Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

To All The Type One Diabetics Out There

KristaleeJane

By KristaleeJane
in Related Issues & Disorders

Recommended Posts

KristaleeJane Contributor
KristaleeJane
Posted

Hello Everyone.....

My younger sister who is 20 and a type one diabetic since the the age of 11, decided to get tested for celiac after I convinced her that it can be hereditary (I got dx 6mths ago).

Even though she has absolutly NO symptoms (lucky girl) she went ahead and got her doc to do the blood work, her Iga or ttg not sure which one she had done, came back 86. Mine was 96, so more than likely she has celiac, next will be the biopsy I am assuming to confirm this dx. My question is she has always had issues with her blood sugars being out of wack, and also has polycystic ovary syndrome.

Could the celiac be affecting her sugar levels????

and be contributing to her constant high blood pressure & kidney problems.

Any advice appreciated

thanks

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


~alex~ Explorer
~alex~
Posted

Hi,

Celiac disease definitely could have been effecting your sister's blood sugars. I was diagnosed with type I after celiac so I don't have much experience with undiagnosed celiac affecting blood sugars but whenever I am glutened my blood sugar gets pretty erratic. I would bet that once she has been on the gluten-free diet for awhile and her villi heal there will be a good chance her blood sugars will become more manageable and predictable. Also the gluten-free and diabetic diets are pretty complimentary so that should help her too. I'm not sure about the polycystic ovary syndrome or the kidney problems so hopeful someone else can speak to that.

elye Community Regular
elye
Posted

I have been type one diabetic for 35 years, and a diagnosed celiac for three. I have had tight blood sugar control for a number of years now, so I don't think that the celiac disease affected my blood sugars in the past....but NOW, when I am glutened, my blood sugar shoots up. It gives me added incentive to stay gluten-free, for sure!

As Alex has said, the diabetic diet goes very well with the gluten-free way of life...this is likely because there tends to be a limiting of carbohydrate while gluten-free (at least for me), which keeps blood sugars steady.

I'll bet your sister finds a new life of GREAT control once gluten-free..... :)

2kids4me Contributor
2kids4me
Posted

My son was diagnosed Type one at age 9 (2003) and celiac the following year. Erratic blood sugars were occuring for about 4 months prior to diagnosis ... his sister was diagnosed celiac first, then they tested Matt immediately - and confirmed by biopsy. His outward symptoms were not as pronounced as his sisters - yet he had way more damage to his villi on biopsy.

Going gluten free will likely help those erratcic readings.

The damaged villi are inflammed so the body is in a constant state fo trying to repair the damage.

Carbohydrates are absorbed in an "uneven fashion".....sometimes they are not absorbed well or the opposite effect "carb dumping" as they are absorbed too quickly...this is what can cause unexpected highs and lows in a diabetic.

Hope this helps.

RiceGuy Collaborator
RiceGuy
Posted
Hello Everyone.....

My younger sister who is 20 and a type one diabetic since the the age of 11, decided to get tested for celiac after I convinced her that it can be hereditary (I got dx 6mths ago).

Even though she has absolutly NO symptoms...

My question is she has always had issues with her blood sugars being out of wack, and also has polycystic ovary syndrome.

Could the celiac be affecting her sugar levels????

and be contributing to her constant high blood pressure & kidney problems.

Any advice appreciated

thanks

Well, I'd say she most definitely DOES have symptoms. Just not the ones we might expect as typical. Diabetes, infertility, kidney disease, and many other things are associated with Celiac Disease. Many don't get the classic weight loss and D.

Just take a look at this list of associated diseases and disorders:

https://www.celiac.com/categories/Celiac-Di...-and-Disorders/

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Jsingh
      - Jsingh replied to lizzie42's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      1

      Son's legs shaking

      Hi, My 7 year daughter has complained of this in the past, which I thought were part of her glutening symptom, but more recently I have come to figure out it's part of her histamine overload symptom. This one symptom was part of her broader profile, which included irritability, extreme hunger, confusion, post-nasal drip. You might want to look up "histamine...
    2. lizzie42
      - lizzie42 posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      1

      Son's legs shaking

      My 5yo was diagnosed with celiac last year by being tested after his sister was diagnosed. We are very strict on the gluten-free diet, but unsure what his reactions are as he was diagnosed without many symptoms other than low ferritin. He had a school party where his teacher made gluten-free gingerbread men. I almost said no because she made it in her...
    3. trents
      - trents replied to Paulaannefthimiou's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Bob red mill gluten free oats

      Not necessarily. The "Gluten Free" label means not more than 20ppm of gluten in the product which is often not enough for super sensitive celiacs. You would need to be looking for "Certified Gluten Free" (GFCO endorsed) which means no more than 10ppm of gluten. Having said that, "Gluten Free" doesn't mean that there will necessarily be more gluten than "Certified...
    4. trents
      - trents replied to jenniber's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      10

      Disaccharide deficient, confusing biopsy results, no blood test

      I think it is wise to seek a second opinion from a GI doc and to go on a gluten free diet in the meantime. The GI doc may look at all the evidence, including the biopsy report, and conclude you don't need anything else to reach a dx of celiac disease and so, there would be no need for a gluten challenge. But if the GI doc does want to do more testing, you...
    5. Paulaannefthimiou
      - Paulaannefthimiou posted a topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Bob red mill gluten free oats

      Are Bobresmill gluten free oats ok for sensitive celiacs?
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      132,859
    • Most Online (within 30 mins)
      7,748
    Santa Don
    Newest Member
    Santa Don
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • Jsingh
      Son's legs shaking

      By Jsingh · Posted

      Hi,  My 7 year daughter has complained of this in the past, which I thought were part of her glutening symptom, but more recently I have come to figure out it's part of her histamine overload symptom. This one symptom was part of her broader profile, which included irritability, extreme hunger, confusion, post-nasal drip. You might want to look up "histamine intolerance". I wish I had known of this at the time of her diagnosis, life would have been much easier.  I hope you are able to figure out. 
    • lizzie42
      Son's legs shaking

      By lizzie42 · Posted

      My 5yo was diagnosed with celiac last year by being tested after his sister was diagnosed. We are very strict on the gluten-free diet, but unsure what his reactions are as he was diagnosed without many symptoms other than low ferritin.  He had a school party where his teacher made gluten-free gingerbread men. I almost said no because she made it in her kitchen but I thought it would be ok.  Next day and for a few after his behavior is awful. Hitting, rude, disrespectful. Mainly he kept saying his legs were shaking. Is this a gluten exposure symptom that anyone else gets? Also the bad behavior? 
    • trents
      Bob red mill gluten free oats

      By trents · Posted

      Not necessarily. The "Gluten Free" label means not more than 20ppm of gluten in the product which is often not enough for super sensitive celiacs. You would need to be looking for "Certified Gluten Free" (GFCO endorsed) which means no more than 10ppm of gluten. Having said that, "Gluten Free" doesn't mean that there will necessarily be more gluten than "Certified Gluten" in any given batch run. It just means there could be. 
    • trents
      Disaccharide deficient, confusing biopsy results, no blood test

      By trents · Posted

      I think it is wise to seek a second opinion from a GI doc and to go on a gluten free diet in the meantime. The GI doc may look at all the evidence, including the biopsy report, and conclude you don't need anything else to reach a dx of celiac disease and so, there would be no need for a gluten challenge. But if the GI doc does want to do more testing, you can worry about the gluten challenge at that time. But between now and the time of the appointment, if your symptoms improve on a gluten free diet, that is more evidence. Just keep in mind that if a gluten challenge is called for, the bare minimum challenge length is two weeks of the daily consumption of at least 10g of gluten, which is about the amount found in 4-6 slices of wheat bread. But, I would count on giving it four weeks to be sure.
    • Paulaannefthimiou
      Bob red mill gluten free oats

      By Paulaannefthimiou · Posted

      Are Bobresmill gluten free oats ok for sensitive celiacs?
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.