Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Worse Stomach Pain After Endoscopy

Konaa

Recommended Posts

Konaa Newbie
Konaa
Posted

Syptoms

-Stomach pain all the time ( lower. abdomen. stomach area )

-burping

-constipation

-loose. thin stool

-shortness of breath sometimes

-freqent bathroom trips

-not full evacuated after going to washroom

-dizzynes mostly after eating

-pain worse after eating

after just doing a endoscopy I have had severe stomach pain with all the above syptoms just much worse.

I took last 4 days off work and went to hospital with severe stomach pain I could barley stand up. They checked my blood and did x-ray and said i was constipated and gave me laxitive.

They never told me if they were testing for celiac is it something they have to specifcally test for or something they will see when they check it out.

I have had pain for 6 months now, but it is so bad now it hurts everyday and i dont feel like eating anything anymore.

I have to wait 6 weeks for biopsy for results, Doctors will not help me now and i dont know what to do.

My syptoms started ranomly one day out of nowhere i had extreme stomach pain that night too.

I have done every test to check for other disease. barium enema. blood tests. stool tests. barium swallow, ultrasound, endosopy showing no ulcers

I tried gluten free diet for 3 weeks no results

Does anyone have any idea what this could be???

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


MELINE Enthusiast
MELINE
Posted

The pain after the endoscopoy is - at least for me was - because they fill your intestine with air in order to stretch it and take a good look or take a biopsy. I think it was the worse pain I've ever felt in my life.

Now are you sure you are 100% gluten free?? most of us couldn't do it 100& for several months. There are so many places gluten could be hiding you can't even imagine. search for hidden gluten (in this forum or use google or other search engines on the net) and you will get an idea. Just to let you know that there are even products that say they are gluten free on their package and they turn out not to be (I think you have in your country someting that is called Rice-chex or something like that and it is labeled as gluten free and it wasn't - check it out.)

and even if you are 100% gluten free (which is not very very possible for the reasons I explained you), 3 weeks is so little time. Ok it took me 3 weeks to feel better, but for others it took 2 days and for others 2 months or more.

and now if it is not celiac after all, then it could be candida, or some other parasite, or body ph imbalance, or IBS or or or...so many things. ask as much as you can, search the net, try to find a doctor that won't give you the "It's all in your head" answer and I am sure you will find your way out of this. Or it could be just lactose intolerance. Hey I forgot that. When you go gluten free you have to go dairy / casein free or you will not see any results. If you actuallly have celiac your intestine is too damaged to be able to digest lactose and lactose intolerance can cause the symptoms you are describing. Have you tried eliminating lactose???

Finally I strongly suggest you to keep a food diary and check out what are the reactions of your body when you eat something. Keep in mind that some reactions may show up after 7-42 hours.

Hope this was some help for you.

Ask anything you want.

Meline

Konaa Newbie
Konaa
Posted
  • Author

I went lactose free when i went gluten free i was eating completey gluten free for 3 weeks no results.

Its now 4 days after endoscopy still severe stomach pain and burping

how long will it be like this for my stomach pain to go away

it was bad before but now its become irritated and much much worse.

MELINE Enthusiast
MELINE
Posted

.......after the endoscopy the pain for me was just some hours.....I really don' t know the answer to your question.

But 3 weeks is not a safe period to make conclusions about celiac. Have you checked your cosmetics, did you get rid of old wooden stuff in the kitchen, (wood hides gluten), did you avoid cross contamination etc??

any way I guess your endoscopy will show if you have celiac or not. I think that celiac is obvious cause your villy is totally destroyed if you are celiac. So they don't have to look for it. They just see it. But that is what I THINK....

I am sorry I don't think I have any other answer for you.

kenlove Rising Star
kenlove
Posted

Its strange I never had pain with my endoscopy. Actually felt better after it. It was before I knew about celiac and after I felt like they straightened out the knot in my intestines.

Hope things are calming down in Athens now

take care

ken

.......after the endoscopy the pain for me was just some hours.....I really don' t know the answer to your question.

But 3 weeks is not a safe period to make conclusions about celiac. Have you checked your cosmetics, did you get rid of old wooden stuff in the kitchen, (wood hides gluten), did you avoid cross contamination etc??

any way I guess your endoscopy will show if you have celiac or not. I think that celiac is obvious cause your villy is totally destroyed if you are celiac. So they don't have to look for it. They just see it. But that is what I THINK....

I am sorry I don't think I have any other answer for you.

MELINE Enthusiast
MELINE
Posted
Hope things are calming down in Athens now

Yesterday was totally hell right in front of my house. about 500 stores in the centre of Athens are ruined...... They even burned the huge christmas tree... Today things are better.I think they are actually calming. Thank you ken...!

as for the endoscopy, I was in pain cuz the laxatives didn't work and my intestine was full (grossy....!) and they filled me with air (to get the biopsy) and wow that was painful. I don't know if our new friend's pain is because of that. And even if it was, I guess it should have gone away after 4 days.

kenlove Rising Star
kenlove
Posted

Glad things are calming and hope it continues. Have had to photograph many of these type of things for newspapers, I hope never have to see it again.

Maybe it is the intestine's being full that caused the pain. I had not eaten anything other than jello for a few days prior to mine.

Could nto keep anything in me. Guess maybe thats it.

take care

Yesterday was totally hell right in front of my house. about 500 stores in the centre of Athens are ruined...... They even burned the huge christmas tree... Today things are better.I think they are actually calming. Thank you ken...!

as for the endoscopy, I was in pain cuz the laxatives didn't work and my intestine was full (grossy....!) and they filled me with air (to get the biopsy) and wow that was painful. I don't know if our new friend's pain is because of that. And even if it was, I guess it should have gone away after 4 days.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


TiredofTums Rookie
TiredofTums
Posted

Oh God! I wished I would not have read this posting not because of you saying anything bad. I am going to be going in on December 19th for an Endoscopy and Colonoscopy at the same time. And the thoughts of having both done pure scare me and having pain afterwards. Right before Christmas too! I sure hope I don't end up with pain like that. That will scare me to death!

Bad thing! I have always been scared of needles, have getting IV's because of rolling viens and am not a pain tolerant person!

At least I have some tylenol with codiene if I need it and will get my husband to ask them if I can take it when I get home.

That is scary to be having that kind of pain after a test. I hope you feel better soon but now I'm scared!

Sincerely,

Linda That Is Tired of Tums

Hmm! Maybe I should cancel those test and just start treating myself with the gluten free diet and not let them tamper with my intestines. I'm scared! :(

ang1e0251 Contributor
ang1e0251
Posted

tiredof tums, I was scared too but honestly the endoscopy was a piece of cake. I not only felt nothing, I blinked my eyes and asked the nurse would the dr be in soon. She said, "honey, he's been and gone. It's all over!" I had no pain or adverse affects afterwards. My daughter had one at age 14 and had the same reaction; no reaction.

Last year my DH had a colonoscopy and was scared to death. He felt nothing and had no pain whatsoever. I wouldn't lie to you if it was really bad, I would say so. I think the poster has something else going on as I have never heard of anyone having that kind of reaction.

Konaa Newbie
Konaa
Posted
  • Author

Just got my biopsy results and their negative I dont know what I can do from here still have severe stomach pain (lower stomach area around belly button) everyday along with intense burping and gas.

I have done barium enema. blood work. ultrasound. endoscopy. barium swallow.

I still dont have any idea what it is. I went to hospital twice last 5 days and they wont help me cause Ive had this problem for 6 months and they dont understand how much worse it is now.

My doctor said i was thinking about it to much and making it worse. Because im sure My brain is making stomach pain of course.

Anyone have any suggestion what I can do?.

ang1e0251 Contributor
ang1e0251
Posted

Did you know that many people have negative test results with gluten sensitivity and celiac disease? If you're still having symptoms, then you may want to try an elimination diet to see how you feel. Cut out dairy and gluten and see how you feel. It's handy to keep a food/symptom journal to help you narrow down your reactions. It can help you with your doctors too. You alone know how you feel. Be your own dr. A GFDF diet cannot hurt you and you may be surprised at how well you could feel. You can't be any worse off than you are right now. Listen to what your body is telling you.

I hope you are feeling well soon. Keep us posted and ask any and all questions you wish.

ravenwoodglass Mentor
ravenwoodglass
Posted
Anyone have any suggestion what I can do?.

The diet. You should also eliminate dairy and soy at the beginning.

Konaa Newbie
Konaa
Posted
  • Author

i am going gluten free and dairy free again starting yesterday hopefully the pain will go down it is twice as bad as it was before

ravenwoodglass Mentor
ravenwoodglass
Posted
i am going gluten free and dairy free again starting yesterday hopefully the pain will go down it is twice as bad as it was before

If your pain has not started to abate a bit by now do demand to be seen by your doctor. You may be having an unusual reaction to something you had done and while it is unusual sometimes complications can arise from any procedure. If you have developed a fever or your pain is increasing rather than decreasing or any other new problems pop up do please get into your doctor or the ER in addition to starting the diet.

I hope things improve soon.

Puddy Explorer
Puddy
Posted
Oh God! I wished I would not have read this posting not because of you saying anything bad. I am going to be going in on December 19th for an Endoscopy and Colonoscopy at the same time. And the thoughts of having both done pure scare me and having pain afterwards. Right before Christmas too! I sure hope I don't end up with pain like that. That will scare me to death!

Bad thing! I have always been scared of needles, have getting IV's because of rolling viens and am not a pain tolerant person!

At least I have some tylenol with codiene if I need it and will get my husband to ask them if I can take it when I get home.

That is scary to be having that kind of pain after a test. I hope you feel better soon but now I'm scared!

Sincerely,

Linda That Is Tired of Tums

Hmm! Maybe I should cancel those test and just start treating myself with the gluten free diet and not let them tamper with my intestines. I'm scared! :(

Linda,

Don't be scared. When I had my testing done, I had my colonoscopy and endoscopy 4 days apart. They were both a piece of cake. I felt nothing, woke up, went home and slept for a few hours. I had no pain whatsoever. I ate some bland food and watched TV and read. The next day I was good to go. The prep is the worst part, but even that wasn't as bad as I had heard. Don't worry. You'll be fine.

Konaa Newbie
Konaa
Posted
  • Author

I seen my doctor they refuse to help me. The hosptial will not help me either.

im not seing my speciliast for 1 month.

  • 3 years later...
autism mommy Newbie
autism mommy
Posted

Yesterday was totally hell right in front of my house. about 500 stores in the centre of Athens are ruined...... They even burned the huge christmas tree... Today things are better.I think they are actually calming. Thank you ken...!

as for the endoscopy, I was in pain cuz the laxatives didn't work and my intestine was full (grossy....!) and they filled me with air (to get the biopsy) and wow that was painful. I don't know if our new friend's pain is because of that. And even if it was, I guess it should have gone away after 4 days.

I had my endoscopy an biopsy done wednesday now it is sunday and i feel worse.My bowels have have been going nuts from watery,to explosive,to constipation to skinny regular stool.gross topic to discuss but were all in the same boat here so i don't feel so embarrassed to share that info.but i have been nauseated ,pain under my ribs especially the left where i have been finding the pain since this winter and aching pain out through my back.I only had a upper gi endoscopy done not a full one which i wish he had done but he didn't feel it was necessary. Maybe it is my fybromyalgia making me extra sensitive but what if it isn't i guess i won't fully know until i see a doctor.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Scott Adams
      - Scott Adams replied to Cecile's topic in Related Issues & Disorders
      2

      Symptoms

      Living with celiac disease can be especially hard when you’re in a smaller town and don’t have many people around who truly understand it, so you’re definitely not alone in feeling this way. Ongoing fatigue, joint pain, and headaches are unfortunately common in people with celiac disease, even years after diagnosis, and they aren’t always caused by gluten ...
    2. trents
      - trents replied to Cecile's topic in Related Issues & Disorders
      2

      Symptoms

      Welcome to the celiac.com community, @Cecile! It is common for those with celiac disease to develop sensitivity/intolerance to non-gluten containing foods. There is a high incidence of this with particularly with regard to dairy products and oats but soy, eggs and corn are also fairy common offenders. Like you eggs give me problems depending on...
    3. Cecile
      - Cecile posted a topic in Related Issues & Disorders
      2

      Symptoms

      I have had celiac for over 5 years. I am in a smaller town, and it is not a common thing. Can you all help me with a few things? I keep going to my Doctor because I am so tired. I mean really tired. I also have joint pain and headaches. I was told this is from Celiac, but they say the tiredness may not be. If so, does anything help you with this? ...
    4. Xravith
      - Xravith posted a topic in Introduce Yourself / Share Stuff
      0

      Do Gluten Enzymes actually work?

      Hi everyone, I decided to post this since there's no enough online information. I'm concerned about the enzyme capsules that are said to help digest gluten. I'm waiting to end my university exams to start the gluten challenge and do the official diagnosis for Celiac Disease. A friend of mine suggested me to buy the "Gluten Digest Now" capsules...
    5. Flash1970
      - Flash1970 replied to Ginger38's topic in Related Issues & Disorders
      25

      Shingles - Could It Be Related to Gluten/ Celiac

      Try heallix solution. It's at heallix.com It's a silver and fulvic acid solution. I just put it on a cotton ball and wiped the shingles area. I also took a little internally once a day. I can't remember how many times a day I applied to the area. Probably 3-4 times a day. It was the only thing that stopped the nerve pain. I don't know if the vaseline is...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,180
    • Most Online (within 30 mins)
      7,748
    Eldret419
    Newest Member
    Eldret419
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • Scott Adams
      Gluten free phosphate binders for dialysis patients

      By Scott Adams · Posted

      You can search this site for prescriptions medications, but will need to know the manufacturer/maker if there is more than one, especially if you use a generic version of the medication: To see the ingredients you will need to click on the correct version of the medication and maker in the results, then scroll down to "Ingredients and Appearance" and click it, and then look at "Inactive Ingredients," as any gluten ingredients would likely appear there, rather than in the Active Ingredients area. https://dailymed.nlm.nih.gov/dailymed/   
    • Scott Adams
      Symptoms

      By Scott Adams · Posted

      Living with celiac disease can be especially hard when you’re in a smaller town and don’t have many people around who truly understand it, so you’re definitely not alone in feeling this way. Ongoing fatigue, joint pain, and headaches are unfortunately common in people with celiac disease, even years after diagnosis, and they aren’t always caused by gluten exposure alone. Many people find that issues like low iron, low vitamin D, thyroid problems, other autoimmune conditions, or lingering inflammation can contribute to that deep exhaustion, so it’s reasonable to push your doctor for more thorough blood work beyond just vitamin B. As for eggs, it’s also not unusual for people with celiac disease to develop additional food intolerances over time; tolerating eggs as an ingredient but not on their own can point to sensitivity to the proteins when they’re concentrated. Some people do better avoiding eggs for a while, then carefully testing them again later. Most importantly, trust your body—if something consistently makes you feel awful, it’s okay to avoid it even if it’s technically “allowed.” Many of us have had to advocate hard for ourselves medically, and connecting with other people with celiac disease, even online, can make a huge difference in feeling supported and less isolated.
    • trents
      Symptoms

      By trents · Posted

      Welcome to the celiac.com community, @Cecile! It is common for those with celiac disease to develop sensitivity/intolerance to non-gluten containing foods. There is a high incidence of this with particularly with regard to dairy products and oats but soy, eggs and corn are also fairy common offenders. Like you eggs give me problems depending on how they are cooked. I don't do well with them when fried or scrambled but they don't give me an issue when included in baked and cooked food dishes or when poached. I have done some research on this strange phenomenon and it seems that when eggs are cooked with water, there is a hydrolysis process that occurs which alters the egg protein such that it does not trigger the sensitivity/intolerance reaction. Same thing happens when eggs are included in baked goods or other cooked dishes since those recipes provide moisture.  So, let me encourage you to try poaching your eggs when you have them for breakfast. You can buy inexpensive egg poacher devices that make this easy in the microwave. For instance:  https://www.amazon.com/Poacher-Microwave-Nonstick-Specialty-Cookware/dp/B0D72VLFJR/ Crack the eggs into the cups of the poacher and then "spritz" some water on top of them after getting your fingers wet under the faucet. About 1/4 teaspoon on each side seems to work. Sprinkle some salt and pepper on top and then snap the poacher shut. I find that with a 1000 watt microwave, cooking for about 2 minutes or slightly more is about right. I give them about 130 seconds. Fatigue and joint pain are well-established health problems related to celiac disease.  Are you diligent to eat gluten-free? Have you been checked recently for vitamin and mineral deficiencies? Especially iron stores, B12 and D3. Have you had your thyroid enzyme levels checked? Are you taking any vitamin and mineral supplements? If not, you probably should be. Celiac disease is also a nutrient deficiency disease because it reduces the efficiency of nutrient absorption by the small bowel. We routinely recommend celiacs to supplement with a high potency B-complex vitamin, D3, Magnesium glycinate (the "glycinate" is important) and Zinc. Make sure all supplements are gluten-free. Finally, don't rule out other medical problems that may or may be associated with your celiac disease. We celiacs often focus on our celaic disease and assume it is the reason for all other ailments and it may not be. What about chronic fatigue syndrome for instance?
    • FannyRD
      Gluten free phosphate binders for dialysis patients

      By FannyRD · Posted

      I work as a renal RD and have a Celiac pt which has been rare for me (I might have had 3-4 Celiac pts in 15 years). I wondered if anyone can confirm that these medications are gluten free and safe for Celiac.  Ferric citrate (Auryxia)  Sucroferric oxyhydroxide (Velphoro)  lanthanum carbonate (Fosrenol) sevelamer carbonate (Renvela)   Thank you!
    • Cecile
      Symptoms

      By Cecile · Posted

      I have had celiac for over 5 years.  I am in a smaller town, and it is not a common thing.  Can you all help me with a few things?  I keep going to my Doctor because I am so tired.  I mean really tired.  I also have joint pain and headaches.  I was told this is from Celiac, but they say the tiredness may not be.  If so, does anything help you with this?  I am on Vitamin B shots, but they are not taking care of the problem.  Also, when I eat eggs, they tear me up.  This gives be intestinal issues badly.  Eggs in things, do not bother me as eating a boiled or fried egg.  I need some celiac friends and advice.  Thanks all!!
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.