Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

I Am New And Take All Advice And Hints!


rmducote

Recommended Posts

rmducote Apprentice

We finally figured out that my 50 yr old hubby is gluten allergic. We haven't gone to the dr but after reading lots of forums (which started with researching the blisters on his hands and "welts) we removed it from his diet. After adding it again, he broke out real bad. Anyway, I am wondering if any of you have found that you can't use TOPICAL things like cologne w/alcohol? I am guessing that is what is doing it, that and deoderant since he puts those on in the evening and breaks out while sleeping.Everything else has been removed from his diet. I've checked all meds (called company) Also need to know what other names gluten is hidden in? I ran across galactose, glumatic acid adn glycolate that is gluten to stay away from. I am lucky to be able to order from a food co-op and have ordered 50# Bobs gluten free flour and some other goodies, including ice cream (soy or rice better?) If anyone has favorite brands or snacks-please let me know! I've switched to rice bread, but he misses his goodies too. For those of you with bread machines, I have a great receiped from glutenfree /celiac cookbook.

Thank you!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



frec Contributor

The four hidden gluten ingredients I run into the most are modified food starch, hydrolyzed vegetable protein, malt and maltodextrin. They can be in anything. I found maltodextrin in iced tea (powdered) someone offered me this week. Who'd have thought? You can have maltodextrin and modified food starch IF they specify that it is from corn or tapioca or rice (assuming he is not allergic to any of those as well) and not from wheat/barley/rye.

There are very long complete helpful lists of dangerous and safe ingredients on this website. You can also google just within this site--look up at the top of the screen above the forum. Sometimes I just type in a brand name or ingredient and get good information from previous discussions.

There are more and more gluten free foods all the time. My favorites (with the best prices) are from Trader Joe's. They have cookies, waffles, pancakes, bread, rice crackers, and lots of nondairy (is he off milk?) alternatives. I love Almond Breeze chocolate milk.

Good luck. He is lucky to have you helping.

Lisa Mentor

Maltodextrin in the US is derived from corn and is not a gluten issues. Malt, with certain, is not gluten free.

Modified Food Starch, by US labeling law, must list wheat if it is an ingredient as in "Modified Food Starch (wheat), as well as Hydrolyzed Vegetable Protein.

Here is a listing of US companies who will clearly list all forms of gluten (ie. wheat, barley, malt, rye):

Open Original Shared Link

Here is a listing of some gluten free meds:

Open Original Shared Link

I am sure that your hard work is appreciated by your husband.

dish23 Newbie
Maltodextrin in the US is derived from corn and is not a gluten issues. Malt, with certain, is not gluten free.

Modified Food Starch, by US labeling law, must list wheat if it is an ingredient as in "Modified Food Starch (wheat), as well as Hydrolyzed Vegetable Protein.

Here is a listing of US companies who will clearly list all forms of gluten (ie. wheat, barley, malt, rye):

Open Original Shared Link

Here is a listing of some gluten free meds:

Open Original Shared Link

I am sure that your hard work is appreciated by your husband.

I am new to celiac disease, so please be patient with me. Are you saying that a product with maltodextrin is ok to consume? Some literature I have says it's no good.

babysteps Contributor

topical sensitivity seems to be very personal, some folks with intense dietary response have little if any topical response, some with little dietary response have huge topical responses...

That said, browse a bit on the forums, use "lotion" "shampoo" and similar search terms and you will find lots of info. Labeling laws aren't the same as food, I don't think the manufacturers *have* to list allergens for non-food items but some do. There are long lists of 'wheat-free' for Nutrogena on these forums, but you still have to read the label to avoid oatmeal ingredients. If you have a favorite product and can't quite tell from the label, contact the company (or check forums here). Formulations change frequently, so older posts may be more useful to identify companies that will give full info than they are for a product list that is foolproof for today.

It *IS* possible, but it took me a lot longer to go gluten-free topically than in my diet.

One thing to consider - is your husband sensitive to fragrance? I am, not sure if it's possible gluten or if it's just the smell ;) But going to gluten-free, fragrance-free topical items 100% has been a big help for my skin!

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,561
    • Most Online (within 30 mins)
      7,748

    lamps
    Newest Member
    lamps
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • petitojou
      Thank you so much for sharing your experience and I found myself giggling with happiness as I read how your body reached such spring! And I hope that your current journey is also successful!! Definitely starting the food diary! So many amazing advices. And it’s very scary. It really hits all our soft spots as well as our confidence system. Most doctors I went thought I was underage despite being in my late 20s. Right now I look like am I twelve, but is also this body that’s taking so much, so I might as well love it too! Going to make the necessary changes and stay in this path. Thank you again! 🫶
    • petitojou
      Thank you so much for the information and kind message! Reading this transformed how I’ve been viewing my efforts and progress. Guess there’s still a lot to celebrate and also heal 😌  Yes, I’ve been taking it! Just recently started taking a multivitamin supplement and separated vitamin D! I also took chewable Iron polymaltose for ferritin deficiency 2 months ago but was unable to absorb any of it.  Thank you again! Hearing such gentle words from the community makes my body and heart more patient and excited for the future. 
    • ckeyser88
      I am looking for a roomie in Chicago, Denver or Nashville! 
    • Scott Adams
      Your post demonstrates the profound frustration and isolation that so many in the Celiac community feel, and I want to thank you for channeling that experience into advocacy. The medical gaslighting you endured for decades is an unacceptable and, sadly, a common story, and the fact that you now have to "school" your own GI specialist speaks volumes about the critical lack of consistent and updated education. Your idea to make Celiac Disease a reportable condition to public health authorities is a compelling and strategic one. This single action would force the system to formally acknowledge the prevalence and seriousness of the disease, creating a concrete dataset that could drive better research funding, shape medical school curricula, and validate the patient experience in a way that individual stories alone often cannot. It is an uphill battle, but contacting representatives, as you have done with Adam Gray, is exactly how change begins. By framing it as a public health necessity—a matter of patient safety and protection from misdiagnosis and neglect—you are building a powerful case. Your voice and your perseverance, forged through thirty years of struggle, are exactly what this community needs to ensure that no one else has to fight so hard just to be believed and properly cared for.
    • Scott Adams
      I had no idea there is a "Louisville" in Colorado!😉 I thought it was a typo because I always think of the Kentucky city--but good luck!
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.