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Do Symptons Go Through Cycles?


kristionii

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kristionii Rookie

HI,

I had a positive transglutamine blood test back in May, and I finally had my endoscopy 9 days ago. My doctor commented that "everything looked really good and normal" when he went in, but the actual biopsy will confirm if I have Celiacs. Maybe I'm still in the early stages and now showing significant villi damage? After trying to get the biopsy results for a couple days, I found out he's on vacation for 3 more weeks! So I have no answers until then (although I know from all the members on the board telling me previously that positive blood test = celiacs).

I am still eating gluten until I get the final biopsy results (JUST IN CASE the results are inconclusive or he wants something else done). The last week or two I've noticed my symptoms have been non-existant and/or much better. My eating of certain foods has not changed. Sometimes I have had to run to the bathroom after eating a small bowl of pasta, or a sandwich. These last few weeks I've noticed a signifcant decrease in running to the bathroom, gas, etc. Do symptoms go through cycles? Is it possible to have a few good weeks and/or some bad weeks?

Last question: Is nausea a symptom of Celiacs? I had a peanut butter sandwich (with 2 pieces of whole wheat bread) and felt very nauseated afterwards, and I've had nausea after eating pita bread or other similar things. I wonder if I'm just overeating, or if its a symptom? Otherwise this week, I've been eating movie theatre nachos and restaurant pasta, without out the slightest stomach reaction. What is a gluten-challenge and would it be beneficial in this situation?

Sorry for the long-winded question ... I tend to overanalzye! Which is why waiting 3 more weeks for the biopsy results is torture for me!

Thank you :)

K


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ksymonds84 Enthusiast

Nausea is definately a symptom of being glutened for me. Sometimes accidently being glutened will show up in a couple of hours and sometimes not till the next day. A gluten challenge is going without gluten (for me 2 months) then challenging it by eating gluten to see what your reaction would be. If I were you, I would have the biopsy first and if shows negative then try a gluten challenge. If you stop eating gluten now, you could have a false negative on your biopsy. If you are positive then no challenge will be necessary. If you were having severe gluten reactions then by all means I would stop torturing yourself but since your reactions are lessoning it would make more sense to hang in there for the biopsy. Good luck and keep us posted!

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    • trents
      @cristiana, I'm thinking the intensity of our response to the same amount of gluten can vary from time to time. Our bodies are a dynamic entity. 
    • Scott Adams
      I'm going to try Jersey Mike's soon--we have one nearby. Thanks for sharing!
    • cristiana
      Hi @trents Two things can happen:  1/ For a very small gluten hit, I will get a slightly sore stomach for a few days, maybe a day or two following the glutening, and (TMI warning) maybe slightly loose BMs with mucus  for a couple of days.  2/ For a substantial glutening, and thankfully it's only happened once in recent years,  I get bad chills, followed by vomiting, and my heartbeat is all over the place and I can hardly stand.  It's pretty extreme.  That happens within about 2 hours of eating the gluten.  I might feel slightly dizzy for a couple of days after the glutening episode. Interestingly I've just been out to a cafe which hitherto has made a big thing about how their french fries are cooked in a separate fryer.  I shared some with a friend and they were served with chilli sauce, jalapenos, cheddar cheese and fried onions.  Definitely not health food!  Anyway,  I'd eaten half when I realised I'd not checked the menu to ensure that this dish is still gluten-free - and it turns out it isn't!!!  They've changed the ingredients and the fried onions are now cooked with wheat.   I came home expecting to feel dreadful as I had no idea how much gluten I have consumed but so far if anything I feel just little queasy.  I think I'd have thrown up by now had there been a lot of gluten in the onions.  
    • trents
      It might be wise to start him on small amounts and work up to 10g. Monitor how he reacts. Some people simply cannot complete the gluten challenge because it makes them too ill. By the way, you can buy powdered gluten in health food stores, at least here in the states you can. With a food scale, it would be easy to measure the amount being consumed in a day. I'm not sure what the intensity of reaction to gluten tells you about what's actually going on with regard to celiac disease. I mean there are some celiacs like me who don't seem to react to minor exposure amounts but who get violently ill with larger exposures. Then there are celiacs who get some kind of reaction to even the tiniest amount of exposure but don't necessarily get violently ill. And how the reaction manifests itself is very different for different people. Some, like me, experience emesis and diarrhea. Others just get brain fog. Others get joint pain. It's all over the map.
    • melthebell
      That's interesting - that's a lot of gluten! I'll be very curious to see how my son responds to the gluten. In some ways, I guess having a strong reaction would tell us something? It's tough navigating this as a parent and having it be not so clear cut ;\
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