Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Hilo ,hi


johnsmom

Recommended Posts

johnsmom Newbie

hay anybody live in or near hilo and know of any meetings? or you want to start one?

new to the gluten free world, john's mom


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



kenlove Rising Star

Hi,

I live in Kona and have yet to hear of otehr celiacs in Hilo -- Only know of 4 of us on the west side.

Still someone must be buying all the gluten-free foods at the health food store across from Puainako.

Maybe you can post something on the board there.

If you find any gluten-free friendly restaurants on that side please let me know too. The last time I drove over about ll I could find to eat were bananas!

take care

hay anybody live in or near hilo and know of any meetings? or you want to start one?

new to the gluten free world, john's mom

johnsmom Newbie

kenlove,

mind if i just call you ken or even kelly, as i am married? with 2 kids.

Any how , , , ,, next time you are on this side eat tai food at the one across the street from under da banyon . they have a hard name to say but i'll put thier

# 933-2424 so you could bounce off them the ing . they use in which dishs . their food is so good i usually do it take out but they do have 3 styles of eatting in, like ouside , in the middle or very cozy dim lit back section. i eat it at home 'cause i hate to waiste a drop and i love their soups . so we can eat it twice as a family of 3 ...if my girl is eatting elsewhere . then drink the gravey or put it on a packed lunch to head to work once or twice . annother choice is maui taco in prince kuhio plaza , or in a pinch i eat the steamed veggies from the little okazuya style lady.

you know there is wheat in the steamed vaggies at panda express? the only item there wheat free is egg flower soup, or white rice with seet sour sauce . ( i laughed at that 'cause mcdonalds gives a way hand fulls of those sweet sour packets...). i have yet to try their soup but had it at hilo, rice noodle soup., it's on kinoole and my stomck didn't like something so maybe the bokchoi.

i have so many questions .

do you like furikaki? did you know 11 of the 12 or so styles of it have dried shoyu granuales and there fore wheat in it ? are you real strict with your eatting style? i react on what seems like just a teaspoon size or less portion of something . did you know licerice is off limits ? did you know that meens lee hing mui powder is there fore now on my do not eat that again list.

on the other hand if you used to love oreos the ones from glutenfree mall are really good they got the outside down so perfectly but just missed the boat a little on the inside i;m tempted to use a butter knife and scrape the whites from 4 real ones and eat 4 of mine doctored up....sounds funny but a good fix of 4 i think would relly make me happy some days.

i ate one oreo just after doc said this is what i need to do and i reacted .

thanks so much for the bulliton board idea funny i hadn't thoght of it myself as that's where i just sent this colledge age friend to look for rooms to share or apartments that stdents can aford to walk to and from the campus .

hope all is well with you . how long have you been gluten free? say anything i'll read any thing you care to write. just be truth full. you know like they say Keep'in it real"

love and aloha,nancy

kenlove Rising Star

Hi nancy,

Oh dont worry, I'm married too -- 32 years worth. ken Love is my real name. Next timeyou look in the health food store and see the poster with all the fruit pictures you'll see my name. I make the posters and work for UH.

I spend a month or 2 in japan each year and get furikake which I know the contents of.I qalso make my own at6 times which is pretty easy. jsut depends what you like in it.

Last time I was at the Thai place place and asked them to make sure there was no flour in the food, they toook the flower off the table. I'm extremley sensitive so I never take chances. Been gluten-free for 3+ years now.

have been working in europe for more than a month and it will good to get home next week

take care

kenlove,

mind if i just call you ken or even kelly, as i am married? with 2 kids.

Any how , , , ,, next time you are on this side eat tai food at the one across the street from under da banyon . they have a hard name to say but i'll put thier

# 933-2424 so you could bounce off them the ing . they use in which dishs . their food is so good i usually do it take out but they do have 3 styles of eatting in, like ouside , in the middle or very cozy dim lit back section. i eat it at home 'cause i hate to waiste a drop and i love their soups . so we can eat it twice as a family of 3 ...if my girl is eatting elsewhere . then drink the gravey or put it on a packed lunch to head to work once or twice . annother choice is maui taco in prince kuhio plaza , or in a pinch i eat the steamed veggies from the little okazuya style lady.

you know there is wheat in the steamed vaggies at panda express? the only item there wheat free is egg flower soup, or white rice with seet sour sauce . ( i laughed at that 'cause mcdonalds gives a way hand fulls of those sweet sour packets...). i have yet to try their soup but had it at hilo, rice noodle soup., it's on kinoole and my stomck didn't like something so maybe the bokchoi.

i have so many questions .

do you like furikaki? did you know 11 of the 12 or so styles of it have dried shoyu granuales and there fore wheat in it ? are you real strict with your eatting style? i react on what seems like just a teaspoon size or less portion of something . did you know licerice is off limits ? did you know that meens lee hing mui powder is there fore now on my do not eat that again list.

on the other hand if you used to love oreos the ones from glutenfree mall are really good they got the outside down so perfectly but just missed the boat a little on the inside i;m tempted to use a butter knife and scrape the whites from 4 real ones and eat 4 of mine doctored up....sounds funny but a good fix of 4 i think would relly make me happy some days.

i ate one oreo just after doc said this is what i need to do and i reacted .

thanks so much for the bulliton board idea funny i hadn't thoght of it myself as that's where i just sent this colledge age friend to look for rooms to share or apartments that stdents can aford to walk to and from the campus .

hope all is well with you . how long have you been gluten free? say anything i'll read any thing you care to write. just be truth full. you know like they say Keep'in it real"

love and aloha,nancy

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,914
    • Most Online (within 30 mins)
      7,748

    ChrisMary
    Newest Member
    ChrisMary
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • knitty kitty
      I followed the Autoimmune Protocol Diet which is really strict for a while, but later other foods can be added back into your diet.  Following the AIP diet strictly allows you digestive system to heal and the inflammation to calm down.  Sort of like feeding a sick baby easy to digest food instead of spicy pizza.   It's important to get the inflammation down because chronic inflammation leads to other health problems.  Histamine is released as part of the autoimmune response to gluten.  High histamine levels make you feel bad and can cause breathing problems (worsening asthma), cardiovascular problems (tachycardia), and other autoimmune diseases (Hashimoto's thyroiditis, diabetes) and even mental health problems. Following the low histamine version of the AIP diet allows the body to clear the histamine from our bodies.  Some foods are high in histamine.  Avoiding these makes it easier for our bodies to clear the histamine released after a gluten exposure.   Vitamin D helps regulate the immune system and calm it down.  Vitamin D is frequently low in Celiacs.  The B Complex vitamins and Vitamin C are needed to clear histamine.   Supplementing with essential vitamins and minerals boosts your intestines' ability to absorb them while healing.   Keep in mind that gluten-free facsimile foods, like gluten-free bread, are not enriched with added vitamins like their gluten containing counterparts are.   They are empty calories, no nutritional value, which use up your B vitamins in order to turn the calories into fuel for the body to function.   Talk to your doctor or nutritionist about supplementing while healing.  Take a good B Complex and extra Thiamine in the form Benfotiamine (shown to promote gut health).  Most B Complex vitamins contain thiamine mononitrate which the body cannot utilize.  Meats and liver are good sources of B vitamins.   Dr. Sarah Ballantyne wrote the book, the Paleo Approach.  She's a Celiac herself.  Her book explains a lot.   I'm so glad you're feeling better and finding your balance!
    • klmgarland
      So I should not eat my gluten free bread?  I will try the vitamins.  Thank you all so very much for your ideas and understanding.  I'm feeling better today and have gathered back my composure!
    • knitty kitty
      Some people prefer eating gluten before bed, then sleeping through the worst symptoms at night.  You might want to try that and see if that makes any difference.   Several slices of toast for breakfast sounds okay.  Just try to work up to the Ten grams of gluten.  Cookies might only have a half of a gram of gluten.  The weight of the whole cookie is not the same as the amount of gluten in it.  So do try to eat bread things with big bubbles, like cinnamon rolls.   Yeah, I'm familiar with the "death warmed over" feeling.  I hope you get the genetic test results quickly.  I despise how we have to make ourselves sick to get a diagnosis.  Hang in there, sweetie, the tribe is supporting you.  
    • Clear2me
      Thank you, a little expensive but glad to have this source. 
    • Xravith
      @knitty kitty  Thank you very much for the advice. I did the exam this morning, my doctor actually suggested me to take something called "Celiac duo test" in which I first do the genetic test and if it's positive, then I'll have to do the antigen blood test. I have to attend 1 month until my results are ready, so I have some weeks to increase the amount of gluten I eat daily. It will be hard because my health is not the best right now, but I also did a blood test to cheek my nutritional deficiencies. The results will arrive on Tuesday, so I can ask my doctor what should I do to control my symptoms and blood levels during this month. For now I'm resting and paying attention to what I eat— at least I don’t look like a vampire who just woke up, like I did yesterday. I'm still scared because is the first time I've felt this sick, but this is the right moment to turn things around for the better.  I realized that if I eat gluten at lunch I cannot finish the day properly, I become severely tired and sometimes my stomach hurts a lot - let's not talk about the bloating that starts later. Do you think is it ok to eat gluten just in the morning, like some cookies and slices of bread for breakfast? 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.