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Dh On Buttocks?

Mother of Jibril

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Mother of Jibril Enthusiast
Mother of Jibril
Posted

Since I was a kid, I've had some kind of rash on my buttocks... both sides. I remember my parents telling me "not to scratch" a lot, but the last few years I only notice when I have a blister that pops or it hurts when I'm sitting on a hard chair/bench. Could this be DH? Everything I've been reading says that DH is "intensely itchy"... this rash is just annoying. My parents used to tell me it was "sweat pimples" (??), but I suspect they both have gluten problems and don't really know what's normal. <_<

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ohsotired Enthusiast
ohsotired
Posted

I'm still not sure if what I have is DH or not, but I've done a lot of reading about it here, and from what I can tell, there are varying degrees of DH. Some people get the spots/bumps/blisters that don't itch at all. Others are extremely itchy but no spots. Others still have massive rash and extreme itching. I guess it's another one of those things that varies from person to person.

  • 2 weeks later...
ang1e0251 Contributor
ang1e0251
Posted

You know, there must be different kinds of rashes. I had 2 different rashes. You can have it biopsied. There is a certain way to do it. On a previous post they described it. On the home page look for the dermatitis herpetiformis category, it has lots of info & talks about the testing. It also has links to some pictures. That might be helpful.

Mother of Jibril Enthusiast
Mother of Jibril
Posted
  • Author

I have looked at the pictures... the only problem is that I can't really see the rash on my buttocks :lol: I'll read more about the biopsy procedure... I have an appointment with a dermatologist in December. Do you have any idea how long a biopsy might test positive after going gluten-free?

ang1e0251 Contributor
ang1e0251
Posted

If you go to the dermititis herpitiformis section, there is any article, DH Summary. It does not talk about how being gluten-free can aggect the outcome, but it does say exactly how the biopsy s/b done. I don't think you'd have the rash if your body didn't still have gluten in it. It did take weeks for mine to heal after I went gluten-free.

Anyone else have the answer?

  • 2 weeks later...
hawaiimama Apprentice
hawaiimama
Posted

I have that too. I had hughly positive blood work and minorly positive biopsy but I have the rash. I didn't clue in until after I had the biopsy. I still have it altough its slowly getting better. TMI, but I htought it was from feminine products.

  • 2 months later...
clydeshannon5 Rookie
clydeshannon5
Posted

not sure if you got any more info on this or not, i was just going thru some old posts. i have/had patches on my butt. not pleasant, but yes, i believe they can be on your buttocks. all my tests were negative because i was glutenfree and on prednisone. the genetic marker test from the university of chicago celiac center was a HUGE help. checkit out, they will even send you a home kit. it is a saliva swab.

hope that helps.

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Mother of Jibril Enthusiast
Mother of Jibril
Posted
  • Author
not sure if you got any more info on this or not, i was just going thru some old posts. i have/had patches on my butt. not pleasant, but yes, i believe they can be on your buttocks. all my tests were negative because i was glutenfree and on prednisone. the genetic marker test from the university of chicago celiac center was a HUGE help. checkit out, they will even send you a home kit. it is a saliva swab.

hope that helps.

I do have some info... sort of.

I had a biopsy for DH and it came back negative. The dermatologist suggested that my rash was "acute dermatitis," which is caused by inflammation somewhere else in the body (gluten and corn cause inflammation in my body, so I still think this is food related!) Anyway... this week I'm going to get a copy of the report. I want to read it for myself.

I did a genetic test through Enterolab... I have the DQ8 gene. I came to the conclusion that anyone with this gene should either go on a gluten-free diet or commit to regular testing for celiac disease. I already know that the gluten-free (dairy-free, corn-free) diet makes me feel better, so why not stick with it? I haven't felt this good since I was a teenager! I've been really, REALLY strict for a few weeks now and all the itching has gone away.

It's interesting to know that I'm not the only one with a rash on my buttocks :ph34r:

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