Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

I Am Offically Gutenized! And Going Off The Deep E


mela14

Recommended Posts

mela14 Enthusiast

dperk,

I'm glad that you are doing better. Hang in there and stay focused. I know it is hard as I sometimes lose it myself. This board has been very helpful and I have learned a lot here. The people on this board are also very compassionate as we have each been through our own hell. I am nowhere near I need to be but have been able to come here with all my baggage and open up. That in itself has been a big help!

I think I will have to lay off the potatoes myself as well as the nuts. They are probably too fatty for me. I was trying to eat them for more protein. I am still very weak and feeling malnourished. today I see my new GI dr and see what he has to say.

Which book are you talking about? There's also another book aout there about eating right foryour blood type. I was introduced to that concept years ago by the author's father (Peter D'Adamo Sr) and it seems I may have to go back to it. I am going to try to get the book today at Barnes and Noble. I have his father's book somewhere and although it is about 25 years old...the concept is the same..."One Man's Food is Another Man's Poison".

Good luck with everything!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



dperk Rookie

The book I found at the library is: The PH Miracle - Balance Your Diet, Reclaim Your Health. It's by Robert O. Young, Ph.D. It helped me a lot to control the acid reflux. I didn't follow the diet completely for very long, but it really did help me find the foods I could eat. I got some better because it was no bread, but he says to eat veggie burgers, which have wheat gluten. So I would get sick again when I tried them - this book does not take into consideration anyone with celiac disease. But the rest of the foods I did good on. It tells you which foods are acid, so I stayed away from them. At least I had something to eat besides baby food - so that felt pretty good. Hope this helps.

babiesatemydingo Newbie

Good luck to you and don't give up.I am gluten-free for 3 or 4 years now can't remember?It is always there but life goes on and lots of folks are in worse shape with much more serious illness.

Get out there and find the products you can eat and which you like the best and you will be fine.There is days I feel like crap but what can you do! Just have to keep on keepin on :)

mela14 Enthusiast

Dperk,

i am going to try to find that book if I get to Barns and Noble today.

i went the other day and picked up the book taht I was talking about....Eat right for your Blood Type and then decided to put it down. There were a lot of things that were listed as OK for my typs but I know that I reacted to. it also doesn't take into consideration the gluten problems. I will have to be my own jusdge forthe diet.

Right now....I am feeling worse but I think it could be candida. In giving up cakes and cookies I've been craving a little something sweet and having raisins, carrots, apples sauce and or course baby jarred fruits. All of which have a lot of natural sugars. Everything seems to have gotten worse and my gut feels more raw and inflamed. the only thing that I can think of is that the sugars flared up the Candida. Last night I started on half a Nystatin...and I was up early sick to my stomach nauseous and muscle pain...racing heart. I just feel so ill...........of course I got anxious and panic stricken....what is going on and how do I FIX ME?????

I think there is no simple clean cut answer........

I will just have to keep learning and keep trying.

I 'll try to read some of the book if i get over there today. I need to pull myself together first.

Thanks for your help,

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - cristiana replied to Atl222's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      4

      Increased intraepithelial lymphocytes after 10 yrs gluten-free

    2. - lizzie42 posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      0

      Low iron and vitamin d

    3. - Scott Adams replied to Atl222's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      4

      Increased intraepithelial lymphocytes after 10 yrs gluten-free

    4. - xxnonamexx posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      0

      FDA looking for input on Celiac Gluten sensitivity labeling PLEASE READ and submit your suggestions

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,212
    • Most Online (within 30 mins)
      7,748

    SignedUp
    Newest Member
    SignedUp
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • cristiana
      I've been reflecting on this further. The lowest TTG I've ever managed was 4.5 (normal lab reading under 10).  Since then it has gone up to 10.   I am not happy with that.  I can only explain this by the fact that I am eating out more these days and that's where I'm being 'glutened', but such small amounts that I only occasionally react. I know some of it is also to do with eating products labelled 'may contain gluten' by mistake - which in the UK means it probably does! It stands to reason that as I am a coeliac any trace of gluten will cause a response in the gut.  My villi are healed and look healthy, but those lymphocytes are present because of the occasional trace amounts of gluten sneaking into my diet.   I am going to try not to eat out now until my next blood test in the autumn and read labels properly to avoid the may contain gluten products, and will then report back to see if it has helped!
    • lizzie42
      Hi, I posted before about my son's legs shaking after gluten. I did end up starting him on vit b and happily he actually started sleeping better and longer.  Back to my 4 year old. She had gone back to meltdowns, early wakes, and exhaustion. We tested everything again and her ferritin was lowish again (16) and vit d was low. After a couple weeks on supplements she is cheerful, sleeping better and looks better. The red rimmed eyes and dark circles are much better.   AND her Ttg was a 3!!!!!! So, we are crushing the gluten-free diet which is great. But WHY are her iron and vit d low if she's not getting any gluten????  She's on 30mg of iron per day and also a multivitamin and vit d supplement (per her dr). That helped her feel better quickly. But will she need supplements her whole life?? Or is there some other reason she's not absorbing iron? We eat very healthy with minimal processed food. Beef maybe 1x per week but plenty of other protein including eggs daily.  She also says her tummy hurts every single morning. That was before the iron (do not likely a side effect). Is that common with celiac? 
    • Scott Adams
      Celiac disease is the most likely cause, but here are articles about the other possible causes:    
    • xxnonamexx
      Please read: https://www.fda.gov/news-events/press-announcements/fda-takes-steps-improve-gluten-ingredient-disclosure-foods?fbclid=IwY2xjawPeXhJleHRuA2FlbQIxMABicmlkETFzaDc3NWRaYzlJOFJ4R0Fic3J0YwZhcHBfaWQQMjIyMDM5MTc4ODIwMDg5MgABHrwuSsw8Be7VNGOrKKWFVbrjmf59SGht05nIALwnjQ0DoGkDDK1doRBDzeeX_aem_GZcRcbhisMTyFUp3YMUU9Q
    • cristiana
      Hi @Atl222 As @trents points out, there could be many reasons for this biopsy result.  I am interested to know, is your gastroenterologist concerned?  Also, are your blood tests showing steady improvement over the years? I remember when I had my last biopsy, several years after diagnosis, mine came back with with raised lymphocytes but no villous damage, too! In my own case, my consultant wasn't remotely concerned - in fact, he said I might still get this result even if all I ever did was eat nothing but rice and water.   My coeliac blood tests were still steadily improving, albeit slowly, which was reassuring.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.