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Reading And Learning


Durntootinnoglutin

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Durntootinnoglutin Rookie

Hello people....

glad to have found this place.

i am self diagnosed for celiac disease, maybe i have a fool for a patient but i have had too many fools treating me in the past.

Apologies for sounding so negative, but my experiences in the field of health care have not been so positive.

Generaly my health has been good up to about 18 months ago when i slowly began to lose weight with short bouts of symptoms. The reason i am here is i noticed when trying to put weight on by diet, certain things triggered the symptoms. First i went dairy free, well, lactose free milk, and no other dairy products. Felt a little better. But still weight loss and bowel problems kicking up.

i think the thing that decided me was a growing repugnance to wheat. i have always loved bread, but it got to the point i could hardly stomache it while eating it...could not explain this aversion, and i felt full all the time.

So thought i'd try celiac free for awhile and see what happens. Have had varied luck with it and suspect i may be allergic to soy as well.

Am going to try the paleo diet for awhile. It seems healthy enough. In the meantime will be reading and learning here.

Tho the above is wordier, my main reason for being here is to express my appreciation for the people here who generously give of thier time to teach and share and help. This place is a heap of knowledge on the subject and i've learned a lot. Thank you.


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ShayFL Enthusiast

Welcome. :)

Also look into the SCD diet as it has helped MANY in here including me.

Make sure you are 100% gluten-free. No wheat, barley, rye or oats.

Make sure you do not use old scratched teflon pans, cutting boards, wooden spoons, etc. as they can harbor gluten and contaminate you.

Make sure all of your toiletries are gluten-free (toothpaste, lotions, anything that goes on your lips, etc.)

Soy may be a problem, but it may be that you are till getting small amounts of gluten without knowing it and cannot heal fully.

Wishing you well.

Durntootinnoglutin Rookie

Thanks for the response ShayFL, and the sharing of your knowledge.

Yes, this is a maze for now... learning diet and cooking all over again.

What is a SCD free diet? Everytime i've run across it on these threads it's been abbreviated Am guessing the S is Soy and the D is dairy, but what is the C? Will prolly slap my self in the forehead when i find out. :lol:

Re the other grains you mentioned, am learning to read lables on everything, and i do mean everything. Emphesis is because i cannot believe the things i am finding wheat and wheat products in.

The latest was imitation crab meat. i love it and thought it surely must be safe for me, reading the label was a shock. Gave the whole bulk package to my friend, hope my lip didn't tremble when i did. :(

ShayFL Enthusiast

It's the Specific Carbohydrate Diet. :)

www.pecanbread.com

Durntootinnoglutin Rookie

ShayFL

So it is NOT soy c? Dairy free diet! :)

Thank you so very much i have it bookmarked. There is quite a bit of information to cover.

For ages i have said modern people do not eat enough tree nuts, tho lately i've had to leave them out of my diet.

After reading the info i will probably be back with questions.

Thank you. :wub:

terreemc Newbie

I agree, the learning curve for this is rather steep. I try to learn a little something each day. Af first I was overwhelmed!

Also it seems that, as you heal you will be more sensitive to gluten and perhaps other foods. I started out with just getting rid of wheat and then found all sorts of other gluten in my kitchen and that I could not digest soy very well and then out went tomatoes and peppers..... I am still learning just how careful one needs to be. But in spite of all the mistakes, I am feeling better. I hope you will also.

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    • trents
      I might suggest you consider buckwheat groats. https://www.amazon.com/Anthonys-Organic-Hulled-Buckwheat-Groats/dp/B0D15QDVW7/ref=sr_1_4_pp?crid=GOFG11A8ZUMU&dib=eyJ2IjoiMSJ9.bk-hCrXgLpHqKS8QJnfKJLKbKzm2BS9tIFv3P9HjJ5swL1-02C3V819UZ845_kAwnxTUM8Qa69hKl0DfHAucO827k_rh7ZclIOPtAA9KjvEEYtaeUV06FJQyCoi5dwcfXRt8dx3cJ6ctEn2VIPaaFd0nOye2TkASgSRtdtKgvXEEXknFVYURBjXen1Nc7EtAlJyJbU8EhB89ElCGFPRavEQkTFHv9V2Zh1EMAPRno7UajBpLCQ-1JfC5jKUyzfgsf7jN5L6yfZSgjhnwEbg6KKwWrKeghga8W_CAhEEw9N0.eDBrhYWsjgEFud6ZE03iun0-AEaGfNS1q4ILLjZz7Fs&dib_tag=se&keywords=buckwheat%2Bgroats&qid=1769980587&s=grocery&sprefix=buchwheat%2Bgroats%2Cgrocery%2C249&sr=1-4&th=1 Takes about 10 minutes to cook. Incidentally, I don't like quinoa either. Reminds me and smells to me like wet grass seed. When its not washed before cooking it makes me ill because of saponins in the seed coat. Yes, it can be difficult to get much dietary calcium without dairy. But in many cases, it's not the amount of calcium in the diet that is the problem but the poor uptake of it. And too much calcium supplementation can interfere with the absorption of vitamins and minerals in general because it raises gut pH.
    • Scott Adams
      What you’re describing really does not read like typical IBS-D. The dramatic, rapid normalization of stool frequency and form after removing wheat, along with improved tolerance of legumes and plant foods, is a classic pattern seen in gluten-driven disease rather than functional IBS. IBS usually worsens with fiber and beans, not improves. The fact that you carry HLA-DQ2.2 means celiac disease is absolutely possible, even if it’s less common than DQ2.5, and many people with DQ2.2 present later and are under-diagnosed. Your hesitation to reintroduce gluten is completely understandable — quality of life matters — and many people in your position choose to remain strictly gluten-free and treat it as medically necessary even without formal biopsy confirmation. If and when you’re ready, a physician can help you weigh options like limited gluten challenge, serology history, or documentation as “probable celiac.” What’s clear is that this wasn’t just random IBS — you identified the trigger, and your body has been very consistent in its response.
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      Here are some results from a search: Top Liquid Multivitamin Picks for Celiac Needs MaryRuth's Liquid Morning Multivitamin Essentials+ – Excellent daily choice with a broad vitamin/mineral profile, easy to absorb, gluten-free, vegan, and great overall value. MaryRuth's Liquid Morning Multivitamin – Classic, well-reviewed gluten-free liquid multivitamin with essential nutrients in a readily absorbable form. MaryRuth's Morning Multivitamin w/ Hair Growth – Adds beauty-supporting ingredients (biotin, B vitamins), also gluten-free and easy to take. New Chapter Liquid Multivitamin and New Chapter Liquid Multivitamin Orange Mango – Fermented liquid form with extra nutrients and good tolerability if you prefer a whole-food-based formula. Nature's Plus Source Of Life Gold Liquid – Premium option with a broad spectrum of vitamins and plant-based nutrients. Floradix Epresat Adult Liquid Multivitamin – Highly rated gluten-free German-made liquid, good choice if taste and natural ingredients matter. NOW Foods Liquid Multi Tropical Orange – Budget-friendly liquid multivitamin with solid nutrient coverage.
    • catnapt
      oh that's interesting... it's hard to say for sure but it has *seemed* like oats might be causing me some vague issues in the past few months. It's odd that I never really connect specific symptoms to foods, it's more of an all over feeling of unwellness after  eating them.  If it happens a few times after eating the same foods- I cut back or avoid them. for this reason I avoid dairy and eggs.  So far this has worked well for me.  oh, I have some of Bob's Red Mill Mighty Tasty Hot cereal and I love it! it's hard to find but I will be looking for more.  for the next few weeks I'm going to be concentrating on whole fresh fruits and veggies and beans and nuts and seeds. I'll have to find out if grains are truly necessary in our diet. I buy brown rice pasta but only eat that maybe once a month at most. Never liked quinoa. And all the other exotic sounding grains seem to be time consuming to prepare. Something to look at later. I love beans and to me they provide the heft and calories that make me feel full for a lot longer than a big bowl of broccoli or other veggies. I can't even tolerate the plant milks right now.  I have reached out to the endo for guidance regarding calcium intake - she wants me to consume 1000mgs from food daily and I'm not able to get to more than 600mgs right now.  not supposed to use a supplement until after my next round of testing for hyperparathyroidism.   thanks again- you seem to know quite a bit about celiac.  
    • trents
      Welcome to the celiac.com community, @SilkieFairy! You could also have NCGS (Non Celiac Gluten Sensitivity) as opposed to celiac disease. They share many of the same symptoms, especially the GI ones. There is no test for NCGS. Celiac disease must first be ruled out.
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