Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Do Symptons Go Through Cycles?


kristionii

Recommended Posts

kristionii Rookie

HI,

I had a positive transglutamine blood test back in May, and I finally had my endoscopy 9 days ago. My doctor commented that "everything looked really good and normal" when he went in, but the actual biopsy will confirm if I have Celiacs. Maybe I'm still in the early stages and now showing significant villi damage? After trying to get the biopsy results for a couple days, I found out he's on vacation for 3 more weeks! So I have no answers until then (although I know from all the members on the board telling me previously that positive blood test = celiacs).

I am still eating gluten until I get the final biopsy results (JUST IN CASE the results are inconclusive or he wants something else done). The last week or two I've noticed my symptoms have been non-existant and/or much better. My eating of certain foods has not changed. Sometimes I have had to run to the bathroom after eating a small bowl of pasta, or a sandwich. These last few weeks I've noticed a signifcant decrease in running to the bathroom, gas, etc. Do symptoms go through cycles? Is it possible to have a few good weeks and/or some bad weeks?

Last question: Is nausea a symptom of Celiacs? I had a peanut butter sandwich (with 2 pieces of whole wheat bread) and felt very nauseated afterwards, and I've had nausea after eating pita bread or other similar things. I wonder if I'm just overeating, or if its a symptom? Otherwise this week, I've been eating movie theatre nachos and restaurant pasta, without out the slightest stomach reaction. What is a gluten-challenge and would it be beneficial in this situation?

Sorry for the long-winded question ... I tend to overanalzye! Which is why waiting 3 more weeks for the biopsy results is torture for me!

Thank you :)

K


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ksymonds84 Enthusiast

Nausea is definately a symptom of being glutened for me. Sometimes accidently being glutened will show up in a couple of hours and sometimes not till the next day. A gluten challenge is going without gluten (for me 2 months) then challenging it by eating gluten to see what your reaction would be. If I were you, I would have the biopsy first and if shows negative then try a gluten challenge. If you stop eating gluten now, you could have a false negative on your biopsy. If you are positive then no challenge will be necessary. If you were having severe gluten reactions then by all means I would stop torturing yourself but since your reactions are lessoning it would make more sense to hang in there for the biopsy. Good luck and keep us posted!

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to Jmartes71's topic in Doctors
      9

      Second chance

    2. - knitty kitty replied to HectorConvector's topic in Related Issues & Disorders
      330

      Terrible Neurological Symptoms

    3. - HectorConvector replied to HectorConvector's topic in Related Issues & Disorders
      330

      Terrible Neurological Symptoms

    4. - HectorConvector replied to HectorConvector's topic in Related Issues & Disorders
      330

      Terrible Neurological Symptoms

    5. - Jmartes71 replied to Jmartes71's topic in Doctors
      9

      Second chance

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,673
    • Most Online (within 30 mins)
      7,748

    Troy Howald
    Newest Member
    Troy Howald
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • knitty kitty
      @Jmartes71, Have you tried a naturopathic or holistic doctor?  Some posters in the past have commented theirs were more helpful than mainstream doctors.  
    • knitty kitty
      @HectorConvector,  Have you tried taking 500 mg of the Thiamine Mononitrate that you have left?   Thiamine Mononitrate may not be as helpful as other forms of thiamine, but since that's what you have on hand.    Thiamine is safe and nontoxic even at high doses needed to correct thiamine deficiency.   No harm in trying it. Neuroplastic changes in the brain may be caused by thiamine deficiency.   These changes can be seen in Wernicke's encephalopathy and Korsakoff's syndrome, Alzheimer's and Parkinson's. I googled "Neuroplastic Sensitization syndrome and thiamine pubmed" and see for yourself what it says.   Try taking 500 mg Thiamine Mononitrate and look for health changes.
    • HectorConvector
      This may seem non-relevant but I thought I'd add it here anyway to see what anyone thinks. Many might dismiss it but that's OK. I went through the entire history of this condition from its onset in 2010 or so, including the things that flare it up, and the timeline of what made it worse, the medications that worked and didn't, in ChatGPT (rolleyes I know lol)  and supplied it with all the clinical evidence I've had from tests etc.... After hours of "discussing" with it and finding research it "concluded" it's a chronic neuroplastic sensitization syndrome but of course said I should only get a proper diagnosis from a  doctor. When I saw the doctor on 9th February because this got worse he looked through all my medical history and the course of the "condition". I didn't tell him I'd used ChatGPT or mention what I thought it is because I still don't really know until I have a formal diagnosis. He came with the same conclusion as ChatGPT. Just thought it was an interesting co-incidence perhaps. As for myself, I'm not forming any conclusions til I can really know exactly what's happening and why and what stops it. Only then can I truly know.
    • HectorConvector
      So I've been eatin no carbs in the evening and only a bit for my lunch so a big reduction. Well, made no difference, in fact it's actually got even worse. So everything I do makes it get worse. I said this to the doctor. He said he definitely thinks it's a neuroplastic pain condition where I've sensitized my nerves to max volume and now the pain has outgrown the medication max dose even though there is nothing physically wrong with my body. A bit earlier I had violent shocking evil burning nerve pain that made me nearly pass out and want to die again, also noticed this seems to be associated with sudden water retention. I've made hardly any pee in nearly 12 hours and despite drinking loads. Mouth is super dry. I am getting the "correct" sort of this when I've finished the current ones, so not long now. Can only get it on the internet here. Then I can say how it might change anything.
    • Jmartes71
      Im not a doctor and my term isnt right.All I know is I had what ever lovely procedure I know I had it in down the throat and the bottom biopsy. Im tired of and not feeling well and my blood looks fabulous though STULL HLA-DQ2 Positive and past biopsy Positive. Dealing with this is literally insane im begging for help.im at the point where just what ever 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.