Dermatitus Herpetiformis

[Joe Hoffman]

I am a 57 year old male from Orlando. I posted on here quite a bit about a year ago when I found out I had Celiac Disease.

I had gone through six months of uncontrolable diarrhea, was hospitalized 3 times and had a Dr tell me that it was all in my head and that I needed to see a psychiatrist.

By diet I was able to finally return to normal activities.

I remember a man from Hawaii that was in about the same identical boat.

Well I returned to work at Lowes last March and found the my Zone Manager's position had been reduced to a Team Lead position on the floor. So at the end of my first week back a 60 pound box fell from ten feet and hit me square between the eyes. I never saw it coming.

After 11 days in intensive care I found out the full damage. I needed Neck, Shoulder and Elbow surgery.

So I have had two major surgeries in the past five weeks and I am scheduled for a third next Thursday.

The problem is after the first surgery I was fed a breakfeast full of Gluten. The result was just some stomach pain,,,,, but nothing severe to my knowledge.

Then two days after the second surgery I broke out in what appeared to be hives. They grew to looking like large zits and blisters and now two weeks later some are the size of boils. I have hundreds of these itchy, watery lesions all over my body.

Here are my questions:

1. Does anyone know what to do for these????? I have been using an anti-bacterial cream and calmine(sp) lotion, but they are not getting the job done.

2. Does anyone know of any Dr's in the Orlando area that specialize in Celiac Disease?????

As always thanks for your help.

Joe Hoffman

[Mother of Jibril]

If it is DH... and that sounds like a distinct possibility... then the ointment you need is Dapsone. If you can get in to see one, a dermatologist could be very helpful.

[kenlove]

Hi Joe,

Good to see you here again although I wish it was under better circumstances.

First of all make sure those idiots in the hospital give you gluten free foods!

The dapsone is great for some and not for others. With luck over some time

the DH will clear up. I still get it occasionally from accidental glutening but it clears up in a few weeks.

Itches like hell though. Sometimes the cortizone cream helps, especially when you feel them starting.

Good luck and stay in touch

Ken

I am a 57 year old male from Orlando. I posted on here quite a bit about a year ago when I found out I had Celiac Disease.

I had gone through six months of uncontrolable diarrhea, was hospitalized 3 times and had a Dr tell me that it was all in my head and that I needed to see a psychiatrist.

By diet I was able to finally return to normal activities.

I remember a man from Hawaii that was in about the same identical boat.

Well I returned to work at Lowes last March and found the my Zone Manager's position had been reduced to a Team Lead position on the floor. So at the end of my first week back a 60 pound box fell from ten feet and hit me square between the eyes. I never saw it coming.

After 11 days in intensive care I found out the full damage. I needed Neck, Shoulder and Elbow surgery.

So I have had two major surgeries in the past five weeks and I am scheduled for a third next Thursday.

The problem is after the first surgery I was fed a breakfeast full of Gluten. The result was just some stomach pain,,,,, but nothing severe to my knowledge.

Then two days after the second surgery I broke out in what appeared to be hives. They grew to looking like large zits and blisters and now two weeks later some are the size of boils. I have hundreds of these itchy, watery lesions all over my body.

Here are my questions:

1. Does anyone know what to do for these????? I have been using an anti-bacterial cream and calmine(sp) lotion, but they are not getting the job done.

2. Does anyone know of any Dr's in the Orlando area that specialize in Celiac Disease?????

As always thanks for your help.

Joe Hoffman