Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Do Symptons Go Through Cycles?


kristionii

Recommended Posts

kristionii Rookie

HI,

I had a positive transglutamine blood test back in May, and I finally had my endoscopy 9 days ago. My doctor commented that "everything looked really good and normal" when he went in, but the actual biopsy will confirm if I have Celiacs. Maybe I'm still in the early stages and now showing significant villi damage? After trying to get the biopsy results for a couple days, I found out he's on vacation for 3 more weeks! So I have no answers until then (although I know from all the members on the board telling me previously that positive blood test = celiacs).

I am still eating gluten until I get the final biopsy results (JUST IN CASE the results are inconclusive or he wants something else done). The last week or two I've noticed my symptoms have been non-existant and/or much better. My eating of certain foods has not changed. Sometimes I have had to run to the bathroom after eating a small bowl of pasta, or a sandwich. These last few weeks I've noticed a signifcant decrease in running to the bathroom, gas, etc. Do symptoms go through cycles? Is it possible to have a few good weeks and/or some bad weeks?

Last question: Is nausea a symptom of Celiacs? I had a peanut butter sandwich (with 2 pieces of whole wheat bread) and felt very nauseated afterwards, and I've had nausea after eating pita bread or other similar things. I wonder if I'm just overeating, or if its a symptom? Otherwise this week, I've been eating movie theatre nachos and restaurant pasta, without out the slightest stomach reaction. What is a gluten-challenge and would it be beneficial in this situation?

Sorry for the long-winded question ... I tend to overanalzye! Which is why waiting 3 more weeks for the biopsy results is torture for me!

Thank you :)

K


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ksymonds84 Enthusiast

Nausea is definately a symptom of being glutened for me. Sometimes accidently being glutened will show up in a couple of hours and sometimes not till the next day. A gluten challenge is going without gluten (for me 2 months) then challenging it by eating gluten to see what your reaction would be. If I were you, I would have the biopsy first and if shows negative then try a gluten challenge. If you stop eating gluten now, you could have a false negative on your biopsy. If you are positive then no challenge will be necessary. If you were having severe gluten reactions then by all means I would stop torturing yourself but since your reactions are lessoning it would make more sense to hang in there for the biopsy. Good luck and keep us posted!

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - suek54 replied to Kayla S's topic in Dermatitis Herpetiformis
      4

      Need advice for some relief!

    2. - MicG replied to MicG's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      Test interpretations

    3. - trents replied to MicG's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      Test interpretations

    4. - MicG posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      Test interpretations

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,655
    • Most Online (within 30 mins)
      7,748

    Murdy3
    Newest Member
    Murdy3
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • suek54
      Hi Kayla Huge sympathies. I was diagnosed in December, after 8 months of the most awful rash, literally top to toe. Mine is a work in progress. Im on just 50mg dapsone at the moment but probably need an increased dose to properly put the lid on it. As you have been now glutened, I wondered whether it might be worth asking for a skin biopsy to finally get a proper diagnosis? Sue  
    • MicG
      I had been eating reduced gluten until about 3 days before the test. I did realize that wasn’t ideal, but it was experimental to see if gluten was actually bothering me. One slip up with soy sauce and it was quite clear to me that it was, lol. 
    • trents
      Possibly. Your total IGA (Immunoglobulin A, Qn, Serum) is actually high so you are not IGA deficient. In the absence of IGA deficiency, the most reliable celiac antibody test would be the t-Transglutaminase (tTG) IgA for which your score is within normal range. There are other things besides celiac disease that might cause an elevated DGP-IGA (Deamidated Gliadin Abs, lgA) for which you do have a positive score. It might also be of concern that your total IGA is elevated as that can indicate some other health problems, some of which are serious.  Had you been practicing a gluten free or a reduced gluten free diet prior to the blood draw? Talk to your physician about these things. I would also seek an endoscopy/biopsy of the small bowel to check for damage to the villous lining, which is the gold standard diagnostic test for celiac disease.
    • MicG
      Test results as follows: Deamidated Gliadin Abs, lgA 40 H (normal range 0-19) Deamidated Gliadin Abs, IgG 4 (0-19) t-Transglutaminase (tTG) IgA <2 (0-3) t-Transglutaminase (tTG) IgG <2 (0-5) Endomysial Antibody IgA Negative (Negative) Immunoglobulin A, Qn, Serum 535 H (87-352) Do I have celiac?
    • catnapt
      how long does it take for the genetic blood test for celiac to come back? I saw the GI today, she was great. She says I def have an issue with gluten and that my symptoms align more with celiac disease than NCGS, so she's doing the genetic testing, Ordered a test for SIBO but said that's just to cover all bases, she doesn't think I have that. If the blood work comes back negative for the genes, then I will cancel the endoscopy. If positive, I will try the 2 week gluten challenge and get the endoscopy done. If I can't manage the gluten challenge (I had HORRIBLE symptoms last time and quit after 12 days) then we'll just assume it's celiac disease and go from there. She says she does a full nutrient panel on all her pts every year, that was nice to hear.I'm on so many supplements it would be nice to only have to get the ones I truly need! so yeh, really anxious about the test results for the genes!! I have an identical twin sister so I'd need to tell her if it's positive, she'd prob want to get tested too. *interesting note: when I said if the blood work comes back that I don't have the genes, then I'm in the clear - she said, well,,,,,,not necessarily. But she didn't want to go into as we had a lot to go over. I did make a  mental note of that comment and will ask her when I see her next time.   she was very thorough! I was impressed! she even checked- up on some lab work I had done that my Endo ordered. I like her, I am looking forward to seeing her again. I think I'll get some good advice and info from her she also complimented me on my diet.   said it was a very gut friendly and healthy diet 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.