Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Yikes!


LuvMoosic4life

Recommended Posts

LuvMoosic4life Collaborator

So I saw my primary doc. He referred me to a G.I and a gyno because I have probs in both those ares since going gluten-free. Now my gyno ran some hormone tests on me and referred me to another place to get a transvaginal ultrasound to see why I lost my "friend" and am in discomfort/ horrible mood swings, and constipation.

My G.I appt. is before the ultrasound. I am not diagnosed celiac and I really at this point dont want to go back to eating gluten to find out...I'm REALLLY hoping the G.I doc is understanding of me b/c I still have digestive problems, just nothing like before!!.... I get the sensation to go to the bathroom, but it wont come out!!! it feels like there is something blocking it, even when I take a laxative.....and get to the point of D. I feel it right there, but it gets stuck at one point...... SO I'm wondering if all my problems are linked from reproductive problems (maybe something like endometrieosis growth???) or just strictly digestive.

This all started since going gluten-free. I would rather have the problems I have now than what I had before. lol. BUT STILL, I'm just going crazy trying to figure out whats going on.

Anyone else experience something like this??

it isnt helping that my family is still obbessing over the fact that I wont be able to eat all the same foods at holidays and gatherings....I keep reassring them I can make a gluten-free alternative to everything and anything, but they say "yah, its just not the same" GRRRR!!!!! I wonder sometimes if I am dealing with this better than them. They support me in the fact that I found what m problem is, but they arent supportive of the change...so this makes me feel like they arent really supportive AT ALL!!!!! I started crying trying to explain this to my mom, so I'm hoping she mmust realize I'm not joking around, but she didnt react emotionally to me crying, which makes me just want to move far FAR away from family and just start a new life, which is exactly what I have in mind for after college......

rant over n' out!! :lol:


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



sickchick Community Regular

WOW my 21 year old cousin thought she had celiac, she was vomitting and having incredible pain, and she was finally diagnosed (during trip to E.R.) endometriosis!

My heart goes out to you. Hope you get it resolved promptly!!! :)

sending blessings

sickchick

LuvMoosic4life Collaborator

thanks!!! Yeah, my mom is thinking that my reproductive problems have been causing all my digestive problems this whole time....either way, I'm still avoiding gluten given the amazing changes I've seen! the positive definitly outwieghs the negatives.

jewi0008 Contributor

I am in you EXACT boat. I have not had my "friend" since April. Since April I haven't consumed gluten, except for the few "messups." I am also in your same boat with the C. I went gluten-free and THEN had all the Celiac tests, which, were negative - no surprise. I had an endo and a colonoscopy. The dr did find a form a colitis - proctitis. This means that when I have a "flare up," I won't be able to get anything through me...not even a laxative, until the bottom of me is softened. So when I make mistakes I get severely backed up and have to do enemas. Have you had a colonoscopy?

My biggest frustration, though, is still that it's been since April with no friend! I'm getting married soon and am getting concerned about children....

thanks!!! Yeah, my mom is thinking that my reproductive problems have been causing all my digestive problems this whole time....either way, I'm still avoiding gluten given the amazing changes I've seen! the positive definitly outwieghs the negatives.
home-based-mom Contributor
it isnt helping that my family is still obbessing over the fact that I wont be able to eat all the same foods at holidays and gatherings....I keep reassring them I can make a gluten-free alternative to everything and anything, but they say "yah, its just not the same"

Agree with them! It's NOT the same! The same was "eat the same food and get the same sick." Now it's better because it's eat different food and, tah-dah! DON'T get sick! The food and the sick are a package deal and you choose Package #2 which is different food and don't get sick. Remind them that you're a big girl now and you get to choose what you eat. B)

LuvMoosic4life Collaborator
I am in you EXACT boat. I have not had my "friend" since April. Since April I haven't consumed gluten, except for the few "messups." I am also in your same boat with the C. I went gluten-free and THEN had all the Celiac tests, which, were negative - no surprise. I had an endo and a colonoscopy. The dr did find a form a colitis - proctitis. This means that when I have a "flare up," I won't be able to get anything through me...not even a laxative, until the bottom of me is softened. So when I make mistakes I get severely backed up and have to do enemas. Have you had a colonoscopy?

My biggest frustration, though, is still that it's been since April with no friend! I'm getting married soon and am getting concerned about children....

OMG!! my mom mentioned colitis! well I'm glad I'm not going insane.

I havent had a colonoscopy or anything. I havent actualy been to the G.I. yet, or ever. I havent had my P since May, and like you I am more concerned about that than the digestive problems. I'v lost my period for being too thin when I was 16, but I wiegh 140 now and am 5'6.....I was 115 when I lost it last time! I'm mostly muscle mass, but I DEFINITLY have healthy fat on me...

thanks so much for responing :)

jewi0008 Contributor

Please keep me updated as to what you find out! I would say that mine is either from the digestive stuff OR because I'm 25 years old, 5'5" and I went from about 125 lb to 117lb? Do you think? I started dieting in April. I'm so confused!!!! I wish it would just come...

OMG!! my mom mentioned colitis! well I'm glad I'm not going insane.

I havent had a colonoscopy or anything. I havent actualy been to the G.I. yet, or ever. I havent had my P since May, and like you I am more concerned about that than the digestive problems. I'v lost my period for being too thin when I was 16, but I wiegh 140 now and am 5'6.....I was 115 when I lost it last time! I'm mostly muscle mass, but I DEFINITLY have healthy fat on me...

thanks so much for responing :)


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ShayFL Enthusiast

My "friend" went from 29 day cycle to 34 since gluten free. Weird. I dont understand how it messes with the hormones. Im at a loss.

I hope they get to the bottom of your issues soon. No pun intended.

LuvMoosic4life Collaborator
Please keep me updated as to what you find out! I would say that mine is either from the digestive stuff OR because I'm 25 years old, 5'5" and I went from about 125 lb to 117lb? Do you think? I started dieting in April. I'm so confused!!!! I wish it would just come...

I will definitly post back on hear after my appt.

it sounds like your problem is from wight loss, but probablyl that with a combination of other things.

Do you have any pms symptoms? When I lost my period @ 115 pounds I didnt have any pms symptoms what-so-ever. Right now I've been having constant pms symptoms since april, but no period since may! Most of my body wieght is muscle mass, but I can gain up to 10 ibs in water just in 2-3 days- so frustrating!!! and uncomfortable. BUt nobody ever takes me seriosly because I look thin, like 120, but I am really 140.... I know I have a good balance between fat and muscle, but I dont feel in balance, one day I'll be 135, the next 145!! so i am completely lost....it has to be gluten related....

LuvMoosic4life Collaborator
My "friend" went from 29 day cycle to 34 since gluten free. Weird. I dont understand how it messes with the hormones. Im at a loss.

I hope they get to the bottom of your issues soon. No pun intended.

I think it might be because wheat products have phytoestrogens ( they can mimic estrogen in the female reproductive system) so taking that out may throw the hormones off in some people.....but dont qoute me on that, I've only looked into the phytoestrogen thing a little bit becaue i have tried taking fennel in the past ( before going gluten-free) for my gas problem- (HA, the things I've tried........)

Kauk Rookie

Hugs to you all.

I am stil so new to this..and its been 2 years at least. My moods were so bad, I was on 2 kinds of depression meds and still I wanted kill myself daily, and my rants and rages were bad. After celiac I am on nothing but I suffer from constipation I assume from al my protein intake and I am confused as hell about modifyed starchs...gawd! No one can give me an anwser there. Ugg..

I was tolds to start the Birth control pill which has MS in it...and I have been suffering bad mood swings....I am at a losss....

Rebecca

curlyfries Contributor

Hmmm.....your starting to make me re-think my early menopause theory. I never realized it before, but I went gluten-free in March, haven't had my friend since April or May <_<

It still could be the menopause thing, but this is something to consider.........I have also lost 23 lbs, but it's weight I needed to lose.

LuvMoosic4life Collaborator
Hugs to you all.

I am stil so new to this..and its been 2 years at least. My moods were so bad, I was on 2 kinds of depression meds and still I wanted kill myself daily, and my rants and rages were bad. After celiac I am on nothing but I suffer from constipation I assume from al my protein intake and I am confused as hell about modifyed starchs...gawd! No one can give me an anwser there. Ugg..

I was tolds to start the Birth control pill which has MS in it...and I have been suffering bad mood swings....I am at a losss....

Rebecca

I cant take birth control. Thats what I did last time to start my periods back up. I gained 20 IBS on the pill. retained water so bad it hurt to touch my skin and my muscles would cramp up with charlie horses. I enede up in the ER with a hemoglobin of 8 and then had to go on iron, which made me sick also- blah! My gyno I have now said she wont put me on the pill since there are heart problems in my immediate family and conidering my reaction...

jewi0008 Contributor

My GYNO wants me to go back on the pill for regularity. BUT...I'm getting married in November and we may want to have kids then. So then he said ok then not?! If I don't watch what I eat, I too, will gain like 5 in a day. Mostly bloat. My tummy gets severly distended. That's when my GI will have me do enemas and drink an entire bottle of Mag Citrate to make EVERYTHING get through me. UGH!

I also have many oral problems.

I cant take birth control. Thats what I did last time to start my periods back up. I gained 20 IBS on the pill. retained water so bad it hurt to touch my skin and my muscles would cramp up with charlie horses. I enede up in the ER with a hemoglobin of 8 and then had to go on iron, which made me sick also- blah! My gyno I have now said she wont put me on the pill since there are heart problems in my immediate family and conidering my reaction...

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Aretaeus Cappadocia replied to lmemsm's topic in Gluten-Free Foods, Products, Shopping & Medications
      13

      Finding gluten free ingredients

    2. - Aretaeus Cappadocia replied to lmemsm's topic in Gluten-Free Foods, Products, Shopping & Medications
      13

      Finding gluten free ingredients

    3. - knitty kitty replied to Charlie1946's topic in Related Issues & Disorders
      11

      Severe severe mouth pain

    4. - cristiana replied to Charlie1946's topic in Related Issues & Disorders
      11

      Severe severe mouth pain

    5. - trents replied to Charlie1946's topic in Related Issues & Disorders
      11

      Severe severe mouth pain

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,904
    • Most Online (within 30 mins)
      7,748

    KellyMarie
    Newest Member
    KellyMarie
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Aretaeus Cappadocia
      I shop a fair bit with Azure Standard. I bought Teff flour there and like it. they have a lot of items on your list but probably no soy flour, at least not by that name. https://www.azurestandard.com/shop/product/food/flour/teff/brown/teff-flour-brown-unifine-gluten-free/11211?package=FL294 As mentioned in another answer, Palouse is a high quality brand for dry beans, peas and other stuff. I buy some foods on your list from Rani. I've been happy with their products. https://ranibrand.com/ Azure and Rani often use terms that skirt around explicit "gluten free". I've contacted both of them and gained some comfort but it's always hard to be certain. FWIW, my IgA antibody levels are very low now, (after including their foods in my diet) so it appears I am being successful at avoiding gluten. 
    • Aretaeus Cappadocia
      fwiw, I add nutritional yeast to some of my recipes. since going gluten free I eat almost no processed foods but I imagine you could sprinkle yeast on top.
    • knitty kitty
      @Charlie1946, There are many vitamin deficiencies associated with PCOS and Celiac disease and mental health issues.  The malabsorption of nutrients caused by Celiac can exacerbate PCOS and mental health issues. Vitamin B 3 Niacin (the kind that causes flushing) improves sebaceous hyperplasia and PCOS. (300 mg/day) Vitamin B 1 Thiamine improves dysphagia, and with Omega Threes, Sjogren's, and PCOS.     (300 mg/day) The other B vitamins are needed as well because they all work together like an orchestra.   The fat soluble vitamins A, D, E, and K, are needed as well.  Low Vitamin D is common in both PCOS and Celiac and depression.   Deficiencies in Niacin Thiamine, Cobalamine B12, Folate B 9, Vitamin C, and Vitamin D can cause mental health issues.   I wish doctors would check for nutritional deficiencies and gastrointestinal issues before prescribing antidepressants.  My mental health issues didn't get better until my vitamin deficiencies were corrected and a gluten free keto/paleo diet adopted.   Though blood tests are not really accurate, you may want to get tested for deficiencies before supplementing, otherwise you'll be measuring the vitamins you've taken and blood tests will show blood levels that are too high. Yes, Thiamine TTFD and the other vitamins are available over-the-counter.  A B Complex with additional Thiamine TTFD and Niacin made a big difference to my health.  I follow a paleo diet, and make sure I get Omega Threes.  I took high dose Vitamin D to correct my deficiency there.   I've run through the mental health gamut if you would like to talk about your issues.  You can personal message us if you would be more comfortable.   Interesting Reading: Nutritional and herbal interventions for polycystic ovary syndrome (PCOS): a comprehensive review of dietary approaches, macronutrient impact, and herbal medicine in management https://pmc.ncbi.nlm.nih.gov/articles/PMC12049039/
    • cristiana
      Hi @Charlie1946 I am so sorry to hear you are suffering with this problem.   Just a few other thoughts.  I had debilitating anxiety prior to my diagnosis.  I was never admitted to a hospital but thankfully had a lot of support from friends and family, and found a couple of publications contained really helpful advice:  for depression, The Depression Cure: The Six-Step Programme to Beat Depression Without Drugs by Dr Steve Llardi, and for debilitating anxiety, At Last A Life by Paul David.  Both can be ordered online, there is also a website for the latter.  If you are deficient in or have low iron or B12 this can cause or worsen mental health issues.  I am sure my own issues were caused by long-term deficiencies.   If you can get your blood tested, it would be useful.  In the case of iron, make sure you only supplement if you have a deficiency, and levels can be monitored, as too much iron can be dangerous. If you have burning mouth issues, very bad TMJ or neuralgia,  I understand the pain can be managed by the use of a certain class of medication like amitriptyline, which is also used to treat depression.  But there again, it is possible with the correct diet and supplementation these issues might improve? I do hope that you find relief soon. Cristiana
    • trents
      @Charlie1946, as an alternative to milk-based protein shakes, let me suggest whey protein. Whey and casein are the two main proteins found in milk but whey doesn't cause issues like casein can for celiacs. Concerning your question about celiac safe mental health facilities, unfortunately, healthcare facilities in general do not have good reputations for being celiac safe. Most celiacs find that they need to depend on family members to advocate for them diligently or bring in food from the outside. Training of staff is inconsistent and there is the issue of turnover and also cross contamination.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.