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My Gi Says I Am Borderline...


teacherwheart

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teacherwheart Apprentice

Some background 3 months ago my 2 year old was diagnosed with celiac. I tested positive with initial blood worrk, just got my biopsy results and I tested negative, my more indepth blood tests came back borderline - TTG IgG 2f, TTG IgG 7f IgG 14.4. The GI says I dont have it. I do however have 2 minor symptoms (lactose insensitive, some gas issues) besides that I feel fine. Do I go gluten free, wheat free, eat whatever. Not sure what or where to go from here.


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ShayFL Enthusiast

Most in here will tell you there is no such thing as "borderline". You either do or you dont. It is like you cant be borderline pregnant.

If it were me and I had a POS bloodwork and my child has been Dx with Celiac, then I would go gluten-free for life myself. First, it will be so much easier to have a gluten-free home. Both of you eating gluten-free. Hopefully if you are married your DH will get on board too. It is just so much better and easier to have a gluten-free household.

Also, you and your partner should get genetic testing.

oceangirl Collaborator

I'd go gluten-free for a few weeks and see if you feel better. If you don't I suppose you could put wheat and it's friends back. But, I agree with Shayfl, if you were positive, it seems you're positive.

And with someone with celiac in the house, being all gluten-free is much easier and less stressful.

Good luck!

lisa

teacherwheart Apprentice

Thank you, I am going to go gluten free. If my son can do it so can I :D:D

lovegrov Collaborator

You are or you aren't. Although I'm not a doctor and don't play one online, from what you've said, I'd say you have celiac.

richard

Amber M Explorer
Some background 3 months ago my 2 year old was diagnosed with celiac. I tested positive with initial blood worrk, just got my biopsy results and I tested negative, my more indepth blood tests came back borderline - TTG IgG 2f, TTG IgG 7f IgG 14.4. The GI says I dont have it. I do however have 2 minor symptoms (lactose insensitive, some gas issues) besides that I feel fine. Do I go gluten free, wheat free, eat whatever. Not sure what or where to go from here.

My 1 biopsy said I was negative for Celiac and then my gene test says I am gluten sensitive with genes from both parents making it worse. And, if I contiued to eat gluten, I could develop Celiac disease. I have other severe symptoms and it has been diagnosed as Gluten Ataxia (affecting the cerabelum (base of the brain) causing damage to the motor and nervous system. My point is gluten sensative is equally as bad. I also have lower colon problems. By what you said, I say it is positive, even if mild. It can only get worse if you were to continue. It might be worth geting the gene tests for both you and your childs father.

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    • trents
      So the tTG-IGA at 28 is positive for celiac disease. There are some other medical conditions that can cause elevated tTG-IGA but this is unlikely. There are some people for whom the dairy protein casein can cause this but by far the most likely cause is celiac disease. Especially when your small bowel lining is "scalloped". Your Serum IGA 01 (aka, "total IGA") at 245 mg/dl is within normal range, indicating you are not IGA deficient. But I also think it would be wise to take your doctor's advice about the sucraid diet and avoiding dairy . . . at least until you experience healing and your gut has had a chance to heal, which can take around two years. After that, you can experiment with adding dairy back in and monitor symptoms. By the way, if you want the protein afforded by dairy but need to avoid casein, you can do so with whey protein powder. Whey is the other major protein in dairy.
    • jenniber
      hi, i want to say thank you to you and @trents   . after 2 phone calls to my GI, her office called me back to tell me that a blood test was “unnecessary” and that we should “follow the gold standard” and since my biopsy did not indicate celiac, to follow the no dairy and sucraid diet. i luckily have expendable income and made an appt for the labcorp blood test that day. i just got my results back and it indicates celiac disease i think 😭   im honestly happy bc now i KNOW and i can go gluten free. and i am SO MAD at this doctor for dismissing me for a simple blood test that wouldn’t have cost her anything !!!!!!!!!!! im sorry, im so emotional right now, i have been sick my whole life and never knew why, i feel so much better already   my results from labcorp:   Celiac Ab tTG TIgA w/Rflx Test Current Result and Flag Previous Result and Date Units Reference Interval t-Transglutaminase (tTG) IgA 01 28 High U/mL 0-3 Negative 0 - 3 Weak Positive 4 - 10 Positive >10 Tissue Transglutaminase (tTG) has been identified as the endomysial antigen. Studies have demonstrated that endomysial IgA antibodies have over 99% specificity for gluten sensitive enteropathy. Immunoglobulin A, Qn, Serum 01 245 mg/dL 87-352
    • JoJo0611
      Thank you this really helped. 
    • Samanthaeileen1
      Okay that is really good to know. So with that being positive and the other being high it makes sense she diagnosed her even without the endoscopy. So glad we caught it early. She had so many symptoms though that to me it was clear something was wrong.   yeah I think we had better test us and the other kids as well. 
    • GlorietaKaro
      One doctor suggested it, but then seemed irritated when I asked follow-up questions. Oh well—
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