Complete List Of Symptoms?

[anerissara]

I have read that there are something like 200 symptoms related to Celiac's. This site has a pretty good list, but do you know where I can find a complete list...one that would have some of the "wierd" symptoms (not mostly GI related)? My Dad is thinking that celiac disease might be a problem for him, too...among many other more common complaints he has had a cough for *two years* that hasn't responded to anything. He's had all the tests and nothing seems to be wrong with his lungs, although he does have reflux which might be a cause. Anyway, I'd love to get my hands on a more complete list! Anyone have advice?

[cdford]

I have not found one yet. You can get a good picture of many symptoms by checking out multiple sites and the many messages on some of the boards. You might want to keep a word processing document open as you surf and jot down any new ones you see.

There are several constellations I have noticed falling into groupings by the systems they tend to impact (digestive, neurological, muscular, endocrinological, etc.) Often the impacted system seems to be effected due to whichever vitamin deficiency is most pronounced. Some of us had such widely ranging symptoms that it took multiple doctors years to figure it out. For many of us it was not until the gastro stuff became so pronounced that it could no longer be ignored that anyone turned to celiac disease as a possibility.

[Guest Leidenschaft]

Often the impacted system seems to be effected due to whichever vitamin deficiency is most pronounced.

Interesting stuff Donna! The symptom that finally drove me to diagnosis (my mom Viola/Shirley was dx'd about 16 years ago!) was the pain in my hands. I didn't view myself as having "typical" celiac disease symptoms, although in hindsight my belly is much happier now! I could drink beer every day and feel fine, but one mouthful of milk had me groaning! Possibly if they enriched beer with Calcium I would never have been diagnosed!

Anyway, I now take Calcium and Glucosamine, as well as other vitamin supplements. I also drink Calcium enriched OJ! I've had a bone density scan and my hips are okay, however my spine shows some degradation...

I will have to learn more about the different viatmins and minerals and what a lack of them can do to you... perhaps I can be feeling even better!

[angel-jd1]

Here is a list that GFforlife compiled on the "old" celiac.com board. It has some of the symptoms. The complete list of 200+ came from the NIH conference last summer, however it was never released because the symptoms change or some other odd reason. But this list is very good so here it is:

Most of this was compiled from the aafp.org and celiac.com websites info on celiac symptoms.

List of symptoms associated with Celiac Disease (also known as Celiac Sprue and Gluten Intolerance):

Lassitude (a term describing a feeling of tiredness, weakness or exhaustion)

Inanition (exhaustion, as from lack of nourishment)

Depression

Fatigue (often chronic)

Irritability

Fuzzy-mindedness after gluten ingestion

Dental enamel defects (lots of dental cavities due to weak enamel)

General malnutrition with or without weightloss

Any problem associated with vitamin deficiencies

Diarrhea

Constipation

Lactose intolerance

Flatulence

Anorexia

Nausea

Vomiting

Burning sensation in the throat

Abdominal pain and bloating

Borborygmi (audible bowel sounds)

Abdominal distention

Steatorrhea (fatty stools that float rather than sink)

Foul smelling stools

Bulky, greasy stools

Anemia (iron deficiency)

Hemorrhagic diathesis (bleeding disorder)

Osteoporosis/osteopenia (bone loss or thinning)

Bone pain (especially nocturnal)

White flecks on fingernails

Short stature (due to slow growth)

Arthritis

Rheumatoid arthritis

Arthralgia (pain in the joints)

Tetany (spasms and twitching of the muscles)

Parasthesia (abnormal or impaired skin sensation including burning, prickling, itching, or tingling)

Amenorrhea (absence of menstrual bleeding)

Delayed puberty

Infertility

Impotence

Cheilosis (inflammation, cracking and dryness of the lips)

*Angular cheilosis (specifically cracking in the corners of the lips)

Glossitis (swollen tongue)

Stomatitis (any form of inflammation or ulceration of the mouth, such as mouth ulcers, cold sores, thrush, etc.)

Purpura (purple or red spots on your skin caused by bleeding under the skin, more common in elderly)

Follicular hyperkeratosis (corns, calluses, plantar warts, psoriasis, nail fungus)

Atopic dermatitis (a tendency towards allergies and a predisposition to various allergic reactions)

*Scaly dermatitis (inflammation of the skin, includes dandruff and topical allergic reactions)

Hyperpigmented dermatitis (can't find the definition, must have something to do with the color of the rash?)

Alopecia areata (loss or absence of hair, leaving the skin looking and feeling normal)

Edema (accumulation of serum-like fluid in the body tissues)

Ascites (accumulation of fluid in the peritoneal cavity-the space between the abdominal wall and the organs)

Selective IgA deficiency

Seizures, with or without occipital calcification

Hepatitis (inflammation of the liver, may be acute or chronic)

Dermatitis herpetiformis (skin rash characterized as intensely itchy skin eruptions like red bumps and blisters. Burning, stinging and itching is very bad. It appears in groups around the body, most often on the head, elbows, knees, and buttocks, much like the lesions of Herpes which is why the name is herpetiformis-meaning "like herpes". Must be diagnosed by a doctor. Only occurs in celiac patients.)

Liver disease

Xerophthalmia (an eye disorder which causes the conjunctiva and cornea to become abnormally dry)

Night blindness (inability to see well in dim light)

Thyroid disease

Unexplained neuropathic illnesses, including ataxia and peripheral neuropathy

*Peripheral neuropathy (disease, inflammation and damage to the peripheral nerves, which connect the central nervous system to the sense organs, muscles, glands, and internal organs. Damage to sensory nerves may cause numbness, tingling, sensations of cold, or pain, often starting at the hands or feet and moving toward the body center. Damage to the nerves of the autonomic nervous system may lead to blurred vision, impaired or absent sweating, headaches, episodes of faintness associated with falls in blood pressure, disturbance of gastric, intestinal, bladder or sexual functioning, including incontinence and impotence. In some cases there is no obvious or detectable cause)

*Ataxia (incoordination and clumsiness, affecting balance and gait, limb or eye movements and/or speech, making one appear as if they were drunk)

Dementia

Diabetes mellitus type 1

Sjogren's syndrome (eyes, mouth, and vagina become extremely dry)

Collagen disorders

Down syndrome

IgA neuropathy

Fibrosing alveolitis of the lung (body produces antibodies against its own lung tissue, creates a dry cough and breathing difficulty upon exertion)

Hyposplenism, with atrophy of the spleen (underactive spleen)

Pancreatitis (inflammation of the pancreas)

Lymphoma (any group of cancers in which the cells of the lymphoid tissue multiply unchecked)

Leukopenia (abnormal decrease in white blood cells, often reducing immune system function)

Coagulopathy (blood clotting disorder)

Thrombocytosis (low blood platelets/damaged platelets, causing large amounts of bruises due to uncontrolled bleeding under the skin)

Melanosis (black or brown discoloration of the colon, usually due to chronic constipation)

Erythema nodosum (red-purple swellings on the legs and sometimes arms, with fever and joint pain)

In children:

Failure to thrive

Irritability

Paleness

Fretfulness

Inability to concentrate

Emotional withdrawal or excessive dependence

Nausea

Pale, malodorous, bulky stools

Frequent, foamy diarrhea

Wasted buttocks

Anorexia

Malnutrition:

*With protuberant abdomen (with or without painful bloating)

*Muscle wasting of buttocks, thighs, and proximal arms

*With or without diarrhea

(as well as any number of the above diseases and disorders)

Additional information:

Reactions to ingestion of gluten can be immediate, or delayed for days, weeks or even months.

The amazing thing about celiac disease is that no two individuals who have it seem to have the same set of symptoms or reactions. A person might have several of the symptoms listed above, a few of them, one, or none. There are even cases in which obesity turned out to be a symptom of celiac disease. list from celiac.com message board

-Jessica

[Guest Leidenschaft]

WOW!!! That's a frightening sight! I did a copy and paste in email to my vet who complains of Celiac symptoms all the time, and who's youngest daughter looks extemely waif like... perhaps this will convince him to get checked!!

Also sent it to my best friend who's an early childhood educator... she deals with a lot of OUT THERE behaviour! She had Celiac twins at her daycare, but they were already diagnosed... this could help her understand some of the behaviours!

[cdford]

Wow! What an amazingly broad impact. No wonder we all react so differently.

[KaitiUSA]

Thats one incredible list...It's amazing that one thing can cause so many symptoms.

[gf4life]

I attempted to access that "complete" list that was being refered to in the research study that said 1 in 133 have celiac disease. The excuse I got was that the list is outdated as soon as it is printed, it is always changing, and so they won't allow public access to it.

Blah, blah, blah...

I personally think it would be a public service to allow access, but I guess they fear that too many people will take the list to their doctor and pester them about these vague symptoms. Well if 1 in every 133 people have celiac disease, then chances are many people are out there with those exact "vague" symptoms. Only a small handful are going to actually end up with celiac disease so severe that they are close to dying from it. And that is what most doctors are looking for in regards to celiac. The rest of us suffer most of our lives with nagging symptoms and end up dying from cancer and other diseases that could have been prevented had we but known we needed to avoid gluten. This is exactly why I was not willing to continue testing. I could test negative for years, and keep suffering. Or I could go gluten-free and feel better. It was a no brainer for me. I did pursue testing, but only Enterolab was able to tell me I needed to be gluten-free.

The list I compiled and had posted on the "old" board is only about 100 symptoms that I could find listed in the most informative articles from aafp.org, celiac.com, the university of chicago, the university of maryland, etc. I can only imagine what the other 100+ symptoms are. I had over 30 of the 100 listed on the list Jessica reposted above. I now only have a small handful that linger after being gluten-free for 14 months.

God bless,

Mariann

[Guest BellyTimber]

Your history of tests, symptoms & improvements is similar to mine!

Given continued unwellness to some extent, threatening to jeopardise my employment, my doctor's refusal to do anything include diagnose, and the system here in the UK whereby no-one will listen to anyone except a doctor (and where changing doctor is well nigh impossible), it is heartening to read of people in a similar boat even if the implications are rather different.

Best wishes

Michael (50)

[celiac3270]

That's a very good list--will be saving that one. I had about 18 of those symptoms at diagnosis--none now!

[racheloc]

I have 23 of the symptoms on that list. Yet my doctor keeps blowing me off. Should I insist on being tested? The more I read about celiac, the more I think I have it. It would explain a lot. Another thing that convinces me is that I did have H. pylori (stomach infection) around the same time I developed these symptoms, and I read that things like that can be a trigger. My doctor acts like I'm either a hypochondriac or I'm totally exaggerating when I say I've been sick almost every day for a year now. What should I do?

[kareng]

I have 23 of the symptoms on that list. Yet my doctor keeps blowing me off. Should I insist on being tested? The more I read about celiac, the more I think I have it. It would explain a lot. Another thing that convinces me is that I did have H. pylori (stomach infection) around the same time I developed these symptoms, and I read that things like that can be a trigger. My doctor acts like I'm either a hypochondriac or I'm totally exaggerating when I say I've been sick almost every day for a year now. What should I do?

 

 

Since this thread is 8 years old, maybe you could take a current list to your doctor to discuss with him/her?  Print it out so he can see its from a reputable medical site.

 

At the bottom is a link to more symptoms

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[w8in4dave]

Ohhhh my!! What a list!! 

[bfroggy74]

Here is a list that GFforlife compiled on the "old" celiac.com board. It has some of the symptoms. The complete list of 200+ came from the NIH conference last summer, however it was never released because the symptoms change or some other odd reason. But this list is very good so here it is:

-Jessica

well jessica i am not sure i even have celiac disease but yep i have those i think i have a list of 19 of them and alot  are still not mentioned on there i am not sure but hyperkalemia(issues with potassium) should be one of them and gait(balance issues) 

[kareng]

well jessica i am not sure i even have celiac disease but yep i have those i think i have a list of 19 of them and alot  are still not mentioned on there i am not sure but hyperkalemia(issues with potassium) should be one of them and gait(balance issues)

Let me try again! I swear you all are like 12 year olds!

You are responding to someone who posted 9 years ago!