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Another Pill Possibility


celiac3270

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celiac3270 Collaborator

Another possibilitiy for that miracle pill--for celiac and diabetes:

Open Original Shared Link


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Carriefaith Enthusiast

2006! wow that's soon

Thanks for the link :)

MySuicidalTurtle Enthusiast

""The only real reservation is that it's only been tested in rats," Dr Anderson said. "Rats don't suffer coeliac disease. But it's a major development and it's important work.""

I was wondering that.

celiac3270 Collaborator

I know....so soon if it actually worked. Two sad things, though:

  • We'd be relying on a pill when we could feel fine through dietary restriction and no drugs.
  • Boards such as this one, though not becoming obsolete, would be less popular, since people could just pop pills....and we wouldn't make all the friends that we have on here :)

Carriefaith Enthusiast

When I really think about it, I really can't see a pill coming out that soon. Maybe 8-10 years I mean if the test animals (rats) don't get celiac disease then how can it work on humans? I think there is going to be a lot of trial and error. I'm sure the researchers are doing a good job but I am skeptical.

red345 Apprentice

Thanks for the link, buddy. Great work, and that's exciting news, isn't it.

The interesting part of this is that if I've learned anything at all, it has been to recognize that the concepts promoted here are probably the best type of suggestions that you could ever act on for the benefits of your own health. And for whatever reason, I believe this only the marks the beginning.

Mr. Adams and all of excellent specialists that have contributed to this website are only beginning to unlock the door to something I believe may just be the main mystery behind just about everything having to do with our health.

So whether or not a cure is ever found, or that magic pill is invented, etc, it would certainly come as wonderful news for everyone here. To take away those major concerns is something that everybody would like to see happen, afterall.

However, I also tend to believe this diet is something everybody should consider if they want to remain healthy in the long run, I really do. Infection or not, DQ2 gene or not, it would definitely seem to me that consuming these types of foods would be better for you than loading up on those crispey cremes like everybody else does, you know?

We're always going to consume sugar, you can't get away from that. But the key is to approach that with some moderation, and I think that your odds are better to keep yourself in check on that end if you stick to many of the concepts involved with this diet. In the long run, I believe that all of you will come out of this with better health than the rest of society, I really do.

I also think we're only getting into the heart of it with this. That said, this place is only going to get more popular, and it'll be that way for a very long time to come. If there is any medical condition that explains for more of the unsolved mysteries that we find today, it would appear that it all starts right here, and that is why all of you that stop by celiac.com should write down the website and pass it onto as many people as you can.

Whether or not I'm right about any of my personal beliefs, I don't know that answer. But what I do know is that one way or the other, it all seems to start right here. Let me just say that if Adams was offering IPO's into his website, I'd buy them all up overnight~. The effort he has made to bring attention to this disease has really come as a Blessing to so many. He, along with the wonderful specialists that have contributed to this site, have done a lot more for people than a hospital full of other doctors could ever do, that much is for sure.

Happy to see that you're coming along well after surgery, buddy. I bet mom's breathing some sighs of relief that her little pal is gonna be a lot better very soon, isn't she. Take care.

tarnalberry Community Regular

I saw this take on it on LJ; seems people have started touting this as a cure for celiac and diabetes after a few weeks of the articles circulating, and it seems like we've got nothing than a game of "telephone" gone wrong.

Here's the original study abstract with reference to diabetes: Open Original Shared Link and here is the original abstract discovering its role in celiac: Open Original Shared Link and here is the press release from the work Dr. Fasano's doneOpen Original Shared Link

They've tested it in rats for trying to prevent T1 diabetes. The immune reaction of celiac disease occurs _in_ the intestines, so mediating a chemical that prevents things from getting _outside_ the intestines could help deal with some things, but it's not dealing with the full set of chemical reactions that cause the damage.

I'm not saying that this isn't good news, I just don't want people to get their hopes up that they'll definitely be eating bagels again in four or five years.


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MySuicidalTurtle Enthusiast

I was thining, what about other reactions?

I know reac to gluten touching my kin for long periods of time and sometimes get rashes. How is this pill going to stop that?

I know I will never knowingly eat gluten even with a pill.

plantime Contributor

I'm not seeing where this will cure celiac. I do see where it will cure many food allergies, the ones that manifest in symptoms other than anaphlylaxia. For example, it could allow me to eat eggs without getting the horrific migraines. But I do not see where stopping the gut permeability problem will allow my body to digest gluten. The gluten will remain undigested, my body will continue to attack it, and my small intestine will be wiped out. I will still have celiac.

jknnej Collaborator

Good luck finding humans with celiac disease to test this pill! LOL

No one would eat gluten on purpose, not even for the hope of a cure..too bad.

Red is right, anyway; we are MUCH healthier.

Since I stopped eating out (because I'm afraid of cross contamination) I have energy again like I haven't in years. And no tummy aches.

I don't ever want to go back. Yes, I miss those foods horribly but the trade off is how I feel. Everytime I think of a Jack and the Box Ultimate Cheeseburger I just think of the horrible tummy ache I get after eating it! 5 minutes of pleasure just isn't worth a week of pain!

celiac3270 Collaborator

I agree--there's no way I would intentionally eat gluten at this point--even for the sake of other celiacs who may be hoping for a cure.

I'm skeptical--we've heard things like this in years past that never ended up working. Besides which, we're better off not eating all the food we were before.

Additionally, Dr. Green, in a radio segment awhile ago, made some comment how he estimates that about a decade from now there will be a pill that will reduce/ameliorate the reactions celiacs have to gluten accidents--he didn't seem to think a cure would be coming anytime soon.

I agree also in that I wouldn't want to go back to eating gluten, either. Though I think there's no way we'd convince future celiacs who would just want their bagles back and not realize how much healthier this is.

ianm Apprentice

I know a few diabetics who would rather pump themselves full of insulin than change their eating and lifestyle habits. For us celiac disease'ers the only solution is to stop eating gluten and live healthier lifestyles. Even if a pill was available I prefer to live the lifestyle I am living know. A pill would be good for those that are extra sensitive to gluten and have serious reactions to it. Something to keep the reaction from being as bad as it normally would be when accidentally glutened. Being able to take a pill so I can eat junk food and not exercise just isn't the right way to go.

Ianm

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    • Rogol72
      Hey @Butch68, I also have dermatitis herpetiformis but don't suffer from it anymore. I used to drink Guinness too but I drink Cider now when out on social occasions. I assume you are in Ireland or the UK. If it's any good to you ... 9 White Deer based in Cork brew a range of gluten-free products including a gluten-free Stout. I'm not sure if they are certified though. https://www.9whitedeer.ie/ I haven't come across any certified gluten-free stouts this side of the pond.
    • Scott Adams
      This is a very common question, and the most important thing to know is that no, Guinness is not considered safe for individuals with coeliac disease. While it's fascinating to hear anecdotes from other coeliacs who can drink it without immediate issues, this is a risky exception rather than the rule. The core issue is that Guinness is brewed from barley, which contains gluten, and the standard brewing process does not remove the gluten protein to a level safe for coeliacs (below 20ppm). For someone like you who experiences dermatitis herpetiformis, the reaction is particularly significant. DH is triggered by gluten ingestion, even without immediate gastrointestinal symptoms. So, while you may not feel an instant stomach upset, drinking a gluten-containing beer like Guinness could very well provoke a flare-up of your skin condition days later. It would be a gamble with a potentially uncomfortable and long-lasting consequence. Fortunately, there are excellent, certified gluten-free stouts available now that can provide a safe and satisfying alternative without the risk.
    • MogwaiStripe
      Interestingly, this thought occurred to me last night. I did find that there are studies investigating whether vitamin D deficiency can actually trigger celiac disease.  Source: National Institutes of Health https://pmc.ncbi.nlm.nih.gov/articles/PMC7231074/ 
    • Butch68
      Before being diagnosed coeliac I used to love Guinness. Being made from barley it should be something a coeliac shouldn’t drink. But taking to another coeliac and they can drink it with no ill effects and have heard of others who can drink it too.  is this everyone’s experience?  Can I drink it?  I get dermatitis herpetiformis and don’t get instant reactions to gluten so can’t try it to see for myself. 
    • trents
      NCGS does not cause damage to the small bowel villi so, if indeed you were not skimping on gluten when you had the antibody blood testing done, it is likely you have celiac disease.
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