Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

I'm Blown Away. Didn't Know This Contains Wheat.

TammyK

Recommended Posts

TammyK Apprentice
TammyK
Posted

This is an exciting day. I just made sense as to why my daughter reacts to MSG in the same way as wheat. (Mild Seizing). Gluten is extracted from the wheat grain for MSG. She had a reaction this morning possibly from McDonald's Fries, a large portion at that from lunch yesterday! I learned that Micky-D's fries have MSG. (this all sounding accurate to you?) It also explains this horrible cranky day of hers.

I knew that MSG is BAD and that reacting neurologically made sense but not because there was gluten in it. Many people react to MSG that don't have any food intolerances or celiac. My mom's esphogus swells shut! She has no food issues that she is aware of atleast. (Anyone know of relationship of MSG and Asthmatics?)

Ok, before I make more mistakes, I will be needing a list of all those ingredients on the labels that contain gluten but don't label themselves wheat, oats. rye or barely.

Also, funny thing... my daughter didn't react to barely after having it over a 3 day period. So very strange! Why is it only the wheat gluten that seems so toxic? It's obvious she shouldn't be eating out until I get my head screwed on straiting anyway. Good thing though is that alteast unintended reactions provide info.

Inch by inch, one day at a time, I'm learning. This forum is a big peice of that puzzle.

TammyK

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


celiac-mommy Collaborator
celiac-mommy
Posted

Are you in the US? I've read in multiple places that in the US, MSG is derived from corn. I know MSG, in general reaks (sp?) havok on my stomach and I'm not Celiac. Also, you might want to look into the small amt of wheat in the McD's fries--long discussed topic on here. They are a no-no in my house, a small amt is too much for us!

Open Original Shared Link

You're right, MSG is BAD!!

celiac-mommy Collaborator
celiac-mommy
Posted

I guess they're not vegetarian either.... :blink:

HAK1031 Enthusiast
HAK1031
Posted

Rachelle is right...MSG in the US is fine gluten-wise, although it does make some people (celiac or otherwise) sick. However, McDonald's fries do have wheat, and they may be fried in the same fryer as the chicken nuggets, which is plenty to sicken a celiac.

psawyer Proficient
psawyer
Posted
McDonald's fries...may be fried in the same fryer as the chicken nuggets, which is plenty to sicken a celiac.

This would be a violation of McD rules. I can't rule out some franchisee violating the fryer segregation rule, but nothing except fries and hash browns are allowed in the dedicated fryers at the front of the store. It has nothing to do with keeping gluten out of the fries. The taste of McDonald french fries is what distinguishes them from other fries, and McD wants to make sure nothing like bread, chicken or fish can possibly taint the fries. Potato products are fried at the front by the window crew; everything else is fried in the back by the grill crew.

Despite the similarity in the words gluten and glutamate, they have nothing in common chemically. MSG is controversial, but it is not any worse for celiacs than for others, and it is not a source of gluten.

TammyK Apprentice
TammyK
Posted
  • Author
Despite the similarity in the words gluten and glutamate, they have nothing in common chemically. MSG is controversial, but it is not any worse for celiacs than for others, and it is not a source of gluten.

Hi All, Yes, I am in the US

Thanks for the clarification but I honestly did read that MSG has gluten in it. Ugh. However, I read alot too about how the public is misinformed to regarding the effects of MSG - that it isnt' really effecting people and that it is perfectly "safe". I watched my daugher arms trembling, she collapse of weakness, turned pale and got clamy and sweaty from the stuff. I laughed at that article. No one can tell me MSG is safe. Too bad the Internet is 100% accurate.

And, I am studying to understand glutamate and I have been confused by how it relates to gluten, thus my research today. . .

I'M VERY THANKFUL TO LEARN OF MCDONALD'S FRIES AND THE WHEAT AND MILK DERIVATIVES THEY CONTAIN. THANKS! Wow, I'm learning so much. It explains this morning's seizure better than the MSG theory. I shall have to research online all the local restaraunts so I know food labels ahead of time.

Thanks Again.

gfpaperdoll Rookie
gfpaperdoll
Posted

Tammy did you read my link to Glutamates & MSG? I think I gave it to you on another post, where I talked about all the common food problems. Please be aware of "natural flavoring". It zaps me every time.

I had some Whole Foods 365 brand sweet pickles with "natural flavoring" ate three pickles & I did not time it but I got a severe pain jolt weird sensation in my brain - not pleasant - it was down right scarry. needless to say those pickles got tossed.

A lot of people are misinformed about MSG - things change & they have changed a lot in the last couple of years concerning MSG...

I do not eat anything at McD, for one thing their hands have wheat contamination & even if the fries are in a dedicated frier, they touch the bag etc etc.

I have better luck at places like Taco Cabanna, Pei Wei...

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Juliebove Rising Star
Juliebove
Posted
I guess they're not vegetarian either.... :blink:

Or dairy free. There's milk in them. :angry:

lovegrov Collaborator
lovegrov
Posted

The Internet is a great thing overall but one of the problems is that old or wrong information hangs around for a long, long time. There are many, many ingredients that either used to have hidden gluten or that somebody (too many times the CSA) thought might be a danger that we now know are either safe or will have wheat clearly listed if not safe. It can be hard to sort it all out.

richard

TammyK Apprentice
TammyK
Posted
  • Author
Tammy did you read my link to Glutamates & MSG? I think I gave it to you on another post, where I talked about all the common food problems. Please be aware of "natural flavoring". It zaps me every time.

I had some Whole Foods 365 brand sweet pickles with "natural flavoring" ate three pickles & I did not time it but I got a severe pain jolt weird sensation in my brain - not pleasant - it was down right scarry. needless to say those pickles got tossed.

A lot of people are misinformed about MSG - things change & they have changed a lot in the last couple of years concerning MSG...

I do not eat anything at McD, for one thing their hands have wheat contamination & even if the fries are in a dedicated frier, they touch the bag etc etc.

I have better luck at places like Taco Cabanna, Pei Wei...

~gfpaperdoll~

I didn't respond to that last post based on what you said but glad to see you back. I would *love* that flourless cookie recipe! (Don't know your personal email either)

Yes, I clicked on the link, copied it and emailed it my husband's work asking for a copy of the whole document. I am experiencing printer difficulties. I find it quiet interesting. I am still trying to figure out the whole, "is it glutamate or is it gluten" thing with what is causing seizures. I know Doctor J says it's glutamate build up in the brain that causes brain disfunction. So how does french fries play into it? I KNOW she is allergic to wheat based on testing and symptoms. The french fries caused a reaction. The whole ordeal has been helpful in teaching my daugher how important it is not to trust any food until labels are read. (Esp. restaurants). She was mad at McD.

I know natural flavoring is a no-no. It was disheartening when my little girl wanted some gum at Walmart. Every single pack had natural flavoring. She cried right there in the store an copt a major attitude. Sometimes it is hard to know how to handle her. Be sympathetic or tell her to toughen up and deal with it.

I just experienced the pain jolt you are talking about. It was strange and scary. Made me more sympathetic to my daughter. It was only in a very small region of my brain. I have food issues too but they don't look anything like my little girl's. I break out in patchy irritated skin on my neck, behind my ears and around my hair line. I used to itch but that has disappeared. Alot of people think I get acne.

Things are winding up though so I may not respond quickly. We are key people in making our county fair happen.

~TK~

VegasCeliacBuckeye Collaborator
VegasCeliacBuckeye
Posted

For the record, I have never seen a McD's fry their nuggets in the same oil as the french fries.

In fact, McDonald is very poroud of their dedicated fryers for their fries and hash browns.

curlyfries Contributor
curlyfries
Posted

Not all natural flavoring is bad. It just means you need to do more research on that product to find out what is actually in THEIR natural flavoring.

As far as gum goes, there are several that are gluten-free. I have heard that fruit flavored Stride is NOT safe. Here is a site that should help:

Open Original Shared Link

lovegrov Collaborator
lovegrov
Posted

The vast majority of gums are gluten-free, even if they list natural flavors.

richard

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,343
    • Most Online (within 30 mins)
      7,748
    emoryprose
    Newest Member
    emoryprose
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • asaT
      Supplements for those Diagnosed with Celiac Disease

      By asaT · Posted

      plant sources of calcium, such as spinach, have calcium bound to oxalates, which is not good. best source of calcium is unfortunately dairy, do you tolerate dairy? fermented dairy like kefir is good and or a little hard cheese. i do eat dairy, i can only take so much dietary restriction and gluten is hard enough! but i guess some people do have bad reactions to it, so different for everyone.  
    • asaT
      Supplements for those Diagnosed with Celiac Disease

      By asaT · Posted

      i take b12, folate, b2, b6, glycine, Nac, zinc, vk2 mk4, magnesium, coq10, pqq, tmg, creatine, omega 3, molybdnem (sp) and just started vit d. quite a list i know.  I have high homocysteine (last checked it was 19, but is always high and i finally decided to do something about it) and very low vitamin d, 10. have been opposed to this supp in the past, but going to try it at 5k units a day. having a pth test on friday, which is suspect will be high. my homocysteine has come down to around 9 with 3 weeks of these supplements and expect it to go down further. i also started on estrogen/progesterone. I have osteoporosis too, so that is why the hormones.  anyway, i think all celiacs should have homocysteine checked and treated if needed (easy enough with b vit, tmg). homocysteine very bad thing to be high for a whole host of reasons. all the bad ones, heart attack , stroke, alzi, cancer..... one of the most annoying things about celiacs (and there are so many!) is the weight gain. i guess i stayed thin all those years being undiagnosed because i was under absorbing everything including calories. going gluten-free and the weight gain has been terrible, 30#, but i'm sure a lot more went into that (hip replacement - and years of hip pain leading to inactivity when i was previously very active, probably all related to celiacs, menopause) yada yada. i seemed to lose appetite control, like there was low glp, or leptin or whatever all those hormones are that tell you that you are full and to stop eating. my appetite is immense and i'm never full. i guess decades or more ( i think i have had celiacs since at least my teens - was hospitalized for abdominal pain and diarrhea for which spastic colon was eventually diagnosed and had many episodes of diarrhea/abdominal pain through my 20's. but that symptom seemed to go away and i related it to dairy much more so than gluten. Also my growth was stunted, i'm the only shorty in my family. anyway, decades of malabsorption and maldigestion led to constant hunger, at least thats my theory. then when i started absorbing normally, wham!! FAT!!!    
    • nanny marley
      Insomnia help

      By nanny marley · Posted

      Great advise there I agree with the aniexty part, and the aura migraine has I suffer both, I've also read some great books that have helped I'm going too look the one you mentioned up too thankyou for that, I find a camomile tea just a small one and a gentle wind down before bed has helped me too, I suffer from restless leg syndrome and nerve pain hence I don't always sleep well at the best of times , racing mind catches up I have decorated my whole house in one night in my mind before 🤣 diet changes mindset really help , although I have to say it never just disappears, I find once I came to terms with who I am I managed a lot better  , a misconception is for many to change , that means to heal but that's not always the case , understanding and finding your coping mechanisms are vital tools , it's more productive to find that because there is no failure then no pressure to become something else , it's ok to be sad it's ok to not sleep , it's ok to worry , just try to see it has a journey not a task 🤗
    • nanny marley
      nothing has changed

      By nanny marley · Posted

      I agree there I've tryed this myself to prove I can't eat gluten or lactose and it sets me back for about a month till I have to go back to being very strict to settle again 
    • trents
      Supplements for those Diagnosed with Celiac Disease

      By trents · Posted

      You may also need to supplement with B12 as this vitamin is also involved in iron assimilation and is often deficient in long-term undiagnosed celiac disease.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.