagnosis. If, in fact, you do not have celiac disease but you know that gluten causes you problems, you might have NCGS (Non Celiac Gluten Sensitivity). There is no test available yet for NCGS. Celiac must first be ruled out. Celiac disease is an autoimmune disorder that damages the lining of the small bowel. NCGS we is not autoimmune and we know less about it's true nature. But we do know it is considerably more common than celiac disease.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.