Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Going On A Retreat


Chrissyb

Recommended Posts

Chrissyb Enthusiast

I am going on a Womens Retreat Weekend and I am a little nervous. I filled out a fourm letting them know that I can not have wheat, rye, barley oats, you know all gluten containing foods. Spelled out that I have Celiac Disease. Wheat and Gluten where on there list of food to check if you were allergic to I added rye, barley and oats to be on the safe side. All this being said there is still cc to be worried about, I paid for this retreat which includes meals so I do not want to have to take my own meals for Friday-Sunday. So my question is what should I take to be prepared just in case I should get zapped. I really don't want to spend the weekend suffering.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ShayFL Enthusiast

There is NO GUARANTEE that this will help you at all if you get some gluten, and a Celiac should NEVER use this in order to eat gluten on purpose, but you could buy some Glutenease or another similar product (there are several out there I just dont know the other products names). With this said, you could get sick. So if it were me, I would pack some dried fruit and nuts to keep in my purse if a meal looks suspicious or they cannot assure me that my meal is gluten-free. Also maybe take along some of those individual tuna's with the pop top so you could eat that with a salad. Maybe a handful of gluten-free bars like Lara bars or others to keep in your purse or pocket.

I know you paid for it and no one wants to waste money. But is getting sick worth it? It wouldnt be for me. I would want to actually enjoy the retreat.

mamaw Community Regular

Hello

I would try to contact the person in charge or the place where the retreat is being held & speak directly to a live person & ask questions. I would take some snacky things but you don't want to take gluten-free expensive food if they have you covered. No use in wasting.

I think the good sign is that they up front was even asking about gluten issues. It's a step in the right direction.

If after you speak to some one & they don't make you feel safe I would ask if there is a place to store & keep fresh gluten-free food that you want to bring to feel safe. It may mean you must cook it yourself but still that beats getting ill...... and of course you still may get sick......

I hope you enjoy your retreat.

blessings

mamaw

kbtoyssni Contributor

Unless I had a chance to talk with the chef about what was being served and how they were going to take precautions to avoid CC, I would not eat the food beyond the obviously gluten-free stuff like apples and individually packaged chips and things like that. Depending on what type of retreat this is, you may have a proper chef who understands or it may be someone like the organizer of the retreat or volunteers cooking meals and in the latter case I wouldn't attempt to eat the food. Maybe you could ask if you can get a discount for not eating the food.

I go on a ski trip with friends and my one friend is fantastic about making a gluten-free dinner, but I ALWAYS make sure I have enough food with me just in case something goes wrong. I bring those Thai Kitchen "ramen" noodles that are easy to cook up, a few servings of frozen chili, some eggs that I can boil or scramble, some fruit, individual string cheeses, some cereal. Stuff that won't go back if I have to bring it home with me, but I like to know I've got it with me just in case. I do not want to get hungry!

Mango04 Enthusiast

I agree with the idea of bringing all your own food. I've done it many times on weekend trips (it's not too hard if it's just a weekend). It might seem like a hassle but really beats getting sick. :)

Chrissyb Enthusiast

Thank you all for your suggestions, I will call the retreat center today. To answer you question it is a womens church retreat with aprox. 200 women. If it is like others I have been on I know I will not be allowed to use the kitchen to cook my own food so we will see what happens.

Blessings Explorer

I just went to one day of our ladies retreat. I brought AMY's frozen dinners and lots of snacks. This is the first time I didn't feel left out since diagnosed in March. Bring fruit snickers cips I even had 1/2 a piece of Cheesecake factory Godiva cheesecake. Find something for all your taste buds needs. The only thing they had that I could eat was m&ms. The retreat facility was wonderfuol to put my stuff in the fridge and freezer. I cooked my lunch and the cook actually cooked my dinner and brought it out. He also made a baked potato wich I declined. It was easier to stick to my plan. I have been in tears so many times since March over church functions, bbqs and picnics. This was the first no tear event. From this site I learned plan and prepare. It will help.

Have lots of fun.

God bless,

Vicky


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Blessings Explorer

Chrissy

Are you going to Women of Faith in Denver? I am taking my daughter. I finally decided today that I was going to try it. I'll bring my own food and snacks. Have fun on your trip!

God Bless,

Vicky

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Jane02 replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      8

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    2. - MichaelDG posted a topic in Board/Forum Technical Help
      0

      celiac.com support

    3. - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      8

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    4. 0

      Penobscot Bay, Maine: Nurturing Gluten-Free Wellness Retreat with expert celiac dietitian, Melinda Dennis

    5. - Scott Adams replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      8

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,327
    • Most Online (within 30 mins)
      7,748

    dnamutant
    Newest Member
    dnamutant
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Jane02
      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency.  I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently meet from my diet is vitamin D. Calcium is a hit and miss as I rely on vegetables, dark leafy greens as a major source, for my calcium intake. I'm able to meet it when I either eat or juice a bundle of kale or collard greens daily haha. My thiamine intake is roughly 120% of my needs, although I do recognize that I may not be absorbing all of these nutrients consistently with intermittent unintentional exposures to gluten.  My vitamin A intake is roughly 900% (~6400 mcg/d) of my needs as I eat a lot of sweet potato, although since it's plant-derived vitamin A (beta-carotene) apparently it's not likely to cause toxicity.  Thanks again! 
    • MichaelDG
      How do I contact someone at celiac.com concerning the cessation of my weekly e-newsletter? I had been receiving it regularly for years. When I tried to sign-up on the website, my email was not accepted. I tried again with a new email address and that was rejected as well. Thank you in advance!
    • knitty kitty
      Hello, @Jane02,  I take Naturewise D 3.  It contains olive oil.   Some Vitamin D supplements, like D Drops, are made with fractionated coconut oil which can cause digestive upsets.  Fractionated coconut oil is not the same as coconut oil used for cooking.  Fractionated coconut oil has been treated for longer shelf life, so it won't go bad in the jar, and thus may be irritating to the digestive system. I avoid supplements made with soy because many people with Celiac Disease also react to soy.  Mixed tocopherols, an ingredient in Thornes Vitamin D, may be sourced from soy oil.  Kirkland's has soy on its ingredient list. I avoid things that might contain or be exposed to crustaceans, like Metagenics says on its label.  I have a crustacean/shellfish/fish allergy.  I like Life Extension Bioactive Complete B Complex.  I take additional Thiamine B 1 in the form Benfotiamine which helps the intestines heal, Life Extension MegaBenfotiamine. Thiamine is needed to activate Vitamin D.   Low thiamine can make one feel like they are getting glutened after a meal containing lots of simple carbohydrates like white rice, or processed gluten free foods like cookies and pasta.   It's rare to have a single vitamin deficiency.  The water soluble B Complex vitamins should be supplemented together with additional Thiamine in the form Benfotiamine and Thiamine TTFD (tetrahydrofurfuryl disulfide) to correct subclinical deficiencies that don't show up on blood tests.  These are subclinical deficiencies within organs and tissues.  Blood is a transportation system.  The body will deplete tissues and organs in order to keep a supply of thiamine in the bloodstream going to the brain and heart.   If you're low in Vitamin D, you may well be low in other fat soluble vitamins like Vitamin A and Vitamin K. Have you seen a dietician?
    • Scott Adams
      I do not know this, but since they are labelled gluten-free, and are not really a product that could easily be contaminated when making them (there would be not flour in the air of such a facility, for example), I don't really see contamination as something to be concerned about for this type of product. 
    • trents
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.