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Final Results


Gables

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Gables Newbie

*also posted on teen section*

Ok... I went to my doctor and had a blood test 2 weeks ago. and Then he talked with me adn told me I have Celiac. I have never had symptoms (like most of you I guess) or so I thought.

Here is the scoop:

Recently Diagnosed with Diabets

I have very bad Anemia

I have really bad pains in my knees and hip

I dont have the runs but I have on off constipation

My mom is alergic to all foods basically (they think she may have Celiac, she is being tested too)

Lots of dizzyness

Cold hands and feet/ tingling hands and feet

I have been gluten free now for a week and am having some bad stomach pain...

I don't know if thease are symptoms of or results of Celiac, apparently some tests were inconclusive and my final results will be in thursday. My doctor thinks I have celiac and he is 90% sure. So lets see if any of you can predict what my results will be. I unfortinently think I have it. I thought I already did, I dunno this test confused me. But yah lets wait till thursday. Any1 feel free to post here. Ill post my results on thursday.

Gabe, 16, maryland


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mommida Enthusiast

My son has had constipation problems. After my daughter was diagnosed with Celiac, my son was tested and it came back negative. He was eating gluten free and guess what? Constipation is only a severe problem for him if he eats gluten. If he doesn't have Celiac or an intolerence to gluten, how come a diet with less fiber in it makes his b.m. more normal? Needless to say he is on a gluten free diet. No test has explained why a gluten free diet makes such a drastic difference

for him, but it does.

Other things to consider...

his fingernails are growing, look less pitted and grooved

his hardening of the hair follicles on his arms and thighs is fading (looks like hard little pimples)

his stool looks like a normal color instead of pale taupe

his tempermaent is better

his belly is not distended or bloated

less gas

less complaints about stomach aches

Laura

Gables Newbie

I had no clue hair pholical hardening was a symptom. I never told any1 I thought they would think I am a hypocondriact... but sometimes when I move my hair it HUTS. I could never explain it.... and my bow movments are a greenish pigment. and ever since I have been gluten-free I have had a movement once a day.

Lesliean Apprentice

I keep hearing about loose stools but for me it was always constipation with bleeding.

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  • Posts

    • par18
      Thanks for the reply. 
    • Scott Adams
      What you’re describing is actually very common, and unfortunately the timing of the biopsy likely explains the confusion. Yes, it is absolutely possible for the small intestine to heal enough in three months on a strict gluten-free diet to produce a normal or near-normal biopsy, especially when damage was mild to begin with. In contrast, celiac antibodies can stay elevated for many months or even years after gluten removal, so persistently high antibody levels alongside the celiac genes and clear nutrient deficiencies strongly point to celiac disease, even if you don’t feel symptoms. Many people with celiac are asymptomatic but still develop iron and vitamin deficiencies and silent intestinal damage. The lack of immediate symptoms makes it harder emotionally, but it doesn’t mean gluten isn’t harming you. Most specialists would consider this a case of celiac disease with a false-negative biopsy due to early healing rather than “something else,” and staying consistently gluten-free is what protects you long-term—even when your body doesn’t protest right away.
    • Scott Adams
      Yes, I meant if you had celiac disease but went gluten-free before screening, your results would end up false-negative. As @trents mentioned, this can also happen when a total IGA test isn't done.
    • Seaperky
      I found at Disney springs and Disney they have specialist that when told about dietary restrictions they come and talk to you ,explain cross contamination measures tsken and work with you on choices. Its the one place I dont worry once I've explained I have celiac disease.  Thier gluten free options are awesome.
    • Churley
      Have you tried Pure Encapsulations supplements? This is a brand my doctor recommends for me. I have no issues with this brand.
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