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Day 4 Gluten Free

wsieving

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wsieving Contributor
wsieving
Posted

So here we are day 4, DD got glutened today (she found a gerber puff somewhere off in a corner...*ugh*), but it was just proof positive for us that we are doing the right thing b/c later this evening she had diarrhea for the first time since going gluten-free. However, previous to that we have noticed a few changes. Firstly she is eating for the first time like a NORMAL toddler. She cleans her plate, eats snacks in between meals. This is the first time EVER for her. We are so thrilled. She is also drinking significantly less. We never thought her excessive drinking had anything to do with gluten intolerance, but it seems as tho it was. She used to live on a sippy cup, but never wanted to eat. Now it's the opposite. Anyone else experience this? She has been way less cranky too. We never realized how cranky she was before until now and she is so pleasant!

Also, now this is a weird one.... DD is almost 15 months old. In this time, she has NEVER drooled, and NEVER had a runny nose. Not one drip or drop. Suddenly today we caught her drooling AND she had a slight runny nose (this was before she got glutened). This seems like a strange effect. We always thought it was odd that she never drooled or had a runny nose, but never associated it with being gluten intolerant. Anyone else had a similar experience?

Thank all of you so much for your help along this journey. You have been such life savers!!

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ShayFL Enthusiast
ShayFL
Posted

I wonder if Celiac can affect your mucous membranes? Curious to see what others say. I can say...now that I think of it that my eyes are not "dry" all of the time since going gluten-free. Had not really thought of it.

Tristan's Mama Newbie
Tristan's Mama
Posted

It's funny that you said that about the drooling and runny nose! Tristan never really drooled either, and would only have a runny nose when he had an ear infection, but the second set of tubes has cleared the ear infection problem for the past few months. But, since being gluten free, his nose has been running constantly! He hasn't been drooling though.

Tristan too has always lived on his fluids, he's always eaten somewhat normally, but drank excessively. He has been drinking a lot less since being gluten free.

tan2406 Newbie
tan2406
Posted

My DS was like your DS...not eating anything but living on fluids. He has only been gluten free for 2 weeks but he's already willing to try new foods and he's eating more. He used to live on grapes, crackers, soy milk and apple juice...since going gluten free, he's now trying so many more foods and eating so much more!

Not sure about the runny nose stuff. My DS had major problems with constant stuffy nose/runny nose and breathing problems from birth, so he had to have his adenoids and tonsils out and tubes done twice. I don't think I've noticed 'more' of a runny nose since going gluten free.

sugarsue Enthusiast
sugarsue
Posted

OK, this is really strange. My dd (6) was drooling when she was asleep just this week. I remember thinking how that was strange since I had never noticed her doing that before!

She had a big change with her eating too where she started eating a lot of food where she was not before. I too noticed a change right away. I'm glad you are seeing improvements!

Thank you for your post to me about my dd and her issues. I am going to look for hidden gluten and try to be even more careful!

Mommy2Ellie Rookie
Mommy2Ellie
Posted

Glad to hear everything is going so well!!! We are also on day 4, and already a difference! I definately agree with the mass eating (I've never seen my 16 month old eat this much!!!) and she too had an OBSESSION with her sippy cup. We haven't seen an improvment there yet, shes still drinking about 5-6 sippy cups per day, but hopefully that will ease off soon. She is also way more pleasent.

As for the runny nose and such, I know with our little one, yesterday she got extremely ill. So much so that we brought her into the pedi,. She had MASSIVE poops, but they were firm, not runny. I didn't think so much could come out of someone so little, and she had a runny nose and drooling, plus she was super miserable. The pedi said that its her "detox" perios. Everyone will have some form of it, but everyone is different. Ellie seemed to have it pretty bad, but shes already much better today. As for the poops, apparently it was everything that she normally couldn't digest. Now her belly is flat like a normally toddlers, and not all bloated and yucky looking.

Hope that helps!!!

wsieving Contributor
wsieving
Posted
  • Author

Wow!! A detox period? Thank you so much for that bit of information! I never had thought of that, but it sure makes sense!

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crittermom Enthusiast
crittermom
Posted

Wow, reading this and thinking back my DD used to be attached to a sippy cup too. Now, not so much. She drinks normally. Interesting...

MarsupialMama Apprentice
MarsupialMama
Posted

We also saw a HUGE improvement in eating - went from practically force feeding our daughter to not being able to feed her enough! She wasn't drinking from a sippy yet, but all she wanted to do was whine and nurse, whine and nurse some more. Her attitude changed from being a crank-head to a smiley happy child. I was amazed!

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      @rei.b,  I understand how frustrating starting a new way of eating can be.  I tried all sorts of gluten-free processed foods and just kept feeling worse.  My health didn't improve until I started the low histamine AIP diet.  It makes a big difference.   Gluten fits into opioid receptors in our bodies.  So, removing gluten can cause withdrawal symptoms and reveals the underlying discomfort.  SIBO can cause digestive symptoms.  SIBO can prevent vitamins from being absorbed by the intestines.  Thiamine insufficiency causes Gastrointestinal Beriberi (bloating, abdominal pain, nausea, diarrhea or constipation).  Thiamine is the B vitamin that runs out first because it can only be stored for two weeks.  We need more thiamine when we're sick or under emotional stress.  Gastric Beriberi is under recognised by doctors.  An Erythrocyte Transketolace Activity test is more accurate than a blood test for thiamine deficiency, but the best way to see if you're low in thiamine is to take it and look for health improvement.  Don't take Thiamine Mononitrate because the body can't utilize it well.  Try Benfotiamine.  Thiamine is water soluble, nontoxic and safe even at high doses.  I thought it was crazy, too, but simple vitamins and minerals are important.  The eight B vitamins work together, so a B Complex, Benfotiamine,  magnesium and Vitamin D really helped get my body to start healing, along with the AIP diet.  Once you heal, you add foods back in, so the AIP diet is worth doing for a few months. I do hope you'll consider the AIP diet and Benfotiamine.
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    • rei.b
      High DGP-A with normal IGA

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      Okay well the info about TTG-A actually makes a lot of sense and I wish the PA had explained that to me. But yes, I would assume I would have intestinal damage from eating a lot of gluten for 32 years while having all these symptoms. As far as avoiding gluten foods - I was definitely not doing that. Bread, pasta, quesadillas (with flour tortillas) and crackers are my 4 favorite foods and I ate at least one of those things multiple times a day e.g. breakfast with eggs and toast, a cheese quesadilla for lunch, and pasta for dinner, and crackers and cheese as a before bed snack. I'm not even kidding.  I'm not really big on sugar, so I don't really do sweets. I don't have any of those conditions.  I am not sure if I have the genes or not. When the geneticist did my genetic testing for EDS this year, I didn't think to ask for him to request the celiac genes so they didn't test for them, unfortunately.  I guess another expectation I had is  that if gluten was the issue, the gluten-free diet would make me feel better, and I'm 3 months in and that hasn't been the case. I am being very careful and reading every label because I didn't want to screw this up and have to do gluten-free for longer than necessary if I end up not having celiac. I'm literally checking everything, even tea and anything else prepacked like caramel dip. Honestly its making me anxious 😅
    • knitty kitty
      High DGP-A with normal IGA

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      High DGP-A with normal IGA

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      I was tested for celiac at the same time, so I wasn't taking naltrexone yet. I say that, because I don't. The endoscopy showed some mild inflammation but was inconclusive as to celiac disease. They took several biopsies and that's all that was shown. I was not given a Marsh score.
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