Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Test Results..

nutbutters

Recommended Posts

nutbutters Rookie
nutbutters
Posted

I recently went for an EGD and had a full celiac panel done. All came back negative; there was absolutely no sign of villous atrophy. My intestines were in good shape (one biopsy was taken of the small intestine). Aside from this, I am relatively healthy. I have a small hiatal hernia, GERD and I have iron-deficiency anemia, but I am otherwise, fine. Now, I've lived for the past half year without gluten products with the exception of the past month (when I consumed gluten to prep for my EGD), so this is a slight shocker. I don't really know where to go from here, and they are now performing a barium swallow/follow-through test (for what - I do not know). I don't know where to go from here, and I guess, I am actually disappointed I do not have celiac disease. I began to understand the lifestyle, and I was comfortable with it - and gluten/dairy elimination actually did significantly improve my symptoms.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


gluten Tag Rookie
gluten Tag
Posted
I recently went for an EGD and had a full celiac panel done. All came back negative; there was absolutely no sign of villous atrophy. My intestines were in good shape (one biopsy was taken of the small intestine). Aside from this, I am relatively healthy. I have a small hiatal hernia, GERD and I have iron-deficiency anemia, but I am otherwise, fine. Now, I've lived for the past half year without gluten products with the exception of the past month (when I consumed gluten to prep for my EGD), so this is a slight shocker. I don't really know where to go from here, and they are now performing a barium swallow/follow-through test (for what - I do not know). I don't know where to go from here, and I guess, I am actually disappointed I do not have celiac disease. I began to understand the lifestyle, and I was comfortable with it - and gluten/dairy elimination actually did significantly improve my symptoms.

Have you been gluten-free leading up to the biopsy?

ravenwoodglass Mentor
ravenwoodglass
Posted
I recently went for an EGD and had a full celiac panel done. All came back negative; there was absolutely no sign of villous atrophy. My intestines were in good shape (one biopsy was taken of the small intestine). Aside from this, I am relatively healthy. I have a small hiatal hernia, GERD and I have iron-deficiency anemia, but I am otherwise, fine. Now, I've lived for the past half year without gluten products with the exception of the past month (when I consumed gluten to prep for my EGD), so this is a slight shocker. I don't really know where to go from here, and they are now performing a barium swallow/follow-through test (for what - I do not know). I don't know where to go from here, and I guess, I am actually disappointed I do not have celiac disease. I began to understand the lifestyle, and I was comfortable with it - and gluten/dairy elimination actually did significantly improve my symptoms.

A one month challenge is often not long enough to redamage the gut and one biopsy sample is basically useless. IF you have been having relief from symptoms you have your answer from the best doctor you could find, your own body. One word of caution about the barium test the solution they will have you drink is going to be full of gluten. You will have to ask specifically for one that is gluten free. The gluten free forms are clear and have the consistency of water. If you became symptomatic after you added gluten back in you may want to hold off on the barium and see if they resolve now that you can get back on the diet.

nora-n Rookie
nora-n
Posted

The way I understand the first posting, is that the person has been gluten free for six month and has had one encounter with gluten only, the barium contrast, and reacted to it.

nora

nutbutters Rookie
nutbutters
Posted
  • Author

No, I was gluten free for five months, and I was preparing for the biopsy for one month on a heavy gluten-diet. I have not yet had the barium test (that is the next step). Sorry, that was very unclear.

lizard00 Enthusiast
lizard00
Posted

My GI wouldn't do an EGD on me at 6 months gluten free. He said it would probably not show anything. If we had gone the EGD route, I would've had to eat gluten for 3 months.

And in light of the fact that he took one biopsy, I wouldn't rule celiac out at all. How did you feel during your month of eating gluten?

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,827
    • Most Online (within 30 mins)
      7,748
    Rebecca Hurst
    Newest Member
    Rebecca Hurst
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Colleen H
      Stomach burning and neuropathy

      By Colleen H · Posted

      Hello  I'm not sure what to think . Seems no matter what I do I get sick. I had some yogurt with only 2 grams of sugar and is labeled gluten free ...the strawberry version seemed to really set me off My jaw is burning as well as my stomach and my feet.  Horrible pain..plus acid reflux and nausea... sensitivity to touch pain. ..yikes !! I don't know if it's from the lactose in the yogurt or if I'm getting an ulcer  This condition can make you question yourself quite a bit.  Then if you are not sure the anxiety comes 😞 Does any of these symptoms sound familiar to anyone? The neuropathy is quite intense.  What do you eat or drink after this happens  Open to suggestions  Thank you 
    • sleuth
      Nicotine Gum For Gluten Symptoms.. Am I Crazy?

      By sleuth · Posted

      Of course my son is on a 100% gluten free diet.  I wish his symptoms were not debilitating as there are right now.  He cannot work, even when a miniscule of cross contamination occurs.  It's not just GI distress, but intense fatigue, brain fog, depression, anxiety, insomnia, etc.  It's literally neurological inflammation.  Not to be taken lightly here.  We have sought out many other possible ways to cope during this window of time (8 months!!!!)  without success.   AN-PEP does not help and seems like studies on this are not well researched.  So, we are trying this out because research shows some promising results.  And, all participants showed no cravings afterwards, no signs of addiction.  The patch is different than the oral route such as smoking, vaping, gum, pouch, etc. 
    • Scott Adams
      Nicotine Gum For Gluten Symptoms.. Am I Crazy?

      By Scott Adams · Posted

      Have you tried AN-PEP enzymes, for example, GlutenX (who is a sponsor here)? A lot of research has shown that it can break down small amounts of gluten in the stomach, before it reaches the intestines. It might be a better approach than risking nicotine addiction, and the questionable research around this. I also hope that he’s trying to be 100% Gluten-Free.
    • Me,Sue
      Nausea

      By Me,Sue · Posted

      Hi all  I was diagnosed Coeliac a few years ago and follow a gluten free diet. The list of foods that I can eat without a problem grows shorter on a weekly basis. [I also have diabetes and asthma also].  BUT the reason I am posting this is because I seem to struggle with nausea quite a lot, which is really quite debilitating, and I was wondering if others suffer from nausea, even if following a gluten free diet. 
    • sleuth
      Nicotine Gum For Gluten Symptoms.. Am I Crazy?

      By sleuth · Posted

      @fatjacksonthecat I have been doing some digging about the topic of nicotine and celiac.  I came across many studies that showed that the nicotine patch helped many with long covid and chronic fatigue syndrome.  I have a son who was diagnosed with celiac and his symptoms are severe when he is glutened.  He shows a lot of neurological inflammation and suffered with fatigue, brain fog, depression, anxiety and insomnia. There have been studies revealing that nicotine smoke actually masking celiac symptoms.  I also read that microdosing with a nictoine patch prevents one from addiction.  We are currently trying this out and so far it has lifted the brain fog and helped with anxiety and mood.  One of the studies I have read showed that it's not so much the dose, but the length of time a person is on the patch that showed improvements.  Many showed significant improvement as early as week 3 and continued through week 12.  We are taking 3 day breaks in between to make sure we don't down regulate the nicotine receptors.   How have things been for you?  Are you still chewing nicotine gum?  Perhaps, try the patch?  And how long did it take to ease up on your symptoms when glutened?
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.