Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Joint Pain


Lpa

Recommended Posts

Lpa Rookie

How long might it take for joint pain to subside after going on a gluten free diet?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



trents Grand Master

If the joint pain were caused by gluten I would think it would improve fairly quickly as the toxins were eliminated from your system. But if it's due to something else, say rheumatoid process or osteo artritis I would not expect it to change much. Have you been checked for other causes? A lot is blamed on gluten. I worry that celiacs make gluten intolerance a catch all for whatever happens to be wrong with their bodies when they should be looking in another direction.

Steve

ravenwoodglass Mentor

I had incredible bone and joint pain and although I had some joint deformity I do not produce the RA factor so I was labeled with osteo. I should note that my celiac genes are thought to be genes for RA, that is what I would have been diagnosed with if they had gene tested and they then would have stopped looking. I thought after 10 years of progressive joint pain that moved through my joints from my hands to my knees to my feet to my hips that I would be on my canadian canes forever. My hands had gotten so bad I could no longer type or hold any of my art tools. When I was diagnosed I didn't have this board and was just overjoyed to have my daily D (IBD) finally go away. I was astounded when within 6 months I had no joint pain whatsoever and was considered to be in complete remission. Within just a month or so gluten-free the pain was down so much that all I needed for it was baby asprin. I haven't even needed that now for years. I can not guarentee that you will have the same results, and I am, some think, a real nut about being absolutely gluten free and checking everything whether I eat it or put in on my skin or work with it in the studio but for me the gluten free diet ended the joint issues. My right hand still looks knobby but everything works and I can dance again and do anything I desire without pain.

*lee-lee* Enthusiast

i was diagnosed with trochantaric bursitis (read: pain in my hip joints) about 4 or 5 months before i started on my Celiac quest. i was tested for everything under the sun when dealing with my hip pains. Rhumatoid arthritis, lupus, mono, thyroid diseases, Lymes in addition to tons of xrays and an MRI...most tests were done more than once. at one point, they suspected fibromyalgia and wanted to put me on Celebrex but i said no. i also went through cortisone injections and physical therapy with virtually no relief.

finally the doctors said it's bursitis and to start some light cardio with lots of stretching before and after. i think at that point no one had any idea and that was their best guess. i was so sick of seeing doctor after doctor so i did as i was instructed and with the help of 800mg 3x/day, the pain slowly became tolerable. not good by any means but i was resigning myself to a life of pain. then i started to explore Celiac and came across the idea that my joint pain could possibly be attributed to that.

i'm nearly 2 months gluten free and i have no pain whatsoever in my left hip. that one was the better of the 2 so i'm hoping the other side will be good as new in a few more months.

i have no evidence that my pain is due to gluten...it just seems awfully coincidental.

RiceGuy Collaborator

As others have stated, it may just take time, but you could probably quicken the recovery process with some supplements. Many on this board have found certain nutrients do a world of good. In my experience, magnesium and a sublingual methylcobalamin (vitamin B12) have practically worked miracles. Some of the other commonly suggested supplements are B-complex, vitamin D (cholecalciferol), zinc, calcium, and probiotics. I've also found glucosamine to be very helpful for joints.

Also, some find it necessary to avoid other foods at first, until things heal sufficiently. Dairy is often a problem, especially in the beginning.

Lockheed Apprentice

I had osteoporosis at 20 which is what caused a further investigation and resulted in the celiac disease diagnosis. My joint pain didn't subside for a good six months but I think a lot of that was because I was on Fosamax for the next two years trying to actually grow bone again. My bones are now relatively normal, but I was still achy for a while waiting for my density to catch back up. It was a good deal of joint achiness but I was really just achy all over. I guess the saying is all things heal with time.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,721
    • Most Online (within 30 mins)
      7,748

    Jessicacat
    Newest Member
    Jessicacat
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Rejoicephd
      @Scott Adams That's actually exactly what I ended up asking for— vodka tonic with Titos.  I saw on their website that Tito's is certified gluten-free (maybe many of the clear vodkas are, I don't know, I just happened to look up Tito's in advance). I should have actually specified the 'splash' though, because I think with the amount of tonic she put in there, it did still end up fairly sweet.  Anyway, I think I've almost got this drink order down!
    • Wends
      Be interesting to see the effects of dairy reintroduction with gluten. As well as milk protein sensitivity in and of itself the casein part particularly has been shown to mimic gluten in about 50% of celiacs. Keep us posted!
    • deanna1ynne
      She has been dairy free for six years, so she’d already been dairy free for two years at her last testing and was dairy free for the entire gluten challenge this year as well (that had positive results). However, now that we’re doing another biopsy in six weeks, we decided to do everything we can to try to “see” the effects, so we decided this past week to add back in dairy temporarily for breakfast (milk and cereal combo like you said).
    • Gigi2025
      Hi Christiana, Many thanks for your response.  Interestingly, I too cannot eat wheat in France without feeling effects (much less than in the US, but won't indulge nonetheless).  I also understand children are screened for celiac in Italy prior to starting their education. Wise idea as it seems my grandson has the beginning symptoms (several celiacs in his dad's family), but parents continue to think he's just being difficult.  Argh.  There's a test I took that diagnosed gluten sensitivity in 2014 via Entero Labs, and am planning on having done again.  Truth be told, I'm hoping it's the bromine/additives/preservatives as I miss breads and pastas terribly when home here in the states!  Be well and here's to our guts healing ❤️
    • Wends
      Lol that’s so true! Hope you get clarity, it’s tough when there’s doubt. There’s so much known about celiac disease with all the scientific research that’s been done so far yet practically and clinically there’s also so much unknown, still. Out of curiosity what’s her dairy consumption like? Even compared to early years to now? Has that changed? Calcium is dependent in the mechanism of antigen presenting cells in the gut. High calcium foods with gluten grains can initiate inflammation greater.  This is why breakfast cereals and milk combo long term can be a ticking time bomb for genetically susceptible celiacs (not a scientific statement by any means but my current personal opinion based on reasoning at present). Milk and wheat are the top culprits for food sensitivity. Especially in childhood. There are also patient cases of antibodies normalising in celiac children who had milk protein intolerance/ delayed type allergy. Some asymptomatic. There were a couple of cases of suspected celiacs that turned out to have milk protein intolerance that normalised antibodies on a gluten containing diet. Then there were others that only normalised antibodies once gluten and milk was eliminated. Milk kept the antibodies positive. Celiac disease is complicated to say the least.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.