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Can Test Be Negative But Still Be Celiac?

jewlesD

By jewlesD
in Coping with Celiac Disease

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jewlesD Apprentice
jewlesD
Posted

just curious...my test came back normal, but I have been living gluten free for awhile and feeling better then I have in years...when I got the test I was eating a gluten filled diet, so thats not the issue. my doctor says that it is celiac even though the test came back normal...has anyone else experienced this?

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Lisa Mentor
Lisa
Posted
just curious...my test came back normal, but I have been living gluten free for awhile and feeling better then I have in years...when I got the test I was eating a gluten filled diet, so thats not the issue. my doctor says that it is celiac even though the test came back normal...has anyone else experienced this?

After an extended period of being gluten free, it would take the equivalent of 3-4 slices of bread for an estimated 3 months for the test not to be jeopardized by diet.

Blood tests as well as biopsies can be inaccurate. It sounds like your doctor is on top of things. If you respond well to a gluten free diet, that in itself is a diagnosis. Whether you are gluten intolerance of Celiac Disease the prescription is the same...a gluten free diet.

Amyleigh0007 Enthusiast
Amyleigh0007
Posted

Wow! Your doctor sounds like a dream! When my test came back negative my doctor didn't want anything to do with me anymore.

jewlesD Apprentice
jewlesD
Posted
  • Author

Yeah,

I have a great doctor who is very supportive of the celiac diagnosis and is convinced it is 100% celiac since diet showed great improvement and lack of diet brings symptoms back real bad... I was just wondering if anyone else had a negative blood test, but still was diagnosed as celiac...and did they get the diagnosis only after a biopsy? I cant believe how many people have very unsympathetic doctors, although it took a long time to find this doctor..one who would actually listen and not think I was crazy!

cyberprof Enthusiast
cyberprof
Posted
Yeah,

I have a great doctor who is very supportive of the celiac diagnosis and is convinced it is 100% celiac since diet showed great improvement and lack of diet brings symptoms back real bad... I was just wondering if anyone else had a negative blood test, but still was diagnosed as celiac...and did they get the diagnosis only after a biopsy? I cant believe how many people have very unsympathetic doctors, although it took a long time to find this doctor..one who would actually listen and not think I was crazy!

I agree, you are lucky with your doctor.

I was diagnosed by biopsy when they were looking for ulcers. I had the blood test 3 days later (still eating gluten) and was negative.

~Laura

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      how much gluten do I need to eat before blood tests?

      By trents · Posted

      I might suggest you consider buckwheat groats. https://www.amazon.com/Anthonys-Organic-Hulled-Buckwheat-Groats/dp/B0D15QDVW7/ref=sr_1_4_pp?crid=GOFG11A8ZUMU&dib=eyJ2IjoiMSJ9.bk-hCrXgLpHqKS8QJnfKJLKbKzm2BS9tIFv3P9HjJ5swL1-02C3V819UZ845_kAwnxTUM8Qa69hKl0DfHAucO827k_rh7ZclIOPtAA9KjvEEYtaeUV06FJQyCoi5dwcfXRt8dx3cJ6ctEn2VIPaaFd0nOye2TkASgSRtdtKgvXEEXknFVYURBjXen1Nc7EtAlJyJbU8EhB89ElCGFPRavEQkTFHv9V2Zh1EMAPRno7UajBpLCQ-1JfC5jKUyzfgsf7jN5L6yfZSgjhnwEbg6KKwWrKeghga8W_CAhEEw9N0.eDBrhYWsjgEFud6ZE03iun0-AEaGfNS1q4ILLjZz7Fs&dib_tag=se&keywords=buckwheat%2Bgroats&qid=1769980587&s=grocery&sprefix=buchwheat%2Bgroats%2Cgrocery%2C249&sr=1-4&th=1 Takes about 10 minutes to cook. Incidentally, I don't like quinoa either. Reminds me and smells to me like wet grass seed. When its not washed before cooking it makes me ill because of saponins in the seed coat. Yes, it can be difficult to get much dietary calcium without dairy. But in many cases, it's not the amount of calcium in the diet that is the problem but the poor uptake of it. And too much calcium supplementation can interfere with the absorption of vitamins and minerals in general because it raises gut pH.
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    • catnapt
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