Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Degenerative Disc Disease


KristaleeJane

Recommended Posts

KristaleeJane Contributor

Hello

I am 28 and was just diagnosed with Degenerative Disc Disease also, I have been gluten free since my diagnosis of celiac in April 2008 so only 3.5 mths. I have had back problems for about 8 years now and my doc did and xray on my back a couple of weeks ago where they found bone spurs, and disc narrowing, she said this is disc degenerative Disease. I am worried about that I could also have arthritis or osteopenia, although my doc doesn't seem to see the connection that this has with celiac.

I now want to get an MIR to further investigate what else may be happening, although my doc doesn't think its necessary. She said that there is really nothing you can do about it except take anti infammatory meds, do physio and massage.

I feel very young also to have this and I think it has alot to do with celiac. I am now taking extra calcium, magnesium and a good mutli vitamin, because I also avoid dairy(may introduce it later)

If anyone has any advise as to if I should have an MRI or a bone density scan and if they know more about Degenerative Disc Disease, I would really appreciate it.

Here is my results from the x-ray (in doctor language) :

Disc space narrowing is noted at aC5-6 with posterior osteophytes(bone spurs) there is also narrowing of the left c5-5 intervertebral foramen.

Thanks

Krista


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



trents Grand Master

Hi Krista,

I don't know that DDD can be directly tied to Celiac disease. Degenarative discs, unlike osteoporosis or osteopenia which affect the bones and the vertebrae are not tied to calcium malabsorbtion that I know of. I certainly would recommend getting a dexascan done to check bone density as bone density loss is very common in Celiacs. You don't want to start getting fractures on top of disc disease. I am a 57-year-old male with osteopenia from years of undiagosed Celiac disease. I'm now on Fosamax and calcium supplements. I also take 1000 IU of Vitamin D3. Sense beginning the D3 regimine I have actuially regained some bone density whereas that was not the case when just on Fosamax and calcium. Remember, Vit. D is essential to calcium uptake and Celiacs not only absorb minerals poorly but vitamins as well. You might want to look at D3 supplementation. I should also add that I live in the Pacific Northwest where we don't get much sunshine and are not able to make D through the skin naturally in sufficient quantities.

Steve

Ridgewalker Contributor

Although I'm not sure what the process actually is, I do think it's possible that Degenerative Disc Disease could be related to Celiac. I'm 30 now, and was diagnosed with it (DDD) when I was 18. 18! And there's another member here who was diagnosed with it at 17.

Over the years since I was diagnosed with it, I've had discs actually rupture, and then gradually heal with courses of steroids and anti-inflammatories... only to herniate again in 6 months.

I've been going to through those weird cycles for YEARS... the pain can be excruciating, as I'm sure you guys know.

The only other thing I can tell you, is that I've had very few problems with my back in the year that I've been gluten-free. I'm not making a staunch claim that going gluten-free has fixed my back. I'm not sure how it could do that, but nonetheless... that's where I'm at right now.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,930
    • Most Online (within 30 mins)
      7,748

    Mhp
    Newest Member
    Mhp
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • AnnaNZ
      I forgot to mention my suspicion of the high amount of glyphosate allowed to be used on wheat in USA and NZ and Australia. My weight was 69kg mid-2023, I went down to 60kg in March 2024 and now hover around 63kg (just after winter here in NZ) - wheat-free and very low alcohol consumption.
    • AnnaNZ
      Hi Jess Thanks so much for your response and apologies for the long delay in answering. I think I must have been waiting for something to happen before I replied and unfortunately it fell off the radar... I have had an upper endoscopy and colonoscopy in the meantime (which revealed 'minor' issues only). Yes I do think histamine intolerance is one of the problems. I have been lowering my histamine intake and feeling a lot better. And I do think it is the liver which is giving the pain. I am currently taking zinc (I have had three low zinc tests now), magnesium, B complex, vitamin E and a calcium/Vitamin C mix. I consciously think about getting vitamin D outside. (Maybe I should have my vitamin D re-tested now...) I am still 100% gluten-free. My current thoughts on the cause of the problems is some, if not all, of the following: Genetically low zinc uptake, lack of vitamin D, wine drinking (alcohol/sulphites), covid, immune depletion, gastroparesis, dysbiosis, leaky gut, inability to process certain foods I am so much better than late 2023 so feel very positive 🙂    
    • lehum
      Hi and thank you very much for your detailed response! I am so glad that the protocol worked so well for you and helped you to get your health back on track. I've heard of it helping other people too. One question I have is how did you maintain your weight on this diet? I really rely on nuts and rice to keep me at a steady weight because I tend to lose weight quickly and am having a hard time envisioning how to make it work, especially when not being able to eat things like nuts and avocados. In case you have any input, woud be great to hear it! Friendly greetings.
    • Hmart
      I was not taking any medications previous to this. I was a healthy 49 yo with some mild stomach discomfort. I noticed the onset of tinnitus earlier this year and I had Covid at the end of June. My first ‘flare-up’ with these symptoms was in August and I was eating gluten like normal. I had another flare-up in September and then got an upper endo at the end of September that showed possible celiac. My blood test came a week later. While I didn’t stop eating gluten before I had the blood test, I had cut back on food and gluten both. I had a flare-up with this symptoms after one week of gluten free but wasn’t being crazy careful. Then I had another flare-up this week. I think it might have been caused by Trader Joe’s baked tofu which I didn’t realize had wheat. But I don’t know if these flare-ups are caused by gluten or if there’s something else going on. I am food journaling and tracking all symptoms. I have lost 7 pounds in the last 10 days. 
    • trents
      Welcome to the forum, @Hmart! There are other medical conditions besides celiac disease that can cause villous atrophy as well as some medications and for some people, the dairy protein casein. So, your question is a valid one. Especially in view of the fact that your antibody testing was negative, though there are also some seronegative celiacs. So, do you get reactions every time you consume gluten? If you were to purposely consume a slice of bread would you be certain to develop the symptoms you describe?
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.