Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Block Party


BallardWA

Recommended Posts

BallardWA Rookie

We had our first block party last night, and the woman who organized it was an absolute control freak who could not understand why we were setting up our own grill and table of food down the block away from everyone.

I tried to explain to her that it was just better for the reason you all know - cross contamination. I told her that no matter how closely I watched, chances were that someone would put one of their items on my grill, or stick their glutened spoon into my salad.

She was astonished, and intimated that we were using my "condition" to opt out of socializing with everyone.

I felt very conflicted. I am so sick of having to explain this stuff to people. I wanted to choke her and beg her forgiveness at the same time. Consequently, she did wind up alienating us, because I didn't want to have to stroll down to the gluten eaters and once again tell my tale.

I was only diagnosed in January, but had been feeling pretty fabulous about how things had been going. My health is improving in leaps and bounds, but this sort of thing is a setback of a different kind.

Right now, I'd like to send her a big wheaty pie with spiders in it. Sorry, just had to say it.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



sickchick Community Regular

Geez.

Was your block party just a bunch of strangers who decided to get together for a big dinner? Or was it some organization who puts it together like the p-patch crazy hippy people?

Obviously it wasn't put together by a Celiac group... LOL B)

blueeyedmanda Community Regular

I am sorry to hear that woman acted that way. You just wanted to make sure your food was safe...honestly in my opinion if I thought you were going to be anti-social then you would have not even came out of the house ;) But back to the other parts of your post. I understand how you feel about the whole conflicting thing....I felt that way at work at first when we would do potlucks and all, explaining everything especially when you have someone who is either not understanding or just making up excuses for you is very frustrating...It was not right for her to say your condition...that is very rude and for an adult immature. You wanted to enjoy the block party without getting ill which is perfect. I guess I don't have much great advice here.

I hope this doesn't deter you from future public outings, one rude person might be few and far between. Were the other neighbors accepting? If so that will make your next outing even better :) Don't worry about the venting, that what we are here for, feel free to vent anytime, because this is frustrating and I know from my personal life just when you get comfortable and thing everything is smooth you can hit that bump....Hang in there, it sounds like you are doing great :)

Judyin Philly Enthusiast

we've been having these block parties for about 6 years now.

the last 3 i've taken my own food and just eat at the table with everyone else.

many don't know i have celiac but those that did didn't think a thing about it.

last year there was a dish on the table..................i ran by...........b/c all the gluten food looked so darn good.

there was a sign in a dish..........gluten free.

i went to the hostes and she told me someone i didn't even know had been dx'd as had all the family.....

course i didn't try it b/c of cc but i think you were brave to even attend.

one time i went late after everyone was done eating and there was just the fun part.....drinking..... course i wasn't doing that either by the crowd had losened up a bit. :lol:

Will The Thrill Rookie

I go through that crap every day at school. She was a woman who didn't realize your condition. It might help if you told her what would happen, and if you ate wheat every day for a long time, you will develop cancer. It might be best to keep doing what your doing, or what i do is eat before i go to a birthday party or whatever. This way you wont have to worry about getting gluten, and won't have to explain anything to anybody. If they do ask, just say no thank you i'm not hungry. The only downside to this situation for me, is that some people think i'm anorexic (and im a thirteen year old boy!) because i try not to make a big deal about celiac. If that lady person was mean to you, she might not been rude, she just might not of understood your condition. Try not to hold to big of a grudge.

Will :P :P :P :P :P :P :P :P :P :P :P :P

Lisa Mentor
I go through that crap every day at school. She was a woman who didn't realize your condition. It might help if you told her what would happen, and if you ate wheat every day for a long time, you will develop cancer. It might be best to keep doing what your doing, or what i do is eat before i go to a birthday party or whatever. This way you wont have to worry about getting gluten, and won't have to explain anything to anybody. If they do ask, just say no thank you i'm not hungry. The only downside to this situation for me, is that some people think i'm anorexic (and im a thirteen year old boy!) because i try not to make a big deal about celiac. If that lady person was mean to you, she might not been rude, she just might not of understood your condition. Try not to hold to big of a grudge.

Will :P :P :P :P :P :P :P :P :P :P :P :P

It does get easier and after a while, it will be second nature. You just do what you need to do and often, don't give things a second thought.

I know that sometimes that people can be difficult, but it sounds like you have a great attitude Will!

sickchick Community Regular

HAHAHA Will always has an interesting spin on Celiac life :lol:


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



CeliacAlli Apprentice
HAHAHA Will always has an interesting spin on Celiac life :lol:

I agree to what some people say on here, but in Will and my case I have to say that kids/teens can be especially rude. They just don't have the maturity to understand and neither does this lady holding the block party! srry to hear that happend to you!

CeliacAlli Apprentice

srry i didn't mean to copy sickchick's comment...I was trying to add a comment not reply...haha...and yeah I agree will always has an intresting spin

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,166
    • Most Online (within 30 mins)
      7,748

    melindakathleen
    Newest Member
    melindakathleen
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):




  • Who's Online (See full list)

    • There are no registered users currently online

  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • DAR girl
      Looking for help sourcing gluten-free products that do not contain potato or corn derived ingredients. I have other autoimmune conditions (Psoriatic Arthritis and Sjogrens) so I’m looking for prepared foods as I have fatigue and cannot devote a lot of time to baking my own treats. 
    • Scott Adams
      I am so sorry you're going through this. It's completely understandable to feel frustrated, stressed, and disregarded after such a long and difficult health journey. It's exhausting to constantly advocate for yourself, especially when you're dealing with so many symptoms and positive diagnoses like SIBO, while still feeling unwell. The fact that you have been diligently following the diet without relief is a clear sign that something else is going on, and your doctors should be investigating other causes or complications, not dismissing your very real suffering. 
    • Oldturdle
      It is just so sad that health care in the United States has come to this.  Health insurance should be available to everyone, not just the healthy or the rich.  My heart goes out to you.  I would not hesitate to have the test and pay for it myself.  My big concern would be how you could keep the results truly private.  I am sure that ultimately, you could not.  A.I. is getting more and more pervasive, and all data is available somewhere.  I don't know if you could give a fake name, or pay for your test with cash.  I certainly would not disclose any positive results on a private insurance application.  As I understand it, for an official diagnosis, an MD needs to review your labs and make the call.  If you end up in the ER, or some other situation, just request a gluten free diet, and say it is because you feel better when you don't eat gluten.      Hang in there, though.  Medicare is not that far away for you, and it will remove a lot of stress from your health care concerns.  You will even be able to "come out of the closet" about being Celiac!
    • plumbago
      Yes, I've posted a few times about two companies: Request a Test and Ulta Labs. Also, pretty much we can all request any test we want (with the possible exception of the N protein Covid test and I'm sure a couple of others) with Lab Corp (or Pixel by Lab Corp) and Quest. I much prefer Lab Corp for their professionalism, ease of service and having it together administratively, at least in DC. And just so you know, Request a Test uses Lab Corp and Quest anyway, while Ulta Labs uses only Quest. Ulta Labs is cheaper than Request a Test, but I am tired of dealing with Quest, so I don't use them so much.
    • Scott Adams
      PS - I think you meant this site, but I don't believe it has been updated in years: http://glutenfreedrugs.com/ so it is best to use: You can search this site for prescriptions medications, but will need to know the manufacturer/maker if there is more than one, especially if you use a generic version of the medication: To see the ingredients you will need to click on the correct version of the medication and maker in the results, then scroll down to "Ingredients and Appearance" and click it, and then look at "Inactive Ingredients," as any gluten ingredients would likely appear there, rather than in the Active Ingredients area. https://dailymed.nlm.nih.gov/dailymed/   
×
×
  • Create New...