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Symptoms

Michelle-Idaho

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Michelle-Idaho Rookie
Michelle-Idaho
Posted

Hello everyone.

Still so new at this. Darin was diagnosed 11/4/08, after many, many, many doctor visits and finally some blood work and colonoscopy/EGD was diagnosed with gluten intolerance. His main symptoms prior to this was a dull, right, lower quadrant pain (only sometimes sharp - GI Dr. was thinking Crohn's but ended up not being), diarrhea, and inability to gain weight. I have completely taken the gluten out, gone through everything in the house.....even topical stuff. I am doing it with him, so CC isn't an issue.

The bowel movements are better so far....kind of mixed, but better. Of course weight gain is too soon to tell. But his pain in the lower right quadrant since the colonoscopy is A LOT worse....sharp and stabbing with the dull pain background. We have talked to both his PCP and the GI several times, and none seem worried about the worsening pain there.

The thing that concerns me is that his GI stated that where the pain is is not explained by the Celiac's. But then he hasn't been too helpful overall......he walked off and only said "he can have corn and rice, corn and rice".

Anyone else have these symptoms or ideas?

The results from the colonoscopy and EGD were perfect of than the Celiac's on the biopsy btw.

thanks for any help

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fedora Enthusiast
fedora
Posted

they don't know everything,

the pain could be from celiac, it could not be.

I had pain in my lower intestine when I ate gluten and a friend of mine gets pain in her lower intestine whenever she cheats(I try to convince her not to).

have they checked his appendix?

jerseyangel Proficient
jerseyangel
Posted

Is your son still on dairy? If so, it might be a good idea to remove it from his diet--for a few months--and see if the symptoms improve. The tips of the villi where dairy is digested have been injured, and some Celiacs become temporarily lactose intolerant. Most of the time it reverses when the person has healed.

I get lower right quadrant pain when I eat something that I'm intolerant to, besides gluten. Soy and corn give some of us problems, too, but I'd start with the dairy and see if that helps.

Michelle-Idaho Rookie
Michelle-Idaho
Posted
  • Author

They did check his appendix and it looked great. Labs are completely normal too.

He is still eating dairy.....I may have to take that away for a while!

thanks :)

Mtndog Collaborator
Mtndog
Posted

A very long shot in a child but ultrasound for gal bladder? If not, give him some time. He may just need to heal.

Either way, I hope he feels better soon!

ShayFL Enthusiast
ShayFL
Posted

If he just needs to heal, a warm water bottle or a heating pad with a towel wrapped around it can be very soothing. I have an appendectomy scar that has some scar tissue attached to my bowel. I can get sharp pains there if I have gas. The heating pad makes it feel so much better.

Michelle-Idaho Rookie
Michelle-Idaho
Posted
  • Author

hehe....he is my fiance by the way ;)

He did have an ultrasound, he is very skinny so they were able to see all his organs perfectly. No hernias, appendix was tiny, and gallbladder looked perfect.

I will try the heat pad......

of note......he is overall feeling better other than his side :D Normal bowel habits for the first time in many years!!! (sorry I just have to tell some people who would understand! ;) )

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    • Wheatwacked
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    • Wheatwacked
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    • Scott Adams
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      Hopefully the food she eats away from home, especially at school, is 100% gluten-free. If you haven't checked in with the school directly about this, it might be worth a planned visit with their staff to make sure her food is safe.
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