Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Support Groups In North Carolina


TiredofTums

Recommended Posts

TiredofTums Rookie

Thank-you so much Lisa for helping me out! This is indeed a very nice site. Got your instant message but was not sure how to answer back and decided to come here and post! LOL! I appreciate all your help and have one more question. Are there any support groups in North Carolina. Not sure if there is one close by to me or not but if there is one around that is close I will most likely be going!

Thank-you my friend for helping me find out the information I need!

Sincerely,

linda


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



happygirl Collaborator

Tired: To contact a member, you can do it a few ways. Drag your mouse over the members name (if it is in a post) and then click on "send message."

Or, at top of page on right, click on "Messages" or "0 Messages" or however many messages it says you have. You can then click on compose new message, or click on the previous message, and the hit "reply" button in the bottom right hand corner of the message.

And yes, Lisa is wonderful and very helpful. I know she'll enjoy seeing your post.

TiredofTums Rookie

I found it! I just hope I posted it right! If it would not have been for her I would be in limbo trying to learn this nasty disease! She really has been so helpful! Thanks for being my teacher! LOL!

Linda

Tired: To contact a member, you can do it a few ways. Drag your mouse over the members name (if it is in a post) and then click on "send message."

Or, at top of page on right, click on "Messages" or "0 Messages" or however many messages it says you have. You can then click on compose new message, or click on the previous message, and the hit "reply" button in the bottom right hand corner of the message.

And yes, Lisa is wonderful and very helpful. I know she'll enjoy seeing your post.

Lisa Mentor

Linda,

Hopefully you're on the right track. Glad to help.

After the first of the year I will be starting a Support Group in my area. I am about an hour and fifteen minutes from you. So not so far.

I will let you know about the details after the holidays. If there is anyone in Northeastern North Carolina who would be interested, please contact me.

Good luck today Linda.

TiredofTums Rookie

Thank-you Lisa! Ohh! I have all the labs done now and await the biopsy when I have the Endoscopy. Doctor wants the biopsy and to examine me to see what kind of damage I have in my intestines. So now it's just a wait and see thing. In the meantime I was told to eat alot of pasta and enjoy while I can for after that biopsy they want me to go ahead and start the gluten free diet. Until all the results come in. So nervous about that endoscopy and colonoscopy. They are doing both at the same time. Yuk! :( If it was just one test I would probably be okay. But going in both ends... I dread! Especially the bottom end test! Have to drink some yukky stuff and an hour after I drink it, I will be cleaning out the bowel so they can go up me and probe around. Yuk! That means me sitting on the toilet seat all night long with the cleaning kit going through my body all night. The last time I had that test was several several years ago and I was getting worried for I was still running to that terlet an hour before my test. And then held myself until I got there and went again. I plan on taking that stuff a little earlier! That way maybe I will not be worried about an accident on my way to the hospital. I'm too young for Depends and certainly not ready for wearing them yet. But that stuff really tears your bowels up. The last time I drank that stuff my fanny was on fire from going all night long and I stayed sore for days! I think that is what I dread the most. Not the test itself but the stuff you have to drink before the test. LOL! And then the lack of sleep because of it! I will keep you all posted and hope this was all my problems and no more. Doctor is pretty sure this is what is going on. But needs all the test to confirm it!

Will let you know what all happens. Thank-you so much!

Sincerely,

Linda That is Tired of Tums

.

Linda,

Hopefully you're on the right track. Glad to help.

After the first of the year I will be starting a Support Group in my area. I am about an hour and fifteen minutes from you. So not so far.

I will let you know about the details after the holidays. If there is anyone in Northeastern North Carolina who would be interested, please contact me.

Good luck today Linda.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Adeling commented on Scott Adams's article in Product Labeling Regulations
      2

      Global Experts Recommend Gluten Reference Dose: What It Means for Celiac Safety (+Video)

    2. - Sue7171 replied to Ginger38's topic in Related Issues & Disorders
      24

      Shingles - Could It Be Related to Gluten/ Celiac

    3. - sc'Que? commented on Scott Adams's article in Product Labeling Regulations
      2

      Global Experts Recommend Gluten Reference Dose: What It Means for Celiac Safety (+Video)

    4. - xxnonamexx posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      0

      What's your daily meals? Protein bars?

    5. - trents replied to Seabeemee's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      Labs ? Awaiting in person follow up with my GI

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,177
    • Most Online (within 30 mins)
      7,748

    Charlene Kearley
    Newest Member
    Charlene Kearley
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Sue7171
      My husband just had shingles going on 7 weeks now. We had been putting Vaseline on the blisters and lidocaine cream and he was prescribed an antiviral.  Also he still has the nerve pain it was bad and is getting better it is his upper left torso. His dr prescribed gabapentin 300mg 3x a day and he's also taking naproxen 500ng 2x a day and tylenol 1000mg every 6 hrs. Hope this helps  The lidocaine cream is by tylenol and is available in a large tube on Amazon or at Walmart 
    • xxnonamexx
      What are your daily meals? Guilty pleasure snacks? Protein bars? I feel when looking for gluten free foods they are filled with sugar cholesterol. Looking for healthy gluten-free protein bars. Something to fill since sometimes I feel like not to eat anything. Especially if on vacation and unsure of cross contamination I figure go with a salad and protein bar to fill and play it safe.
    • trents
      Unfortunately, there is presently no test for NCGS. Celiac disease must first be ruled out. NCGS is thought to be much more common than celiac disease. We know that celiac disease is an autoimmune disorder but the mechanism of NCGS is less clear. Both call for an elimination of gluten from the diet.
    • Seabeemee
      Thanks for your reply Trents…most appreciated.  I am unfamiliar with celiac labs terminology so I wanted to know if the presence of HLA variants (DA:101, DA:105, DQB1:0301 and DQB1:0501) that the labs detected had any merit in predisposing one to be more sensitive to gluten/carbs than the general population?  Also,  I found what you said about NCGS very interesting and I appreciate you mentioning that.  I’ve worked hard to research and advocate for myself with my Hematologist and now with a new GI, since my bowel surgery and to maintain my Vitamin B12 health concurrent with keeping my levels of Iron in the optimal range. I’ve been tested for SIBO (do not have it), biopsy showed negative for HPylori, and have had Fecal studies done (nothing showed up) and I understand how a loss of a large amount of bowel could be highly impacting re: SIBO, malabsorption and motility issues. So I’ve managed pretty well diet and elimination-wise until just recently. That said, this new problem with extreme bloating, distention and upper girth, NAFLD just occured over the last 4 months so it is new for me and I thought celiac might be a possible issue. I’ll probably just continue on in this less gluten/carbs seem to be better for me and see how reintroducing certain foods go.  Thanks again.    
    • xxnonamexx
      Thanks bumped it up and now take all 3 vitamins 2 capsules each with the super b complex at breakfast. I will give it some time to see if I notice a difference. I am going to track my eating daily diary on a myfitness pal app to see if the "claimed" gluten free foods bother me or not.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.