Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

How Long Did It Take?


Beth in NC

Recommended Posts

Beth in NC Contributor

I was a bit unusual in that BEFORE I was diagnosed, I didn't have "D" but "C" instead. Within three days of being gluten free, the chronic C was gone. After a week though, I figured out the lactose intolerance. Now, I have way more days with D than what I think ought to be "normal."

At my 4 week followup with my GI doc today, he was trying to steer me in the direction of that I wasn't WORSE, but that if I had D as a prediagnosis symptom, that only a few people get relief from the D in the first week or so, that many people take weeks/months for the D to go away.

I'm curious what your experiences were. If I keep waiting till the D improves before I add new foods back in, I'll never eat anything!

I did take a step tonight that I'm going to eat plain things that are not processed. If I need salad dressing, I'll make it myself. Sound like a good idea?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Rya Newbie
I was a bit unusual in that BEFORE I was diagnosed, I didn't have "D" but "C" instead. Within three days of being gluten free, the chronic C was gone. After a week though, I figured out the lactose intolerance. Now, I have way more days with D than what I think ought to be "normal."

At my 4 week followup with my GI doc today, he was trying to steer me in the direction of that I wasn't WORSE, but that if I had D as a prediagnosis symptom, that only a few people get relief from the D in the first week or so, that many people take weeks/months for the D to go away.

I'm curious what your experiences were. If I keep waiting till the D improves before I add new foods back in, I'll never eat anything!

I did take a step tonight that I'm going to eat plain things that are not processed. If I need salad dressing, I'll make it myself. Sound like a good idea?

"C" and "D" are funny things. Typically, with the same diet prescription, some people experience one, some people experience the other, and some alternate. Also a funny thing is fiber, because it helps both. For "D," I would recommend bananas, applesauce, and plain rice. Something else that can only help is Pedialyte (please don't do gatorade!!). The name suggests it is for children, but it cures hangovers and helps "D" for adults, too.

Worrisome signs to me would be if your "D" is a white or light tan color or if it changes color. This usually means your intestines are not absorbing what they should be. Other than that, give yourself a couple of weeks to heal up. If you are still having "D" in two weeks, I highly suggest phoning your physician. Despite seeming like a minor problem, you can deplete the electrolytes in your body.

Beth in NC Contributor

I guess too, that there are varying levels of D. For me it isn't a gazillion trips to the potty, just one or two, but...ugh, I hate this topic....I seem to get rid of everything in one fell swoop, let's put it that way.

Rya Newbie
I guess too, that there are varying levels of D. For me it isn't a gazillion trips to the potty, just one or two, but...ugh, I hate this topic....I seem to get rid of everything in one fell swoop, let's put it that way.

I'm sorry to make you uncomfortable :( . If you feel like everything is OK it probably is. Try the foods I mentioned and see if they help. Also, if you feel like it might help, you can look into psyllium fiber or metamucil.

samcarter Contributor
I guess too, that there are varying levels of D. For me it isn't a gazillion trips to the potty, just one or two, but...ugh, I hate this topic....I seem to get rid of everything in one fell swoop, let's put it that way.

That's how my D is. It usually strikes as soon as I wake up the morning after a glutening. Because you had so much C, your bowels are probably still normalizing.

Beth in NC Contributor
I'm sorry to make you uncomfortable :( . If you feel like everything is OK it probably is. Try the foods I mentioned and see if they help. Also, if you feel like it might help, you can look into psyllium fiber or metamucil.

Oh my! YOU didd make me feel uncomfortable!!! I'm sorry you got that impression! I just don't enjoy talking about poo on the internet to people I hardly know! LOL! No worries...It's just hard for me to be discreet on this topic and still get the necessary info across.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      129,807
    • Most Online (within 30 mins)
      7,748

    Jacqueline29
    Newest Member
    Jacqueline29
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.2k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      Welcome to the  forum @maylynn! Have you had a follow-up endoscopy/biopsy of the small bowel to check for healing of the villous lining? If not, it's about time one was done. As Scott mentioned, I also wonder if you have food intolerances in addition to gluten. Oats (even gluten free oats), dairy, soy, corn and eggs are some of the most common ones in the celiac community.
    • Scott Adams
      Is your gluten-free diet strict? Do you eat out in restaurants? If so, you could be getting contamination, and over time that can slow recovery. You may want to get a follow up celiac disease antibody panel done to make sure that your levels have gone down since your last tests. Also, have you had various nutrient levels checked via a blood test, and have you been taking vitamin & mineral supplements since your diagnosis?  The most common nutrient deficiencies associated with celiac disease that may lead to testing for the condition include iron, vitamin D, folate (vitamin B9), vitamin B12, calcium, zinc, and magnesium.    Do you still have celiac disease symptoms?  Many people with celiac disease, especially those who are in the 0-2 year range of their recovery, have additional food intolerance issues which could be temporary. To figure this out you may need to keep a food diary and do an elimination diet over a few months. Some common food intolerance issues are dairy/casein, eggs, corn, oats, and soy. The good news is that after your gut heals (for most people who are 100% gluten-free this will take several months to two years) you may be able to slowly add some these items back into your diet after the damaged villi heal. This article may be helpful:    
    • maylynn
      Hello!  I am here as a last result, hoping for some advice, similar stories, etc. When I was 17, I was diagnosed with Celiac disease. By the time we figured it out my iron levels were so low I had to get infusions, and I had lost 20lbs. in two weeks going from a 5'11 130lbs woman to a 110 lbs. Now, I am 21 and have gained 4 lbs since. Every time I eat a meal, I get three bites in and feel so full that I feel sick. I can't eat a full meal. Something else has to be wrong right? This can't just be more "normal" right? I have done test after test and no doctor in my area can figure anything else out. They have told me I most likely have shrunken my stomach by now with how little I am eating so that has to do with some of the sick feeling. What have you done to gain the weight back? Foods? Workouts? 
    • Bronwyn W
      Thank you so much, Scott. I find it incredibly daunting navigating this celiac space and I find comfort in your wealth of knowledge. Thank you 🙏🏻
    • Scott Adams
      I am not sure about that brand specifically, but this article may be helpful:  
×
×
  • Create New...