Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Just Plain Happy, With A Few Questions


raen

Recommended Posts

raen Apprentice

alot of people seem to feel burdened by the gluten-free diet and obsessive steps it takes to "protect" your tummy.. but ive never been happier. im 18 and i have this gluten allergy really bad - i cnat even kiss my boyfriend closed-mouthed after hes had a sub or i get sick for 3 days.

for as far back as i can remember - and im told even as a baby - ive felt sick more often than okay..

at 4 i started complaining of joint pains all over and was labeled a hypochondriac (turned out to be hypermobility joint something - authritus). at 7 i was diagnosed as "stress-induced stomach pains and nausea" because my "parents divorced", at 9 i was diagnosed with 4 sleep disorders and some obscure disorder where soft spots on your lungs make it hurt to breath sometimes (turned out to be hyperventilation syndrome),was forced to drop out of highschool at age 15 due to chronic panic attacks between 15 and 16 i felt so sick i thought i was going to die (started as an ear infection then was labeled "sick from stress" again), at 16 i started an all organic diet, at age 17 i finally got on an all organic diet, at age 17 i monitored what i ate in order to figure out if i had food allergies/intolerances (i had many), all of my life ive had chronic tonsillitis, and IGA deficiency, at 18 i tried the ever-awful "candida diet" which only served to make me Faint on day 9. being diagnosed as celiac and not hypochondriac or deathly incurable ill was nothing short of cry-worthy after a life like that.

a message of tough-love for anyone stupid enough to be sad they are on a gluten-free diet .. : hey sucker, at least you know what makes you sick.

however, i have formed a very sensitive stomach and read it wont start acting "normal" until its fully healed which will likely take a year.

so is it okay to drink low acid coffee even if it upsets my stomach mildly, or will that lead to further damage? (regular coffee bothers my stomach all day - low acid organic for only 15 minutes, just between my stomach and small intestine, a dull "stretching" pain rather than anything dramatic.)

has coffee upset anyone else's stomach? how long did it last and what did you do?

im fully grown at 5'1'' and 86lbs, but now that im on the gluten-free diet is it likely i will grow and be tall like the rest of my family? i think im actually gaining a little weight, maybe up to 90lbs now!

i wear contacts, reeeally high proscription, could being gluten-free improve that too? and my seasonal allergies?

also, any advice on how to keep my boyfriend (of almost 7 years) from worrying about me while i am still healing? every little problem plants this worried helpless look on his face like he wants to rush me to a doctor.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Ursa Major Collaborator

You are right in saying that finally being diagnosed with celiac disease is a big relief after being ill so long! I was in the same boat, but didn't figure it out until I was 52. I was labeled a hypochondriac for most of my life.

As for the coffee, you really should avoid anything right now that upsets your stomach. Since coffee will do that, you need to stop drinking it for a few months. I am sure it will be fine within three to six months to have it again.

It would be best if you could just eat easy to digest foods for a while, like cooked vegetables, chicken etc., that are naturally gluten-free. All those replacement gluten-free foods are hard on your stomach and are best avoided for the first little while.

Also, it is likely that you can't digest dairy at this point, and it would be best if you would eliminate all dairy for a few months as well, to help with healing. The same goes for soy.

Jestgar Rising Star

You might get a little taller, it just depends on here you are in your own personal growth schedule. If have some "growth spurts" left, it could happen.

Ursa Major Collaborator
You might get a little taller, it just depends on here you are in your own personal growth schedule. If have some "growth spurts" left, it could happen.

I agree, I actually grew another inch or so when I was twenty! Two of my girls did the same thing. So, it is obviously possible.

raen Apprentice

ive never liked cooked vegetables, unlike most kids/teens i was always very close to vegan, and love raw fruits and vegetables to be a dominant part of my diet. why would raw vegetables be bad?

my mom is cherokee so i've been allergic to milk sense birth, ive always been strictly soy. considering that, would plain silk brand soymilk still be a problem? i cant drink the vanilla, buti couldnt understand why - is it hard to digest?

i notice that all acidic foods, even oranges, seem to upset my tummy though. i stopped eating oranges last week. apple cider vinegar is a big exception to that, and organic teas seem fine but i dont think they're acidic..? what about onion and garlic? potatoes?

i will definitely cut off on the corn, rice, and etc products. i knew rice was bothering me, and thought corn may be too, so i wont go near them for a few months (though tapioca bread seems fine, i may eat a piece with breakfast sometimes)

  • 2 weeks later...
CeliacAlli Apprentice
alot of people seem to feel burdened by the gluten-free diet and obsessive steps it takes to "protect" your tummy.. but ive never been happier. im 18 and i have this gluten allergy really bad - i cnat even kiss my boyfriend closed-mouthed after hes had a sub or i get sick for 3 days.

for as far back as i can remember - and im told even as a baby - ive felt sick more often than okay..

at 4 i started complaining of joint pains all over and was labeled a hypochondriac (turned out to be hypermobility joint something - authritus). at 7 i was diagnosed as "stress-induced stomach pains and nausea" because my "parents divorced", at 9 i was diagnosed with 4 sleep disorders and some obscure disorder where soft spots on your lungs make it hurt to breath sometimes (turned out to be hyperventilation syndrome),was forced to drop out of highschool at age 15 due to chronic panic attacks between 15 and 16 i felt so sick i thought i was going to die (started as an ear infection then was labeled "sick from stress" again), at 16 i started an all organic diet, at age 17 i finally got on an all organic diet, at age 17 i monitored what i ate in order to figure out if i had food allergies/intolerances (i had many), all of my life ive had chronic tonsillitis, and IGA deficiency, at 18 i tried the ever-awful "candida diet" which only served to make me Faint on day 9. being diagnosed as celiac and not hypochondriac or deathly incurable ill was nothing short of cry-worthy after a life like that.

a message of tough-love for anyone stupid enough to be sad they are on a gluten-free diet .. : hey sucker, at least you know what makes you sick.

I don't really know life any different because I was diagnosed at 11 months, so it doesn't bother me to be gluten-free at all, but I certainly don't like getting glutened!!!

however, i have formed a very sensitive stomach and read it wont start acting "normal" until its fully healed which will likely take a year.

so is it okay to drink low acid coffee even if it upsets my stomach mildly, or will that lead to further damage? (regular coffee bothers my stomach all day - low acid organic for only 15 minutes, just between my stomach and small intestine, a dull "stretching" pain rather than anything dramatic.)

has coffee upset anyone else's stomach? how long did it last and what did you do?

im fully grown at 5'1'' and 86lbs, but now that im on the gluten-free diet is it likely i will grow and be tall like the rest of my family? i think im actually gaining a little weight, maybe up to 90lbs now!

i wear contacts, reeeally high proscription, could being gluten-free improve that too? and my seasonal allergies?

also, any advice on how to keep my boyfriend (of almost 7 years) from worrying about me while i am still healing? every little problem plants this worried helpless look on his face like he wants to rush me to a doctor.

FaeLD Newbie
im fully grown at 5'1'' and 86lbs, but now that im on the gluten-free diet is it likely i will grow and be tall like the rest of my family? i think im actually gaining a little weight, maybe up to 90lbs now!

When I was about 8 months or so, I was half the weight I was supposed to be because my parents started feeding me things that contained gluten. So while you will not be as tall as you could have been, you might (and will probably) grow taller. Same for weight

has coffee upset anyone else's stomach? how long did it last and what did you do?

Sorry, no.

i wear contacts, reeeally high proscription, could being gluten-free improve that too? and my seasonal allergies?

If poor eye-sight is in the family, then probably not. Same for other allergies. My cousin was diagnosed as a celiac about age 20-ish after it having come out for about 3 months (though it stopped after a few months, since it came out because she was taking drugs, which rehab thankfully fixed). She never had problems with eye-sight or other allergies (external ones such as cats / pollen / etc.) Though she did have an outbreak of acne and a very very weak stomach

I suggest the same as Ursa Major. Avoid eating anything that could make your stomach quesy. Milks and Dairy products mostly, at least until you get back on your feet.

Here's hoping for the best!

why would raw vegetables be bad?

They shouldn't be that bad, but they are still heavier on the stomach than cooked once. Though again, they shouldn't be a problem

would plain silk brand soymilk still be a problem?

Soy milks are more easily digested, and are easier to digest than normal milks, but are still not that easy to digest.

If you can cut back, at least until you feel healthier it would be best. If you feel you cannot stop drinking it, just don't drink too much.

organic teas seem fine but i dont think they're acidic..?

According to which. Some have acids, some don't. I don't drink a lot of tea, but a quick google for tea shows that some don't have acids (Jasmine Tea) while some do (Orange Spice Assam).

onion and garlic? potatoes?

Onions have acids (Part of the reason they make you cry). I don't think garlic / potatoes do

Best case right now is to totally cut off wheats (obviously) and cut off other things that make you feel bad. Go for a case by case basis, since there isn't a common denominator to what is effecting you


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Scott Adams replied to Jmartes71's topic in Dermatitis Herpetiformis
      1

      Natural remedies

    2. - Scott Adams replied to miguel54b's topic in Related Issues & Disorders
      1

      Gluten and short-term memory.

    3. - Scott Adams replied to Suze046's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Reintroduction of Gluten

    4. - Scott Adams replied to Rejoicephd's topic in Coping with Celiac Disease
      2

      Draft gluten-free ciders… can they be trusted ?

    5. - Scott Adams replied to Mykidzz3's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      High Cost of Gluten-Free Foods


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,370
    • Most Online (within 30 mins)
      7,748

    Redred1
    Newest Member
    Redred1
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      While it's always important to approach internal use of essential oils with caution and ideally under the guidance of a qualified professional, your experience highlights the potential of complementary approaches when traditional medicine falls short. Many in the community are also interested in the intersection of natural wellness and gluten-free living, particularly for managing systemic inflammation and its various symptoms, so sharing your story is valuable. Your observation that it may also be helping with bloating is fascinating, as that could point to an overall reduction in inflammation. Thank you for sharing what is working for you!
    • Scott Adams
      It's interesting how a single, clear moment—like struggling during a game—can suddenly connect all the dots and reveal the hidden impact of gluten exposure. Your experience with short-term memory fog is a very real and documented symptom for many individuals with gluten sensitivity, often occurring alongside the other issues you mentioned like mood disturbances, sleep disruption, and digestive irregularity. It's a frustrating and often invisible effect that can make you feel unlike yourself, so that moment of clarity, though born from a tough dominoes match, is actually a powerful piece of self-knowledge. Identifying a specific culprit like that steak strip is a huge win, as it arms you with the information needed to avoid similar pitfalls in the future and protect your cognitive clarity. You are definitely not alone in experiencing this particular set of neurological and physical symptoms; it's a strong reminder of gluten's profound impact on the entire body, not just the digestive system. Supplementation may help you as well.  The most common nutrient deficiencies associated with celiac disease that may lead to testing for the condition include iron, vitamin D, folate (vitamin B9), vitamin B12, calcium, zinc, and magnesium.  Unfortunately many doctors, including my own doctor at the time, don't do extensive follow up testing for a broad range of nutrient deficiencies, nor recommend that those just diagnosed with celiac disease take a broad spectrum vitamin/mineral supplement, which would greatly benefit most, if not all, newly diagnosed celiacs. Because of this it took me decades to overcome a few long-standing issues I had that were associated with gluten ataxia, for example numbness and tingling in my feet, and muscle knots--especially in my shoulders an neck. Only long term extensive supplementation has helped me to resolve these issues.      
    • Scott Adams
      Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS. What you're describing is a very common and frustrating experience when reintroducing gluten after a period of avoidance, and your timeline is perfectly consistent with a non-celiac gluten sensitivity. While a celiac reaction can be more immediate, a sensitivity reaction is often delayed, sometimes taking several days to manifest as your body's inflammatory response builds up; the fact that your symptoms returned a few days after reintroduction is a strong indicator that gluten is indeed the culprit, not a coincidence. Your doctor's advice to reintroduce it was necessary to confirm the diagnosis, as the initial negative celiac test and subsequent improvement on a gluten-free diet pointed strongly towards sensitivity. Many in this community have gone through this exact same process of elimination and challenging, and it's wise to reintroduce gently as you did. Given your clear reaction, the best course of action is likely to resume a strict gluten-free diet, as managing a sensitivity is the primary way to control those debilitating symptoms and allow your body to heal fully.
    • Scott Adams
      Your suspicion is almost certainly correct, and you are wise to be cautious. Draft cider is a very common and often overlooked source of cross-contact because the same tap lines are frequently used for both beer and cider; unless a bar has a dedicated line for gluten-free beverages, which is rare, the cider will run through tubing that has previously contained gluten-containing beer, contaminating your drink. The fact that you didn't react at a clean brewery suggests they may have had more meticulous practices or separate lines, but this is the exception, not the rule. Many in the community have had identical experiences, leading them to strictly avoid draft cider and opt for bottled or canned versions, which are poured directly from their sealed container and bypass the contaminated tap system entirely. Switching to bottles or cans is the safest strategy, and your plan to do so is a smart move to protect your health. PS - here are some articles on the topic:    
    • Scott Adams
      Your post really highlights the financial and emotional struggle so many families face. You are not alone in feeling frustrated by the high cost of gluten-free specialty items and the frustrating waste when your daughter can't tolerate them. A great place to start is by focusing on naturally gluten-free whole foods that are often more affordable and less processed, like rice, potatoes, beans, lentils, corn, eggs, and frozen fruits and vegetables—these are nutritional powerhouses that can form the basis of her meals. For the specialty items like bread and pasta, see if your local stores carry smaller, single-serving packages or allow returns if a product causes a reaction, as some companies understand this challenge. Regarding vitamins, that is an excellent next step; please ask her doctor to prescribe a high-quality gluten-free multivitamin, as insurance will often cover prescribed vitamins, making them much more affordable. Finally, connecting with a local celiac support group online can be a treasure trove of location-specific advice for finding the best and most affordable products in your area, saving you both time and money on the trial-and-error process. 
×
×
  • Create New...