Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

I Am Offically Gutenized! And Going Off The Deep E


mela14

Recommended Posts

mela14 Enthusiast

dperk,

I'm glad that you are doing better. Hang in there and stay focused. I know it is hard as I sometimes lose it myself. This board has been very helpful and I have learned a lot here. The people on this board are also very compassionate as we have each been through our own hell. I am nowhere near I need to be but have been able to come here with all my baggage and open up. That in itself has been a big help!

I think I will have to lay off the potatoes myself as well as the nuts. They are probably too fatty for me. I was trying to eat them for more protein. I am still very weak and feeling malnourished. today I see my new GI dr and see what he has to say.

Which book are you talking about? There's also another book aout there about eating right foryour blood type. I was introduced to that concept years ago by the author's father (Peter D'Adamo Sr) and it seems I may have to go back to it. I am going to try to get the book today at Barnes and Noble. I have his father's book somewhere and although it is about 25 years old...the concept is the same..."One Man's Food is Another Man's Poison".

Good luck with everything!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



dperk Rookie

The book I found at the library is: The PH Miracle - Balance Your Diet, Reclaim Your Health. It's by Robert O. Young, Ph.D. It helped me a lot to control the acid reflux. I didn't follow the diet completely for very long, but it really did help me find the foods I could eat. I got some better because it was no bread, but he says to eat veggie burgers, which have wheat gluten. So I would get sick again when I tried them - this book does not take into consideration anyone with celiac disease. But the rest of the foods I did good on. It tells you which foods are acid, so I stayed away from them. At least I had something to eat besides baby food - so that felt pretty good. Hope this helps.

babiesatemydingo Newbie

Good luck to you and don't give up.I am gluten-free for 3 or 4 years now can't remember?It is always there but life goes on and lots of folks are in worse shape with much more serious illness.

Get out there and find the products you can eat and which you like the best and you will be fine.There is days I feel like crap but what can you do! Just have to keep on keepin on :)

mela14 Enthusiast

Dperk,

i am going to try to find that book if I get to Barns and Noble today.

i went the other day and picked up the book taht I was talking about....Eat right for your Blood Type and then decided to put it down. There were a lot of things that were listed as OK for my typs but I know that I reacted to. it also doesn't take into consideration the gluten problems. I will have to be my own jusdge forthe diet.

Right now....I am feeling worse but I think it could be candida. In giving up cakes and cookies I've been craving a little something sweet and having raisins, carrots, apples sauce and or course baby jarred fruits. All of which have a lot of natural sugars. Everything seems to have gotten worse and my gut feels more raw and inflamed. the only thing that I can think of is that the sugars flared up the Candida. Last night I started on half a Nystatin...and I was up early sick to my stomach nauseous and muscle pain...racing heart. I just feel so ill...........of course I got anxious and panic stricken....what is going on and how do I FIX ME?????

I think there is no simple clean cut answer........

I will just have to keep learning and keep trying.

I 'll try to read some of the book if i get over there today. I need to pull myself together first.

Thanks for your help,

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      129,894
    • Most Online (within 30 mins)
      7,748

    Lois Morelli
    Newest Member
    Lois Morelli
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.3k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      knitty kitty brought up something that also occurred to me. Namely, the reason you don't like bread and pasta may be that your body has been instinctively telling you, "this is harming me" and so you avoid it. Cake, on the other hand, has less gluten and lots of other goodies like sugar and butter and chocolate that mask what gluten there is.
    • knitty kitty
      @Shining My Light, While you're trying to decide on your next steps on your journey, I suggest you have a DNA test to look for Celiac genes.  Your genes don't change, so you do not have to be eating gluten for it.  If you have even one Celiac gene, it's more likely to be celiac disease, than NCGS.  TTg antibodies do not occur in NCGS.   There are different amounts of gluten in different breeds of wheat.  Wheat used for cookies and cakes and tortillas do not contain as much gluten as wheat used for bread and pizza crust.  Look at the crumb in cakes and tortillas.  There's only small bubbles. Gluten is in the matrix forming those bubbles.  Compare those to the big bubbly holes in artisan bread and chewy pizza crust.  To get those big holes, more stretchy elastic gluten is used.   You are subconsciously avoiding those types of foods with large amounts of serious gluten in them.  Consider including these types of high gluten foods in your gluten challenge before your antibody retest and endoscopy.  Keep a food mood poo'd journal to record how symptoms change.   Anxiety, headaches and joint pain are symptoms of Celiac that occur outside the digestive tract, these are extraintestinal symptoms of celiac disease. "Could I really possibly follow a gluten free life as close as I follow Jesus?"    Yes, He's been my constant companion and guide on this journey which has brought us to the forum so we can help others on their journeys.   References: Celiac Disease: Extraintestinal Manifestations and Associated Conditions https://pmc.ncbi.nlm.nih.gov/articles/PMC6895422/ Psychiatric and Neurological Manifestations of Celiac Disease in Adults https://pmc.ncbi.nlm.nih.gov/articles/PMC9984242/#:~:text=celiac disease%2C a multiorgan disorder with,life [21%2C22].
    • lehum
      Thanks for sharing this! You contacted them specifically about their certified gluten-free products, or which products specifically?  So out of all the finished batches of nuts, they only test one?! That seems suboptimally safe... Maybe I will have to try Tierra Farms too...
    • trents
      Also, concerning your apprehension about family pushback, you might relate to this:   
    • Alibu
      MY BIOPSY WAS NEGATIVE!!!  HOW?? Obviously I'm thrilled it was negative, but I'm so confused now.  
×
×
  • Create New...