Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Questions About Symptoms

tazzsldy

Recommended Posts

tazzsldy Newbie
tazzsldy
Posted

Hubby was recently diagnosed with wheat intolerance we think. His doctor told him to stay away from wheat/gluten products and see how his symptoms change. He has been doing really well with it for about 2 months now. There isn't anyone around us that has to deal with this as well. So we both have many questions.

If by chance he consumes any wheat/gluten several hours after the fact his stomach starts "talking" or gurgling. Then he starts burping a fowl smell and taste. I would compare it to a cross between rotten eggs and dog poo. Shortly after the burping starts, the gas starts. And the gas smell is god awful. About an hour after this, the cramping in his stomach starts. Sometimes so bad it brings him to his knees. Then soon after the bathroom trips begin. It starts out solid at first and then gets to be like a faucet. It eventually gets so bad he can barely move.

This lasts anywhere from 2-4 days. It subsides and then he is fine for a few days. Once the taste in his mouth goes away, the gas and diarrhea goes away too.

If anyone can relate to this or has some of the same problems please let us know. We would really like to know he is not the only one out there.

Thanks

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


ShayFL Enthusiast
ShayFL
Posted

He is MOST DEFINITELY NOT ALONE!!

Was he tested for Celiac? Or just assumed gluten intolerant? The longer he is gluten-free the less likely subsequent tests will show Celiac. Just so you know. If he wants a Dx, he will need to eat gluten and get the proper tests.

The results are the same either way....100% gluten-free diet for life.

henny Explorer
henny
Posted

yep, those symptoms sound exactly like my life for the 10 years leading up to going Gluten Free! I don't normally burp though...it's all downstairs for me LOL!

I had that plus chronic headaches (also went away on the diet)

So is he on the diet now? There's lots of advice on this site on how to find hidden sources of gluten in your diet and household.

welcome to the site, and you are definitely not alone!

tazzsldy Newbie
tazzsldy
Posted
  • Author

Thanks for the information, do you also have chronic acid reflux? We believe his doctor did a celiac panel blood test. Once he quit eating it, all his symptoms disappeared unless he by chance finds some on accident.

It is an ongoing battle. We are both learning from experience and trial and error.

henny Explorer
henny
Posted
Thanks for the information, do you also have chronic acid reflux? We believe his doctor did a celiac panel blood test. Once he quit eating it, all his symptoms disappeared unless he by chance finds some on accident.

It is an ongoing battle. We are both learning from experience and trial and error.

I personally don't have reflux, but one thing you will learn quickly about these disorders is that they affect everyone a little differently!

Trial and error goes for everybody - what works for one person may not for another.

Keep at it, and it's so awesome that he's feeling better!

Lisa Mentor
Lisa
Posted
Thanks for the information, do you also have chronic acid reflux? We believe his doctor did a celiac panel blood test. Once he quit eating it, all his symptoms disappeared unless he by chance finds some on accident.

It is an ongoing battle. We are both learning from experience and trial and error.

Hi tazz,

Get a copy of the blood work that they ran and post it here. We can interpret his results. Many of us have found that our doctors are not as knowledgeable as we would like regarding Celiac and it's associated ills.

Reflux is very common with Celiac Disease and gluten intolerance. Once he is gluten free for some time, his reflex should subside.

But a word of caution. Gluten can be very tricky and hide it in the strangest places. Please make sure that your has a dedicated toaster for his gluten free bread. Check your scratches pots and pans, wooden cutting boards, wooden mixing spoons, lotions, shampoo, meds, vitamines and YOUR lipstick.

If indeed, he does have Celiac or a gluten intolerance the only cure is a total gluten free lifestyle.

Lots of good people here to help with your questions. Feel free.

DanaDee Newbie
DanaDee
Posted
Hi tazz,

Get a copy of the blood work that they ran and post it here. We can interpret his results. Many of us have found that our doctors are not as knowledgeable as we would like regarding Celiac and it's associated ills.

Reflux is very common with Celiac Disease and gluten intolerance. Once he is gluten free for some time, his reflex should subside.

But a word of caution. Gluten can be very tricky and hide it in the strangest places. Please make sure that your has a dedicated toaster for his gluten free bread. Check your scratches pots and pans, wooden cutting boards, wooden mixing spoons, lotions, shampoo, meds, vitamines and YOUR lipstick.

If indeed, he does have Celiac or a gluten intolerance the only cure is a total gluten free lifestyle.

Lots of good people here to help with your questions. Feel free.

Check everything everywhere. We just realized our Suave hairspray has wheat and wheat starch. That stuff goes airborn, not good. I threw it out. I wasn't even THINKING about hairspray. And spray starch, and bubble bath. It's in everything. Those wheat farmers really marketed their product well........

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Mom2Twins Rookie
Mom2Twins
Posted

Wow - hairspray? Can we really react to that? I hadn't even thought about non-food items. I'm having a hard enough time convincing my hubby that yes, I may have reacted to Thanksgiving dinner because he cooked with brown sugar that once had a slice of bread in it (for freshness).

I have a bit of OCD, so I'm really trying to be careful with gluten but not get crazy with it. Does everyone avoid gluten in non food items too?

ShayFL Enthusiast
ShayFL
Posted

I just avoid the obvious things: anything that goes on my lips or face or hands (including chap stick, lotion and shampoo. I dont worry about anything else really. I give the hairspray a cursory glance to make sure it doesnt say WHEAT anywhere. Usually it is just a bunch of chemicals anyway.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,827
    • Most Online (within 30 mins)
      7,748
    Rebecca Hurst
    Newest Member
    Rebecca Hurst
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Colleen H
      Stomach burning and neuropathy

      By Colleen H · Posted

      Hello  I'm not sure what to think . Seems no matter what I do I get sick. I had some yogurt with only 2 grams of sugar and is labeled gluten free ...the strawberry version seemed to really set me off My jaw is burning as well as my stomach and my feet.  Horrible pain..plus acid reflux and nausea... sensitivity to touch pain. ..yikes !! I don't know if it's from the lactose in the yogurt or if I'm getting an ulcer  This condition can make you question yourself quite a bit.  Then if you are not sure the anxiety comes 😞 Does any of these symptoms sound familiar to anyone? The neuropathy is quite intense.  What do you eat or drink after this happens  Open to suggestions  Thank you 
    • sleuth
      Nicotine Gum For Gluten Symptoms.. Am I Crazy?

      By sleuth · Posted

      Of course my son is on a 100% gluten free diet.  I wish his symptoms were not debilitating as there are right now.  He cannot work, even when a miniscule of cross contamination occurs.  It's not just GI distress, but intense fatigue, brain fog, depression, anxiety, insomnia, etc.  It's literally neurological inflammation.  Not to be taken lightly here.  We have sought out many other possible ways to cope during this window of time (8 months!!!!)  without success.   AN-PEP does not help and seems like studies on this are not well researched.  So, we are trying this out because research shows some promising results.  And, all participants showed no cravings afterwards, no signs of addiction.  The patch is different than the oral route such as smoking, vaping, gum, pouch, etc. 
    • Scott Adams
      Nicotine Gum For Gluten Symptoms.. Am I Crazy?

      By Scott Adams · Posted

      Have you tried AN-PEP enzymes, for example, GlutenX (who is a sponsor here)? A lot of research has shown that it can break down small amounts of gluten in the stomach, before it reaches the intestines. It might be a better approach than risking nicotine addiction, and the questionable research around this. I also hope that he’s trying to be 100% Gluten-Free.
    • Me,Sue
      Nausea

      By Me,Sue · Posted

      Hi all  I was diagnosed Coeliac a few years ago and follow a gluten free diet. The list of foods that I can eat without a problem grows shorter on a weekly basis. [I also have diabetes and asthma also].  BUT the reason I am posting this is because I seem to struggle with nausea quite a lot, which is really quite debilitating, and I was wondering if others suffer from nausea, even if following a gluten free diet. 
    • sleuth
      Nicotine Gum For Gluten Symptoms.. Am I Crazy?

      By sleuth · Posted

      @fatjacksonthecat I have been doing some digging about the topic of nicotine and celiac.  I came across many studies that showed that the nicotine patch helped many with long covid and chronic fatigue syndrome.  I have a son who was diagnosed with celiac and his symptoms are severe when he is glutened.  He shows a lot of neurological inflammation and suffered with fatigue, brain fog, depression, anxiety and insomnia. There have been studies revealing that nicotine smoke actually masking celiac symptoms.  I also read that microdosing with a nictoine patch prevents one from addiction.  We are currently trying this out and so far it has lifted the brain fog and helped with anxiety and mood.  One of the studies I have read showed that it's not so much the dose, but the length of time a person is on the patch that showed improvements.  Many showed significant improvement as early as week 3 and continued through week 12.  We are taking 3 day breaks in between to make sure we don't down regulate the nicotine receptors.   How have things been for you?  Are you still chewing nicotine gum?  Perhaps, try the patch?  And how long did it take to ease up on your symptoms when glutened?
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.