Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Coffee


trekker

Recommended Posts

trekker Newbie

Just wondering if anybody else has had a problem with coffee. (I drink it black). I've been reacting to something over the last 2 weeks and the only thing I come up with is the (organic french roast) coffee I got (and ground) at Winco. Still not absolutely sure about this since I just quit drinking it. I haven't had a problem with organic coffees elsewhere.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



home-based-mom Contributor
Just wondering if anybody else has had a problem with coffee. (I drink it black). I've been reacting to something over the last 2 weeks and the only thing I come up with is the (organic french roast) coffee I got (and ground) at Winco. Still not absolutely sure about this since I just quit drinking it. I haven't had a problem with organic coffees elsewhere.

I would suspect the grinding machine. Who knows what else has been put through it and someone may have ground some gluten-containing flavored beans. :o

angel-jd1 Community Regular

Coffee can sometimes have a laxative effect (even if it is gluten-free). Just something to keep in mind :)

-Jessica :rolleyes:

trekker Newbie
I would suspect the grinding machine. Who knows what else has been put through it and someone may have ground some gluten-containing flavored beans. :o

I thought about that and that may be what happened, but I also did some checking and found the following information I'd like to share. Some companies dust their manufacturing lines with flour to keep the beans rolling along. The gluten from the flour can soak into the oil of the beans. The only hope of knowing for sure is to contact the company, hope they don't subcontract and that they are honest.

Guess I won't be buying coffee from the warehouse-type stores anymore! Never had a problem until this month, and I've been gluten-free for nearly 2 years -drinking coffee for 38 years.

trekker Newbie
Coffee can sometimes have a laxative effect (even if it is gluten-free). Just something to keep in mind :)

-Jessica :rolleyes:

Thanks, but that wasn't the problem.

I did some checking and found the following information I'd like to share. Some companies dust their manufacturing lines with flour to keep the beans rolling along. :( The gluten from the flour can soak into the oil of the beans. The only hope of knowing for sure is to contact the company, hope they don't subcontract and that they are honest.

Guess I won't be buying coffee from the warehouse-type stores anymore! Never had a problem until this month, and I've been gluten-free for nearly 2 years -drinking coffee for 38 years.

Laurad- Apprentice
I did some checking and found the following information I'd like to share. Some companies dust their manufacturing lines with flour to keep the beans rolling along. :( The gluten from the flour can soak into the oil of the beans. The only hope of knowing for sure is to contact the company, hope they don't subcontract and that they are honest.

Wow, I haven't heard that before but it worries me because I LOVE coffee...

Do you know which companies use flour?

darlindeb25 Collaborator

I just bought a can of Columbian Decaf at Walmart, and it states gluten free on the can! I use Folgers, 8 O'Clock, Maxwell House, Mr Coffee, Duncan Donuts, and I buy 7-11 Decaf all the time...never been glutened by regular coffee. Be aware...many flavored coffees do contain gluten, as do many flavored teas.

I too, have been drinking coffee for well over 40 yrs, and it has never been a problem for me.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



MNBeth Explorer
I thought about that and that may be what happened, but I also did some checking and found the following information I'd like to share. Some companies dust their manufacturing lines with flour to keep the beans rolling along. The gluten from the flour can soak into the oil of the beans. The only hope of knowing for sure is to contact the company, hope they don't subcontract and that they are honest.

Guess I won't be buying coffee from the warehouse-type stores anymore! Never had a problem until this month, and I've been gluten-free for nearly 2 years -drinking coffee for 38 years.

I would really appreciate it if you could tell me where you found the information about flour on the manufacturing lines. Do you remember where you found the information?

Thanks!

trekker Newbie
Wow, I haven't heard that before but it worries me because I LOVE coffee...

Do you know which companies use flour?

I don't know what companies use flour. I also can't remember the brand of coffee I bought at Winco (Vancouver, WA), only that it was bulk coffee & organic. Oh yeah, and there's still the possibility that since I ground it there, it was cross contaminated with one of the other coffees. Anyway, next time I go I will try to find out - and then maybe if a bunch of folks request that if they intend to keep on using flour, that they list the coffee as possibly containing gluten!

Needless to say, I try to be very careful what I consume, and read labels Very Carefully. And I will never again buy bulk coffee, unless it's at a gluten-free store. Same goes for store grinding. I'm digging out my dusty old coffee grinder.

Anyway, you are now forewarned <_<

trekker Newbie
I would really appreciate it if you could tell me where you found the information about flour on the manufacturing lines. Do you remember where you found the information?

Thanks!

I googled "gluten in coffee beans", and found that piece of info at WikiAnswers - Is Green Mountain Coffee Roasters gluten free. So while it is not an "official" answer, it is probably true. I intend to do some checking, and ask at a gluten free store, too.

That coffee is the only thing in my life that changed, and I began drinking it about the same time my symptoms started & my symptoms got worse each day while drinking it. (I don't drink that much & only first thing in the morning).

It's only been two days since I totally cleaned out my coffee maker and switched coffee, so I'm symptom free yet, but feeling a little better.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Colleen H replied to Colleen H's topic in Coping with Celiac Disease
      2

      Gluten related ??

    2. - Jmartes71 replied to Jmartes71's topic in Coping with Celiac Disease
      4

      My only proof

    3. - AlwaysLearning replied to Jmartes71's topic in Coping with Celiac Disease
      4

      My only proof

    4. - AlwaysLearning replied to Colleen H's topic in Coping with Celiac Disease
      2

      Gluten related ??


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,077
    • Most Online (within 30 mins)
      7,748

    Deb baker
    Newest Member
    Deb baker
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Colleen H
      Thank you so much for your response  Yes it seems as though things get very painful as time goes on.  I'm not eating gluten as far as I know.  However, I'm not sure of cross contamination.  My system seems to weaken to hidden spices and other possibilities. ???  if cross contamination is possible...I am in a super sensitive mode of celiac disease.. Neuropathy from head to toes
    • Jmartes71
      EXACTLY! I was asked yesterday on my LAST video call with Standford and I stated exactly yes absolutely this is why I need the name! One, get proper care, two, not get worse.Im falling apart, stressed out, in pain and just opened email from Stanford stating I was rude ect.I want that video reviewed by higher ups and see if that women still has a job or not.Im saying this because I've been medically screwed and asking for help because bills don't pay itself. This could be malpratice siit but im not good at finding lawyers
    • AlwaysLearning
      We feel your pain. It took me 20+ years of regularly going to doctors desperate for answers only to be told there was nothing wrong with me … when I was 20 pounds underweight, suffering from severe nutritional deficiencies, and in a great deal of pain. I had to figure it out for myself. If you're in the U.S., not having an official diagnosis does mean you can't claim a tax deduction for the extra expense of gluten-free foods. But it can also be a good thing. Pre-existing conditions might be a reason why a health insurance company might reject your application or charge you more money. No official diagnosis means you don't have a pre-existing condition. I really hope you don't live in the U.S. and don't have these challenges. Do you need an official diagnosis for a specific reason? Else, I wouldn't worry about it. As long as you're diligent in remaining gluten free, your body should be healing as much as possible so there isn't much else you could do anyway. And there are plenty of us out here who never got that official diagnosis because we couldn't eat enough gluten to get tested. Now that the IL-2 test is available, I suppose I could take it, but I don't feel the need. Someone else not believing me really isn't my problem as long as I can stay in control of my own food.
    • AlwaysLearning
      If you're just starting out in being gluten free, I would expect it to take months before you learned enough about hidden sources of gluten before you stopped making major mistakes. Ice cream? Not safe unless they say it is gluten free. Spaghetti sauce? Not safe unless is says gluten-free. Natural ingredients? Who knows what's in there. You pretty much need to cook with whole ingredients yourself to avoid it completely. Most gluten-free products should be safe, but while you're in the hypersensitive phase right after going gluten free, you may notice that when something like a microwave meal seems to not be gluten-free … then you find out that it is produced in a shared facility where it can become contaminated. My reactions were much-more severe after going gluten free. The analogy that I use is that you had a whole army of soldiers waiting for some gluten to attack, and now that you took away their target, when the stragglers from the gluten army accidentally wander onto the battlefield, you still have your entire army going out and attacking them. Expect it to take two years before all of the training facilities that were producing your soldiers have fallen into disrepair and are no longer producing soldiers. But that is two years after you stop accidentally glutening yourself. Every time you do eat gluten, another training facility can be built and more soldiers will be waiting to attack. Good luck figuring things out.   
    • Russ H
      This treatment looks promising. Its aim is to provoke immune tolerance of gluten, possibly curing the disease. It passed the phase 2 trial with flying colours, and I came across a post on Reddit by one of the study volunteers. Apparently, the results were good enough that the company is applying for fast track approval.  Anokion Announces Positive Symptom Data from its Phase 2 Trial Evaluating KAN-101 for the Treatment of Celiac Disease https://www.reddit.com/r/Celiac/comments/1krx2wh/kan_101_trial_put_on_hold/
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.