Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Osteoporosis Is Reversing!

mamasaidso

By mamasaidso
in Related Issues & Disorders

Recommended Posts

mamasaidso Apprentice
mamasaidso
Posted

I was really fretting over getting results of recent Dexa scan. Thought for sure it would be bad as last two showed a steady decline in bone mass. But, after being gluten-free since January and being faithful about taking calcium and starting weight-bearing exercise my test showed no osteoporosis in spine. It was completely normal and the severe osteoporosis in hips has been reduced to osteopenia and made a big improvement. I am so relieved about this. For a time I took Actonel and saw no improvement. My doctor was steering me toward the treatment with daily injections for two years. I wanted to give myself a chance to heal and it seems to be working. I have researched like crazy these last eight months and hound my doctors about vitamin levels. Finally have a handle on what I need and taking steps to improve my health. Have been on cloud nine all week. More determined than ever to maintain this and keep working on the osteopenia.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


ShayFL Enthusiast
ShayFL
Posted

Awesome!! :) Awesome!! :)

It gives me hope. I have not had a DEXA scan, but early last year at the dentist he said he saw bone loss of about 20% in my jaw. I am only 39, so this scared me. This was before going gluten-free. My teeth were a little loose in the lower front after I bit down on a fork accidentally. They werent tightening very well, but since gluten-free they are snug as a bug in a rug. I too am taking calcium PLUS all of the 17 necessary companion nutrients to Calcium and upped my exercise. I am due to go back to he dentist next month, so I am hopeful he sees improvement. :)

ArtGirl Enthusiast
ArtGirl
Posted
Awesome!! :) Awesome!! :)

DITTO!

Good for you for taking your health into your own hands. The natural way is the best!

tarnalberry Community Regular
tarnalberry
Posted

congratulations!!

Fiddle-Faddle Community Regular
Fiddle-Faddle
Posted

Way to go!!!

I'm curious--did your doctor's jaw hit the floor? What did he (or she) SAY????

This is the sort of thing that can--and should--turn the whole pharmaceutical scam industry on its back, if doctors and the media would only REPORT these kinds of results!

mamasaidso Apprentice
mamasaidso
Posted
  • Author

I received my Dexa results via a PDF file. Didn't even have the experience of watching the look on her face. As far as she is concerned, she probably thinks the results are from medication from a prescription I never filled for Fosamax D. I thought about emailing her about it, but then thought, Nah. I'm not even sure she reviewed it or compared it to previous scans. With an office full of "assistants" and communications through "patient portals" I pretty much give up on the one to one experience with her. Kind've gives primary physician a new meaning. <_<

spunky Contributor
spunky
Posted

Congratulations on your good bones!

I've read that anyone with osteoporosis, even in the absence of other symptoms, should consider being tested for celiac.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Fiddle-Faddle Community Regular
Fiddle-Faddle
Posted
I received my Dexa results via a PDF file. Didn't even have the experience of watching the look on her face. As far as she is concerned, she probably thinks the results are from medication from a prescription I never filled for Fosamax D. I thought about emailing her about it, but then thought, Nah. I'm not even sure she reviewed it or compared it to previous scans. With an office full of "assistants" and communications through "patient portals" I pretty much give up on the one to one experience with her. Kind've gives primary physician a new meaning. <_<

You probably don't have a heckuva lot of spare time, but if you do, you might consider sending her a REGISTERED letter, telling her that

a) you never filled the Fosamax scrip

B) the results of both the previous scan and the latest one showing significant improvement

c) the fact that the only things that changed were diet and exercise, NOT meds

d) your belief that your osteoporosis was due to untreated celiac, and that you recommend that she test other patients with osteoporosis for celiac or gluten intolerance.

e) one or two studies from the internet showing the link

This puts a bit of pressure on her, you see. Since the letter is registered, it is proof that she received it, and that she now knows of the connection between celiac and osteoporosis.

If a future patient wants to sue her for not ruling out celiac, she won't be able to claim that she didn't know of the link, or that none of her other patients showed proof of recovery on a gluten-free diet.

Don't settle for that abysmal lack of communication! Leave the communications ball in her court--but do so with a registered letter, so that she knows just how important this is.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,265
    • Most Online (within 30 mins)
      7,748
    V Arnold
    Newest Member
    V Arnold
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • RMJ
      Kan-101

      By RMJ · Posted

      It is more likely code for “we think there really was a good response to the treatment, but it was small or in a small percent of subjects so it would take a large clinical trial to try to prove it.”
    • Dana0207
      Celiac symptoms

      By Dana0207 · Posted

      Thank you so much for your replies. Luckily the rash went away when I completely swore off gluten. It took several months but I have not had a flare in months. So a biopsy is no longer possible. The itch was terrible and apart from bleaching my skin the steroid lotions and potions did nothing. The Gliadin is for accidents and shall be a part of my travel kit from now on. This past exposure has made a me a little leery about eating anything that was not cooked in my kitchen or a dedicated gluten-free restaurant. As much as I used to love baked goods, I am cured and have become quite the gluten free baker to the point that friends and family forget that my cakes/cookies/and bread are not "real". I guess I will have to wait for the new blood test to come out to get confirmation but I have a suspicion that the rash was dermatitis herpetiformis.
    • Jmartes71
      Nateral remedies

      By Jmartes71 · Posted

      Hello, I just wanted to share with the frustration of skin issues and seeing dermatologist and medications not working for years, I did my own healing experiment. As of last week I have been taking a drop internally under the tongue of Vetiver and putting on topically on sores Yellow/Pom.I am seeing a extreme difference at a rapid time.Im also noticing my nails a little harder. Ive always been into natural properties because I feel its safer for the body.I know short time, but really seeing a difference. I also feel the the trapped gases that causes bloating helps break down as well.Curious if any body else can benefit from and has tried. Products is made by Doterra by Dr Hill
    • Scott Adams
      Is Caputo gluten free flour really free of gluten?

      By Scott Adams · Posted

      We have a category of articles on this topic if you really want to dive into it: https://www.celiac.com/celiac-disease/miscellaneous-information-on-celiac-disease/gluten-free-diet-celiac-disease-amp-codex-alimentarius-wheat-starch/
    • Scott Adams
      Celiac symptoms

      By Scott Adams · Posted

      I agree with @trents, and the rash you described, especially its location and resistance to steroids, sounds highly characteristic of dermatitis herpetiformis, which is the skin manifestation of celiac disease. The severe and prolonged reaction you're describing five days after a small exposure is, while extreme, not unheard of for those with a high sensitivity; the systemic inflammatory response can absolutely last for several days or even weeks, explaining why you still don't feel right. Your plan to avoid a formal gluten challenge is completely understandable given the severity of your reactions, and many choose the same path for their well-being. While experiences with GliadinX (they are a sponsor here) are mixed, some people do report a reduction in the severity of their symptoms when taken with accidental gluten, though it is crucial to remember it is not a cure or a license to eat gluten and its effectiveness can vary from person to person. For now, the absolute best advice is to continue being hyper-vigilant about cross-contamination—buffets are notoriously high-risk, even with good intentions. Connecting with a gastroenterologist and a dermatologist who specialize in celiac disease is essential for navigating diagnosis and management moving forward. Wishing you a swift recovery from this last exposure. If you have DH you will likely also want to avoid iodine, which is common in seafoods and dairy products, as it can exacerbate symptoms in some people. This article may also be helpful as it offers various ways to relieve the itch:  
×
×
  • Create New...