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Frustrated!

kkkkaty

By kkkkaty
in Coping with Celiac Disease

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kkkkaty Rookie
kkkkaty
Posted

I was diagnosed with Celiac in August and at first I ate only fruit, veggies, rice and little else but slowly I've discovered lots of great things to eat. But I haven't been feeling very good for awhile now- I have more headaches, bad sleep, general achy-ness.My stomach is much better but not entirely right. I think I eat well, take vitamins, run 4-5 days week..I should be feeling great. I just got back from the holidays with family and, as far as I know, ate nothing bad. But I felt terrible. I spent a bunch of time on this board looking for clues and came up with a whole list of things I may be doing wrong- toaster, lipstick, shampoo- to name a few. I am feeling so overwhelmed by this right now- Should I have dedicated wooden spoons, cutting boards, other? Maybe I expected this process to be easier or faster.I have always had an excellent attitude about this but I'm sooooo frustrated!

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Mother of Jibril Enthusiast
Mother of Jibril
Posted

Welcome to the group!

I'm sorry you're having such a frustrating time :(

Have you considered that you might have another food intolerance or another autoimmune disorder? I felt even better after I stopped eating corn. Plus, I think once you're off gluten it becomes easier to recognize other things that might be going on in your body...

A book that I've found helpful is "The Autoimmune Connection" by Rita Baron-Faust and Jill Buyon. It's well-organized, scientific and provides lists of symptoms and related disorders. For example, here are some disorders that turn up in a lot of people with celiac disease:

- type I diabetes

- thyroid disease

- Sjogren's syndrome

- primary biliary cirrhosis

- myasthenia gravis

- pernicious anemia

I would look through the book and see if anything fits your symptoms. Then, if you're not completely sick of doctors... go ask for some tests.

gfpaperdoll Rookie
gfpaperdoll
Posted

You are probably getting cross contaminated, are you still cooking for other whith wheat flour. Still cutting your apples on the same wooden cutting board that you used for wheat bread?

check out the cross contamination threads. & be careful about the gluten free goodies that you are eating, especially the ones that are manufactured in places where they have wheat etc.

kkkkaty Rookie
kkkkaty
Posted
  • Author
You are probably getting cross contaminated, are you still cooking for other whith wheat flour. Still cutting your apples on the same wooden cutting board that you used for wheat bread?

check out the cross contamination threads. & be careful about the gluten free goodies that you are eating, especially the ones that are manufactured in places where they have wheat etc.

Thanks for the reply. Are you saying that one should not cook with wheat for other people? I make cookies, cake, pancakes, etc. for my kids - is that considered risky? I understand the idea of dedicated tools and dishes and I'll be paying attention to that immediately. Please clarify about the cooking...Thanks.

SGWhiskers Collaborator
SGWhiskers
Posted

The airborne flour and baking mixes are a no, no for us. It is easy for us to inhale bits of flour and the reaction can sometimes be more or less severe. Then the flour dust falls to the countertops later in the day, and we can cc ourselves again. I've switched to using gluten-free mixes and hubby does not seem to mind a bit. We also have store bought goodies in the kitchen for him. I'll handle the gluten items if I must, but I avoid it most of the time because I'm still getting mystery glutenings.

I hope all your new information helps you feel better.

SGWhiskers

mbrookes Community Regular
mbrookes
Posted

There are so many gluten-free cookbooks and recipes available that I cook only gluten free for my family and guests. Nobody knows the differeence, except that there is no bread. In fact, I just had my family here for Thanksgiving and served all gluten free food, even desserts. Everyone raved!

Just tell your family that this is something you have to do to stay healthy. There will be no more gluten cooked in your kitchen. They can eat all the gulten they want when they eat away from home.

This may sound selfish, but what good are you to them when you are sick?

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