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Newly Diagnosed: Horrible Mood Swings

Guest BERNESES

By Guest BERNESES
in Coping with Celiac Disease

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Guest BERNESES
Guest BERNESES
Posted

Hi Everyone- I was just diagnosed with Celiac's (I tested positive for one of the antibodies and I have been gluten-free or at least attempting to be for the last thireteen days. Physically, I am feeling much better but my God, the mood swings! I thought they were supposed to get better when you went gluten-free.

I have a history of depression and anxiety (shocker) and am on several medications for this but nothing seems to be helping. I am seeing my gastroenterologist and psychiatrist next week (one of my medications is not gluten free) but I'm wondering if anyone else felt depressed, irritable and angry after going gluten-free. I also had a ski accident that landed me in six weeks of pohysical therpay and a lot of pain in December so it's been a heck of a two months. Just want some support, encouragement and advice. Thanks so much, Beverly :rolleyes:

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KaitiUSA Enthusiast
KaitiUSA
Posted

If one of your meds is not gluten free that can be causing a reaction. The tiniest bit can cause damage to your intestine whether you feel it or not. Also, don't expect all the symptoms to go away overnight. It took me a few months to get feeling much better. Some people can feel better quick but for some people it takes longer. But you are not going to get better while you are still on gluten because you are not on a gluten free diet. I would find a med. similar to what you have that is gluten free. There is a list of meds that are gluten free on here. Also, check your lipsticks,lotions, and shampoos. These can also cause things to slip into your system and there are separate posts on that throughout this board. Whenever I accidentally ingest gluten I get nausea but along with that I get moody and anxious. So you could easily be reacting to that. Hope you feel better soon and good luck :D

KLTerry Apprentice
KLTerry
Posted

I've had the worst moodswings and have dealt with depression and anxiety for almost a year. I am thanking celiac for that.

flagbabyds Collaborator
flagbabyds
Posted

go off that medication because even though it is supposed to be making you feel better, it could be causing the mood swings because it has gluten in it

celiac3270 Collaborator
celiac3270
Posted

Yes--you really shouldn't take that medicine. Gluten causes or has caused mood swings in many of us here--myself included--and eliminating all gluten should, on its own, help it. It may take a few weeks, but it's worth it if you can solve the problem.

angel-jd1 Community Regular
angel-jd1
Posted

You need to speak with your doctor immediately. Depending on the medication, quitting it "cold turkey" could do some severe damage also!!!! So against the advice of others, please do NOT stop taking your meds until you talk to your doctor. BUT you do need to speak with him/her immediately. Taking meds that contain gluten isn't safe either, but the effects of stopping a medication cold turkey could also be very severe.

-Jessica :rolleyes:

plantime Contributor
plantime
Posted

"I have a history of depression and anxiety (shocker) and am on several medications for this but nothing seems to be helping. I am seeing my gastroenterologist and psychiatrist next week (one of my medications is not gluten free) but I'm wondering if anyone else felt depressed, irritable and angry after going gluten-free."

For me, gluten contamination causes serious depression. It is possible that going off gluten completely will ease your depression/anxiety issues. DO NOT QUIT TAKING YOUR MEDS COLD TURKEY!! I was on Lexapro, and it had to be weaned off gradually. Stopping suddenly causes serious problems, including inability to sleep and psychosis. Talk to your doctor. Even the tiny bit of gluten in one of your meds is enough to make you sick.

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tdrew Rookie
tdrew
Posted

We really should not be recommending to anyone that they stop taking any prescription medications without first consulting with their physician. This could have very dire consequences, depending on the medical condition and the drug concerned.

Tom

Guest BERNESES
Guest BERNESES
Posted

Thanks Everyone- I've been dealing with depression and anxiety long enough to know that I could never go cold turkey! But I thank you all for responding. I have been working with my psychiatrist to slowly wean off the medication (it is HELL- let me tell you!) because he agreed with what you all said- that it was the medication causing the mood swings. They are getting better as I taper down but I feel like a raving lunatic right now!

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    • knitty kitty
      High DGP-A with normal IGA

      By knitty kitty · Posted

      @rei.b,  I understand how frustrating starting a new way of eating can be.  I tried all sorts of gluten-free processed foods and just kept feeling worse.  My health didn't improve until I started the low histamine AIP diet.  It makes a big difference.   Gluten fits into opioid receptors in our bodies.  So, removing gluten can cause withdrawal symptoms and reveals the underlying discomfort.  SIBO can cause digestive symptoms.  SIBO can prevent vitamins from being absorbed by the intestines.  Thiamine insufficiency causes Gastrointestinal Beriberi (bloating, abdominal pain, nausea, diarrhea or constipation).  Thiamine is the B vitamin that runs out first because it can only be stored for two weeks.  We need more thiamine when we're sick or under emotional stress.  Gastric Beriberi is under recognised by doctors.  An Erythrocyte Transketolace Activity test is more accurate than a blood test for thiamine deficiency, but the best way to see if you're low in thiamine is to take it and look for health improvement.  Don't take Thiamine Mononitrate because the body can't utilize it well.  Try Benfotiamine.  Thiamine is water soluble, nontoxic and safe even at high doses.  I thought it was crazy, too, but simple vitamins and minerals are important.  The eight B vitamins work together, so a B Complex, Benfotiamine,  magnesium and Vitamin D really helped get my body to start healing, along with the AIP diet.  Once you heal, you add foods back in, so the AIP diet is worth doing for a few months. I do hope you'll consider the AIP diet and Benfotiamine.
    • captaincrab55
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      Imemsm, Most of us have experienced discontinued, not currently available or products that suddenly become seasonal.   My biggest fear about relocating from Maryland to Florida 5 years ago, was being able to find gluten-free foods that fit my restricted diet.  I soon found out that the Win Dixie and Publix supper markets actually has 99% of their gluten-free foods tagged, next to the price.  The gluten-free tags opened up a  lot of foods that aren't actually marked gluten-free by the manufacture.  Now I only need to check for my other dietary restrictions.  Where my son lives in New Hartford, New York there's a Hannaford Supermarket that also has a gluten-free tag next to the price tag.  Hopefully you can locate a Supermarket within a reasonable travel distance that you can learn what foods to check out at a Supermarket close to you.  I have dermatitis herpetiformis too and I'm very sensitive to gluten and the three stores I named were very gluten-free friendly.  Good Luck 
    • rei.b
      High DGP-A with normal IGA

      By rei.b · Posted

      Okay well the info about TTG-A actually makes a lot of sense and I wish the PA had explained that to me. But yes, I would assume I would have intestinal damage from eating a lot of gluten for 32 years while having all these symptoms. As far as avoiding gluten foods - I was definitely not doing that. Bread, pasta, quesadillas (with flour tortillas) and crackers are my 4 favorite foods and I ate at least one of those things multiple times a day e.g. breakfast with eggs and toast, a cheese quesadilla for lunch, and pasta for dinner, and crackers and cheese as a before bed snack. I'm not even kidding.  I'm not really big on sugar, so I don't really do sweets. I don't have any of those conditions.  I am not sure if I have the genes or not. When the geneticist did my genetic testing for EDS this year, I didn't think to ask for him to request the celiac genes so they didn't test for them, unfortunately.  I guess another expectation I had is  that if gluten was the issue, the gluten-free diet would make me feel better, and I'm 3 months in and that hasn't been the case. I am being very careful and reading every label because I didn't want to screw this up and have to do gluten-free for longer than necessary if I end up not having celiac. I'm literally checking everything, even tea and anything else prepacked like caramel dip. Honestly its making me anxious 😅
    • knitty kitty
      High DGP-A with normal IGA

      By knitty kitty · Posted

      So you're saying that you think you should have severe intestinal damage since you've had the symptoms so long?   DGP IgG antibodies are produced in response to a partial gluten molecule.  This is different than what tissue transglutaminase antibodies are  produced in response to.   TTg IgA antibodies are produced in the intestines in response to gluten.  The tTg IgA antibodies attack our own cells because a structural component in our cell membranes resembles a part of gluten.  There's a correlation between the level of intestinal damage with the level of tTg antibodies produced.  You are not producing a high number of tTg IgA antibodies, so your level of tissue damage in your intestines is not very bad.  Be thankful.   There may be reasons why you are not producing a high quantity of tTg IgA antibodies.  Consuming ten grams or more of gluten a day for two weeks to two months before blood tests are done is required to get sufficient antibody production and damage to the intestines.  Some undiagnosed people tend to subconsciously avoid lots of gluten.  Cookies and cakes do not contain as much gluten as artisan breads and thick chewy pizza crust.  Anemia, diabetes and thiamine deficiency can affect IgA antibody production as well.   Do you carry genes for Celiac?  They frequently go along with EDS.
    • rei.b
      High DGP-A with normal IGA

      By rei.b · Posted

      I was tested for celiac at the same time, so I wasn't taking naltrexone yet. I say that, because I don't. The endoscopy showed some mild inflammation but was inconclusive as to celiac disease. They took several biopsies and that's all that was shown. I was not given a Marsh score.
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