Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Slide Way Off The Wagon


dbuhl79

Recommended Posts

dbuhl79 Contributor

So, I slipped off the wagon, a few times now. Even with constant reminders from my fiance, future-in-laws, etc, that "you can't have that..". But I do, and guess what, I don't always have symptoms, so the next day I eat it again.. and then I suffer. So I figure I'd come here for a pep talk or a lecture from my dearest gluten-free friends!

I guess the toughest part is, the reality that no tests have shown I have celiac disease, but yet the only consistent thing is eating it makes causes digestive upset/sickness for me. Then in moments of weakness I use this as my defense when I indulge on home made bread, or brownies or something of that nature. Its difficult for as the bread lover that I am. gluten-free Bread just isn't quite the same..

Thanks for any supportive commentary any of you can offer... I need a reality check.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



KaitiUSA Enthusiast

Do you know for sure if you have celiac? If you think you do I would suggest find a knowledgable doctor in celiac where you live. If you do have celiac even if you don't have symptoms this ruins your intestine. This may also increase your risk of developing cancer down the road. This can lead to not only cancer but other very serious conditions. By ignoring the gluten-free diet is like setting your date to die. It is very serious.

Nobody can control you they can try to help you but only you have the power to make the change.

You have to give it time for all of the symptoms to go away. I highly recommend probiotics and enzymes if you are not on those already they help to absorb food and digest . There are also many things you can take to calm the stomach.

I have some wonderful recommendations for bread that tastes normal. There are english muffins both plain and cinnamon that taste incredible toasted. There are wonderful gluten free foods out there. I had to go through quite a number of crappy ones to find the good ones. If you need the brands of these foods let me know I would be happy to help you. Good luck :D

Guest gillian502

The first thing to do is to confirm or rule out if you have this disease. Time could be wasting for you if you're assuming you have one thing when in fact you have another. If you do not have celiac disease, but just happen to feel better off gluten, then great, cut out gluten for the most part but indulge upon occasion if in fact you have no reason not to. First things first, though...see a knowlegable doctor and get a reliable answer.

dbuhl79 Contributor

I've been through the mill of doctors and specialists. None confirming I have celiac. Nor anything else. So its pretty much left to "gee if hurts then don't do that." basis. Trust me.. I just need to get my rear in gear an dback on the wagon. I am sure I suffer from an sensitivty to gluten/wheat if nothing else..

KaitiUSA Enthusiast

If might want to do enterolab or york lab testing.

If you feel better of of gluten listen to your body..your body tells you more than any doctor could tell you.

I would try to get something confirmed whether it is an allergy or if it is infact celiac disease or something else.

jknnej Collaborator

Kaiti,

What kind of digestive enzymes do you take and where can I get them?

KaitiUSA Enthusiast

Jknnej-I take Enzymatic Therapy enzymes called CompleteGest. On their bottles they put what they are free of so I like that brand. Alot of their supplements I use because of that. They have really good Probiotics too.

I get them at Whole Foods, Roots, or Vitamin Shoppe. You can pretty much get them at the health food stores around. If you can't find them let me know and I can give you a link on where to order them. :D


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



jknnej Collaborator

Thanks, I'll look for those this weekend. I'm freaking out because I just licked an envelope and I really hope it's gluten-free...what do you think?

For the person who wrote the sliding off the wagon, I say, find a great whole foods store. I started buying wonderful mixes for cookies and breads and they taste every bit as good as the regular stuff. Even my non celiac disease hubby loves them.

You have to be patient with yourself but also strict in terms of will power. Take a look at the mainstream product list; there are SO many good foods that are gluten-free; stuff you'd never think was in a million years. Keep at it and don't get discouraged.

KaitiUSA Enthusiast

Jknnej-I have always been told that envelopes are not safe to lick because of whatever is in it to make it stick. Also, most stickers I have heard have gluten in their adhesive. If you use the ones you have to lick I would recommend using a wet paper towel or something. I wash my hands even after using the peel and stick ones just to be extra cautious.

darlindeb25 Collaborator

dubhl79---only you can make you listen--we can talk and talk to you but until you want to feel good, then it wont happen--it's dicision you have to make by yourself---i was so sick that once i went gluten-free, i never once cheated on purpose--not one time--i have been glutened, that will happen to all of us, but i do not cheat--if i doubt, then it dont go in my mouth--it's that simple and i have been gluten-free now for over 3 1/2 years--4 yrs in july--it's up to you--keep at it---dont let the gluten monster take over your mind :ph34r: ---deb

oh yeah--i never lick envelopes--at work they found me a glue stick to use or i tape them shut--i never lick envelopes-- :P

rmmadden Contributor

I am somewhat similar in that before I was diagnosed with celiac disease I could eat pasta or other gluteneous food and feel fine. The next day I would eat the pasta, etc. for lunch at work and then feel lousy. It was always the second day that got me.

Now that I have been diagnosed I have been gluten-free for the past 2-months. It just isn't worth the risk of potential damage to my intestines and the associated lousy feeling for me to go back and eat gluten (or cheat). Ask yourself when your feeling lousy if what you ate was worth it? I think most celiac disease patients would say "NO".

Best of luck!

Cleveland Bob :)

stef-the-kicking-cuty Enthusiast

dbuhl79 - I think, if there are celiacs out there, who don't have symptoms with eating gluten-free. And there are celiacs who have symptoms. Why not be one of the celiacs, who sometimes have symptoms and sometimes not? If it only hurts you sometimes, that shows you, that it definitely hurts you. Even if not all the time. Just stick to the diet, getting hurt is not worth it. And there are a lot of tasty breads and pizze and stuff for us celiacs out there. You just have to find the right ones for you :) .

Hugs, Stef

dbuhl79 Contributor

Thanks folks!

Stef, its just a matter of stupidity really. :) I've made a new commitment to myself this weekend that it was the end of my misbehaving. I'd gotten so sick and spoiled a pleasant time. I'm tired of being unable to go out without having the black cloud over my head of anticipated stomach pain, bathroom runs, or fatigue. Thanks for the pep talks.

Deb,

Hey great tip about the envelopes, that never occured to me!

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - xxnonamexx replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      50

      My journey is it gluten or fiber?

    2. - catnapt replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      8

      results from 13 day gluten challenge - does this mean I can't have celiac?

    3. - knitty kitty replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      8

      results from 13 day gluten challenge - does this mean I can't have celiac?

    4. - knitty kitty replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      50

      My journey is it gluten or fiber?

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,368
    • Most Online (within 30 mins)
      7,748

    Klairep
    Newest Member
    Klairep
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • xxnonamexx
      I don't know if I am getting sufficient Omega Threes. I read about  phosphotidyl choline may cause heart issues. I will have o do further research on heathy Omega 3 supplements or from foods. Is there a blood test that can tell you everything level in your system such as Thiamine, Benfotiamine levels etc? Thanks
    • catnapt
      If lectins were my problem, I would react to wheat germ (the highest source of wheat lectins) and beans. I don't. I only react to bread and pasta, which are the highest sources of gluten. Therefore, my issue is wheat-specific (Gluten/ATIs), not a general lectin issue.   I have eaten a supposedly high lectin diet (I say supposedly because lectin content in these foods is greatly reduced by proper cooking and I eat very few of those foods raw, and even then, rarely!!) for years. My health has improved greatly on my whole foods plant forward diet. I have asked all my drs and a registered dietician about my diet, asked if eating such a high amnt of fiber might interfere with the digestion of any other nutrients and the answer has always been NO.     while doing the gluten challenge I did not eat ANY wheat germ (since it doesn't have hardly any gluten, and I was too sick from the bread and pasta to want to eat much anyway) I will NOT put that poison in my body again. That was a horrific experience and if this is what most celiac patients have to deal with, I am very sorry for them I don't care if I have celiac or NCGS I won't intentionally cause myself that much pain and suffering it's not worth it.  
    • knitty kitty
      @catnapt,  Wheat germ contains high amounts of lectins which are really hard to digest and can be irritating to the digestive tract.  They can stimulate IgG antibody production as your blood test shows.   Even beans have lectins.  You've simply eaten too many lectins and irritated your digestive tract.   You may want to allow your digestive tract to rest for a week, then start on gluten in "normal" food, not in concentrated vital wheat gluten. This explains it well: Lectins, agglutinins, and their roles in autoimmune reactivities https://pubmed.ncbi.nlm.nih.gov/25599185/
    • knitty kitty
      I take Now B-1 (100 mg) Thiamine Hydrochloride, and Amazing Formulas L-Tryptophan (1000 mg).   Both are gluten free and free of other allergens.  I've taken them for a long time and haven't had a problem with them. I take Vitamin A from BioTech called "A-25".  It's gluten and allergen free and made in the USA.  It's a powder form of Vitamin A.  I was having trouble digesting fats at one point, but found I tolerated the powder form much better and have stuck with it since.   Tryptophan and Vitamin A help heal the intestines as well as improves skin health.  I get Dermatitis Herpetiformis and eczema flairs when my stomach is upset.  So I'm healing the outside as well as the inside.   I take one 1000 mg Tryptophan before bedtime.   With the Thiamine HCl, take 100 mg to start.  If you don't notice anything, three hours later take another. You can keep increasing your dose in this manner until you do notice improvement.  Remember not to take it in the evening so it won't keep you too energized to sleep. When I first started Thiamine HCl, taking 500 mg to 1000 mg to start was recommended.  If you've been thiamine insufficient for a while, you do notice a big difference.  It's like the start of a NASCAR race: Zoom, Zoom, turn it up!   This scared or made some people uncomfortable, but it's just your body beginning to function properly, like putting new spark plugs in your engine.  I took 1000 mg all at once without food.  It kicked in beautifully, but I got a tummy ache, so take with food.  I added in Thiamine TTFD and Benfotiamine weeks later and felt like I was Formula One racing.  So cool.  You may feel worse for a couple days as your body adjusts to having sufficient thiamine.  Feels sort of like you haven't cranked your engine for a while and it backfires and sputters, but it will settle down and start purring soon enough.  Adjust your dose to what feels right for you, increasing your dose as long as you feel improvement.  You can reach a plateau, so stay there for several days, then try bumping it up again.  If no more improvements happen, you can stay at the plateau amount and experiment with increasing your Thiamine TTFD.  It's like being your own lab rat.  LoL Yes, take one Benfotiamine at breakfast and one at lunch.  Take the B Complex at breakfast. Take the TTFD at breakfast and lunch as well.  I like to take the vitamins at the beginning of meals and the NeuroMag at the end of meals.   You may want to add in some zinc.  I take Thorne Zinc 30 mg at breakfast at the beginning of the meal.   Are you getting sufficient Omega Threes?  Our brains are made up mostly of fat.  Flaxseed oil supplements, sunflower seed oil supplements (or eat the seeds themselves) can improve that.  Cooking with extra virgin olive oil, avocado oil, or coconut oil is also helpful.   @Wheatwacked likes phosphotidyl choline supplements for his Omega Threes.  He's also had dramatic health improvement by supplementing thiamine.  You're doing great!  Thank you for sharing your journey with us.  This path will smooth out.  Keep going!  
    • catnapt
      good luck! vital wheat gluten made me violently ill. I will touch the stuff ever again.  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.