Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Questions About Testing...

Lymetoo

Recommended Posts

Lymetoo Contributor
Lymetoo
Posted

Hey gang! It's been quite awhile since I've been here. I never REALLY had a definitive test for celiac disease... I don't think.

I dont know if I'm a true celiac or gluten intolerant. I have been less than careful about my diet when eating out, etc.

I think I'm suffering from celiac symptoms again. I don't get deathly ill from ingesting gluten... it's more subtle.

I've been having trouble with what was thought to have been a stone in my bile duct and I just found out there is no longer one there.

I've been having dizziness, fatigue, and stomach pains [stomach, not intestines]. I lost about 25 lbs over the past 6 months.

So... if i get tested thru Enterolab, is there any chance it will be covered by insurance?? I need to find out if I'm a true celiac or not.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Rachel--24 Collaborator
Rachel--24
Posted
So... if i get tested thru Enterolab, is there any chance it will be covered by insurance?? I need to find out if I'm a true celiac or not.

You cant find out whether or not you have Celiac Disease throuh Enterolab.

They can only tell you whether or not you are sensitive to gluten....but they cannot diagnose Celiac Disease.

Lisa Mentor
Lisa
Posted
Hey gang! It's been quite awhile since I've been here. I never REALLY had a definitive test for celiac disease... I don't think.

I dont know if I'm a true celiac or gluten intolerant. I have been less than careful about my diet when eating out, etc.

I think I'm suffering from celiac symptoms again. I don't get deathly ill from ingesting gluten... it's more subtle.

I've been having trouble with what was thought to have been a stone in my bile duct and I just found out there is no longer one there.

I've been having dizziness, fatigue, and stomach pains [stomach, not intestines]. I lost about 25 lbs over the past 6 months.

So... if i get tested thru Enterolab, is there any chance it will be covered by insurance?? I need to find out if I'm a true celiac or not.

Welcome back!

I am sorry that you are having problems again.

I don't think that I recall members mentioning that Enterolabs is covered by insurance. They do not diagnose, but they can tell you if are sensitive to gluten and other things, but you already know that.

Lymetoo Contributor
Lymetoo
Posted
  • Author

Ugh... They can't tell me if I'm celiac or not?? That STINKS!!!!

So the only way is thru the biopsy?? .. which I refuse to do...

Hi Rachel and Momma Goose!!!!!! :)

Lisa Mentor
Lisa
Posted
Ugh... They can't tell me if I'm celiac or not?? That STINKS!!!!

So the only way is thru the biopsy?? .. which I refuse to do...

Hi Rachel and Momma Goose!!!!!! :)

Biopsys are not always acccurate as are the blood tests. The only true test is a positive dietary response.

If you have been gluten free for a while and then slowly added gluten, it might take a while for symptoms to surface. Sort of like a car slowly rolling down a hill, no damage until one day the car goes over the cliff.

Wish I could offer an answer.

Lymetoo Contributor
Lymetoo
Posted
  • Author
Biopsys are not always acccurate as are the blood tests. The only true test is a positive dietary response.

If you have been gluten free for a while and then slowly added gluten, it might take a while for symptoms to surface. Sort of like a car slowly rolling down a hill, no damage until one day the car goes over the cliff.

Wish I could offer an answer.

Yes, my car went over the cliff allright! Thanks.

So, the only thing I can do is be more careful with my diet??

What about the blood test? If it comes back positive, then I'd know??

Rachel--24 Collaborator
Rachel--24
Posted
What about the blood test? If it comes back positive, then I'd know??

Hi Lymetoo. :)

No guarantees about the bloodwork being positive. Depends on how much gluten you've been eating and for how long now.

You can have them run the test just to check it...after that maybe you should go back on the diet 100% if you feel that gluten is responsible for the problems.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Lymetoo Contributor
Lymetoo
Posted
  • Author

So it's kinda like the biopsy. If I haven't been ingesting very much gluten, it's likely to come back negative?

That's what happened to me when I had the biopsy years ago. I already knew I was "allergic" to wheat and had been avoiding it for the most part....but I didn't understand about gluten back then.

The one test that came back positive for gluten was a saliva test for cortisol. It showed high gliadin antibodies. Anything over 15 was high and mine was 66.

It says "Positive AGA or elevated AGA antibodies MAY not necessarily imply celiac disease state, but a subclinical mucotoxic reaction. Healthy adults and children may show positive antibodies to Gliadin."

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. trents
      - trents replied to barb simkin's topic in Related Issues & Disorders
      8

      celiac, chocolate and alcohol

      So, you had both and endoscopy with biopsy and a colonoscopy. That helps me understand what you were trying to communicate. No, no! It never occurred to me that you were trying to mislead me. It's just that we get a lot of posters on the forum who are misinformed about what celiac disease is and how it is diagnosed so I need some clarification from you which...
    2. barb simkin
      - barb simkin replied to barb simkin's topic in Related Issues & Disorders
      8

      celiac, chocolate and alcohol

      I had both the genetic genes for celiac. My gastroenologist advised he also took a biopsy during one of my colonoscopies and endoscopy and advised I had celiac disease, along with stomach ulcers from my esophagus stomach down to my small bowel. I was shown the ulcers on the catscan and endoscopy report. I also had polyps in 3 places throughout my large...
    3. trents
      - trents replied to barb simkin's topic in Related Issues & Disorders
      8

      celiac, chocolate and alcohol

      So, I'm a little confused here. I understand you to say that you have not been officially diagnosed with celiac disease. Is this correct? You have had genetic testing done to check for the potential for developing celiac disease and that was positive. Is this correct? I think you meant to type "gluten sensitivity" but you typed "gluten insensitivity...
    4. pweidema
      - pweidema commented on Scott Adams's article in Autumn 2025 Issue
      1

      The Unexpected Gluten Traps in International Snacks: What Not to Bring Back From Vacation

      Very informative. Thank you!
    5. barb simkin
      - barb simkin replied to barb simkin's topic in Related Issues & Disorders
      8

      celiac, chocolate and alcohol

      I did nor read the chocolate pkg as it was of fered to me and I ate 2 pcs. I do know that only very dark chocolate and and a very few others are gluten free. Most alcohols contain gluten. I have several yrs of not knowing my celiac condition as docs would not do the test. After looking on the internet about my sufferings I insisted on the gene trsting...
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,332
    • Most Online (within 30 mins)
      7,748
    Roxy79
    Newest Member
    Roxy79
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • trents
      celiac, chocolate and alcohol

      By trents · Posted

      So, you had both and endoscopy with biopsy and a colonoscopy. That helps me understand what you were trying to communicate. No, no! It never occurred to me that you were trying to mislead me. It's just that we get a lot of posters on the forum who are misinformed about what celiac disease is and how it is diagnosed so I need some clarification from you which you were so gracious to give.
    • barb simkin
      celiac, chocolate and alcohol

      By barb simkin · Posted

      I had both the genetic genes for celiac.  My gastroenologist advised he also took a biopsy during one of my colonoscopies and endoscopy and advised I had celiac disease, along with stomach ulcers from my esophagus stomach down to my small bowel. I was shown the ulcers on the catscan and endoscopy report.  I also had polyps in 3 places throughout my large bowel. I was on a strict diet for months following.  I am sorry if I didnt define how I was diagnosed with celiac disease.  I am sorry if you think I was misleading you. I also had to pay $150.00 for the genetic testing.
    • trents
      celiac, chocolate and alcohol

      By trents · Posted

      So, I'm a little confused here. I understand you to say that you have not been officially diagnosed with celiac disease. Is this correct?  You have had genetic testing done to check for the potential for developing celiac disease and that was positive. Is this correct? I think you meant to type "gluten sensitivity" but you typed "gluten insensitivity". Just so we are clear about the terminology, there is celiac disease and there is NCGS (Non Celiac Gluten Sensitivity). They are not the same but they have overlapping symptoms. Celiac disease causes damage to the small bowel lining but NCGS does not. NCGS is often referred to in short form as gluten sensitivity. However, people often use the terms celiac disease and gluten sensitivity interchangeably so it can be unclear which disease they are referring to. Genetic testing cannot be used to diagnose celiac disease but it can be used to establish the potential to develop active celiac disease. About 40% of the general population has one or both of  the genes that have been most strongly connected with the potential to develop active celiac disease but only about 1% of the population actually develops active celiac disease. This makes the genetic test useful for ruling out celiac disease but not for diagnosing it. A colonoscopy cannot be used to diagnose celiac disease because it doesn't permit the scope to go up into the small bowel where celiac disease does the damage. They use an endoscopy ("upper GI) for checking the small bowel lining for celiac damage.
    • barb simkin
      celiac, chocolate and alcohol

      By barb simkin · Posted

      I did nor read the chocolate pkg as it was of fered to me and I ate 2 pcs. I do know that only very dark chocolate and and a very few others are gluten free. Most alcohols contain gluten. I have several yrs of not knowing my celiac condition as docs would not do the test. After looking on the internet about my sufferings I insisted on the gene trsting which showed positive for gluten insensitivity and a biopsy on my next colonoscopy that also showed positive which could not help the damage done to my small bowel. So I very rarely have a glass of wine
    • trents
      celiac, chocolate and alcohol

      By trents · Posted

      @barb simkin, are you sure the chocolate products are gluten-free and not "manufactured on equipment that also handles wheat products and tree nuts", i.e., cross-contamination? And what kind of alcoholic beverages are we talking about? Most beers are made from gluten-containing grains. Just checking.
×
×
  • Create New...