Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Weird Test Results

Jenny (AZ via TX)

Recommended Posts

Jenny (AZ via TX) Enthusiast
Jenny (AZ via TX)
Posted

Maybe someone out there can help me. I have been gluten-free for about 4 months, was diag in Feb with positive bloodwork and positive biopsy. Anyway, I just had some bloodtests done to test thyroid, etc.

Well the test that came back scary are:

CRP - 9.5 H (High cardiovascular risk)

Homocysteine - 5.0 L (5.4-11.9 is normal range)

Lipoprotein (a) - 302 H (<75 is normal range)

I know all of the above have to do with the heart and that CRP can mean infection. Does anyone else have numbers like these?

My cholesterol is good - 195 (<200)

HDL - 54 (>45)

LDL - 126 (<130)

Triglyceride - 89 (<150

Glucose - 88 (65-99)

Vitamin D3 - 44

Vitamin D2 - <4

TSH - 2.02 (.45-4.50)

T4 - 1.2 ( 0.8-1.7)

T3 - 2.5 - (2.0-4.8)

I didn't get a chance to talk to the doctor. It was a new doctor. I waited for an hour! I asked how much longer the doc would be which they didn't know. I told them I wanted my lab results and my co-pay back and I left.

Looking for a new doc now. Anyone that has a good one is Scottsdale/Phoenix, let me know.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Lisa16 Collaborator
Lisa16
Posted

Jenny-- the CRP is a marker for inflammation (you liver puts it out). But the inflammation could be anywhere in your body. My doctor told me that if the number is high, it can indicate Chron's disease (inflammation in the intestine) or heart disease. But it can also be from stuff like arthritis (inflammation in the joints). I don't know why yours specifies the heart. Don't worry until you actually see a real doctor.

My number was on the high side too, before going gluten-free. But it is in the normal range now.

I hope you find a doctor who is easy to see-- I sometimes get so discrouaged with the process. Good for you for thinking to ask for the lab results and the copay!

Hang in there!

Lisa

Jenny (AZ via TX) Enthusiast
Jenny (AZ via TX)
Posted
  • Author

Thanks for replying. It is so hard to find a doctor that really knows about Celiac. I got so frustrated waiting on that doctor, I had to walk out. They called me to apologize and of course, set up another appt. I did, but will probably end up cancelling.

My CRP was high also right when I was diagnosed. I am so good about being gluten-free, actually obsessive about it, so I would have thought the number would come down.

Oh well. My mission is to find a new doctor that knows what I'm talking about. :) I know they are out there somewhere!

ShayFL Enthusiast
ShayFL
Posted

Jenny your T3 is in the dump. Do you have symptoms of hypothyroid?

Jenny (AZ via TX) Enthusiast
Jenny (AZ via TX)
Posted
  • Author

Shay, I do have some symptoms of hypothyroid and that was the main reason I wanted the blood tests. I had read several posts on thyroid and thought I should get checked. Right before being diagnosed, my TSH was over 3 (that has come down). I had never had T3 or T4 checked and really didn't know much about them. I'm mostly tired and have really dry skin. Also have some anxiety.

Thank you for confirming this about the T3. I just want to feel good and be happy again, you know. Also had my other hormones tested as well. I know I am perimenopause (I'm 47). Let the good times roll. I am so thankful I don't have the hot flashes, but have other issues.

Is Armour prescribed for T3 as well as for TSH or T4?

mbj2217 Rookie
mbj2217
Posted

Hey Jenny. Your panel doesn't look too bad. Your lipoprotein a (aka Lp(a)) is simply a type of LDL particle. It happens to be small and denser than the other common type of LDL, lipoprotein B. While Lp(a) has been shown to be linked to heart disease, your LDL is quite normal, so I wouldn't worry much at all....really. Just always try to exercise and eat heart healthy. I have Celiac too. I was diagnosed last December.

Jenny (AZ via TX) Enthusiast
Jenny (AZ via TX)
Posted
  • Author
Hey Jenny. Your panel doesn't look too bad. Your lipoprotein a (aka Lp(a)) is simply a type of LDL particle. It happens to be small and denser than the other common type of LDL, lipoprotein B. While Lp(a) has been shown to be linked to heart disease, your LDL is quite normal, so I wouldn't worry much at all....really. Just always try to exercise and eat heart healthy. I have Celiac too. I was diagnosed last December.

Thanks MBJ2217. I had never had bloodwork for lipoprotein (a) but have since heard not to worry too much about it since my other numbers are pretty good. Thanks for the reassurance. I still need to go have some of the other stuff checked and hopefully I'll be good as new! You are so right about the exercising. I had been doing so well and then stopped when my MIL and FIL had a fall. I've been over at their place helping out. MIL just exausts me. She's a little difficult. :rolleyes: (That's putting it nicely ha ha). Also, I have to constantly wash my hands over there due to all the gluten. I need to get back to it just to relieve the stress.

Thanks again.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,137
    • Most Online (within 30 mins)
      7,748
    Jamy
    Newest Member
    Jamy
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Sarah Grace
      Headaches / Migraines and Hypoglycaemia

      By Sarah Grace · Posted

      Dear Kitty Since March I have been following your recommendations regarding vitamins to assist with various issues that I have been experiencing.  To recap, I am aged 68 and was late diagnosed with Celiac about 12 years ago.  I had been experiencing terrible early morning headaches which I had self diagnosed as hypoglycaemia.  I also mentioned that I had issues with insomnia, vertigo and brain fog.   It's now one year since I started on the Benfotiamine 600 mg/day.  I am still experiencing the hypoglycaemia and it's not really possible to say for sure whether the Benfotiamine is helpful.  In March this year, I added B-Complex Thiamine Hydrochloride and Magnesium L-Threonate on a daily basis, and I am now confident to report that the insomnia and vertigo and brain fog have all improved!!  So, very many thanks for your very helpful advice. I am now less confident that the early morning headaches are caused by hypoglycaemia, as even foods with a zero a GI rating (cheese, nuts, etc) can cause really server headaches, which sometimes require migraine medication in order to get rid off.  If you are able to suggest any other treatment I would definitely give it a try, as these headaches are a terrible burden.  Doctors in the UK have very limited knowledge concerning dietary issues, and I do not know how to get reliable advice from them. Best regards,
    • knitty kitty
      High DGP-A with normal IGA

      By knitty kitty · Posted

      @rei.b,  I understand how frustrating starting a new way of eating can be.  I tried all sorts of gluten-free processed foods and just kept feeling worse.  My health didn't improve until I started the low histamine AIP diet.  It makes a big difference.   Gluten fits into opioid receptors in our bodies.  So, removing gluten can cause withdrawal symptoms and reveals the underlying discomfort.  SIBO can cause digestive symptoms.  SIBO can prevent vitamins from being absorbed by the intestines.  Thiamine insufficiency causes Gastrointestinal Beriberi (bloating, abdominal pain, nausea, diarrhea or constipation).  Thiamine is the B vitamin that runs out first because it can only be stored for two weeks.  We need more thiamine when we're sick or under emotional stress.  Gastric Beriberi is under recognised by doctors.  An Erythrocyte Transketolace Activity test is more accurate than a blood test for thiamine deficiency, but the best way to see if you're low in thiamine is to take it and look for health improvement.  Don't take Thiamine Mononitrate because the body can't utilize it well.  Try Benfotiamine.  Thiamine is water soluble, nontoxic and safe even at high doses.  I thought it was crazy, too, but simple vitamins and minerals are important.  The eight B vitamins work together, so a B Complex, Benfotiamine,  magnesium and Vitamin D really helped get my body to start healing, along with the AIP diet.  Once you heal, you add foods back in, so the AIP diet is worth doing for a few months. I do hope you'll consider the AIP diet and Benfotiamine.
    • captaincrab55
      Finding gluten free ingredients

      By captaincrab55 · Posted

      Imemsm, Most of us have experienced discontinued, not currently available or products that suddenly become seasonal.   My biggest fear about relocating from Maryland to Florida 5 years ago, was being able to find gluten-free foods that fit my restricted diet.  I soon found out that the Win Dixie and Publix supper markets actually has 99% of their gluten-free foods tagged, next to the price.  The gluten-free tags opened up a  lot of foods that aren't actually marked gluten-free by the manufacture.  Now I only need to check for my other dietary restrictions.  Where my son lives in New Hartford, New York there's a Hannaford Supermarket that also has a gluten-free tag next to the price tag.  Hopefully you can locate a Supermarket within a reasonable travel distance that you can learn what foods to check out at a Supermarket close to you.  I have dermatitis herpetiformis too and I'm very sensitive to gluten and the three stores I named were very gluten-free friendly.  Good Luck 
    • rei.b
      High DGP-A with normal IGA

      By rei.b · Posted

      Okay well the info about TTG-A actually makes a lot of sense and I wish the PA had explained that to me. But yes, I would assume I would have intestinal damage from eating a lot of gluten for 32 years while having all these symptoms. As far as avoiding gluten foods - I was definitely not doing that. Bread, pasta, quesadillas (with flour tortillas) and crackers are my 4 favorite foods and I ate at least one of those things multiple times a day e.g. breakfast with eggs and toast, a cheese quesadilla for lunch, and pasta for dinner, and crackers and cheese as a before bed snack. I'm not even kidding.  I'm not really big on sugar, so I don't really do sweets. I don't have any of those conditions.  I am not sure if I have the genes or not. When the geneticist did my genetic testing for EDS this year, I didn't think to ask for him to request the celiac genes so they didn't test for them, unfortunately.  I guess another expectation I had is  that if gluten was the issue, the gluten-free diet would make me feel better, and I'm 3 months in and that hasn't been the case. I am being very careful and reading every label because I didn't want to screw this up and have to do gluten-free for longer than necessary if I end up not having celiac. I'm literally checking everything, even tea and anything else prepacked like caramel dip. Honestly its making me anxious 😅
    • knitty kitty
      High DGP-A with normal IGA

      By knitty kitty · Posted

      So you're saying that you think you should have severe intestinal damage since you've had the symptoms so long?   DGP IgG antibodies are produced in response to a partial gluten molecule.  This is different than what tissue transglutaminase antibodies are  produced in response to.   TTg IgA antibodies are produced in the intestines in response to gluten.  The tTg IgA antibodies attack our own cells because a structural component in our cell membranes resembles a part of gluten.  There's a correlation between the level of intestinal damage with the level of tTg antibodies produced.  You are not producing a high number of tTg IgA antibodies, so your level of tissue damage in your intestines is not very bad.  Be thankful.   There may be reasons why you are not producing a high quantity of tTg IgA antibodies.  Consuming ten grams or more of gluten a day for two weeks to two months before blood tests are done is required to get sufficient antibody production and damage to the intestines.  Some undiagnosed people tend to subconsciously avoid lots of gluten.  Cookies and cakes do not contain as much gluten as artisan breads and thick chewy pizza crust.  Anemia, diabetes and thiamine deficiency can affect IgA antibody production as well.   Do you carry genes for Celiac?  They frequently go along with EDS.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.