Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Being Glutened


BelievinMiracles

Recommended Posts

BelievinMiracles Explorer

I was just wondering how long it takes you guys to react when you have eaten gluten. I've been on the diet for about 3 months now and when I ate gluten I probably felt abnormal about 3 days later. I've never been diagnosed with Celiac though my doctor thought I should go on the diet since nothing else was working because I used to get real sick before going gluten free, and because we all know that it may take forever to get diagnosed. I'm still debating whether I have it or not, and now that I'm gluten free, tests definitely won't help. If I have been glutened I usually feel really tired and my stomach doesn't feel right and I don't really have diarreah but they aren't solid either.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Green Eyes Rookie

As a celiac I react differently to the amount of gluten I ingest. If it is trace amount it may take me 3 days before I have symptoms and then it is only upset stomach. If I get a larger amount - I'm in the bathroom within 30 minutes. I can usually tell within 10 minutes if I ate something wrong.

Jennifer

*lee-lee* Enthusiast

i react differently depending on what and how much i ingest. sometimes i'm running for the bathroom within 10 minutes but other times it can take 12-24 hours. one thing i noticed is that i'll always break out with a big gross pimple(s) on my face within 24-36 hours. that's how i know for sure i've been glutened. i'm still trying to wean dairy back into my diet so that is sometimes the cause for my frequent trips to the bathroom. it can be confusing but once i see that tell-tale zit, i know i've been glutened.

Katester Enthusiast

I usually react about 4-5 hours later. Depending on how bad the glutening was determines how long I'll feel sick. Just last weekend I got some contamination and had gurgles and all of that for about 2 hours but then I was fine. If it's really bad, it could last me a day or two.

jerseyangel Proficient

I can feel it coming on after about 2-3 hours.

BelievinMiracles Explorer

Thank you for your replies!!!

BelievinMiracles Explorer
Thank you for your replies!!!

Ok...I wrote this post awhile ago and I'm still cramping and having to run to the bathroom...I feel like I constantly have to go. It's been more than a week since I ate gluten and was just wondering if this is normal to feel sick for this long? :unsure: And I didn't start to get sick until 3 days after I ate gluten...is this weird or abnormal?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



*lee-lee* Enthusiast
Ok...I wrote this post awhile ago and I'm still cramping and having to run to the bathroom...I feel like I constantly have to go. It's been more than a week since I ate gluten and was just wondering if this is normal to feel sick for this long? unsure.gif And I didn't start to get sick until 3 days after I ate gluten...is this weird or abnormal?

everyone reacts differently but i'm sure it's not completely unheard of to still feel crappy for a few days. maybe you're ingesting gluten somewhere and you don't know it? some prescription meds have gluten. also some people become sensitive to dairy and/or soy. (personally, i can't tolerate much more than a cup of milk with my morning cereal or else i get crampy and diarrhea.) oh and nightshades too are another food group that some Celiacs develop reactions to...potatoes, tomatoes, eggplant, peppers.

ArtGirl Enthusiast
It's been more than a week since I ate gluten and was just wondering if this is normal to feel sick for this long? ?

It could very well be normal for you. Everyone is different. I've read posts from some who are sick for 2-3 WEEKS! I think that's the extreme. (My heart goes out to them.)

I used to have D for 3-4 days, followed by nearly 2 weeks of fatigue and generally ukky feeling.

Now, 2 years later, a glutening gives me D for 3-4 hours, followed by 3-5 days of uck.

That's me, though. some people get sicker with a glutening after some time gluten free.

As time goes by and you are very strickly gluten-free, you will begin to notice a pattern when accidentally glutened.

JNBunnie1 Community Regular
It could very well be normal for you. Everyone is different. I've read posts from some who are sick for 2-3 WEEKS! I think that's the extreme. (My heart goes out to them.)

I used to have D for 3-4 days, followed by nearly 2 weeks of fatigue and generally ukky feeling.

Now, 2 years later, a glutening gives me D for 3-4 hours, followed by 3-5 days of uck.

That's me, though. some people get sicker with a glutening after some time gluten free.

As time goes by and you are very strickly gluten-free, you will begin to notice a pattern when accidentally glutened.

I have a range of symptoms that last for about a month total. The stomach stuff lasts about two weeks.

BelievinMiracles Explorer
I have a range of symptoms that last for about a month total. The stomach stuff lasts about two weeks.

Oooh...I hope mine doesn't last for that long...I was happy having normal poopies, I've even been constipated sometimes haha that's a first in my life! I definitely don't want to go back because this little reminder is not pleasant.

kim:) Apprentice
I was just wondering how long it takes you guys to react when you have eaten gluten. I've been on the diet for about 3 months now and when I ate gluten I probably felt abnormal about 3 days later. I've never been diagnosed with Celiac though my doctor thought I should go on the diet since nothing else was working because I used to get real sick before going gluten free, and because we all know that it may take forever to get diagnosed. I'm still debating whether I have it or not, and now that I'm gluten free, tests definitely won't help. If I have been glutened I usually feel really tired and my stomach doesn't feel right and I don't really have diarreah but they aren't solid either.

Hi,

I have been on the gluten free diet for about 4 years now and so to hopefully answer your question, when I come in contact with wheat, barley, or oats (even a crum or same oil) I will get sick in about 5 minutes. I can tell when I get abnormal coughs and dont feel good at all. Also a small rash apears right on my hip bone (that still has me confused) and I spend alot of time in the bathroom and am very week and tired. Although many get more sick than I do. So really everyone is different. I know what you mean about the tests, I had 13 blood tests, even went to the childrens hospital for extra tests ( Im now 15) and had an alergy test and they all told me that it was a possibility but also it wasnt extreme. Well I went on the diet for a week and gained 7 pounds (which was a good thing because being in 6th grade I was only 64 pounds). So honestly I would say if it works for you and you are feeling good go for it because it would never hurt, and your symptoms you may get to notice more often. Hope I could somewhat help.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to mamaof7's topic in Parents, Friends and Loved Ones of Celiacs
      6

      Help understand results

    2. - knitty kitty replied to hjayne19's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      10

      Insomnia help

    3. - trents replied to pothosqueen's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Positive biopsy

    4. - pothosqueen posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Positive biopsy

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,990
    • Most Online (within 30 mins)
      7,748

    pothosqueen
    Newest Member
    pothosqueen
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • knitty kitty
      That test is saying that your daughter is not making normal amounts of any IGA antibodies.  She's not making normal amounts of antibodies against gliadin, not against bacteria, not against viruses.  She is deficient in total IGA, so the test for antigliadin antibodies is not valid.  The test was a failure.  The test only works if all different kinds of antibodies were being made.  Your daughter is not making all different kinds of antibodies, so the test results are moot.  Your daughter should have the DGP IgG and TTG IgG tests done.   The tests should be performed while she is still consuming gluten.  Stopping and restarting a gluten containing diet can make her more sick, just like you refuse to eat gluten for testing.  Call the doctor's office, request both the IGG tests. Request to be put on the cancellation list for an appointment sooner.  Ask for genetic testing.   Celiac disease is passed on from parents to children.  You and all seven children should be tested for genes for Celiac disease.  Your parents, your siblings and their children should be tested as well.  Eating gluten is not required for genetic testing because your genes don't change.  Genetic testing is not a diagnosis of Celiac disease.  Just having the genes means there is the potential of developing Celiac disease if the Celiac genes are activated.  Genetic testing helps us decide if the Celiac genes are activated when coupled with physical symptoms, antibody testing, and biopsy examination. It's frustrating when doctors get it wrong and we suffer for it.  Hang in there.  You're a good mom for pursuing this!  
    • knitty kitty
      @hjayne19, So glad you found the information helpful.  I know how difficult my struggle with anxiety has been.  I've been finding things that helped me and sharing that with others makes my journey worthwhile. I like Life Extension Bioactive Complete B Complex.  It contains the easily activated forms of B vitamins needed by people with the MTHFR genetic variation often found with Celiac disease.   Avoid B Complex vitamins if they contain Thiamine Mononitrate if possible.  (Read the ingredients listing.)  Thiamine Mononitrate is the "shelf-stable" form of B 1 that the body can't utilize.  B vitamins breakdown when exposed to heat and light, and over time.  So "shelf-stable" forms won't breakdown sitting on a shelf in a bright store waiting to be bought.  (It's also very cheap.)  Thiamine Mononitrate is so shelf-stable that the body only absorbs about thirty percent of it, and less than that is utilized.  It takes thiamine already in the body to turn Thiamine Mononitrate into an active form.   I take MegaBenfotiamine by Life Extension.  Benfotiamine has been shown to promote intestinal healing, neuropathy, brain function, glycemic control, and athletic performance.   I take TTFD-B1 Max by Maxlife Naturals, Ecological Formulas Allthiamine (TTFD), or Thiamax by EO Nutrition.  Thiamine Tetrahydrofurfuryl Disulfide (TTFD for short) gets into the brain and makes a huge difference with the anxiety and getting the brain off the hamster wheel.  Especially when taken with Magnesium Threonate.   Any form of Thiamine needs Magnesium to make life sustaining enzymes and energy.  I like NeuroMag by Life Extension.  It contains Magnesium Threonate, a form of magnesium that easily crosses the blood brain barrier.  My brain felt like it gave a huge sigh of relief and relaxed when I started taking this and still makes a difference daily.   Other brands of supplements i like are Now Foods, Amazing Formulas, Doctor's Best, Nature's Way, Best Naturals, Thorne, EO Nutrition. Naturewise.  But I do read the ingredients labels all the time just to be sure they are gluten and dairy free. Glad to help with further questions.  
    • trents
      Welcome to the celiac.com community @pothosqueen!   Can you be more specific about which IGA test was run that resulted in 114 score and said to be "normal" and could you please include the reference range for what would be normal? By the size of that number it looks like it may have been what we call "total IGA" but that test is not usually run without also running a TTG-IGA. Total IGA tests for IGA deficiency. If someone is IGA deficient, then the celiac-specific IGA tests like the TTG-IGA will be inaccurate. Was this the only IGA test that was run? To answer, your question, yes, a positive biopsy is normally definitive for celiac disease but there are some other medical conditions, some medications and even some food proteins in rare cases that can cause positive biopsies. But it is pretty unlikely that it is due to anything other than celiac disease.
    • pothosqueen
      Upper endoscopy last week resulted in positive biopsy for celiac disease. The IgA they ran was normal (114). Does positive biopsy automatically mean definitive diagnosis?
    • hjayne19
      This is great thank you very much @Scott Adams
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.