Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

What Supplements Do You Take?


Karina

Recommended Posts

Karina Explorer

Now since I have been gluten-free for awile, I am thinking that my "recovery" has reached a plateau with regards to simply being gluten-free. I have been doing some research and have found that there are a few diets and supplement ideas for people with chronic digestive disorders such as Celiac Disease. I have not seen many other "diets" talked about here other than our good ol' gluten-free diet. My hypothesis here is that there is some "total healing" that still needs to take place--not only in the gut but the rest of the body as well. Although I suspect of course that it all begins in the gut. For example an overgrowth of yeast can cause intestinal damage and needs to be dealt with. Even after one has removed gluten from his/her diet, he/she may have other issues to deal with--such as a yeast overgrowth, or other "bad" bacteria infestation, etc. In fact, it is now suspected that many other disorders originate from problems in the gut--such as certain forms of autism and other behavioral disorders. Since some of us are further along on our journey than others and have done more research than others, I thought it would be good to share what supplements we use (with a brief why), and what other diets and/or treatments we have used (with a brief why).

Here are mine (I don't take much--I am researching things, which is why I posted this B) ).

1. Supplements: New Chapter probiotics--9 billion (3 caps) in the am on empty stomach. Why? I suspect my good bacteria count to be down, and will back off to a maintenance dose in a week or so. New Chapter was recommended by very knowledgeable newly liscensed-not-yet-practicing chiropractor who works at Vitamin Shoppe and it was cheaper than Natren which I knew was good.

2. Vitamins: still researching do I need multi, B complex and what about Cal/Mag combo?

3. Diets: gluten-free of course. Recently started Maker's Diet. Sugar is totally restricted accept minimal amounts of pure forms such as raw honey and maple syrup--this is hard for me (sugar addict :D ). High protein, high fat (good fat--coconut oil, olive oil, animal fat), high raw veggie emphasis and fruit. Pretty much a primitive diet. All organic with an additional emphasis on raw goat's milk products that are supposed to be VERY beneficial for gut disorders such as Celiac.

I also have interest in the SPECIFIC CARBOHYDRATE DIET which is highly recommended for celiac disease, but is a bit more restrictive than even the Maker's Diet--but a lot of the same ideas.

4. Enzymes: Still researching, but pretty ready to take this plunge as it has been HIGHLY recommended from people here, other nutrition books, and other naturally minded health concious people I know--plus it makes physiological sense to me.

Ok, so that's me......what about you? :)


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



KaitiUSA Enthusiast

1. Probiotics:Probiotic bacteria favorably alter the intestinal microflora balance, inhibit the growth of harmful bacteria, promote good digestion, boost immune function, and increase resistance to infection.Probiotic bacteria also produce substances called bacteriocins, which act as natural antibiotics to kill undesirable microorganisms. These have really been beneficial for me

2. Enzymes(capsules): Helps me with digestion. Even being gluten-free for over a year when I eat sometimes I get feeling nauseated. Enzymes usually clear it up pretty quick

3:B Complex(capsules): each B vitamin has benefits including the following: helps with energy, skin, hair, eyes, nerves. Maintains stomach acidity and the digestive tract. Also helps maintain a normal appetite.

4: Liva Guard(capsules): helps to cleanse the liver

5:Grape Seed(capsules): antioxidant, also helps me with my mood

6:Arctic Cod Liver Oil(capsules): moisturizes skin,hair, and helps with nerves

7:Garlic(capsules): antioxidant

8:Sublingual B12-goes straight into blood steam. Body is able to absorb this better and quicker.

9:Calcium

This is just some of what I take that I can think of at the moment

They have helped me get alot better than I was. :D

aaascr Apprentice

MSM

Quercetin

Multi-enzyme

DGL - really helps

distilled aloe vera juice - very healing

zinc

potassium

I tried probiotics - my system isn't ready for

them yet - going to try again later.

Since I tend to be allergic to one thing or another

in a multivitamin, I take most of mine individually as well

as trying to get things like Vit A, iron etc. through diet:

B complex

buffered vit C

Calc/magnesium

Flax Seed oil

New Chapter stuff is great

I use the Zyflammend PM for my arthritis

stef-the-kicking-cuty Enthusiast

On the german message board there's also going on a discussion about enzymes (strange, some topics appear at the same time). And I asked them and they said Wobenzyme wouldn't be bad. So I started to take something called Wobenzyme N. The woman in our local health shop had it and when I started to get her attention on the fact, that there is a clear and a red wobenzyme, she started to try to figure out, what the difference is, since most ingredients seem to be the same. Among other things it's also for healthy joints and sports injury recuperation. That were my reasons for taking it. Next time i go there i ask her, what the difference is now and i'll keep you informed about it.

I also take a probiotic called Primadophilus. I thought i try this, when i had a cold i couldn't get rid off for 14 days. It's a little bit better so far, but not much.

And I take a multivitamin from the Nature's Made brand.

Hugs, Stef

megzmc3611 Rookie

does everyone take an iron supplement as well? I am need of one that is easy on the tummy! Is calcium mag different then calcium supplements? For example, I take two of those Viactic calcium chews a day.

Thanks for any input...

rmmadden Contributor

Here is what I take:

* Aloe Extract in my morning juice.

* Garlic (Antioxidant)

* Magnesium (Good For The Heart)

* Calcium (Good For The Heart & Bones)

* Multi Vitamin

* CoQ10 (Antioxidant & Good For The Heart)

* Fish Oil (Omega 3 Fatty Acids = Great For The Heart)

* Food Enzymes w/ meals

* Melatonin (Before Bed = Helps Sleep)

* Probiotic Eleven (Before Bed = Good Intestinal Flora)

I also have milled Flax Seeds mixed into my Hot Cereal (gluten-free, of course) from time-to-time. Occassionally I will take Cayenne Pepper (open capsul into a bottle of water and drink = Great for circulation, cholesterol and your heart). Finally, I make fresh apple/celery/carrot juice to drink 2-3 times a week.

Cleveland Bob :)

gf4life Enthusiast

I had a question for those of you who use probiotics. I have been using them since about December after a rather long hectic course of multiple types of antibiotics that really tore up my insides. I hate taking antibiotics, but I had a bladder infection followed by a very persisitent staph infection and it took 3 kinds to kill that one!

Well now I recently had bladder surgery (last Tuesday) and they had me on IV antibiotics for 2 days and now they have me on Levaquin. It is for urinary tract infections and they don't want me to get infected, so I have to take them while I heal.

Finally my question! Can I take the probiotics at the same time as the antibiotic, or do I have to finish the antoibiotics first. I read a long time ago (like 6 years ago) that you can't take them at the same time. That the good bacteria would kill off too much of the antibiotics and they wouldn't be effective. Is this true, or am I going by the wrong information? I am going to go do a bit of research online about it, but was wondering what you guys think...

God bless,

Mariann


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



stef-the-kicking-cuty Enthusiast

Hi Mariann,

I think, it sounds logical. I mean the part, where the good bacteria would kill of the antibiotics. But I can't really help either, I guess. But I wish you a soon recovery.

Hugs, Stef

gf4life Enthusiast

Okay, I've been doing some research. It seems you CAN take the probiotics during the course of the antibiotics, BUT you should space them out. It says to take them as many hours apart as possible. So right now I am taking the antibiotic once a day around noon, after lunch, since they upset my stomach. So if I take the probiotics at night, when I go to bed, then they should help, right? It does say to take 1 probiotic capsule 4 times a day. So does this mean I should do it about every 6 hours?? I'm so confused. I haven't been sleeping well since the surgery. I am supposed to be taking Vicodin for the pain, but I hate the way it makes me feel. I prefer taking Motrin, but they won't allow me to use it yet, since it has blood thinning properties to it. My bladder doesn't hurt as much as my head and my body hurt. I'm tired of laying around, but I have to take it easy...

I'm also having to use a stool softener. And if I feel I need it a laxative. I mean give me a break. I haven't had to use laxatives in just about forever! One of my main symptoms was diarrhea. I had to have my husband go buy a laxative, since I don't keep it in the house! Then I had to use it yesterday since I had been plugged up for a few days and really needed to go. I suffered until the laxatives went into effect last night and I was up every hour all night long!! Ughhhhhhh. I'm fed up. I hope you guys can give me some ideas here of what I can do. I have been having yogurt everyday, but would like to take the probiotics, since they really help reduce the amount of gas producing in my large intestine. Less gas would be better. My bladder is a bit tender and the gad pushing on it causes some discomfort, as well as a backache.

Looking forward to your help.

Mariann

stef-the-kicking-cuty Enthusiast

Ah, with four times a day, I don't know. Cause with mine I only have to take one tablet one time a day. Maybe your doctor knows something about it as well? But I think, if you'd only take the one at night, that would work, too. Some days I don't even take the one probiotic tablet, because I forget and it still works.

Hugs, Stef

KaitiUSA Enthusiast

Yes you can take probiotics with antibiotics. The antibiotics kill all bacteria even the good bacteria and the probiotics give you good bacteria back. Even when I have been on antibiotics or other medications I always take my probiotics and they have never seemed to interfere. :D

Carriefaith Enthusiast

Right now I take at least one of these once daily:

Jamieson Mega Cal: High Absorption Calcium: Calcium Magnesium

Jamieson: Vitamin D

Centrum Forte: High Potency Multivitamin

I plan on taking digestive enzymes in the near future.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Scott Adams replied to klmgarland's topic in Dermatitis Herpetiformis
      1

      Help I’m cross contaminating myself,

    2. - Scott Adams replied to Jmartes71's topic in Coping with Celiac Disease
      1

      My only proof

    3. - Scott Adams replied to Colleen H's topic in Related Issues & Disorders
      1

      Methylprednisone treatment for inflammation?

    4. - Scott Adams replied to ElenaM's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      I think I am gluten intolerant

    5. - klmgarland posted a topic in Dermatitis Herpetiformis
      1

      Help I’m cross contaminating myself,


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,905
    • Most Online (within 30 mins)
      7,748

    Croissantl0v3r
    Newest Member
    Croissantl0v3r
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      It is difficult to do the detective work of tracking down hidden sources of cross-contamination. The scenarios you described—the kiss, the dish towel, the toaster, the grandbaby's fingers—are all classic ways those with dermatitis herpetiformis might get glutened, and it's a brutal learning curve that the medical world rarely prepares you for. It is difficult to have to deal with such hyper-vigilance. The fact that you have made your entire home environment, from makeup to cleaners, gluten-free is a big achievement, but it's clear the external world and shared spaces remain a minefield. Considering Dapsone is a logical and often necessary step for many with DH to break the cycle of itching and allow the skin to heal while you continue your detective work; it is a powerful tool to give you back your quality of life and sleep. You are not failing; you are fighting an incredibly steep battle. For a more specific direction, connecting with a dedicated celiac support group (online or locally) can be invaluable, as members exchange the most current, real-world tips for avoiding cross-contamination that you simply won't find in a pamphlet. You have already done the hardest part by getting a correct diagnosis. Now, the community can help you navigate the rest. If you have DH you will likely also want to avoid iodine, which is common in seafoods and dairy products, as it can exacerbate symptoms in some people. This article may also be helpful as it offers various ways to relieve the itch:  
    • Scott Adams
      It's very frustrating to be dismissed by medical professionals, especially when you are the one living with the reality of your condition every day. Having to be your own advocate and "fight" for a doctor who will listen is an exhausting burden that no one should have to carry. While that 1998 brochure is a crucial piece of your personal history, it's infuriating that the medical system often requires more contemporary, formal documentation to take a condition seriously. It's a common and deeply unfair situation for those who were diagnosed decades ago, before current record-keeping and testing were standard. You are not alone in this struggle.
    • Scott Adams
      Methylprednisolone is sometimes prescribed for significant inflammation of the stomach and intestines, particularly for conditions like Crohn's disease, certain types of severe colitis, or autoimmune-related gastrointestinal inflammation. As a corticosteroid, it works by powerfully and quickly suppressing the immune system's inflammatory response. For many people, it can be very effective at reducing inflammation and providing rapid relief from symptoms like pain, diarrhea, and bleeding, often serving as a short-term "rescue" treatment to bring a severe flare under control. However, experiences can vary, and its effectiveness depends heavily on the specific cause of the inflammation. It's also important to be aware that while it can work well, it comes with potential side effects, especially with longer-term use, so it's typically used for the shortest duration possible under close medical supervision. It's always best to discuss the potential benefits and risks specific to your situation with your gastroenterologist.
    • Scott Adams
      Based on what you've described, it is absolutely possible you are dealing with non-celiac gluten sensitivity (NCGS).  Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS.   Your situation is a classic presentation: a negative celiac panel but a clear, recurring pattern of symptoms triggered by gluten. The symptoms you listed—particularly the extreme fatigue, bloating, neurological-psychiatric symptoms like depression and anxiety, and even the skin manifestations like facial flushing—are all well-documented in research on NCGS. It's important to know that you are not alone in experiencing this specific combination of physical and emotional reactions. The only way to know for sure is to commit to a strict, 100% gluten-free diet under the guidance of a doctor or dietitian for a period of several weeks to see if your symptoms significantly improve. It is also crucial to rule out other potential causes, so discussing these symptoms with a gastroenterologist is a very important next step.
    • klmgarland
      It took three years and several doctors and many tests, and lots of steroids and other bad medicine that didn’t do anything to finally find a competent doctor to get diagnosed with dermatitis herpetiformis.  I am meticulous about a completely gluten free diet now for more than a year and things were finally getting better until they weren’t.  Who knew that if I fed my dear invalid cousin a hamburger and used the same hand to eat a couple of her gluten free fries that I was cross contaminating myself.  Who knew that if my husband makes a sandwich and leaves crumbs on the counter which I sweep away with a dish towel then wash my hands and dry them on this same dish towel and then touch my lips that I potentially cross contaminated myself.  Who knew that just wiping off the table crumbs could still leave gluten on the table that has to be washed off with soap and water.  Who knew when my husband heats a tortilla by draping it over the toaster that gluten residue is possibly left behind.   Who knew that if my husband eats a gluten product and I kiss him on the lips that I was cross contaminating myself.  Who knew that if I should walk into the bakery to get my gluten free cupcake if they have been mixing up a batch of flour batter and there could be flour particles in the air I could inhale and contaminate myself.  Who knew I needed to be careful that my grand baby shouldn’t put there fingers in my mouth because they just ate a biscuit and I was cross contaminating myself.   Eating gluten free is the easy part.  But know one tells me how to live in the real world filled with gluten contamination just waiting to happen!   There I feel better getting all that off my chest but I feel isolated and alone in this journey. I sleep with a back scratcher, stand in my freezing cold pool, glob on tons of triamcinolone for the rash on my knees, back, bottom, elbows and ankles.  I use bottles of Scalpicine for the extensive rash on my scalp.  All my make up, medications, soaps, shampoos, cleaners, detergents are all gluten free.  But I still have a rash and I fear I will gouge and claw holes in my head and body before I can’t figure out how I am exposing myself to gluten.  I don’t even want to leave the house anymore.  I never eat any food or drink offered me at anyone’s home ever.  I can drink wine and eat potato chips!  Hurray for me, I finally agreed to try Dapsone even though I read it’s hard on your body but if I don’t get some relief am going to have a nervous breakdown from lack of sleep and high anxiety. Can anyone point me in the right direction? Thank you,  Helpless but Hopeful
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.