Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Tests For Food Intolerance

roxnhead

By roxnhead
in Food Intolerance & Leaky Gut

Recommended Posts

roxnhead Rookie
roxnhead
Posted

HELLO, I'VE NOTICED THAT QUITE A FEW OF YOU HAVE CASEIN INTOLERANCE AS WELL! I'VE BEEN TRYING MY BEST TO BE GLUTEN-FREE, BUT STILL FEEL---STRANGE. I BELEIVE THAT MY PROBLEM MIGHT BE CASEIN. I'VE HAD ALL ALLERGY TESTING DONE-ALL NEGATIVE. HOW DOES ONE GET TESTED FOR FOOD INTOLERANCE-SIMPLY ELIMINATION DIET---OR? ALSO-MY SYMPTOMS ARE MORE NUER0- EYE PAIN,HEADACHE,BRAIN-FOG, FEET PARESTHIAS,FATIGUE-OF COURSE DIARRHEA-BLOATING NO STOMACH PAIN! SHOULD I GO TO AN ALLERGIST-G.I.-INTERNIST-ALTERNATIVE? THANX SO MUCH!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


ShayFL Enthusiast
ShayFL
Posted

Welcome to the board!

I would recommend you going to a Neurologist for a full work up and evaluation.

You can always try a casein free diet to see if your symptoms improve. I will mention that "trying" to be gluten-free does not work. You really have to make sure that you are 100% gluten-free for awhile to see if it gets rid of your symptoms. I wouldnt eat out for a few months and once better only at restaurants with a gluten-free menu. Check all cosmetics, hair care etc. for gluten. No kissing someone who just ate gluten. No old Teflon pans, cutting boards, toasters in the kitchen, etc.

Many who do not tolerate gluten also do not tolerate dairy. So cutting both is a smart bet.

Hope you feel better soon!

Mother of Jibril Enthusiast
Mother of Jibril
Posted

I went casein-free in April for my son's benefit. I was having a lot of abdominal pain, gas and bloating and I thought the new diet might help me too (it didn't). Going off gluten made a HUGE improvement, but I was still having a little cramping, bloating and gas. Two weeks ago I stopped eating corn to see if it would get rid of my son's eczema (which it did)... and I was surprised to find that it got rid of my remaining intestinal problems! :lol:

Both of these foods are forbidden on the SCD diet... I started reading "Breaking the Vicious Cycle" and it makes a lot of sense to me. You could use that book as a guide.

One other thought... I wasn't as careful as I needed to be in the beginning with cross-contamination. I'm still learning, but I think I'm getting better because now I really notice when I have a bit of gluten (the constipation comes back along with a headache and general "fuzzy" feeling). I stopped using the toaster and checked my medications for gluten.

AliB Enthusiast
AliB
Posted

I would vouch for that. So many find that just dropping gluten only answers part of their problems. Those of us who have issues with other foods may well be suffering from gut dysbiosis and bacterial overgrowth. That's where the Specific Carbohydrate Diet works as it cuts out the foods that feed the little beasties and helps the body heal.

Check out our SCD thread on this section, plus the 'breaking the vicious cycle' and 'Pecanbread' websites for more info.

roxnhead Rookie
roxnhead
Posted
  • Author
Welcome to the board!

I would recommend you going to a Neurologist for a full work up and evaluation.

You can always try a casein free diet to see if your symptoms improve. I will mention that "trying" to be gluten-free does not work. You really have to make sure that you are 100% gluten-free for awhile to see if it gets rid of your symptoms. I wouldnt eat out for a few months and once better only at restaurants with a gluten-free menu. Check all cosmetics, hair care etc. for gluten. No kissing someone who just ate gluten. No old Teflon pans, cutting boards, toasters in the kitchen, etc.

Many who do not tolerate gluten also do not tolerate dairy. So cutting both is a smart bet.

Hope you feel better soon!

roxnhead Rookie
roxnhead
Posted
  • Author

I am feeling much better after going both gluten-casein free! I will be going to a new Dr. soon that is an alternative/integretive/complimentary I'm hoping that he will advise me on the nuero. I've been to one already quite dissapointing! Must admit it has been a challenge to go casein-free. My symptoms that were recurring that I thought were gluten caused -were actually caused by casein. Caramel flavoring and coloring is the one ingredient that appears quite often! Thanks so much for the support!

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,854
    • Most Online (within 30 mins)
      7,748
    TDeb
    Newest Member
    TDeb
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Me,Sue
      Knowing what to do when feeling unwell.

      By Me,Sue · Posted

      I was diagnosed with coeliac disease a couple of years ago [ish]. I love my food and a variety of food, so it's been hard, as it is with everyone. I try and ensure everything I eat doesn't contain gluten, but occasionally I think something must have got through that has gluten in. Mainly I know because I have to dash to the loo, but recently I have noticed that I feel nauseous after possibly being glutened. I think the thing that I have got better at is knowing what to do when I feel wiped out after a gluten 'episode'. I drink loads of water, and have just started drinking peppermint tea. I also have rehydration powders to drink. I don't feel like eating much, but eventually feel like I need to eat. Gluten free flapjacks, or gluten free cereal, or a small gluten free kids meal are my go to. I am retired, so luckily I can rest, sometimes even going to bed when nothing else works. So I feel that I am getting better at knowing how to try and get back on track. I am also trying to stick to a simpler menu and eat mostly at home so that I can be more confident about what I am eating. THANKS TO THOSE WHO REPLIED ABOUT THE NAUSEA .
    • Francis M
      The Happy Tart review

      By Francis M · Posted

      Thanks. Since the back and forth and promises of review and general stalling went on for more than six months, the credit company will no longer investigate. They have a cutoff of maybe six months.
    • Scott Adams
      The Happy Tart review

      By Scott Adams · Posted

      Is this the same restaurant? https://www.facebook.com/TheHappyTartFallsChurch/ Is it too late to take this up with your credit card company? Normally you have a few months to do a chargeback with them. It seems very odd that they are taking this approach with someone who is likely to be a regular customer--not a good business-minded way of handling things!
    • Scott Adams
      Stomach burning and neuropathy

      By Scott Adams · Posted

      Many people with celiac disease, especially those who are in the 0-2 year range of their recovery, have additional food intolerance issues which could be temporary. To figure this out you may need to keep a food diary and do an elimination diet over a few months. Some common food intolerance issues are dairy/casein, eggs, corn, oats, and soy. The good news is that after your gut heals (for most people who are 100% gluten-free this will take several months to two years) you may be able to slowly add some these items back into your diet after the damaged villi heal. This article may be helpful: The most common nutrient deficiencies associated with celiac disease that may lead to testing for the condition include iron, vitamin D, folate (vitamin B9), vitamin B12, calcium, zinc, and magnesium.  Unfortunately many doctors, including my own doctor at the time, don't do extensive follow up testing for a broad range of nutrient deficiencies, nor recommend that those just diagnosed with celiac disease take a broad spectrum vitamin/mineral supplement, which would greatly benefit most, if not all, newly diagnosed celiacs. Because of this it took me decades to overcome a few long-standing issues I had that were associated with gluten ataxia, for example numbness and tingling in my feet, and muscle knots--especially in my shoulders an neck. Only long term extensive supplementation has helped me to resolve these issues.        
    • Scott Adams
      Nausea

      By Scott Adams · Posted

      Welcome to the forum. Is the nausea associated with eating certain foods, or anything else in particular?  Many people with celiac disease, especially those who are in the 0-2 year range of their recovery, have additional food intolerance issues which could be temporary. To figure this out you may need to keep a food diary and do an elimination diet over a few months. Some common food intolerance issues are dairy/casein, eggs, corn, oats, and soy. The good news is that after your gut heals (for most people who are 100% gluten-free this will take several months to two years) you may be able to slowly add some these items back into your diet after the damaged villi heal. This article may be helpful:    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.