Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Being Glutened


BelievinMiracles

Recommended Posts

BelievinMiracles Explorer

I was just wondering how long it takes you guys to react when you have eaten gluten. I've been on the diet for about 3 months now and when I ate gluten I probably felt abnormal about 3 days later. I've never been diagnosed with Celiac though my doctor thought I should go on the diet since nothing else was working because I used to get real sick before going gluten free, and because we all know that it may take forever to get diagnosed. I'm still debating whether I have it or not, and now that I'm gluten free, tests definitely won't help. If I have been glutened I usually feel really tired and my stomach doesn't feel right and I don't really have diarreah but they aren't solid either.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Green Eyes Rookie

As a celiac I react differently to the amount of gluten I ingest. If it is trace amount it may take me 3 days before I have symptoms and then it is only upset stomach. If I get a larger amount - I'm in the bathroom within 30 minutes. I can usually tell within 10 minutes if I ate something wrong.

Jennifer

*lee-lee* Enthusiast

i react differently depending on what and how much i ingest. sometimes i'm running for the bathroom within 10 minutes but other times it can take 12-24 hours. one thing i noticed is that i'll always break out with a big gross pimple(s) on my face within 24-36 hours. that's how i know for sure i've been glutened. i'm still trying to wean dairy back into my diet so that is sometimes the cause for my frequent trips to the bathroom. it can be confusing but once i see that tell-tale zit, i know i've been glutened.

Katester Enthusiast

I usually react about 4-5 hours later. Depending on how bad the glutening was determines how long I'll feel sick. Just last weekend I got some contamination and had gurgles and all of that for about 2 hours but then I was fine. If it's really bad, it could last me a day or two.

jerseyangel Proficient

I can feel it coming on after about 2-3 hours.

BelievinMiracles Explorer

Thank you for your replies!!!

BelievinMiracles Explorer
Thank you for your replies!!!

Ok...I wrote this post awhile ago and I'm still cramping and having to run to the bathroom...I feel like I constantly have to go. It's been more than a week since I ate gluten and was just wondering if this is normal to feel sick for this long? :unsure: And I didn't start to get sick until 3 days after I ate gluten...is this weird or abnormal?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



*lee-lee* Enthusiast
Ok...I wrote this post awhile ago and I'm still cramping and having to run to the bathroom...I feel like I constantly have to go. It's been more than a week since I ate gluten and was just wondering if this is normal to feel sick for this long? unsure.gif And I didn't start to get sick until 3 days after I ate gluten...is this weird or abnormal?

everyone reacts differently but i'm sure it's not completely unheard of to still feel crappy for a few days. maybe you're ingesting gluten somewhere and you don't know it? some prescription meds have gluten. also some people become sensitive to dairy and/or soy. (personally, i can't tolerate much more than a cup of milk with my morning cereal or else i get crampy and diarrhea.) oh and nightshades too are another food group that some Celiacs develop reactions to...potatoes, tomatoes, eggplant, peppers.

ArtGirl Enthusiast
It's been more than a week since I ate gluten and was just wondering if this is normal to feel sick for this long? ?

It could very well be normal for you. Everyone is different. I've read posts from some who are sick for 2-3 WEEKS! I think that's the extreme. (My heart goes out to them.)

I used to have D for 3-4 days, followed by nearly 2 weeks of fatigue and generally ukky feeling.

Now, 2 years later, a glutening gives me D for 3-4 hours, followed by 3-5 days of uck.

That's me, though. some people get sicker with a glutening after some time gluten free.

As time goes by and you are very strickly gluten-free, you will begin to notice a pattern when accidentally glutened.

JNBunnie1 Community Regular
It could very well be normal for you. Everyone is different. I've read posts from some who are sick for 2-3 WEEKS! I think that's the extreme. (My heart goes out to them.)

I used to have D for 3-4 days, followed by nearly 2 weeks of fatigue and generally ukky feeling.

Now, 2 years later, a glutening gives me D for 3-4 hours, followed by 3-5 days of uck.

That's me, though. some people get sicker with a glutening after some time gluten free.

As time goes by and you are very strickly gluten-free, you will begin to notice a pattern when accidentally glutened.

I have a range of symptoms that last for about a month total. The stomach stuff lasts about two weeks.

BelievinMiracles Explorer
I have a range of symptoms that last for about a month total. The stomach stuff lasts about two weeks.

Oooh...I hope mine doesn't last for that long...I was happy having normal poopies, I've even been constipated sometimes haha that's a first in my life! I definitely don't want to go back because this little reminder is not pleasant.

kim:) Apprentice
I was just wondering how long it takes you guys to react when you have eaten gluten. I've been on the diet for about 3 months now and when I ate gluten I probably felt abnormal about 3 days later. I've never been diagnosed with Celiac though my doctor thought I should go on the diet since nothing else was working because I used to get real sick before going gluten free, and because we all know that it may take forever to get diagnosed. I'm still debating whether I have it or not, and now that I'm gluten free, tests definitely won't help. If I have been glutened I usually feel really tired and my stomach doesn't feel right and I don't really have diarreah but they aren't solid either.

Hi,

I have been on the gluten free diet for about 4 years now and so to hopefully answer your question, when I come in contact with wheat, barley, or oats (even a crum or same oil) I will get sick in about 5 minutes. I can tell when I get abnormal coughs and dont feel good at all. Also a small rash apears right on my hip bone (that still has me confused) and I spend alot of time in the bathroom and am very week and tired. Although many get more sick than I do. So really everyone is different. I know what you mean about the tests, I had 13 blood tests, even went to the childrens hospital for extra tests ( Im now 15) and had an alergy test and they all told me that it was a possibility but also it wasnt extreme. Well I went on the diet for a week and gained 7 pounds (which was a good thing because being in 6th grade I was only 64 pounds). So honestly I would say if it works for you and you are feeling good go for it because it would never hurt, and your symptoms you may get to notice more often. Hope I could somewhat help.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Mari replied to Jmartes71's topic in Coping with Celiac Disease
      4

      Related issues

    2. - Scott Adams replied to catsrlife's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      4

      Patiently Waiting to See Results

    3. - catsrlife replied to catsrlife's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      4

      Patiently Waiting to See Results

    4. - Jmartes71 replied to Jmartes71's topic in Coping with Celiac Disease
      4

      Related issues


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,260
    • Most Online (within 30 mins)
      7,748

    sbr
    Newest Member
    sbr
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Mari
      jmartes, Thank you for sharing  more information with us. Most of us Celiacs whose problems do not clear up with in a few years have to decide what to do next. We can keep seeing DR.s and hope that we will get some  medication or advice that will improve our health. Or we can go looking for other ways to improve our health. Usually Celiac Disease is not a killer disease, it is a disabling disease as  you have found out. You have time to find some ways to help you recover. Stay on your gluten-free diet and be more careful in avoiding cross contamination . KnittyKitty  and others here can give you advice about avoiding some foods that can give you the gluten auto immune reaction and advice about vitamins and supplement that help celiacs. You may need to take higher doses of Vit. B12  and D3.  About 20 years before a Dr. suggested I might have Celiac disease I had health problems that all other Dr said they could not identify or treat. I was very opposed to alternative providers and treatments. So many people were getting help from a local healer I decided to try that out. It was a little helpful but then, because I had a good education in medical laboraties she gave me a book  to read and what did I think. With great skeptism I started reading and before I was half way through it I began using the methods outlined in the book. Using those herbs and supplements I went from hardly able to work to being able to work almost fulltime. I still use that program. But because I had undiagnosed celiac disease by 10 years later some  of my problems returned and I started to loose weight.    So how does a person find a program that will benefit them? Among the programs you can find online there are many that are snake oil scams and some that will be beneficial. by asking around, as I did. Is there an ND in your area? Do they reccomend that person? If you would like to read about the program I use go to www.drclark.net   
    • Scott Adams
      It's unfortunate that they won't work with you on this, but in the end sometimes we have to take charge of our own health--which is exactly what happened to me. I did finally get the tests done, but only after years of going down various rabbit holes and suffering. Just quitting gluten may be the best path for you at this point.
    • catsrlife
      My doctor didn't take the time to listen to anything. I don't even think she knows what it means. She is more concerned about my blood pressure that is caused by her presence than anything else and just wants to push pills at me. The so-called dermatologist wouldn't do a skin test. she prescribed all of these silly antihistamine skin meds. This lady didn't even know what she was talking about and said "they never turn out as celiac, they usually just say it's dermatitis so here's your meds," just like my regular quack. I'm trying to change insurance companies at the moment and that has been a battle because of red tape, wrong turns, and workers having wrong phone numbers. What a joke! The allergy blood days say I have a wheat allergy of .31. Hopefully it's just that and until I find a decent doctor and dermatologist, I'll just lay off the wheat anyway, since it gives me asthma, high blood sugar, and joint pain. So frustrated at this point. The rash on my back of arms/elbows is mostly gone. Both calves and chest have started up. smh. It comes and goes. It fades faster now, though, although my forearms still produce one or two bumps on each side. The itching has calmed down a lot except for the bump area. I have dry skin to begin with so anything affecting it just makes it crazy. i'm never going to eat wheat again. I don't care if they need it to produce results or if it is just an intolerance, allergy, or celiac. It gives me hell.
    • Jmartes71
      I had the test done by one of the specialist through second pcp I had only a few months because he was saying I wasn't.Even though Im positive HLA-DQ2 .My celiac is down played.I am with new pcp, seeing another girl doctor who wants to do another breathe test next month though Im positive sibo this year.I have high blood pressure not sure if its pain from sciatica or sibo, ibs or hidden gluten. Im in disability limbo and I should have never been a bus driver because im still suffering and trying to heal with zero income except for my husband. This isnt fare that my health is dictating my living and having ti beg for being revalidation of my disregarded celiac disease. Its an emotional roller coaster I don't want to be on and the medical made it worse.New pcp new gi, exhausted, tired and really fed up. GI doctor NOT girl..
    • Mari
      Hi Jmartes, It sure is difficult to get useful advice from medical providers. Almost 20 years  ago a Dr suggested that I might have Celiacs and I took a Celiac Panel blood test. No gluten challenge diet. On that test the tTG was in normal range but an alpha antibody was very high. I went online and read about celiac disease and saw how I could investigate this low tTG and still have celiac disease. Normal tTG can happen when a person had been reacting for many years. Another way is that the person has not been eating enough gluten to raise the antibody level. Another reason is that the tTG does not show up on a blood but may show up on a fecal test. Almost all Celiacs inherit at least one of the 2 main Celiac genes. I had genetic tests for the Celiac genes at Enterolab.com. I inherited one main Celiac gene from one parent and the report said that the DQ gene I inherited from my other parent, DQ6, could cause a person to have more problems or symptoms with that combination. One of my grandmother's had fairly typical symptoms of Celiacs but the other grandmother had severe food intolerances. I seem to show some problems inherited from both grandmothers. Human physiology is very complex and researchers are just beginning to understand how different body systems interact.  If you have taken an autosomal DNA test you can download your raw data file and upload it to Prometheuw.com for a small fee and search for Celiac Disease. If you don't find any Cekiac genes or information about Celiac disease  you may not have autoimmune gluten intolerance because more than 99% of Celiacs have one or both of these genes.  PLEASE ASK QUESTIONS IF YOU WANT TO KNOW EHAT i HAVE DONE TO HELP WITH SYMPTOMS.  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.