Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

What Are Some Of The Side Effects When First Changing To Gluten Free?


Hollymomof4

Recommended Posts

Hollymomof4 Newbie

We just changed our 4-year-old son to a gluten free diet theis week. He has had the test, but we haven't gotten the results, yet.

His symptoms were rather severe and we wanted to change his diet as soon as possible. He has been gluten free for 3 days and today we noticed that he was passing really offensive gas. Is the part of some kind of detox that his body is going through? If so, what other symptoms can we expect in the first few weeks of changing his diet?

Thanks for you help!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Lisa Mentor

Welcome!

Would you mind if I asked you what test your son had?

The gluten free diet can be really tricky in the beginning. Toasters, wooden spoons, scratched pots and pans, vitamines, meds and lotions can all hide gluten. Play doh is gluten.

Should he have Celiac just one crumb could be very upsetting to his system.

Some adults have improvement within days and others in several weeks.

Hollymomof4 Newbie

They did stool samples and blood tests on him. I am not doing the biopsy because of his age. He's only 4 and I'm not ready to put him through that. We have been VERY careful. He's had no gluten. He even has his own peanut butter jar! http://www.glutenfreeforum.com/style_emoti...fault/smile.gif

I was just wondering if there are some detaox type symptoms that the go through in the beginning.

Thanks!

Holly

Welcome!

Would you mind if I asked you what test your son had?

The gluten free diet can be really tricky in the beginning. Toasters, wooden spoons, scratched pots and pans, vitamines, meds and lotions can all hide gluten. Play doh is gluten.

Should he have Celiac just one crumb could be very upsetting to his system.

Some adults have improvement within days and others in several weeks.

Amyleigh0007 Enthusiast

The first day my son went completely gluten free he had terrible D. It only lasted one day.

April in KC Apprentice

I think it's possible his system is adjusting to a change in the way he digests things.

But if the problem persists beyond a few days, consider this.

Going gluten-free OFTEN times unmasks some other intolerances people have. For example, a friend was diagnosed with Celiac, and she did not think she was lactose intolerant until AFTER she went gluten free. Then, all of a sudden, she got huge GI symptoms from milk products.

I had a similar problem with corn...after a while gluten free, I realized that corn gave me GI issues where it never did before. And, to be honest, prior to diagnosis, I didn't have much pain with gluten...but within two weeks, I had a new painful reaction to even the littlest bit of cross-contamination with gluten.

If he's staying gassy - you might try eliminating milk and/or taking lactaid with meals. Some Celiac kids are just temporarily lactose intolerant for about 6 weeks while their villi heal, but some others actually have a more permanent intolerance to casein, a protein in milk.

Are you toasting his gluten-free toast in a separate toaster? Baking gluten-free cookies on a pan lined with parchment paper (or a new pan)? Not using the pasta pan to cook his veggies? Not using the colander? Just checking a few sources of x-contam that got me at first. Also, I hate to say it, but some processed foods like Lay's potato chips, etc., give some of us problems. There are a lot of snacks that show up on Gluten-free Casein-free lists for autism diets that may not be pure enough for sensitive Celiac tummies. (and to be honest, if the foods are bothering the Celiacs, then the Gluten-free Casein-free dieters might want to avoid them, too...I think about sensitive Celiacs as the canaries in the coal mine for the rest of the gluten-free world...)

If you look around this board, you'll find Celiacs for whom going gluten free unmasked sensitivities to milk, soy, corn or other foods...I've met people in the gluten-free aisle before looking for things that are free of any of the above...or peanuts...or coconut, etc.

Sorry it can be confusing. I'd start with the assumption it's lactose intolerance, and then look at cross contamination with gluten at home, then look carefully at the processed foods, and finally look at other food sensitivities...

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Scott Adams replied to Jhona's topic in Introduce Yourself / Share Stuff
      35

      Does anyone here also have Afib

    2. - Jacki Espo replied to CDFAMILY's topic in Related Issues & Disorders
      5

      Covid caused reoccurrence of DH without eating gluten

    3. - Mari replied to tiffanygosci's topic in Coping with Celiac Disease
      1

      New Celiac Mama in My 30s

    4. - Mari replied to Jmartes71's topic in Coping with Celiac Disease
      2

      My only proof


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,959
    • Most Online (within 30 mins)
      7,748

    jenny44
    Newest Member
    jenny44
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      If black seed oil is working for his Afib, stick to it, but if not, I can say that ablation therapy is no big deal--my mother was out of the procedure in about 1 hour and went home that evening, and had zero negative effects from the treatment. PS - I would recommend that your husband get an Apple watch to monitor his Afib--there is an app and it will take readings 24/7 and give reports on how much of the time he's in it. Actual data like this should be what should guide his treatment.
    • Jacki Espo
      This happened to me as well. What’s weirder is that within a couple hours of taking paxlovid it subsided. I thought maybe I got glutened but after reading your post not so sure. 
    • Mari
      Hi Tiffany. Thank you for writing your dituation and  circumstancesin such detail and so well writte, too. I particularly noticed what you wrote about brain for and feeling like your brain is swelling and I know from my own experiences that's how it feel and your brain really does swell and you get migraines.    Way back when I was in my 20s I read a book by 2 MD allergist and they described their patient who came in complaining that her brain, inside her cranium, was swelling  and it happened when she smelled a certain chemical she used in her home. She kept coming back and insisting her brain actually swelled in her head. The Drs couldn't explain this problem so they, with her permission, performed an operation where they made a small opening through her cranium, exposed her to the chemical then watched as she brain did swell into the opening. The DRs were amazed but then were able to advise her to avoid chemicals that made her brain swell. I remember that because I occasionally had brain fog then but it was not a serious problem. I also realized that I was becoming more sensitive to chemicals I used in my work in medical laboratories. By my mid forties the brain fog and chemicals forced me to leave my  profession and move to a rural area with little pollution. I did not have migraines. I was told a little later that I had a more porous blood brain barrier than other people. Chemicals in the air would go up into my sinused and leak through the blood brain barrier into my brain. We have 2 arteries  in our neck that carry blood with the nutrients and oxygen into the brain. To remove the fluids and used blood from the brain there are only capillaries and no large veins to carry it away so all those fluids ooze out much more slowly than they came in and since the small capillaries can't take care of extra fluid it results in swelling in the face, especially around the eyes. My blood flow into my brain is different from most other people as I have an arterial ischema, adefectiveartery on one side.   I have to go forward about 20 or more years when I learned that I had glaucoma, an eye problem that causes blindness and more years until I learned I had celiac disease.  The eye Dr described my glaucoma as a very slow loss of vision that I wouldn't  notice until had noticeable loss of sight.  I could have my eye pressure checked regularly or it would be best to have the cataracts removed from both eyes. I kept putting off the surgery then just overnight lost most of the vision in my left eye. I thought at the I had been exposed to some chemical and found out a little later the person who livedbehind me was using some chemicals to build kayaks in a shed behind my house. I did not realize the signifance  of this until I started having appointments with a Dr. in a new building. New buildings give me brain fog, loss of balance and other problems I know about this time I experienced visual disturbances very similar to those experienced by people with migraines. I looked further online and read that people with glaucoma can suffer rapid loss of sight if they have silent migraines (no headache). The remedy for migraines is to identify and avoid the triggers. I already know most of my triggers - aromatic chemicals, some cleaning materials, gasoline and exhaust and mold toxins. I am very careful about using cleaning agents using mostly borax and baking powder. Anything that has any fragrance or smell I avoid. There is one brand of dishwashing detergent that I can use and several brands of  scouring powder. I hope you find some of this helpful and useful. I have not seen any evidence that Celiac Disease is involved with migraines or glaucoma. Please come back if you have questions or if what I wrote doesn't make senseto you. We sometimes haveto learn by experience and finding out why we have some problems. Take care.       The report did not mention migraines. 
    • Mari
      Hi Jmartes71 That is so much like my story! You probably know where Laytonville is and that's where I was living just before my 60th birthday when the new Dr. suggested I could have Celiacs. I didn't go on a gluten challange diet before having the Celiac panel blood test drawn. The results came back as equivical as one antibody level was very high but another, tissue transaminasewas normal. Itdid show I was  allergic to cows milk and I think hot peppers. I immediately went gluten free but did not go in for an endoscopy. I found an online lab online that would do the test to show if I had a main celiac gene (enterolab.com). The report came back that I had inherited a main celiac gene, DQ8, from one parent and a D!6 from the other parent. That combination is knows to sym[tons of celiac worse than just inheriting one main celiac gene. With my version of celiac disease I was mostly constipated but after going gluten-free I would have diarrhea the few times I was glutened either by cross contamination or eating some food containing gluten. I have stayed gluten-free for almost 20 years now and knew within a few days that it was right for me although my recovery has been slow.   When I go to see a  medical provide and tell them I have celiacs they don't believe me. The same when I tell them that I carry a main celiac gene, the DQ8. It is only when I tell them that I get diarrhea after eating gluten that they realize that I might have celiac disease. Then they will order th Vitamin B12 and D3 that I need to monitor as my B12 levels can go down very fast if I'm not taking enough of it. Medical providers haven't been much help in my recovery. They are not well trained in this problem. I really hope this helps ypu. Take care.      
    • knitty kitty
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.