Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Do I Have Coeliac?


Taylahmai

Recommended Posts

Taylahmai Newbie

Hi all. I'm new to the boards and am hoping someone can provide me with some advice, because my doctor has been pretty useless!

I have had blood tests and an endoscopy to test for coeliac (in Australia its called coeliac, but in the US celiac.... strange). My Tissue Transglutaminase IG levels were normal but my Gliadin IGA levels were slightly elevated (5.4 g/L and normal is between 0.89 - 4.46 g/L). My endoscopy showed no damage to villi so I was told I didn't have coeliac disease and that was that.

But I've since learned (through doing my own research, no thanx to my doctor) that raised IGA levels means I am gluten intolerant - is that correct? So whats the difference between gluten intolerance and coeliac disease? I went to another doctor today about my rasied IGA levels, and he told me he had no idea why they could be raised if the endoscopy showed no sign of coeliac. He seemed to think my raised IGA levels could be due to something else?

I'm reaalllly confused. Is someone able to shed some light on this?

Thank you :)


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



darlindeb25 Collaborator
;) well--you can be celiac and not have full blown damage in your intestines as of yet, or the scope may not have found the damages area, that's always a possibility too----the difference between the 2----a sensitivity means just that--you are sensitive to gluten and in my opinion should go gluten free--i also feel that gluten sensitive and intolerant go hand in hand--i think with a gluten sensitivity you must go gluten free--i dont think there is a middle ground--i feel that all of us would be better off with out gluten in our diets---i dont have a doctor diagnosis and i will never go back to gluten--i have been gluten free for almost 4 yrs now---my sister is a doctor diagnosed celiac and this last nov my dad was put on a gluten-free diet too--i didnt have insurance when me sister went gluten-free and she and i decided together that gluten is my problem too--my life has changed so much since that day--i will never go back-----------have you tried gluten-free to see if you feel better---omitting gluten from your diet will not hurt you, not in the least---give it a try and keep us imformed---------deb
KaitiUSA Enthusiast

You may have celiac. If your IgA levels were elevated that usually has something to do with gluten. It is a pretty specific test. Your body may either not have damage or they could have looked in the wrong spots. I know many people that have had damage but the doctor either didn't go down far enough or get the tissue from a damaged place.

I would really suggest an Enterolab. They test for all sorts of intolerances and allergies. They test for celiac, the celiac gene, malabsorption and so forth. Many doctors don't look at this for diagnosis yet but in my opinion it is a good test. I don't know if you can get one in Australia but I assume you could. The site is Open Original Shared Link to find out more info about it.

That might help you figure out what is going on.

You could always try the diet and see how you feel. Some people on here don't have a medical diagnosis but are 100% gluten free and are self diagnosed. Doctors really haven't been much help I know with me I switched doctors many times looking for an answer. Don't rule celiac out just yet.

Hope you get an answer soon :D

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,233
    • Most Online (within 30 mins)
      7,748

    Dbcountry41
    Newest Member
    Dbcountry41
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Wheatwacked
      Other symptoms that Celiac Disease can cause but resemble other diseases so the cause may be misdiagnosed. What Are the Symptoms of Celiac Disease?  
    • trents
    • sillyac58
      Thanks Scott. They are gluten-free but cross contaminated. 
    • cristiana
      Hi there @MCAyr I have a small umbilical hernia which came about during my second pregnancy.   I can just about see it, and feel it, when I stand or sit, but it is far less noticeable when I lie down.  I always know when I am putting on weight because I can get pain and burning near the site, funnily enough not on the hernia itself but either side!  I would imagine bloating could cause the same effect as weight gain. In my case I don't think it is my bowel protruding but a bit of fat  - sorry,  I realise this isn't painting a very pretty picture.  But in truth it is scarcely noticeable.  It has never really got bigger in size. I was rather hoping that it could be operated on but here in the UK they don't seem to operate on every hernia anymore.  My GP isn't remotely worried about it. In a way, I should be thankful - it is like an early warning system that I need to go on a diet! Cristiana
    • Scott Adams
      The hernia description would likely be unrelated to celiac disease, but you'd need to get it checked out by your doctor to be sure it's a hernia.
×
×
  • Create New...