Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Two Steps Foward, One Step Back

Amyleigh0007

Recommended Posts

Amyleigh0007 Enthusiast
Amyleigh0007
Posted

I was doing so well. Only one month into the diet and I felt great! Last night I was so sick! It felt just like old times, before going gluten free. I didn't eat anything unusual, there is no CC in my house. The only thing I can think of that was different yesterday is I went to the dentist and started a box of Crest Whitestrips. Did the dentist use something that contains gluten? Are Whitestrips safe?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


home-based-mom Contributor
home-based-mom
Posted
I was doing so well. Only one month into the diet and I felt great! Last night I was so sick! It felt just like old times, before going gluten free. I didn't eat anything unusual, there is no CC in my house. The only thing I can think of that was different yesterday is I went to the dentist and started a box of Crest Whitestrips. Did the dentist use something that contains gluten? Are Whitestrips safe?

Did you have your teeth cleaned? If so, and the cleaning compound was flavored, that might have been it. I believe you can request a gluten-free one for next time, although you may need to do it in advance to be sure they have it on hand. I think Whitestrips are OK.

TammyK Apprentice
TammyK
Posted
I was doing so well. Only one month into the diet and I felt great! Last night I was so sick! It felt just like old times, before going gluten free. I didn't eat anything unusual, there is no CC in my house. The only thing I can think of that was different yesterday is I went to the dentist and started a box of Crest Whitestrips. Did the dentist use something that contains gluten? Are Whitestrips safe?

Amyleigh0007,

Wanted to let you know we are having the same problems at my house. Every single week we have a set-back. We've been getting gluten from foods that we don't know it is in. The learning curve is painful. Yesterday I was so discouraged. Better days ahead.

JayinUT Newbie
JayinUT
Posted

I saw my Gastro on Monday and he told me patience. I cannot know everything all at once, the big thing is I am making major steps in the right direction. He told me to keep a personal journal to record what gets me sick, or what happen to make me sick and journaling have helped.

I do think of Randy Pausch's Last Lecture where he discusses the brick wall and I know on the other side is a life that will change my life, my family's life and those who know me. I want it so I will not be denied and I'll work through it. I have also found that a local friend has Celiac and lets just say in some ways he is becoming a mentor who can assist me through some of this. I do believe with the diligence we give to it, it will get better.

I went to the dentist today for a cleaning and I won't mention the rest . . . .

ericajones80 Newbie
ericajones80
Posted

the learning curve is definitely painful, but I guess it's something that we've all got to go through. Like it was said before, you can't know everything right away

Amyleigh0007 Enthusiast
Amyleigh0007
Posted
  • Author

Thank you for all the positive words. It helps so much to be able to vent to people who understand.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,200
    • Most Online (within 30 mins)
      7,748
    TGE
    Newest Member
    TGE
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • Scott Adams
      Increased intraepithelial lymphocytes after 10 yrs gluten-free

      By Scott Adams · Posted

      Celiac disease is the most likely cause, but here are articles about the other possible causes:    
    • xxnonamexx
      FDA looking for input on Celiac Gluten sensitivity labeling PLEASE READ and submit your suggestions

      By xxnonamexx · Posted

      Please read: https://www.fda.gov/news-events/press-announcements/fda-takes-steps-improve-gluten-ingredient-disclosure-foods?fbclid=IwY2xjawPeXhJleHRuA2FlbQIxMABicmlkETFzaDc3NWRaYzlJOFJ4R0Fic3J0YwZhcHBfaWQQMjIyMDM5MTc4ODIwMDg5MgABHrwuSsw8Be7VNGOrKKWFVbrjmf59SGht05nIALwnjQ0DoGkDDK1doRBDzeeX_aem_GZcRcbhisMTyFUp3YMUU9Q
    • cristiana
      Increased intraepithelial lymphocytes after 10 yrs gluten-free

      By cristiana · Posted

      Hi @Atl222 As @trents points out, there could be many reasons for this biopsy result.  I am interested to know, is your gastroenterologist concerned?  Also, are your blood tests showing steady improvement over the years? I remember when I had my last biopsy, several years after diagnosis, mine came back with with raised lymphocytes but no villous damage, too! In my own case, my consultant wasn't remotely concerned - in fact, he said I might still get this result even if all I ever did was eat nothing but rice and water.   My coeliac blood tests were still steadily improving, albeit slowly, which was reassuring.
    • trents
      Increased intraepithelial lymphocytes after 10 yrs gluten-free

      By trents · Posted

      Welcome to the celiac.com community, @Atl222! Yes, your increased lymphocytes could be in response to oats or it could possibly be cross contamination from gluten that is getting into your diet from some unexpected source but not enough to damage the villi. And I'm certain that increased lymphocytes can be caused by other things besides celiac disease or gluten/oats exposure. See attachment. But you might try eliminating oats to start with and possibly dairy for a few months and then seek another endoscopy/biopsy to see if there was a reduction in lymphocyte counts. 
    • Scott Adams
      Brown Rice Vinegar (organic) from Eden Foods is likely gluten free

      By Scott Adams · Posted

      This is a solid, well-reasoned approach. You’re right that “koji” by itself doesn’t indicate gluten status, and the risk really does come down to which grain is used to culture it. The fact that you directly contacted Eden Foods and received a clear statement that their koji is made from rice only, with no wheat or barley, is meaningful due diligence—especially since Eden has a long-standing reputation for transparency. While the lack of gluten labeling can understandably give pause, manufacturer confirmation like this is often what people rely on for traditionally fermented products. As always, trusting your body after trying it is reasonable, but based on the information you gathered, your conclusion makes sense.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.